JayCS’s Fibro Blog

2022-11-06, Sunday - Energy 25% / Sleep 85% / Feeling 80%-ish

ToDo:
:ambulance: 5’ Worry time, 5’ plan time, 1-2h me time. :face_with_monocle:/ :white_check_mark:
:ambulance: 15’ max. without sleeping. :white_check_mark:
:ambulance: Try keeping eyes open as long as possible .:face_with_monocle:
:ambulance: Stop sitting on hard surfaces.:white_check_mark:
:ambulance: Back exercises evening and short at night. :white_check_mark:
:ambulance: Set alarm to limit longer night breaks. :white_check_mark: (longest break 35’, but should still have set an alarm first.)
:ambulance: Find if/how palpitation acupressure works.(:white_check_mark:)
:ambulance: Use eye mask & dark room more if I’m late.:white_check_mark:
:ambulance: Need to roll out my mat at least twice a day to make sure I remember enough back exercises. :white_check_mark:
:ambulance: Xylit powder after meals for teeth! :white_check_mark:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 7h58, up 6x (1h18), deep for 6h 🧐 ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 0% stuffy 100% of the night, praps airing less, more HWB.

A3 teeth ?cold shower ?p0 Sleep 00:40- Why not 21:00? Introductory post on vaccine thread. But at least now I’m dead knackered.
ear plugs?
Memos: Lower Back: Back exercises in short stints, 6 free/chair, twist-stretched. backstretching. Yoga & hanging. massager.
2:00 5’ 80%/1/10% p0 st1 sip fw1’ deep air A4
3:30 35’ 80%/1/10% p0 st1 sip fw30’ deep air HWB. Psyllium. - teeth OK? Yes, I think so, but stomach worse rather than better. And fw was a waste of time, whilst it got some thoughts down, it brought my tension ever soslightly up, which is enough to stop me from being able to sleep. FORGOT ALARM!
4:40 5’ 80%/1/10% p0 st1 sip fw1’ doze Try YoNi first, then FCS if nec.
6:47 5’ 80%/1/10% p0 st1 sip fw1’ deep FCS wasn’t nec. HWB#3
8:31 15’ 80%/1/10% p0 st1 sip fw5’ deep psyllium#2, bit stomach unrest like #1, but OK. Firm stools, so more liquid than 1cm for one or half a spoon will be OK. Eyemask, plugs… thinking a bit about the post answering my ‘plight’. ->A’sYoNi15’
9:31 13’ 80%/1/10% p0 st1 sip fw2’ doze Main fuse had blown. ->A’sYoNi
-9:56 10:00 B1-4 5’ in sun (stools firm at 8:30)
Sum: 9h56-40-(5+35+5+5+15+13=)78 = 9h16-1h18= 7h58, up 6x (1h18), deep for 6h

ACTIVITIES (aim: 40% energy)ACHE: 5:0 (only stopped to be on the safe side) ➔ 80%/2 :white_check_mark:, no music, evening service nauseated me cos of hearing about the conditions in an African juvenile prison, so I left during that talk, after a few nice songs.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark:
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Online course ACT (acceptance and commitment therapy) starting Oct 24th.
RSM Webinar on fatigue on Oct 25th.
Chinese Acupuncturist - Session #32 on 4th., after 14 days :white_check_mark: But energy still down to 15% most of this week.
Session #33 indefinite.
Alternative health practitioner: appt. on Dec 6th, doubt she’ll be able to help. But doesn’t matter, cos I can learn, understand and remember just by explaining to her. And it’ll be fun getting her confused. :rofl:
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): 1h41

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 3x3’, breath exercises 5x1’, Y. Nidra 30’, massage gun 1x3’, plantar/calf stretch 3x1’, acupressure 3x1’, palpate 0’, belly 0’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, sun 3x5’.
Combine: next?
:x: hunchback-pillow 20’, neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 4th (42 supps): Supp costs:~340€/m (Nov 4th). CHANGED: Trying psyllium at night from Nov 5th on, may need to switch to a pure form cos of my teeth. +Cu again for 8 weeks from Nov 4th, cos - in August, forgotten October, needed to counteract ++vit.C. "A1" is now (since Nov 2nd) just sleep stuff except acids, and earlier, at 19:00 or 18:00: Magn. malate & threonate, luteolin and passiflora. Got quercetin and feverfew again today, Nov 4th, after about a week - praps energy going down was that? Ordered Levagen+-PEA now, cos seems 1.75 more bioavailable. Ordering luteolin in 1-2 weeks. Increased B3/Niacin/nicotinic acid powder from Nov 1st on to 0.5, 0.5, 0.4g (evening less), now +0.1. Nov 4th: Results of B1, 2, 3 and 6 not there yet, probably get them on Monday (7th), whilst B12 is sky high, so I can space the B12-jabs out for months again. New idea: Creatine. Praps trying ATP again, encapsulated, since my phosphate is deficient. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Nov 4th (41 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 400mg, B3/Nia 2x500+400mg, B12 1x5mg/4m, C 2x2x.5g, Cr 8x0.6g, Cu 2mg, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, NADH 0x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
EARLIER!
/19:30 Added a 0.25 GABA at
19:30-20:00 “16:15” preparing pills
/19:40-19:50 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
5’ empty = praps-worry time.
/19:50 “18:30” myo-inositol (try → every evenings) + teeth
?20:30 “19:30” A2 PF#2, 1x300mg GABA Cr#1+2, 0-1P5P, Qc#1. Meal: 1PQQ, 5ml Ω3 & 1xHon. CoQ10 (oil). 400mg B2 (draxe) also for sore throat (lifescience)) monk’s fruit. Cu with amino acids (to counteract high dose vit. C)
Meal 20:05-20:30
?22:00 21:30 “20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
?23:00 22:00 “21:00” A3 PF#3 300mg GABA & .6glu & Qc#2 1xHon + 0 Rupafin.
?24:00 “23:00” A4 300mg GABA + teeth
//3 + 5 Psyllium.
10:20 09: B1-4 ’ in sun “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal 5’ in sun 10:50-11:10 Teeth
/11:20 5’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
/11:20 “after muesli” C5 glutathion
15:00 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
16:20 “14:00” 0 Meal ’ in sun
16:45 “14:15” D2/3 ’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2, pine#2.
16:45 “after lunch” D3+ glutathion
0 “16:15” teeth
19:50 “16:15” preparing pills
19:30 no sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 4th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:2C3+2D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2x mag mal, Luteolin. mag threo. A2: 1xCu (separate from P5!)+0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #471 Stopping TT after 5 games commendable.
Reasons to be cheerful #487 Tallying 30+ blossoms on the balcony now.
Reasons to be cheerful #488 A few good active days now…