I’m Rasheena, over the past couple years I would experience numbness n tingling all over my body. It kept getting worse n severe that a simple touch felt like I was being shocked. I suffer from chronic migraines n they themselves intensified and became unbreakable…Did the botox shots for migraine until this summer I ended up in hospital for a month due to adrenal gland deficiency. Pain became more excruciating n unbearable to sit stand sleep…even developed tmj. Thankfully a Dr sent me to an rheumatologist… n here I am today… I’ve accepted it I do have hope but I need to learn How to live n not his exist with it…
Hi Rasheena,
Welcome! : ) It is good to have hope, because hope keeps us going. Even though we live with daily pain, struggles and chronic symptoms, we are strong and keep striving to feel our best every day. Have you found anything that helps with your pain or a daily routine that you complete? I find that a hot bath every night can help reduce my pain the next day and stress level, which high stress can cause Fibro to flare. My struggle has also been to find ways to learn how to live and not just exist with this diagnosis. I find that sometimes I feel like I am just exisiting, but I realize I have so many things to be thankful for that make life worth getting up for daily.
Sara
Hi Ladecia
Remember to always take time for yourself and reduce stress as much as possible. Fibro 101 has some good info. Finding the right things that work for you may take awhile but I know you can do it. I look forward to getting to know you.
Sara I haven’t found anything yet…when my body feels like it on fire with nerves bouncing all over I big gulp slushy helps soothe me. My psychologist is helping me learn to live n get a better understanding to deal with the chronic pain n fibro fog…also teaching me to ASK for help…the people in my life that I’ve told has been so helpful n positive with helping me get out house. We do have so much to b greatfull …
Purplebutterfly, I’m learning to take time f pop r me n take care of me…I don’t even have the strength to argue nor fight cause I’ve been eliminating drama that would cause me stress since it causes major flares.
Hi Rasheena and welcome again! Over the years I have found that controlling my stress level as much as possible and getting enough sleep are the two things most important things to help with symptom control. Also, as others mentioned, it is important to take time for yourself. Please keep us updated on how you are doing. Hugs!
Welcome to the group Ladecia. I’ve had this diagnosis since 2010 and it’s no joke. I have tried many things. There is a lot of trial and error because we are all different with what helps us. Just don’t give up on trying to feel better. When you feel frustrated you know you have people that understand right here any time of day or night. Good luck!
Auburnm n Connie ty both. I’m trying to find things that’ll help or bring comfort but it’s difficult… I don’t sleep due to discomfort. They had me on trazadone but switch me to clonopin which is worse. Yesterday I stayed laying down on a deep tissue heating pad…my psychologist suggest I hit the gym again as I was very athletic before getting sick. Even hurting to walking trying to stay positive but I can’t even control my own emotions crying when I’m mad I feel emotionless or blah most days… days I know isolate myself from the world…
Ladecia
Welcome Rasheena. There are lots of resources here from Fibro 101 to general discussions amongst the members that provide oodles of ideas in learning to live with fibro. The process in finding the right balance to manage pain and maintain lifestyle is often a trial and error sort of process, and as long as you are willing to give it time and be gentle with yourself, that balance will come. I hope this group will help with you finding your balance. Hugs and again, welcome.
Welcome, Rasheena.
You have a whole community of support behind you. Remember to be kind to yourself and try to keep stress to a minimum whenever possible.
Hugs,
Laurie