gimpKat Introduction

I live in Northern California. I was raised in Idaho. I'm 30 years old and I have a 12 year old son and a 10 1/2 year old daughter.

Yesterday I saw a neurologist who is refering me to a rheumatologist for a possible fibromylgia diagnosis. I have found that I have a lot in common with people who have MS.

To keep things short, I think I'll just list my symptoms. I've been adding symptoms for almost 4 years now. It started with a car accident and became really progressive last year.

Sensory issues and pressure/cold pain left arm and left leg.

Headache, difficulty concentrating, burning headache; other times I also feel sharp, what feels like nerve pain in my head.

Shoulder inflammation and almost constant spasms.

Extremely bad spasms, irritated by moving; such as a car, airplane, boat. Spasms travel from one muscle to another. Spasms are dibilitating, they turn my head like I have turrets.

Tinging and/or vibration in the feet, up the leg.

Random patches of what feels like static electricity under the skin.

Random horrible shooting pains, mostly less than 10 seconds.

Stumbling to the side, feel like I'm momentarily going to fall.

Dropping things from twitching.

Only hearing the end of what someone says.

Inability to think of words, can describe them.

Difficulty walking on left leg.

After standing walking for awhile, legs refuse to lift, they feel heavy, but muscles don't feel tired.

I would like to know if this is similar symptoms to everyone else. I am currently taking baclofen, which was the only thing that has helped with the debilitating muscle spasms. I get thoracic epidural steroid injectios that are the only thing that has helped with the headaches.

I tried gabapentin and propanolol, which may have made me worse. It certianly did not improve my symptoms. At 1200 mg of gabapentin made me severely depressed. Doctor ignored me, so I fired him.

http://www.mayoclinic.com/health/fibromyalgia/DS00079

This will take you to the site that can give you lots of information.

Hi gimipykat,

Before you go too far, please realize that both fibro and lupus are very similar, and both are known as the great imitators. Please allow your Rheum the chance to go through the protocol and the time to properly diagnose you. These Doctors are very careful not to put you on meds for an autoimmune disease until they are absolutely certain that you have one!

http://en.wikipedia.org/wiki/The_great_imitator

You know someone has cognative issues when they misspell their own online name!

Yep, that's about right! Here for your comfort, Treasure7

WARM WELCOME
I’m so glad you have joined us :-). And introduced yourself

There are so many things that do need to be ruled out…
Take one day at a time, you will gain so much knowledge being here !
I love that you fired your dr…way to go :slight_smile:
Hugs &
Blessings
dee B

Hi neighbor! I live in SC :)

It is true that these conditions (I have autoimmune and fibro) love to imitate others, so the diagnosis can be long in coming and frustrating. We are here to provide a listening ear and comfort. Keep up the fight!

See that was meant to say fibro and MS, but lupus is also an imitator and I get 'fogged down' too!

I hope you get some good news soon!

Have you ever had a MRI or CAT Scan it could even be whiplash for your headaches try a drug called Topamax it taken daily to prevent migraines but you need baseline scans to rule out the obvious nasty things like tumors, spinal damage unless it's all guess work and being a mum tou don't get much time to yourself. Get a full panel of blood work done it's a matter of eliminating what you haven't to find out what you have. Get a knew Dr and get these tests run taking random meds is not going to help you you need a diagnosis if you think it's Fibro related see a Rhuematologist good luck

Yeah, I have had a lot of the regular testing done, nothing that points to anything. I can see the nerve inflammation on my nerve roots, but nothing that they would even mention on a result. I don't actually have migraines. I think my headaches are tension headaches, and nerve inflammation.

You can try some preventative medications that can help some people, there names are Topamax, Sandomigraine or some of the new meds for the actual headaches such as immigraine, relpax,Maxalt, everybody is different and it's trial and error but there is a chance one of these may help you Good Luck let me know how you go, unfortuntatly these don't work for me and I have to get my drugs from overseas as ergomine has been ceased in Australia, my only othere option is morphine injections along with largactil and stemitel for the nausea