Fibromyalgia and Lupus

General
1

Hi, I have both Fibromyalgia and Lupus. I am not sure where one starts and the other ends. My Rheumy does not believe in Fibromyalgia. He said it is due to a misfire in the brain.

Does anyone have both? How are you handling it? I am not handling it very well at all.

2

Hello Petsway,

Having both must be very tricky, I know some members here do have both, so hopefully they will weigh in. My thoughts are, first find a rheumotologist who recognises Fibro ( in UK they are usually the ones that diagnose ), if that is possible for you. Then try a variety of approaches to manage the Fibro ( there are groups here that you might like to join, which will help you with this). I have a 'toolbox' different strategies which help, for instance, pacing, relaxation tapes, mindfulness, ACT (Acceptance Commitment Therapy), gentle stretches and Tai Chi. I don't take meds for pain, but I do take meds for depression. You need to find what works for you, it takes time and is all trial and error. Wish you well.

Take care Anne

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Hi . Sending you some good thoughts for your
well being
HUGGGGGGGGGS
Suzie

4

Hi, Petsway.
You’ve received great support from others here. I only want to add if you’re able to seek a second opinion from another doctor, it’s worth considering. Although its cause isn’t yet entirely clear, scientific-based evidence has proven Fibromyalgia is a very real condition and you deserve understanding, treatment and relief from pain and its’ symptoms. Also, if you haven’t yet, please check out our Lupus community. It’s a wonderful support for those with Lupus.
Hugs,
Laurie

1 Like
5

Thank you all for your supporting words. I am a member of the Lupus page too. My doctor is supposed to be a leader in his field. That is why I do not understand his reasoning. However, the treatment for the Lupus, in addition to the Gabapentin my internist prescribes, helps both symptoms to a point. My blood work on the Lupus is borderline and he is proactive in the treatment to prevent further damage. I guess I am just confused and want my life back. Again, Thanks for listening.