2022-11-08, Tuesday - Energy 20% / Sleep 85% / Feeling 80%-ish
ToDo:
5’ Worry time, 5’ plan time, 1-2h me time.
/
15’ max. without sleeping.
Try keeping eyes open as long as possible.(
)
Stop sitting on hard surfaces.
Back exercises evening and short at night.
Set alarm to limit longer night breaks.(
)
Find if/how palpitation acupressure works.
(
)
Use eye mask & dark room more if I’m late.
Roll out mat 2xd for back exercises.
ambulance: Xylit powder after meals for teeth!
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0
Triggers & resulting Symptoms
Jab#3 2022-11-07 at 12:00. Symptoms…
Keeping activity down, but actually hardly any vac-symptoms atm, except at night 4h frontal sinus, waking up with a feeling of having a cold, but without stuffy nose, “white lips” again, no others of those yesterday: fatigue none extra to mention, no nausea, no feverishness, no tongue problems after all, none new either. The added GABA specks may be diuretic, but decreasing my bladder pain, praps also good for all other symptoms.
Whoops: going again for a short slow cycle-walk uncovered another symptom: A stronger sharper Ache than the fibro ache again. We decided it’s probably good that I’m keeping well under limits! Also I was very slow in the shop we went to, fog probably increased.
SLEEP (click for details): 9h39, up 8x (55'), deep 7-8h ✅ ➔ Feeling 70% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 20% stuffy 20% of the night.
teeth A3 A4 0cold shower p0 Sleep 23:33- Why not 21:00? Cos a jab forum thread was so interesting - getting boring now tho. 23:25 Tongue burning so trying to take GABA.
ear plugs?
Memos: Lower Back: Back exercises in short stints, 6 free/chair, twist-stretched. backstretching. Yoga & hanging. massager.
23:42 10’ 0%/1/10% p1 st1 sip fw1’ doze FCS#1
0:40 5’ 70%/1/10% p1 st1 sip fw1’ deep
1:24 5’ 70%/1/10% p1 st1 sip fw1’ deep
2:34 5’ 70%/1/10% p1 st1 sip fw1’ deep air
4:12 5’ 70%/1/10% p1 st1 sip fw1’ deep air frontal sinuses.
6:26 17’ 70%/1/10% p2 st1 sip fw10’ doze air frontal:100mg GABA (sublingual) HWB#3?
7:04 3’ 70%/1/10% p2 st1 sip fw10’ doze frontal, stomach burn/nausea from GABA:drink,
9:05 5’ 70%/1/10% p0 st1 sip fw2’ deep frontal40%/headache. GABA-speck helped bladder (muscles over-relaxed), stomach0->20%:drink,
-9:59 sinuses40%/nostrils20% 10:05 B1-4 5’ in sun, stools firm?
Sum: 35+9h59-(10+5+5+5+5+17+3+5=)55 = 10h34-55’ = 9h39, up 8x (55’), deep 7-8h
ACTIVITIES (aim: 40% energy) ➔ ACHE: Resting all day, except cooking, phone calls and a short cycle-walk plus shop. ➔ 80%/3
?? TT, cycle, mask, work, kids,
ACTIONS ➔ PAINS: except: neck
, GI
, esophagus
, but I think a block yesterday:
, jaw x5’’
, pee pain: 3xp1-2
MCAS/HIT-Symptoms/Triggers/Treatments:
Touch: Covid:
Weather: Indoors
Outdoors
.
Treatments
Docs:
Online course ACT (acceptance and commitment therapy) starting Oct 24th.
RSM Webinar on fatigue on Oct 25th.
Chinese Acupuncturist - Session #32 on 4th., after 14 days Energy the last 2 weeks was 25% this and last weekend, but 15% Tues-Fri this week.
Session #33 indefinite.
Alternative health practitioner: appt. on Dec 6th, doubt she’ll be able to help. But doesn’t matter, cos I can learn, understand and remember just by explaining to her. And it’ll be fun getting her confused.
3rd jab on Nov 7th…
SELF-PHYSIO (click for details): 1h59
airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 3x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 2x3’, plantar/calf stretch 5x1’, acupressure 2x1’, palpate 1’, belly 3’, back 20’, !!aloe vera 1x1’, twist-stretch 10x1’, yoga/stretching 10x1’, sun 2x5’.
Combine: next?
hunchback-pillow 20’, neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Nov 4th (42 supps): Supp costs:~340€/m (Nov 4th). CHANGED: Fisetin and Olive Leaf Extract have run out Nov 7th, not sure if I'll be able to see if it makes a difference cos of jab#3. Trying psyllium at night from Nov 5th on, may need to switch to a pure form cos of my teeth. +Cu again for 8 weeks from Nov 4th, cos - in August, forgotten October, needed to counteract ++vit.C. "A1" is now (since Nov 2nd) just sleep stuff except acids, and earlier, at 19:00 or 18:00: Magn. malate & threonate, luteolin and passiflora. Got quercetin and feverfew again today, Nov 4th, after about a week - praps energy going down was that? Ordered Levagen+-PEA now, cos seems 1.75 more bioavailable. Ordering luteolin in 1-2 weeks. Increased B3/Niacin/nicotinic acid powder from Nov 1st on to 0.5, 0.5, 0.4g (evening less), now +0.1. Nov 4th: Results of B1, 2, 3 and 6 not there yet, probably get them on Monday (7th), whilst B12 is sky high, so I can space the B12-jabs out for months again. New idea: Creatine. Praps trying ATP again, encapsulated, since my phosphate is deficient. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, mum, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Nov 4th (41 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 400mg, B3/Nia 2x500+400mg, B12 1x5mg/4m, C 2x2x.5g, Cr 8x0.6g, Cu 2mg, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, NADH 0x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
EARLIER!
Added a 0.25 GABA? No but Fuller capsules…
19:30 “16:15” preparing pills
19:50 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
5’ empty = praps-worry time.
/19:50 “18:30” myo-inositol (try → every evenings) + teeth
20:45 “19:30” A2 PF#2, 1x300mg GABA Cr#1+2, 0-1P5P, Qc#1. Meal: 1PQQ, 5ml Ω3 & 1xHon. CoQ10 (oil). 400mg B2 (draxe) also for sore throat (lifescience)) monk’s fruit. Cu with amino acids (to counteract high dose vit. C)
Meal -20:30 ’ +xylit
/21:45 “20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
/22:45 “21:00” A3 PF#3 300mg GABA & .6glu & Qc#2 1xHon + 0 Rupafin.
/0:44 “23:00” A4 300mg GABA + teeth
Psyllium.
/10:05 B1-4 5’ in sun “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal 10’ in sun 10:40-11:00 Teeth/
/11:00 5’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
“after muesli” C5 glutathion +xylit
/14:05 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
16:00-16:35 “14:00” 0 Meal ’ in sun
/16:20 “14:15” D2/3 ’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2, pine#2.
/16:35 “after lunch” D3+ glutathion +xylit
/18:50 “16:15” teeth
/19:00- “16:15” preparing pills
/18:50 18: D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
A1 “18:00”
/19:45 inositol
/20:00 Eat
/20:45 A2
/21:40 api
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)
The day's 16 supp-compartments (10', plus 5' making capsules), Nov 4th
Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:2C3+2D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2x mag mal, Luteolin. mag threo. A2: 1xCu (separate from P5!)+0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
Development
‘Research’ today: A forum post pointed me to the diagnosis “aquagenic pruritus” - ah, at last a name for the itch when in contact with water, another diagnosis on the long list, probably around 40…
The lipids in BioNTech/Pfizer’s (Corminaty BNT162b) vaccine don’t look too dangerous for my body, so I still think it’s the virus-RNA itself causing my vac-problems.
Lessons in self-care #473 I’m realizing I need to time manage / prioritize better, cos I keep getting caught up in things that grab my attention. Not that I necessarily regret that, but somehow do feel uneasy about it. So I’m going to start prioritizing things again more. My PDA/organizer/Palm was great for that, but I don’t seem to need it anymore, as I’ve switched most things to laptop. But maybe the tools I have already are enough and I just need to implement them better, like the reminders which open continually but I often ignore. Of course it’s also about finding reminders that I can’t resist…
Reasons to be cheerful #489 Blossoms.
Reasons to be cheerful #490 Still OK!
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries