Hehe, no problem asking about diagnosis - sometimes on fibro forums we do have people who have just or more ME/CFS, or who are still looking for a diagnosis…
Another place you can find who and how I am is my blog.
Ah, those social media… - can’t stand those!
Yeah, these forums are a kind of e-mail. On this one you can even turn mail notifications on, and then answer those mails inside your mail provider. But that way there’s many features you miss out on. Like the search function. And you could have edited your first post for 30 days - by clicking on the pencil icon bottom right. But I preferred reading your correction…! ![]()
Sounds a difficult situation with your brother’s family. Often we find that memes or stories, like on this thread Pics & Memes that visualize fibromyalgia and other invisible chronic pain illnesses - #97 by JayCS help, if reading information leaflets or going with you to the doctor’s (for them to explain it to them) isn’t viable. I’m glad you say you’re looking for therapy, that should help your general independence and find praps completely different pathways for yourself, but also different ways of communicating. Also to work on that traumatized feeling of lacking support and all the arguments and stress.
But yes, it’s also good to come here to not feel alone! There are/were actually a lot of people here who have to cope alone, so you’re not alone in feeling alone either. Differently to you they actually don’t have (hardly) anyone at all. So praps there is still a tiny spark of hope that you’ll be able to pull the relationship to 1-2 people in your family around. If you like you could also expand on where exactly their problem is, whether it was ever different, whether there are any starting points, like maybe the reason why you went to your brother’s in the first place.
I’m also very curious to hear all the details on your symptoms… ![]()