Welcome to the Living with Fibromyalgia Community! I’m glad that you have chosen to connect with this community. It sounds like you have had a lot of difficulties due to the severity of your condition. I hope you will be able to find some relief and support through the people here. If you feel up for it, creating your own discussion post using the “+ New Topic” button can be a great way to engage with the community. It is a good opportunity to introduce yourself to everyone. Please feel free to reach out if you have any questions!
Hi, Julez!
Pain is manageable, for the most part, today. That is, if I don’t move too much - LOL
How are you? I read your bio, and your migraines sound terrible. I hope that you are able to get them under control and have a good doctor that is helping. Have they suggested different treatments for you? I have a friend that has Botox injections that bring her relief. Hang in there!!!
Sorry I take so long to reply. Thank you Very much for the message glad to hear that your pain was manageable , how is it now? And what do you find most helpful to do to relieve flares?
Yes, these migraines are a real stick in the mud. Aimovig was an option, but I can’t accord it, also I’m fearful to try it as it is a new drug and can have worsening side effects. It is a subcutaneous injection and lasts one month. If I react to it, I’m stuck with worse symptoms for month. At this point, I can’t afford for things to get worse for me, so I am major hesitant. I also have meds and ice. Lots of ice
I have also decided to ditch the botox Injections because the last two injections have not given much relief, as well, I am experiencing some atrophying neck muscles.
I am now seeking massage therapy and cupping therapy in hopes to relieve the stiff muscles that keep me stuck in this viscous cycle. I can do lidocaine injections, as well. Those sometimes help.
Wow, Julez, you have really tried a lot of therapies! I sincerely hope that they find the right thing that works for you! Fioricet is the only med that will help my headaches, although I have to be careful and not take too much of it, along with my other medications. I think you are very wise to weigh the risks of taking a new drug, especially when a bad reaction could last for a month! Massages can be helpful - I hope that gives you some relief. Let me know how it goes.
Ice is good! - I need to get the ice pack out more! Or, I could go outside and lay on the ground, LOL - We’ve been having an ice storm here in Oklahoma!!!
I take low doses of several meds for my fibro pain - Gabapentin, Cymbalta, Baclofen, Amitriptyline, Oxycodone & I’m also on Buspirone to help with anxiety. Additionally, I get epidural injections and nerve blocks when needed. I’ve had two neck surgeries (4 discs fused with rods & a plate) and thumb joint replacements in both hands - My feet will probably be next…Much pain from bunions & bone spurs. It is kind of crazy how the fibro remembers and magnifies the pain in our bodies.
I’m not doing great right now - high anxiety, so I’m coping with that as well as possible…It is difficult to live in pain without having depression or anxiety - or both!
Wishing you better days ahead!
glad to hear that your pain was manageable , how is it now? And what do you find most helpful to do to relieve flares?