I finally got some answers today regarding my blood tests. I don't have lupus or RA so I'm pretty sure that my Dr will tell me that I have fibromyalgia again.... The bad news is that I am extremely Vitamin D deficient which is causing pain and fatigue and I am going to start treatment today which is taking Vit D once a week for 12 weeks. Not so bad... The other bad news was that the Lyme Disease test came back positive and its now being sent off for a Western Blot test and if that comes back also positive then I have to be treated for it and I have had just about all the symptoms listed on the CDC page. So, once all this is straightened out I will know more of what is going on but since I was diagnosed with Fibromyalgia 11 years ago, I doubt this Dr will tell me I don't have it. I just hope that taking Vitamin D will give me more energy and less pain. If it is coupled with Lyme Disease and Fibro then it could be why I have been just overwhelmingly sick for such a long time. All I want is to have a good day. Is that too much to ask for? Some times I think it is. Thanks for letting me rant a bit... I am so frustrated with the male dr in my clinic because I talked to him about Lyme disease he lied to me saying he would test me for it, which he didn't, he said he was treating me for it which he gave me the correct antibiotic for one week instead of three and now I have to wait even longer to find out whether the next test is positive or not. I could be getting well right now rather than waiting for more test results if he had only done what he told me he was doing. I'm thankful to my other dr, she listened to me and did follow through with the test and others to find out what is going on with me. We are supposed to be able to trust our doctors to have our best interest in mind but how do you trust a dr again when he outright lies to your face? I don't have the answer to that but I am very angry with him.
Hello,
I too have a Vitamin D deficiency, the blood serum levels should be 80 - 150 apparently, mine in Sept 2012 were just 9, I've been on Vit D capsules from the Dr since then, it's only gone up to 24.
I spoke to my Dr about it today and apparently the up-take in the body of Vit D suppliments is slow!
It has to get into the fat cells first, to a certain level, before it then gets to work on bony pain and exhaustion!
I have been told today to double my dose for a month, to boost my system, but was warned that it can take up to 2 years before blood levels become normal, so, sorry! don't expect quick results!!
My capsules are 10000iu, which I take daily, to now double this for one month.
Then, he said, I'll likely be on a maintenance dose for life.
Just thought I'd share what I learnt today with you.
Wishing you well,
Love Lucy xx
I have a history of Vit. D and Vit. B-12 deficiencies. I take the Vit. D daily and I give myself a B-12 shot every month. The pain is not much better because of this and it has been a couple years:( but, I will continue treatment as planned.
hello poohgirl, and first, don't worry about what tests say. Listen to your own body and heart! You know when something isn't right.
I have found vitamin D to be really helpful with chronic pain. And, since I have other issues and the appetite of a bird, my B12 is always low, so supplementing that helps with more energy and also nerve pain! Shots act the quickest, but right now I'm using the sublingual tablets daily. Doing what we can to help ourselves is so important.
I have fired and left the practice of a couple of doctors because I felt I could not trust them, and didn't see eye to eye on how we could work together for better wellness. My advice would be to stay put until you know more, then begin finding someone who is a better fit. Once the trust is broken, I know I am unable to find it again.
I'm sorry you have to go through all of this, and hope your feeling better really soon. Lyme disease is nothing to play around with and left untreated long term is a nasty bugger. hugs!
Hi poohgurl,
So sorry to hear the Lyme dx, but knowing means you can begin treatment, we have a great group on Lyme here on Ben's Friends, here is the link, though I do not personally have it, we live in a rural area and have pulled ticks off each other and the grand kids, which is terrifying. Here is that link, we would like for you to remain with us, but you may also wish to join them, the info is very good there. http://www.lymediseasesupportnetwork.org
So very many of the people with fibro seem to be D deficient, I hope adding this will help you tremendously.
Sending a big hug your way;,
SK
They should be held accountable when they do not run a test they are specifically asked to run. I am so glad to finally have a female dr ...ugh
Lyme disease...very common here, can be tough to diagnose with false positives and false negatives. Also, the tests don't pick up other tick diseases. See if you can get tested by Iphigenex, reportedly most accurate for Lyme, dk if it tests for the others like babesiosis, etc.
Most of us who live in the northern states can become deficient in vitamin D due to lack of sun many months of the year. Sounds like you will now get that under control - it does help with muscle and joint pain.
So proud that you were being your best advocate and getting the other doctor to test you properly. I’m just glad that you don’t have additional conditions, as I’m sure you are suffering enough already! Hope the test gets done soon! hugs ~ Sandi 