I tell you, I don't know which way to go anymore, the specialist at Hershey Medical center which is a very respected teaching hospital just told me that he isn't positive that MS is a factor, he said he wants to check for muscle disease, and lupus! I just want it to be over! I haven't worked since Jan and our finances are diminished. I have filed for SSDI only to be waiting on the hearing date.. I did hire an attorney, so I hope that this will help. I am at my wits end. I have tremors in my left hand and leg, lost most of the feeling in both,, the specialist said that the brain abnormality is not normal with a larger than average sign. I just want things to be diagnosed and get on with my life! Has anyone else had these rotten headaches, and loss of feeling and numbness in arm and legs> My legs are so heavy at times, I can barely walk.
Oh Jackie, I can understand how frustrating this all is. It is frustrating for the doctors as well to be sure they have diagnosed you correctly. The symptoms of FM are also the symptoms that "could" belong to other chronic illnesses. Try to be patient with your doctor as he carefully examines your symptoms. Try not to stress while your doctor tries so hard to diagnose you correctly. Stress is so hard on us and brings on pain so try to avoid stress if that is possible.
I guess I should have been clearer. I had been diagnosed with Fibro 2 years ago, This past June the nuero dr said he was pretty certain that I had ms. Now the specialists, is telling me no, but that the spot on the brain that is abnormal is very much growing and needs to be watched...Dr is checking now for lupus, and other conditions, I think that Fibro and Osteoporosis, osteoarthritis and degenerative joint disease is more than enough! Thank you for your concern, I just didn't want to mislead you,
hi jackie. sorry to hear what you are going through. i know how difficult it is to be dealing with it all. I have been disabled for 27 years with a severe case of cfids and all the rest of my list came on board after. I am glad that you have a lawyer to help you with your filing. Hopefully that will give you a leg up so to speak.From what lots of people have told me MS is not very easy to diagnose so it does not surprise me that the hospital is not positive. It sounds like they are being thorough putting you through lots of tests. I wish you to have all the strength and wherewithal you need. I have found a neurologist that i like to help me with pain and seizures. I have been on various drugs and i know how frustrating it can be to get it right . There is no 'one size fits all'..I am sending you loving, healing prayers.. XOXOXOOXOXOOX
Hi Jackie
I was diagoised with fibro many years before lupus. The road seams never ending at times. I hope you get your SSDI soon and that your doctor can help you soon. I have headaches and take lyrica . My legs have bothered me for years and I take meds for RLS.I will be thinking of you and hope you have answers soon.
Hi Jackie, unfortunately neither medical systems or governments move very fast; and as many on the site know misdiagnoses are made. . Although I know the delays, particularly if there are financial issues, are frustrating , it seems positive that you have found a doctor who wants to explore your medical issues. It’s important that a proper diagnosis is made so the illness can be treated properly.
I have headaches almost every night, and occasionally get numbness on one side of my head (may be a blind migraine) and in a leg or arm, but it’s more like they have fallen asleep. The feeling comes back fairly quickly in my arm and leg. usually with some pain. Your tremors and numbness sounds a lot worse and it’s really important you work with the doctor to identify your illness.
I hope that you get a diagnoses quickly and that your SSDI claim is settled soon.
Gentle hugs
Jackie, my friend, you have been through so much. I hope they can finally make up their minds about you and get you on a med that will help you.
I get some skull cracking headaches, if not from collapsed disks in my neck, then sinus headaches, and due to all of the spinal problems, I have lots of numbness, my hands and feet being the worst, again it's spinal from the Psoriatic Arthritis.
I have tremors come and go, they have done brain MRIs 3 times now, always clean, so my Internist thinks it's the Sjogren's syndrome, but who knows.
I hope that you can get in a better place with your health, get a solid diagnosis, get in some helpful meds, get your disability benefits and make all of the necessary adjustments!
We are ALL pulling for you.
Are you returning to Hershey, they have always been highly recommended?
Big hugs,
SK
I have the feelings you're describing and about as much help from the doctors as you seem to. I talked with my doctor about the tremors, and she showed me the list of side effects of some of my medications were tremors. It happened that I ran out of money and couldn't afford to refill my prescriptions for almost a month, and during the time I was off them, the tremors seemed to stop. I have since refilled the medicines and the tremors are back. Cymbalta and its similar drugs seem to cause these symptoms. I guess it's a choice of relief from one thing or side effects from the drugs. Oh, well.
I wish you luck with the SSDI.