Thanks so much Sheila!
And very glad you’ve found something here that helps.
What I’m aiming for is that you cdve directly looked up glutamate and been lead to the link.
So I’d list “altered glutamate metabolism” as “glutamate metabolism altered”, plus I’m aiming for doing (3? and) one long alphabetical list, once that’s done. (Haven’t found the item myself yet tho )
Glad to hear any further suggestions.
Writing about FMS being symptom of sth. underlying cd even have been me myself! I haven’t read this much anywhere else, so it’d be great if you cd point me to the writer/quote (if nec per pm). One person who’d write it similar is Des Quinn of FMA UK.
If I take it at face value I cd retort that my experience is different: A centre for rare diseases suspected that Sjögren’s and Hashimoto’s were the real underlying conditions of my fibro. Both were examined closely: neither cd be confirmed. Also a spinal tap made sure no dangerous stuff like MS is involved. Then I have had every single smallest of symptoms checked by 45+ docs in 1.5 years (even urological, skin & allergies). The amount of my diagnoses went up a bit to 30+, but the only major ones were/are a non-growing spinal tumour and genetically high blood fats, both assessed as chance finding by all docs. So despite the fact that I had the feeling there was something else or underlying, no further issues could be found.
Then, I have managed to pinpoint, analyze, treat and alleviate many of my symptoms singly and thus get esp. my pains & GI problems down to almost zero. This wd make it seem that fibro is not one symptom of one underlying issue, but a collection of symptoms from many underlying issues. These could still be related, e.g. in my case problems with the muscle tone. And if I didn’t self-care and pace any more they’d all return, cos my general Ache wd worsen them. But it differentiates what the writer was talking about. Arguably I still have a remainder of esp. sleep, exhaustibility/energy and muscle tone problems which force me to reduce work to 15-20% and this might still be a symptom of one … or more underlying issues. On the other hand I’d always recommend to treat each single symptom alone and not focus on assuming it’s fibro just because other fibromites have this symptom. That’s also the snag about the symptom lists, as I say in that introduction.
My latest discovery, GABA, however, points in this direction of this way of thinking too. One supplement improves not only one of my toughest symptoms, 2 types of stiffness all day, but altogether improves 10+ symptoms since April 15th, where muscle tone seems to be a major connection between them. One of my underlying issues would then be low GABA. Finding the right dose isn’t easy at all, but I very much doubt this will get rid of everything. A lot of my symptoms have also been improved by acupressure, which is holistic and has had to target many single areas of my body.
Mainly, I’d think that there are underlying issues as in ‘cause-theories’, but they usually haven’t been found yet, neither by docs, incl. functional, nor physios, nor patients. When people say they have managed to heal fibro to date, I believe that the form of fibro-symptoms concerned are probably ‘easy’ and that it is a simple underlying issue. If it were that easy I and many others wd also be there already. Till then I’d recommend looking for underlying issues, since there’s nothing else we can do and since I’ve at least improved my quality of life that way.
I’d prefer to word it ‘some’, not ‘many’ to date.
Thanks very much for this pointer , I’ll add it to Causes: A. Theories. Ah, I’ve just seen my latest addition sleep disorder, like chronic pain before, is actually similar, so I’ll subordinate those two to your suggestion, as I was a bit dissatisfied how to put them…