My name is Lucretia, 33, 4 kids, recently engaged… and I feel like my body is falling apart! My Neurologist thought I had MS, but a clean MRI proved not. He said it could be fibromyalgia, but he won’t call it that because other drs would not take my symptoms seriously. So he has me on trazodone for now. For awhile I thought I was crazy. No one understands the pain, anxiety or fatigue I feel. Not sure what else to write, but thanks for accepting me! 
Luc
Thank you! He prescribed trazodone to help me fall asleep and get better sleep.
welcome to this lovely site. will chat at you another time. HUGGGGGS
suzie
Hi Lucretia, I feel your pain. It took me years of suffering to get diagnosed. I have since moved from that state and Dr. back to Las Vegas. I’ve been back for 3 years now and still haven’t found a Dr. that takes this seriously or totally believes in it! It’s ridiculous and I wish you luck in recieving a firm diagnosis and a good care team.
Welcome Luc. Glad you made it here. This is a great forum. Everyone is kind and resourceful. I know you’ll find support and hopefully answers.
Laurie
Thank you all!
Hi Luc
So glad you’re here. Hang in there, once you find the things that help it should lessen… Pain fatigue etc.
This group is awesome. I just love it. I’m sure you will too.
Joy
Welcome Lucretia. You have found the right place for people to understand your pain, anxiety and fatigue. We all experience it on a daily basis. Congratulations on your engagement.
Stacey
I usually see a nurse practitioner, but when all of this started I went to a local Dr. He tested for lyme, lupus, thyroid, vitamin deficiency, among other things. Everything was good. So he told me to research depression and put me on an antidepressant and b-12. After that didnt help, he referred me to a neurologist. He had more blood work done, hiv, hepatitis, syphilis. … I mean EVERYTHING! all was good so had an MRI with and without contrast of my brain, c-spine and thoracic spine. After all was good there, he put me on trazodone and told me to keep a journal. So thats where I’m at now. I do sleep better, but thats about it. I keep a journal and hope it all goes away. Lol I’m ready to be me again. I think I will ask about a rheumatologist. I know no one wants an illness, but at least with a diagnosis I wont have to wonder or think iI’mm crazy. Then I can focus on managing it. Thank you, its nice not to feel alone.
I’ve been looking today and found a couple rheumatologist, So hopefully it won’t take to long to get an appointment.
Hi Luc,
Welcome to the group! Oh we understand the pain, anxiety and fatigue, and people thinking you're crazy, including our own selves at times!
Glad the MRIs came up clean, I've had 3 now, suspecting MS, SLE, or who knows what, and all are clear! My problems went into the autoimmune arthritis area, and that was finally diagnosed MANY years later by a Rheumatologist.
Hopefully the med will offer you some relief. It's a trial and error experience to find the right med, and the right dose!
Glad to have you here with us!
SK
Thank you!
Hi Luc and welcome! You don't to even need to write anything more than you have because you've said it all - that is, you've summed up both yours AND our symptoms and treatment at many doctors' hands. You are NOT NOT crazy, you are suffering from an invisible illness that completely s**ks! We DO understand you, and the pain, anxiety and fatigue you feel. You have found your way "home." Here at livingwithfibro we try to validate every member's feelings so they no longer feel alone, marginalized or crazy.
Your neurologist is wrong, other doctors will take your symptoms seriously, however, you may have to really LOOK for them. They are out there. They do exist. It takes a while of looking. Most of us have seen 5, even 10 doctors before being correctly diagnosed and treated.
Does the trazadone help to reduce your pain? I say reduce because no medicine completely eradicates it. If not, you are within your rights to ask for something else or a higher dosage. You are also within your rights to look for another doctor if you feel yours is not taking you seriously enough. Let me add that I am not a medical doctor, so this is all from a layperson's mouth.
Your doctor's refusal to call it fibro means that if you ever need to file for disability, you will likely be rejected if his notes do not list fibro as a diagnosis. This is just something to put in the back of your mind for later, in case it comes to that. It may not.
I would write more but my arms get so sore and tired these days, even after only writing a few paragraphs.
Please be sure to return again. I think you will find this group very helpful in dealing with your fibro.
Gentle hugs,
Petunia
I agree, PCPs can often be the ones to listen to us and believe us. They also can manage our care quite well. I hope that others who still haven't found the right doctor keep trying and find one to help them. There is no way on earth you can tackle this beast alone.
Oh, Lovett, GREAT post! You are definitely on your game! Thanks so much for mentioning all of this to Luc as she will benefit greatly from your suggestions. I swear, we need to have a page made up for new people telling them things like this to help them along.
Yep, you're sure right. You need a diagnosis so you know what you're working on. And focus on managing it.
You know, it's odd, Lovett but not everyone "passes" the 18 tender point test. My muscles in my back were so tight that no one could press hard enough on them to make me flinch. Oh, I do now at the neck and back, but it took quite a while. So I think it's important to add that it could still be fibro even if not all of the tender points are (currently) hurting. My knee and elbow ones were wicked bad and my doc figured out my diagnosis from there.
Faye, have you tried asking members on this forum for help? You could start a thread seeking info on good docs in Las Vegas. Meanwhile, i found my rheumatologist by googling "rheumatologist, my city and state, and fibro." then when I had several names pop up, I entered the doctor's name and the word "ratings" or "reviews." You could also try the word "malpractice" or "lawsuits."