Hello! Question, what is your Fibro day like?

Tough one for me to answer, as it’s all baby steps :baby: progress :arrow_upper_right: at a low :low_brightness: level :smiley_cat:, which means my blog tries to answer it anew everyday, that and my new high- & lowlights of the week try to show the steps plus the blog-summary the overall progress.
I’ll try to put it in 2 :coconut: nutshells. I would say that my fibro developed as Ache and tiredness starting 2011 and ended in a full flare Dec19, which I have been in since. My symptoms are very similar to yours, @Freedom, @Chameleona and @SueT. However what I thought was joints was mainly the tendons. Less burning and tingling, but also sleep, stiffness (which you just haven’t mentioned, I know), exhaustibility, many GI & bladder problems. Because of continual treatment (avg. 5h/wk) and self-treatments (10h/wk), mainly physio stuff and GABA, self-care, pacing (10h/wk of work, i.e. 20%) I have got all my symptoms down to usually 1 of 7 pain (my wife says 7 is others’ 12) and I say I am feeling 90% well most of the time, night and day (again my wife would considerably tone that down… [edit 90% → 50%]). If I’d stop all this and lived like I used to I would be back up to 4-5 of 7, which might be 7-8 on other’s scales. That’s why I consider this as being still in a continual full flare and not ‘healed’ in any way. I had been on sick leave for 10 months last year, then tested and found this level of work to be OK, but in March/April my sleep problems got so back I had to go on sick leave for a month again, but apart from that I’m pretty stable, my body is reliable enough. Thankfully it’s not a desk job, at least not one where I have to sit a lot, I need to be able to change my position regularly. Sitting is what I’m targeting at the moment. When working digitally at home I can lie down or change positions more often. Tiredness is a problem if I can’t sleep like I need to, esp. on the one day a week I have to get up early, so I’ve sorted out that I only have to get up at 9:00 at the earliest in 2 months. People apart from my wife can’t see my symptoms, so I tell them all the time. It’s not faking tho, it’s just that I’m a cheerful optimistic guy and have had pain all my life and got used to it and thus don’t need or want meds (which only harm me anyway). At the moment a lot of colleagues have been asking me, even regularly, so I’m getting into a routine for quick answers (at the moment “stable at a low level”), praps going a little deeper and then asking back “and yourself?” unless they want to delve out more details.

… Would you agree that this is still a full flare I’m in, or how would you describe it?

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