Falling Down

I have over the past 5 years have had some serious fall injuries causing ER visits, 82 stitches, pig intestine overlay, and hospitalizations. My doc now does not think this is related to fibro - "it could not be this severe". Therefore, I am now undergoing a full neuro work up inclusive of MRI's, gait assessments, dizziness tests, vision tests, hearing tests, etc. Don't they get it yet? This is a crippling disease that is unpredictable, it affects us without notice. However, I will not give up. I keep a cane at my side at all times to prevent future falls. I keep a walker at my bedside all of the time. Now ask me if I can get a man?

Claire

Claire,

He might be right. People with Fibromyalgia can still get other illnesses. I have been diagnosed with about 8 serious diseases that are separate from Fibro. Fibro does cause some clumsiness, and I have to use a walker, but it's best to rule out things like M.S. or other neurological problems. He may find something that there may be a treatment for. I'm just jealous (but happy for you) that you have a Dr. who cares and wants to find a cause and remedy. Mine is not like that at all.

Best wishes, Sheila

Here are some links about Ehlers Danlos Syndrome. I wanted to share because I have EDS and I fall a lot also due to both EDS and fibro. Since your doctors are checking so much, it wouldn't hurt to check through the symptoms and see if they could apply. Ehlers Danlos is a genetic connective tissue disorder that causes the body to make bad collagen which is everywhere in the body. It can affect any part of the body or any system. I have asthma because it affects the collagen in the fascia around my lungs. It's caused my joints to by hypermobile which causes me to fall a lot. Intestinal issues seem to be common in EDS. I have issues with skin also, and other things that aren't coming to mind because I'm foggy today lol. There are many possible symptoms and each person can be affected in many different ways so it doesn't present exactly the same in everyone. I wanted to share the info because it's not widely known about, even among medical professionals and they might not think to look for it.

This is probably one of the quickest to look at that also has the genes (the ones identified so far) listed.

http://en.wikipedia.org/wiki/Ehlers%E2%80%93Danlos_syndrome

This is one of the most comprehensive sites.
http://www.nlm.nih.gov/medlineplus/ehlersdanlossyndrome.html

This is an EDS community through the EDNF. It's probably where I have learned the most, through other people's experiences, including names of Dr/s experienced with it.
http://www.inspire.com/groups/ehlers-danlos-national-foundation/

This is an upcoming awareness campaign

https://www.edsers.com/

This is an awareness petition. We need a lot of signatures yet lol.

https://petitions.whitehouse.gov/petition/recognize-ehlers-danlos-syndrome-create-awareness-have-eds-recognized-disability/FFWRj66T?utm_source=wh.gov&utm_medium=shorturl&utm_campaign=shorturl

I just wanted to share because many doctors don't think to look for EDS. Hope this helps someone.

Susan W aka waters

Oh, maybe I read it wrong. I am so sorry! I was answering her question: Now ask me if I can get a man?

My apologies if I said something wrong.

I read it the same way you did GYN. I'm in my mid forties and married but my sister is single. She's a year younger than I am and probably has EDS like I do but doesn't have as many problems with it. We're both big girls though and many men don't look beyond outward appearance. I don't think you said anything wrong. We all just interpret things differently sometimes. Like I said, I read it the same way you did lol.

hugs

Water/Susan

No, Bobbie, you said nothing wrong. My apologies. It was my mistake. I must have subconsciosly blocked out that sentence. I didn't even see it for some reason, so I only saw the issues about the falls. I swear part of my brain is missing. The picture of the fibro brain in my pictures confirms it.

It is wierd how fibro can physically show in the brain.