Undiagnosed

Hi! I’m Rose, I’m 16, and I am undiagnosed. I have been dealing with this for the last 3 years, it started my freshman year of high school, and is still continuing into my junior year. To summarize my symptoms: horrible fatigue, constant pain (everywhere), trouble falling and staying asleep, memory problems, depression, etc. I have already seen a rheumatologist and she said, and I quote, “work on your coping skills.” I have been to an immunologist/allergist, as well as a therapist, and my normal doctor, all of whom practically laugh when I say I believe I have Fibro. I have been tested for lyme, for lupus, for arthritis, autoimmune disorders, etc. I excersise, I drink water, I eat healthy. My parents no longer believe me and my siblings claim I am a hypochondriac, I’m alone in this, and I would like to talk to someone who won’t laugh at me. That’s my introduction, would love to talk!

Hey Rose, what a frustrating situation to be in. My heart goes out to you, you are certainly not alone! I am not terribly familiar with the american medical system, but here are some recommended docs in Florida. Maybe one of them could help you out?

http://forum.livingwithfibro.org/search?q=florida%20category%3A9

It seems a lot of our members have to fight to have their symptoms recognized and voices heard :frowning: We are here for you along the way!

Meli from Mod Support

Wow! It’s so nice to hear from someone, I’m eternally grateful for the reply! I’ll make sure to check your link! Thank you :yum:

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Hi Rose,
I completely understand where you are coming from. I was only diagnosed in August of this year, but have been going through the symptoms since I was 11, (I’m now 33). I have been tested for everything possible, seen every dr I could, and taken every medications there is to man, and never got any answers to anything until this year when I told my dr I had enough. The problem with me getting my diagnosis is that when ever they would do the testing, would be when I had no flare up. In the last year alone I have had 3 MRI, 2 CT scans, and billions of blood work, then they told me that it was a pinched nerves in my neck, then they changed it to that I had arthritis in the bottom of my spine, to having a herniated disc in my lower back. And then all of a sudden they caught me during a flare up and realized that it was fibromyalgia. So trust me when I say if you feel you have fibro then don’t back down. And I know it is hard when you don’t have the support of family, but no one knows your body better than you.

Hi Rose I feel exactly the same way I’m afraid to say to anyone that I have mild fibromyalgia they thought it was ms but he Marais revealed that it wasn’t but they don’t know what it is I hope that you get it diagnosed soon and can get some help I also exercise eat healthy and try to live a healthier lifestyle as possible when you can’t sleep you were very tired

I’m new to this site. I have not been diagnosed. I haven’t worked in a month and a half. I was working 6 days a week getting up at 4am. I don’t know what happened. My back hurts, my neck hurts right below my hair line down, my shoulders hurt, legs hurt, and my stomach seems to get upset easily having to use the restroom. I either go to sleep then wake up around 2 or 3 am hurting or I can’t sleep. I have absolutely no energy I’m so exhausted just taking a shower im out of breath. I’m not doing my duties as a wife at home as far as cleaning and such. It’s causing friction between me and my husband. The pain has made me isolate myself from friends, family, and society. I feel anxious going in any public place. If i am in a stresful situation my neck and shoulders tense up and i have to make an exit fast. I find myself going to my bedroom away from everyone (my family) :frowning: I’m going insane. Someone mentioned to me they thought I might have fybro. Any input would be greatly appreciated on if this could be something else. I have no insurance. Worried about cost of meds.