Pain has been baaaad lately. I've been doing research, quizzes, testing, etc. I ranked high percentages (93%-98%) on "Do You Have MS?" as well as being diagnosed with FM in 09.12. Has anyone else ever taken a MS quiz? Has anyone talked to their Dr. or their Dr. brought the subject of MS up to them in illness consideration consoltation? I sometimes feel that "theese" symptoms are MS while "theese" are FM. Example: I have severe back pain, especially in my lower back that is a considerate spot for MS patients. As well as a lack of balance (I get asked a lot if I have been drinking). Also, FM has "fibrofog", but is it that or memory loss associated with MS? Stiffness, joint pain, lack of mobility, & weakness are also MS symptoms. I have felt better since diagnosed with FM. Like maybe I'm not a total wack-a-doodle, but can't help but to feel incomplete, like there's more to my symptoms than I can remember to explain to my Dr. This month, in March, 1 year ago is when my pain became so severe (couldn't get out of bed for days at a time & had to reshedule my Dr.'s apt. multiple times due to lack of mobility). Made me wonder, I have suffered since last March pain wise, but my pain right now is so severe, the worst since last March. I know there is a "cold intolerance" but is there a "spring intolorence"? I know that may sound strange. Is there anyone else like myself that feels the same way? Is there a certain season you feel worse in?
**Gentle Hugs & Thank You In Advance For Your Comments**
This should help answer at least one question. Talk to your Dr, write down symptoms to discuss with him, see if he wants to do brain MRI's. I've had 3 now, looking for MS, or SLE. So far, so good!
Hi Allie, and I'm sorry that you're facing the fear of MS on top of having fibro. It's a heavy burden to carry. Yes, I've had similar thoughts and worries but truthfully the two illnesses share enough symptoms to make a diagnosis difficult (not that we laymen could do so.) For instance, I was suffering from terrible spacisity in my left leg, plus some other MS symptoms too. Well, voila, as soon as the temperature went into the 40s, I could move my leg again after it being almost immobile around the knee for months! So, it turned out to be a fibro symptom.
The moral of my story is PLEASE don't do this to yourself by worrying yourself over what MIGHT be wrong. If you're that worried, bring your concerns to your doctor and see what he or she thinks. And remember, so many of fibro's symptoms mirror those of other autoimmune illnesses. If you still have lingering doubts after you've spoken to your doctor, you could always go to a rheumatologist, if you haven't already, and also keep track of your concerns. But please don't let your concerns eat away at you. It truly might be just the fibro.
I feel worse in the winter but all storms bother me. I think that everyone responds differently to the seasons. It'll be interesting to see how others respond!
My best to you. I know how terrible the fear of MS is. I feel for you, Allie. Don't let your fear own you.
Hi Allie … I’m one of the ones that suffer the most in the fall (starts Sept or Oct)depending on when the rain and ugly weather starts and continues through the winter. Almost always around the first day of spring, my symptoms start to lessen and pain lessens considerably, so fatigue gets a bit better. If we have a good summer (not all rain) it continues until it gets really hot in the summer (only about 3 weeks) when I t normally flares In Sept/Oct back in the cycle. Don’t know if this will continue, but taking advantage of it.
I’m sorry, you’ve got these concerns. I do have memory loss (my husband keeps asking if he has to wear a name tag) and most of the other symptoms you’ve described. Despite that if your “gut” is telling you that your Doctor may have missed something you really need to check it out with your doctor. Remember anxiety makes FM worse, better to check it out.
Once again, good advice, B2ching! You're absolutely right that it's most important to trust your gut about stuff like this and get things checked out. Hopefully though Allie's symptoms are "just" fibro (seems so odd to say "just" fibro) and further tests will rule out MS. It's easy for us to worry about having an auto-immune disease in addition to fibro, even if we don't. So hopefully her symptoms are completely fibro. Although from what I've read there are some new drugs for MS that really help some people with the disease.
I too share this and unfortinatly for me i never know if its my imagination cause my mom has a rare fast acting form of ms or if i really am developing it i was especially scared the other day due to spams in my right leg and my knee went numb i could move it but had that weired sensation like it was asleep and lack of feeling . cancelled dr appointment stoppped seeing my therapist cause it became too much. but cold weather and rain is what gets me the worst but last summer the excessive heat had me extremely xhausted and run down quickly but the last nice days we had last weekend i felt whole again only today to have pain in my back to the point of several medications ib profen my left over nerotin(supposed to be discarded) fibro and ms are greatly related and to me even if i dont have ms i dont think its coinsidental i would have fm considering my family medical history
I had an MRI done 1 year ago. I was up for another because the pain in my lower back has gotten worse. I have been diagnosed with Fibromyalgia as well as Genitive Spine & Disk Disease (from my Mothers side). I have 2 discs that are practically flat, & another oozing liquid that by looking at my MRI results, said he gives the other disc about a year before the 3rd one is also practically flat, hence the need for another MRI. Once the Dr. put in for my MRI through the insurance & requested authorization, I recieved a letter in the mail a week later stating that I & my Husband were going to be dropped from state insurance program. Idky. My Dr. has sent prior authorixations for the last year to my insurance for a tess machine (spelling), loratab 10s, pain patches for my back, sleep study, physical therapy, Lyrica etc. I'm gettjng my lyrica right now from my Dr.'s in office samples, Thank God!! My insurance kept kicking eerything back. We are moving out of Las Vegas, NV to the subburb of Phoenix. Hoping to meet some of you off of here that have checked into the member map & hopefully be able to see a great dr & rumetologist (spelling).
My Mom, Grandma (Moms Mom), & 21 year old Sister have it. No injury. No car accident. No slips. No falls. At least for me anyway. The best way I can describe it is it just showed up one day with my fibro & downward spiraled me through excrutiating pain, numbess, aggrivation, depression, & feelings of self doubt. Supposedly, the only way to correct it would be surgery, but even that has its risks of course. But the doc said my percentages are slim to none since out of surgery, recovered, that I'll feel a 20% decrease in pain. Like I said in my bio on here, I've been dealing with this pain since I was 20, i thought it was because of pregnancies, working my ass off, & never resting type of pain, not my body is deteriating type of pain. If I could remember where I put my MRI results, I would totally type up what it says, if I could remember where I put them of course, lol, joys of fibro fog!!