Hello all, recently diagnosed so I don't know how worse or better my fibro and cfs will get. Also have what my Dr calls "Low Mood", think she's stopping short of saying i'm depressed.
Fibro is supposed to be rare in men, any male members here.
Any experiences or advice will always be appreciated.
I have fibro and have only had it 2 years . Mine gets really bad, it seems to really hit me in my back. My back isn’t that bad according to my MRI. I’ll just cry… The spells seem to be getting worse? Can someone explain that to me. Please:)
26 Yrs for me and I’m a male,i think.lol
yes, we are out there and here. It like winning a lottery in reverse but not the end of the world. Have had Fibro and CFatigue for 6 years. Went from a 100% active construction foreman specialist to humility in real time. I have tried most everything sane approach from Syracuse to Manhattan NY. I know no two chemical systems are completely alike so the following may or may not help you.
The best thing I have found to take the edge off of the pain is a med called Soma (genetic name). Ask your doctor about it if you have not tried it.
Though the following is all non med, you should still consult your doctor if considering the following. Only recently have I found some relief in taking a combination of:
ProHealth brand - Mitochondria IGNITE with NT factor. 3 pills - 3 times a day,
Mannatech brand AMBROTOSE AO (glyco-Antioxidant supplement). 1 pill - 2 times a day
GNC brand Multi Mega Minerals. 1 pill - 1 time a day
Due to the insomnia I have recently ordered FibroSleep™ by ProHealth as I am hoping to get away from the sleep meds (and their side effects) used for more than 6 years now for a more natural non chemical alternative.
In my search I was asked by many doctors if I was depressed and I was honest in telling them I was not, that I had hope and my faith leads to great hope. I even went to a head doctor to talk to at a request in appeasement and was diagnosed as non depressed. If nothing else let me encourage you that there is always hope. Life is about choices and our choices form our perspective. Depression lies in hopelessness, and fear and torment thrive in the unknown. But perfect love casts out fear :0) It is not a blind faith that has brought me through this trying time, but I have experienced Gods power first hand, the hope that I have found is outside of myself and in Jesus Christ. For what I have been unable to do for myself I have yielded to Him, and he has brought me through faithfully knowing that as I cling to Him and His promises I will walk out of this dark tunnel of a world into a greater life with Him, where there will be no more suffering, pain, tears, or hurt but joy everlasting :0)
Blessings and prayers for you my friend,
John 3:16
|
So if the Son sets you free, you will be free indeed.
|
Hi Avenk,
I am on gabepentin ,cymbalta, norco, and Wellbutrin ,buspar.
My last spell my back hurt so bad I didn’t know how I was going to get thru the day. I have never been in so much pain.
I’m in the process of changing drs again. It’s been crazy, then this whole insurance thing. Omg!
Hi Tony,
Hard to know what to say, exactly, as FM is a unique experience. I've had it for 25 years, now 65 y.o. No meds except generic Ambien for 10 years. I'm reluctant to describe my symptoms and severity, though I will say that I have found pain at times to be 8 or 9 out of 10 in my lower back, legs, and feet. If you want a description in detail, feel free to ask. Psychologically, I will have a day of odd anxiety or really bad depression with no external stimulus once a month or so. I have started trying various supplements for pain, no luck yet.
Good luck.
Hi Tony and welcome!
I'm not a male here but wanted to drop by and say "hi!" anyway. It's really great to have the male perspective on this illness as well as the female.
It's been said that many men do actually suffer from fibro but suffer it in silence. All I can say is, "How???" I would surely hope that no one would suffer it and never seek help or admit to it! That would be horrible, awful. No one deserves to suffer like that. So I'm really quite grateful to all of you men who speak up and speak out. You also need support and medical assistance!
I hope you stick around and join in on our conversations. It's great having you here.
Petunia Girl
Amen! I share the same hope. It is what gets me thru the days. I can honestly say, I have never said why me? I say what's next Lord?
Thanks for sharing.
Jackie S.