2021-10-01, Friday - tough day, serrapeptase seemed to help, as did - new - D-Ribose
Triggers & resulting Symptoms
SLEEP: 9h42-37 = 9h05, up 6x (37') (-1h dozing? = 8h05) ➔ Feeling 80-70% well, Ache 1 of 7 ✅, new problem now it's colder: stuffy nose: trying cold washing helped, short break, next up: cold shower &/or hot water bottle; tired / feverish
/21:30 1st passiflora, selene, rosewort/magnesium carbonate/B1 at meal, !“500” tryptophan
/21:40 600mg GABA
FCS p1 22:10-
0:22 3’ 90%/1 p2 st1 drink fw1’ & !2nd passiflora & !600 GABA & !500 L-glutamine & !400 theanine
2:28 3’ 80%/1 p2 st2 drink fw2’ !3rd 289 passiflora
3:38 3’ 80%/1 p2 st2 drink fw2’ !4th 289 passiflora
4:14 3’ 80%/1 p1 st2 drink fw2’ nose stuffed left, 1st time for ages: cold wash? & hungry: soy drink. Better. then right. dozing/AuTr.
5:05 22’ 6. 90%/1 p0 st2 drink fw2’ stuffed nose good.
too late for ?"400"mg tryptophan?
/5:28 SAMe, 1 zinc, serrapeptase (empty tummy!)
/7:55 !600 GABA + !500mg theanine, !3x400 malate.
/8:10 120 ginkgo
/11:00 serrapeptase after work
-7:52
Sum: 1h50+7h52-(3+3+3+3+22+3=)37’ = 9h42-37=9h05, up 6x (37’) (minus 1h dozing? = 8h05)
ACTIVITIES ➔ ACHE: commuting ➔ 70%/1 Work/mask-talking (loudly & quietly) ➔ 70%/1, dead tired, feverish, but no ache. Serrapeptase at 11:00, thigh pang at 11:45, really good at 12:00, despite fast cycling/train ➔ 90%/1, after acupressure ➔ 90%/1: moving things about 45' ➔ 80%/2, better from serrapeptase, then a 30' walk after Ribose ➔ 90%/1
Ache = also Exhaustion/Tired 
➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
ACTIONS ➔ PAINS: Sudden 5' right thigh pangs at 11:40, praps from the serrapeptase (11:00)? (But then really good at 12:00) Lying ✅, standing ✅, loins ✅, sitting ✅, arms up ✅, neck stiffness 90° ✅, stiffness after poses ✅🧐, walking: hard, even short distances at work ❌, but good after D-Ribose at 17:30 ✅, fast cycling: quite OK ✅🧐, bladder 4xp1-2 (22:00-4:00) ✅🧐, GI: hungry at 5:00, but cos of mornings supps I didn't want to eat, soy milk was enough ✅🧐, talking ✅, mask-talking ✅🧐
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Treatments
SELF-PHYSIO: 57' ✅, fibro-work (fw) 30'
Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 6’, neck 1+ 8’, neck 2 2’, twist-stretch 2’, loins 2’, yoga 3’, marionette-hang 10’,
gums 2x30’’, thumbnails 10x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’
fw: Night: 5? + 20’*
THERAPIES: ACUPRESSURE focussed on backside & back generally as well as nec, helped quite a lot. Psychiatrist yesterday: Option to not doctor around with supps, and the probability is not that high that it will get that much better (my guess is/was +20% at most, which is still <50%, depending on various levels, e.g. table tennis is OK for an hour, socializing usually isn't OK for over an hour.) He implied acceptance also being necessary (which I have), but not denying my way of having fun attempting to get on. Sleep may be improving by getting my body used to a more normal night rhythm using praps placebo effects. The 1' cold shower before sleep might be something like sauna an elated endorphin feeling, encouraging sleep. (Good to feel good about being in bed, not beating yourself up for not sleeping, of course.)
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
Supps to KEEP UP: amounts, spacing everything out/reducing: Evenings: selene, rosewort/Mg carbonate/B1, SLEEP: 4x passiflora (spaced out), tryptophan (spaced), theanine (spaced) ✅ WAKE/FOG: +8h theanine + GABA ✅ & PAIN (ACHE; stiffness?): 8:00 mg malate 5:00 etc. serrapeptase? glutamine? ✅: 5:30 SAMe, serrapeptase & zinc (on empty stomach), 8:00 GABA, theanine & malate
For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
Supps TAKEN TODAY: Passiflora 4x1 doesn't seem better than 3+1, up 6x, by far not refreshed enough; but not nec. worse either: up 37'. Adding 120 ginkgo to wake up, feel fit, didn't help, maybe 240 nec., serrapeptase 11:00 helped at 12:00?, D-Ribose 400mg for energy at 17:30
/21:30 1st passiflora, selene, rosewort/magnesium carbonate/B1 at meal, !“500” tryptophan
/21:40 600mg GABA
/0:20 2nd passiflora & !600 GABA & !500 L-glutamine & !400 theanine
/2:30 3rd passiflora
/3:40 4th passiflora
no "400"mg tryptophan
/5:30 SAMe, 1 zinc, serrapeptase (empty tummy!)
/7:55 !600 GABA + !500mg theanine, !3x400 malate.
/8:10 120 ginkgo
/11:00 serrapeptase after work - thigh pang at 11:45, good overall at 12:00
/17:30 400mg D-Ribose
Supps UP NEXT: +STIFFNESS/Bladder: Repeat adding GABA & glutamine again - or the opposite, less? (glutamine overdose July 25th: stiffness same?) 🧐 ACHE: Carry on with serrapeptase, and order. 🧐 +WAKE/FOG/FATIGUE: 0) 240 ginkgo? 1) Ribose 2) NAC (not NADH/+!; and came today, 1st, which is early, not late, it was due on the 5th at the latest) 3) ALC (I have LC: orally or injected?) 4) glycine. +SLEEP: More tryptophan? Less theanine? If melatonin (short half life) praps similarly spaced out in self-made capsules. Try NAC? (med). A) Schüssler B) SUPPS C) MEDS Info:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research.
SAMe - #2 by Anne (Sheila, links: Sahelian & webmd, now plus gapa)"]
NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
Development:
My acupressurist won’t be able to get my energy, exhaustion, sleep and ache etc., we have to distinguish “ACHE” and “PAINS” there as well, i.e. she can improve all muscoskeletal problems causing single pains, but what I’m calling the “actual fibro” is something for the supps. She is herself realizing that her own fibro is coming up again due to a serious infection, which is making her think more carefully.
Lessons in self-care #80 Reacting fast to the colder weather and warm indoors is improving.
Reasons to be cheerful #83 D-Ribose there at last. And confused NADH with NAC…
Reasons to be cheerful #84 An edit version of my fibro-song with rap “Coming Up” is progressing nicely, and some kids thought it was good.
- Highlights week 20th to 26th.
- My “How to symptom track & trigger hunt”
- Next up: Finishing off the treatment list & spreading that.
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “
” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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