Just trying to find out if it's "the norm" to have both. I don't EDS, but my friend does... so I'm kind of researching to understand better.
Although, it seem that Fibromyalgia "attaches itself" to ANY major medical disorder.... leech !
Renie ❤
I have just had a look at it because I have not heard of it before. I do have a couple of the symptoms of it that my rheumatologist has diagnosed such as hypermobility, easy bruising skin and a couple of others. Officially I have chronic pain syndrome, soft tissue rheumatism, hypermobility and a fibromyalgic overlay. Mikex
Hi mike,
There is a group for EDS. Google Ben's Friend's Patient Community Blog, click on groups and join, also know of a gal on PsA that battles it, so you are not alone! Reach out and join their group, they need your involvement!
Hi Mike,
I was just wondering as those I have talked to with EDS all have been diagnosed with Fibromyalgia also. It seems that ANY disease lately, also has a Fibro attachment. Intereresting.
I would maybe ask your Rheumatologist about you and EDS -- sounds similar to your diagnoses.
Good Luck, thanks for the response !
Renie ❤
SK, thanks for that info also. I've been trying to find out if it is warranted to start a group for EDS -- if there are enough patients that need it. Thank You !
Hugs,
Renie ❤
Good luck to you, Renie! I hope you find as much comfort there as I do here!
Feel better very soon!
SK
Renie,
Byrd Feeder on the PsA site has EDS, she had some nursing school, is very on the ball and may be a good perosn to talk to, not sure if she has joined the EDS group yet though, but you could leave her a message! Hope this helps!
SK
I will ask them when I next see them and let you know what they say. Mikex
Oh thanks Mike!!
your welcome :)