JayCS’s Fibro Blog

Symptoms & Treatments
338

2021-05-06, Thursday, 3 good GABA-weeks

FEELING Well % / Pain 0-7 :left_right_arrow: DOING
Sleep: 90%/1 :left_right_arrow: 9h15, up 6x (1h35) :white_check_mark:
Activities: 90%/1 :left_right_arrow: 2h30 (digi-work 30’ sports 3h: TT 5:3) :white_check_mark:
Treatment: 90%/1 :left_right_arrow: 40’ (self) :white_check_mark:

Effects of GABA+3 today: Good. Glutamic acid still down to 1 pill. Hurting dry mouth as side effect. for the first time in 10 days.

Effects since April 15th of 1x 750mg GABA + 2x250mg Mg + 2x → 1x (from May 3rd on) 330mg glutamic acid + 2x290mg passion flower in the evenings:
Doesn’t seem to make a difference if I take it with or after the evening meal, or works less when after: on May 5th I took it quite a time after and had a very long sleep break at around 3:00.

  1. Stiffness after keeping in one position, e.g. sleeping, has been almost gone ever since taking it, even on ‘bad’ days, visibly as well. Only there a bit more than normal after sitting on the floor. Interesting cos it begs my idea that the muscle & tendon stiffness might lead to Ache and fatigue, which are better but not gone. Makes my twist-stretch-hack completely unnecessary, unless I just feel like stretching.
  2. Stiffness from overdoing it, e.g. when walking up stairs / needing to take a lift has been almost gone too, occasionally in the evenings.
  3. Sleep stints much longer (2-4h instead of 1-2h)/breaks much less (2-3 instead of 5-7), under an hour (instead of 1-2h), every night, but still there, still long sleep of about 9h. Ear plugs & eye mask still necessary. Still one longer break almost every night. Deeper, more refreshing, less disturbances, distractions, pains… so almost none of the “waker-stoppers” necessary any more.
  4. Wide awake, no drowsiness in the daytime. altho very drowsy (eyes half closed) upon waking up, but I can get myself to wake up much faster, and then feel refreshed. Decision if I still need to sleep or not faster. No need for a nap, hardly any itchy eyes or feverishness (30’ once in a few days). Exception: April 26th, praps due to first & different live work.
  5. Ache quite a bit better & less, but still distinctly there after 1-2h of exertion. Problems on Apr 30th, May 1st, May 3rd, improved again after taking only 1 glutamic acid pill. Arms still hurt a bit when getting up.
  6. Exhaustibility is quite a bit better & less, but still distinctly there. No longer problems with staircases. Rest after exertion definitely necessary, but not quite as soon and not quite as long, e.g. 30’ after 2h of exertion instead of 1h after 1h of exertion.
  7. Energy is quite a bit better & less, but still not considerably better. I am able to do a ‘7’-workout every day in 25’’ stints instead of only several times a month, but not the full 30’’ or 12’ altogether, and 6-8 games of table tennis every day, winning 5/6:3/2 but not 10 games winning 8/9:2/1 like in the best times of the last months.
  8. Bladder pain down from 80% of the time since the fibro full flare (“Oct” 2019), pain 3-6 to 20%, pain 1-3. Almost completely gone at least since evening of May 4th.
  9. Pee frequency down to completely normal, even if I drink a lot in the evenings, my bladder is just fuller, but urgency signals normal, which hasn’t been that way since about 10 years (problems at work and in holidays).
  10. Long mask wearing less of a problem
    Almost no side effects since April 29th:
  11. Weight gain seems slight up to now. 79kg Apr 20th, normally around 80 (after the amitriptyline weight gain went down, used to be around 77kg). Seemed 83 May 3rd, but 80 May 5th.
  12. Drama dreams the first week, now gone, but still sometimes vivid, if I can still catch them (May 6th 5:20 fairy tale town, where silver-clad pixies shot down out of their house and sped down the street, strange houses, buy a believe-pizza: no, didn’t want to; drank 1 pint of mineral water in one go to test my bladder - eh, no, in that dream).
  13. Dry mouth at night the first week, plus May 6th.
  14. Prickly lips & face for 5’ minutes the first 1-2x, then gone.
  15. Tingly-fluey feeling all over, esp. inside mouth the first 1-2x, then gone.
  16. Strong bowel movement the first time, then gone.
  17. Nose clotting differently the first 2 weeks, now better.
  18. Nose bleed 1.5x in the first week, then gone.
  19. Fluey-ill-feverish at night a few times in the first week, now gone.
  20. 2 stronger, 2 small focal seizures on April 23rd, altho GABA is sposed to stop seizures. Praps from the glutamic acid, or just my normal amount.

What isn’t necessarily better: pain pangs other than bladder, e.g. shoulder 5’ May 6th 5:20… Tooth/jaw ache is better as from May 5th, but if at all very slow improvement over the 3 weeks.
I can manage 6-8 games of table tennis again, before and I’m alert, but not as fast as everything else would imply, cf. “energy”.

No, it won’t be good for every fibromite with muscular problems. But it might be. And praps there’s something for you still waiting to be discovered - don’t give up looking! And if it doesn’t quite work - change the formula again and again. (But I’d suggest avoiding all side effects.)

Connections: excitability, muscle tone helps sleep and muscle tenseness, night and day.

FYI: IBS/hyperacid-elimination / Mediterranean / vegetarian-come-vegan diet, gluten-reduced, whole food, organic, a lot raw, nothing particularly processed.
Meds: blood pressure, blood fats, supps: D3 20,000, roseroot.

Next on my list: adjusting the amounts. Trying to add selene again. Ashwagandha. Serrapeptase.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) :left_right_arrow: (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep 21:30- 0:15p10’ fw:5’ 2:25p doze 2:55i1h10 fw:40’ hungry after 30’ → eat (eating early, but less, up too long) dozy 5:20p shoulder pain 5’ 7:00p 7:55p -8:20 2h30+8h20-1h35=9h15, up 6x (1h35)
Angiologist, cycling 30’, bus trip 2x30’, GP 30’, lots of mask wearing, still OK. Strange wind after gluten-containing muesli…
Work 16:45:30’ cycle-walk 2h15 despite cold.

Improving self-treatments: :white_check_mark: Timing, AuTr, Palpate, cold shower, Workout, Stretch, Yoga, Neck
:x: breath-hold
Fibro-work: 5’+40’ 13:00: 30’ 16:15:20’ = 1h35

Development: GABA etc. is still not enough for me to able to work anything like I used to, maybe 15h/wk.

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up w = awake, lbu: lower back unrest (‘RLS’?), p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point