I am sooooooooo fatigued right now. So I am introducing myself here with all I just typed on my profile. I apologize for copying and pasting. I hope maybe some of you can help me and maybe in time I can help others.
I was just diagnosed. I am told I am in a severe flare up. I am under an intense amount of life stresses. My pain is immeasurable and my fatigue at times is also crippling. My mental capacity has gone down greatly as well as other concerns that I'm now wondering if they are related to this illness.
I do have other illnesses as well. (Anxiety, Depression, mild OCD, Restless Legs Syndrome, IBS, Acid Reflux, Sleep Apnea, and Hypertension/High Cholesterol/Obesity). However, I have come to the realization that there is a possible chance that some diagnosis that I have not mentioned here on my profile are not true and maybe just part if fibro and other illnesses and therefore I have been mistreated and over medication and poorly managed in a severe way. (This being psychiatrically)
I believe I have had fibromyalgia for a few years but felt flu like symptoms and I just felt sick for quite awhile. But now its just so much WORSE, I'm in severe crippling pain and fatigue daily which finally led to my diagnosis. I also cannot seem to remember things, concentrate, speak clearly at times, do clearly "stupid" things that I normally would have always known better. Like obvious illogical things. I forget how to spell words I could always spell. I forget the names of things when talking. I can't read books anymore. I am irritable, emotional. So many factors involved that I feel are not being addressed and I need so much guidance and feel I don't know where to turn to truly get my questions answered, get a true plan of action for feeling better, and where to go for real help.
Fibro 101 has some great info, and the group mindfulness and relaxation techniques has some articles for releaving stress. You can find it by going to the groups tab at the top of the page. I am glad you have joined us.
Great suggestion/advice from purple . I can relate to many of your symptoms and for me a neurologist has been most helpful .all the best
HUGGGGGS
Suzie
Just weighing in to show my support. Many of us on here have learnt how to manage symptoms more successfully with ways other than meds, so you will find a lot of advice and information here. It can take a while to get meds right, too, and so frustrating if the professionals aren't managing your care well. So hang in there, try to remain positive ( easier said than done, I know). Feel free to ask questions as well. I wish you well.
I am also new to this site. I can relate to most of your experiences. I'm still learning how to manage my pain and my life, but I'm currently searching for a pain management doctor and a weekly support group. A lot of people on this site have recommended a pain management doctor. The online support is also helpful for the days you may be too ill or fatigued to participate in person. I'm also trying to apply for Disability while trying to find a less stressful job. I don't have any family or social support, but hope you do. Allow yourself the time to heal and lean on the support of others. Don't beat yourself up about the days you seem less productive, but allow time to focus on self-care. This is a new normal that we will have to get used to, but I have to believe that we will learn how to survive and get through it.