2021-07-21, Wednesday - better sleep, more TT precision, but seizure from the tryptophan (maybe together with the glutamine) 
Sleep: = deep7h19 + doze 82' + 4 breaks 64' ↔️ Feeling 90% well, pain 1 of 7 ✅
!exact times
Tryptophan 200mg & FCS1 at 18:00, +200mg & 2x2 Mg & 2x Passiflora & Gastritol & psyllium & Ω3 & perenterol at meal 19:00, 1000mg GABA & 500mg Glutamine & 1x Passiflora 21:40, exercises?
Then 350mg capsule GABA OR 10mg sublingually every time I wake up (GI!), plus 23:00 FCS#1, 1:00 FCS#2, ?Perenterol, 4:00 6 if nec.
22:05- p0! doze, belly pressure, slight seizure inclinations 22:30 and 14:30, needle pain in left ankle at the same time (!?), slight jaw soreness →
22:31 10’ p0! FCS th drink Gastritol fw1’ = 3h10!
1:51 40’ p0 6 50 Glutamine = 550 +450 GABA = 1450 = 1h40
4:07 9’ p1 annoying need pricks in left knee inwards and left heel inwards, dry mouth: drink
4xRR 118/71 51. Dozing ?20’ first? (cos of RR too long) = 3h-7’
7:09 5’ p0 (feels like all my muscles there ‘drop’ before it flowing ), right elbow hurting a bit: Schüßler 4 seemed better. Hungry: soy + Gastritol helped for a while. Dozing
-7:50
Sum: 1h55+7h50-(10+40+9+5=)64’= 9h45-64’=8h41, plus up 4x (64’), minus 26+20+36=82’ doze = deep7h19 + doze 82’ + 4 breaks 64’.
Felt I needed more sleep, but only dozing and not being tired all day yesterday suggests deeper sleep is more important: long - medium - long re. double - single - double stint. What if I try cold showering before bed again?
Activities: 6h music making OK!, cycling 10', TT easy :↔️:80%/1 ✅, bit strange (seizures)
Acupressure: arms & loins good ✅ few needly pains at night ❌
Acupressure 2h Tues & 2h Thurs:
Supps: + 2x200mg Tryptophan (made powder with a mortar) ✅, no GI problems ✅, but seizure either from the tryptophan or (together with) the glutamine
2x200mg Tryptophan, 2x400mg Mg malate, 2x500mg Mg glycinate, 3x290mg passiflora, 1100mg GABA, +500mg L-glutamine:
Physio-type self-treatments: 1h ✅, fibro-work 20'
Timing, AuTr 15’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 3’, gums 2x30’‘, thumbnails 8x30’‘, yoga 3’, loins 1 2’, = 59’…
workout 7’, neck 1+ ‘, neck 2 1’, V ‘, loins 2 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’
Fibro-work: Night: = h20
Symptoms: Seizures! ❌ But better sleep, better TT ✅. I can't win, apparently?
Yesterday I had 2 inklings 14:30 and 22:30, today 1 also about 14:30 and then a first small seizure playing TT around 16:00…
Seizures. I guess from the tryptophan, since I’ve been taking glutamine quite some time now. User with more seizures from Tryptophan Does tryptophan help prevent seizures? | Coping With Epilepsy Forums
User with more seizures from 5-HTP 5-HTP | Coping With Epilepsy Forums
Apparently more seizures possible from Serotonin (? - but GABA reduces seizures normally…) Tryptophan Side Effects: L-Tryptophan Is Far From Harmless
Tryptophan ineffective in preventing seizures (in mice) Audiogenic seizures and brain serotonin after L-tryptophan and p-chlorophenylalanine - PubMed
It depends: 5-HTP | Coping With Epilepsy Forums
So what do I do now?
Lying, standing, Talking: GI: Bladder: Therapy: Docs/Diagnoses: Development:
Lessons in self-care #38 Cdve explained/discussed with my grandchild, instead of expecting obeyance.
#39 Didnt look in a mail I saw late which mightve triggered something.
Reasons to be cheerful #30 Good that my grandchild can say no. I wish I cdve done that early on.
Abbreviations & explanations
Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
[details=“Pain “7” = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments”]
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
[details="ACTIVITIES: TT, e.g. “5:1"”]
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
[/details]
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “
” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’‘-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
[/details]