In it, Scott Orn tells how BF rose as a major player on rare disease support before sharing tips and advice for would-be social entrepreneurs on creating impact in spite of a meager budget.
Some of our members who read the article commented on how their lives have changed for the better because of BF's work.
You may want to do the same!
Please take a few minutes to read the article then share who you are and how has being a part of your community impacted your life.
This group has given me a lot of information about this condition, but more than that it has allowed me to share my problems, and in this way helped me through my day. It has usefully occupied part of my day, allowing me to communicate,and generally connect with others who understand my condition, particularly as I live alone, and can go days without seeing or speaking to another human being. In these ways it has helped me cope with my pain. What more can I say?
I haven’t been a member for that long, however finding the site has made me realize that I don’t just have to “live” with fibromyalgia which I’ve been doing for probably 25 years. It’s the first time I actually have had contact with others that have fibromyalgia. I’ve learned a lot from the very caring people on this site, both about what I can do for myself, products that might assist and what various medical professionals can do for me. I’ve been made aware of things I need investigate further to see if they will work for me.
I normally have a fairly positive attitude, because like many on this site, I’m glad to be alive, although I probably shouldn’t have survived a medical crisis. It scares me that new members coming to the site often think that fibromyalgia is the death of their lives and dreams and hope they all find out from this site that although their lives may have to change there are things they can do and dreams they can achieve. I love the positive attitude and support of the members, and all the moderators, and hope that I can support others through their journey on this site.
I had suffered from many of the symptoms of fibro for a number of years before I was diagnosed. When I was finally told that I had fibro my Dr wisely suggested that I found an online group for information and support. I was sceptical at first, being used to coping on my own. How wrong I was. I have learned so much from this site. Not just medical information, but also how to be optomistic rather that feeling defeated by my condition. I would like to say that things have been plain sailing since those very early days. Instead, I have to admit that life has become very much like a roller coaster, ups and downs and more than a few bumps along the way. I cannot seem to make my family understand that I am not being selfish when I can't cater to their every whim and always do the things that they want when they want. This along with everything else has made me feel very down But every day since I have joined I have received notification of the discussions of this board from one moderator or another. I try to read at least one each day, although I don't feel that I can contribute at the moment. But just knowing that I am not the only one going through this helps. I value the knowledge, the optimism, the courage and the humour that you all share more than I can say.
Ben's Friends social development work is captured in this awesome Harvard Business Review article Deliver Big Impact on a Small Budget.