Personally, I think it is @JayCS . It has shown your journey, the symptoms and the treatments you have trialled. All of it can help others, possibly with ideas they hadn’t thought of. I think one of the big negatives with rare conditions as the we often get stuck in a whirlpool of same, same.
Having external input of alternatives to ‘same, same’ can be VERY helpful for those people who get stuck in that whirlpool. I too got stuck in that whirlpool and I too (e.v.e.n.t.u.a.l.l.y.) got to that point of ‘The symptom is coping, the treatment is mindfulness’. I tried to force my body past it’s own limits thinking ‘I can beat all of this…’ and it took a long time for me to accept that the reality was, I was only beating myself, driving myself into the ground. I couldn’t see it, it was my wife who identified what I was doing. I was trying to get back to ‘normal’ but frying myself in the process.
P.S. Don’t EVER wish for ‘contrast’. It’ll come and when it does, it often drowns us. We need to build up a store of cheer and happiness to keep us afloat. You can never have too much cheer and happiness.
Merl from the Modsupport Team