2021-10-03, Sunday - passiflora & speck of melatonin (= last resort): better!
Triggers & resulting Symptoms
SLEEP: 10h11, up 9x (1h47) (-25' doze = 9h46) ➔ Feeling 90% well, Ache 2 of 7 ✅ Dry mouth always at +6h or at 3:00?? (Despite drinking). Melatonin 0,2mg seemed to help at 5, after passiflora wasn't enough to get me past 6.5h (3:30). So got some of yesterday night back in the end.
/19:50 !1x!425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal, "400"mg tryptophan
/20:55 600mg GABA & (before bed for the first time: ) 500mg !glutamine
/00:40 !1x!425 passiflora & !300mg theanine & !600mg GABA & "400"mg tryptophan
/2:20 !1x!425 passiflora and lavender gel
/5:15 0.2mg melatonin (first sublingually, then chewed maybe 0.05 off and took the rest encapsulated)
/7:30 SAMe (empty tummy!), 1 zinc, serrapeptase
/9:35 !600 GABA + !500mg theanine, !2x400 malate. !2x120 ginkgo
FCS p1 (due to overall pain) 20:55 GABA & glutamine,
21:00-
22:15 3’ 60%/3-4, p1 st1 drink fw1’
22:44 3’ 60%/3, p1 st1 drink fw1’
23:35 3’ 70%/2, p1 st1 drink fw1’
0:40 3’ 70%/3, p1 st1 drink fw1’ +GABA & L-glutamine & 2nd !425mg passiflora & tryptophan
2:20 3’ 80%/2, p0 st1 drink fw1’ +!3rd !425mg passiflora
3:18 5’ 80%/2, p0 st1 drink fw3’ dry mouth (always towards the middle of the night, here +6h) → gel & lips.
3:35-4:15 40’ heating noises → turned off. Dry mouth was BEFORE I started leaving heating on. Hot flash anyway. 6. Still awake, stray thoughts. Lavender not helping.
4:40 Speck of melatonin? plus FCS#2
No, from what I’m reading melatonin’ll take too long to work.
Best Dose of Melatonin - Healthy Directions
Sublingual may work quicker: 11 Ways to Take Melatonin - wikiHow
Problem is when I took it it didn’t even help either, just made me groggy. Still gonna try; passiflora is helping too. 0,2mg sublingually, split off from 2mg extended release pill. Left under my tongue for 5’, then broke off another bit and chewed it (<0,05mg) and swallowed the rest in a capsule.
5:16 Now FCS? No, on 2nd thoughts, it’s too late, just hope for the melatonin. -5:18 = 38’ (=fw 35’)
Melatonin created a ‘‘falling asleep feeling’ 10x, not feeling like I was sleeping, but deeper doze/sleep anyway and dreaming sometimes, no sfx up to now (bit hard), so seems good, and felt good.
7:27 9’ 90%/1 p0 st1 drink fw3’ stool + SAMe (empty tummy!), 1 zinc, serrapeptase
-8:58
Sum: 3h+8h58-(3+3+3+3+3+5+40+38+9=)1h47= 11h58-1h47=10h11, up 9x (1h47) (-25’ doze = 9h46)
ACTIVITIES ➔ ACHE: Mainly resting ➔ 90%/1
Ache = also Exhaustion/Tired 
➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
ACTIONS ➔ PAINS: Lying ✅, standing ✅🧐, loins ✅, sitting ✅, arms up ✅, neck stiffness 90° ✅, stiffness after poses ✅, fast cycling ✅, bladder 5xp1-2 ✅🧐, GI: only bit of wind ✅, talking ✅🧐, mask-talking ✅🧐
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Treatments
SELF-PHYSIO: 1h28... ✅, fibro-work (fw) 65'
Timing, AuTr 20’, cold shower 2x(10’), palpate 1’, belly 3’, back 6’, neck 1+ 1’, marionette-hang 3’, yoga 1’, twist-stretch 30’, loins 3’,
neck 2 10’, hunchback-pillow 0’, gums 2x30’’, thumbnails 10x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’
fw: Night: 45 ‘+ 10’ + 10’*
THERAPIES:
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
Supps to KEEP UP: amounts, spacing everything out/reducing: Evenings: selene, rosewort/Mg carbonate/B1, SLEEP: 4x passiflora (spaced out), tryptophan (spaced), theanine (spaced) ✅ WAKE/FOG: +8h theanine + GABA ✅ & PAIN (ACHE; stiffness?): 8:00 mg malate 5:00 etc. serrapeptase. Glutamine? ✅. 5:30 SAMe, serrapeptase & zinc (on empty stomach), 8:00 GABA, theanine & malate
For heartburn: Almonds first.
Supps TAKEN TODAY: The new 3x425 passiflora wasn't enough, a melatonin speck had to help. The early supps probably helped waking up after melatonin, it that's not enough I can still put ribose, NAC etc. on top of that. Melatonin caused the 'dropping asleep' feeling 10x, however 10x obviously means I was waking up again or staying awake. Arnica for elbows, tea tree for gums. Energy was OK, so just ribose before 1h10 service, me with mask all the time.
/19:50 !1x!425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal, "400"mg tryptophan
/20:55 600mg GABA & (before bed for the first time: ) 500mg !glutamine
/00:40 !1x!425 passiflora & !300mg theanine & !600mg GABA & "400"mg tryptophan
/2:20 !1x!425 passiflora and lavender gel
/5:15 0.2mg melatonin (first sublingually, then chewed maybe 0.05 off and took the rest encapsulated)
/7:30 SAMe (empty tummy!), 1 zinc, serrapeptase
/9:35 !600 GABA + !500mg theanine, !2x400 malate. !2x120 ginkgo
/15:00 arnica on elbows, tea tree oil on tooth infection. Prefer taking boosters after TT.
/17:30 arnica, tea tree oil, D-Ribose.
Supps UP NEXT: ACHE: Serrapeptase. 🧐 Mumijo: anti-inflammatory & IBS: ordered. +WAKE/FOG/FATIGUE: 1) Ribose 2) NAC for mitochondria, oxygen (may be good after mask?), praps reduces glutamine. 3) ALC (I have LC: orally or injected?) 4) order NADH/+ 5) try mg glycinate at daytime first. then 6) order glycine? +SLEEP: Melatonin specks, spaced, encapsulated. Similar, but now earlier. +STIFFNESS/Bladder: Not decreasing GABA/glutamine, just leaving it as it is. A) Schüssler B) SUPPS C) MEDS Info:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research.
SAMe - #2 by Anne (Sheila, links: Sahelian & webmd, now plus gapa)"]
NAC sleep -2400mg, better or worse
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
NAC = N-Acetylcysteine
Mitochondrial Enhancers for ME/CFS and Fibromyalgia Pt IV: N-Acetyl Cysteine (NAC) - Health Rising Antioxidant, normalize glutathione, 500-3600mg, sfx diarrhea, nausea, dry mouth.
https://www.elizabethpavka.com/nutrition-articles/nutrient-articles/NAcetylCysteineforDepression,Fibromyalgie,IBS,Cancer%20Prevention,DetoxificationandMore.pdf anti-oxidant and detoxification, IBS & FMS
The future: intranasal?
Are Intranasal Drugs the Future for ME/CFS and Fibromyalgia? - Health Rising
GI-Sfx! blood thinner (good)! Fibromyalgia - N-Acetyl Cysteine (NAC) Benefits and Side Effects | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums
Cysteamine and Cystamine? Therapeutic Applications of Cysteamine and Cystamine in Neurodegenerative and Neuropsychiatric Diseases - PubMed
NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
Mumijo (origin unclear) for chronic pain (as well as IBS): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015)
Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
Bentonite or medicinal clay never stopped my gastric acidity in my twens.
C MEDS repeat?: levodopa, blood fat meds, blood pressure
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
Development:
Lessons in self-care #82 Got most of Friday’s sleep back, the rest today please…
Reasons to be cheerful #86 I’m quite happy/OK.
- Highlights week 20th to 26th.
- My “How to symptom track & trigger hunt”
- Next up: Finishing off the treatment list & spreading that.
Resources I only just found:
- “therapy in a nutshell” by Emma McAdam on youtube
- healthrising by Cort Johnson
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “
” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ 
➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
Template for tomorrow
2021-10-04, Monday
Triggers & resulting Symptoms
SLEEP: h ➔ Feeling ?90% well, Ache ?1 of 7 ✅
?20:35 ?1x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal, "400"mg tryptophan
?21:35 600mg GABA
?23:45 !1x289 passiflora & !300mg theanine & !600mg GABA & !500mg L-glutamine & "400"mg tryptophan
!1x289 passiflora
!1x289 passiflora
?5:25 SAMe (empty tummy!),
?7:50 !600 GABA + !500mg theanine, 1 zinc, !3x400 malate.
FCS p1 -?22:00-
?2:00 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora.
& "400"mg tryptophan
-End
Sum:
ACTIVITIES ➔ ACHE:
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
ACTIONS ➔ PAINS: Lying ✅❌🧐, standing ✅❌🧐, loins ✅❌🧐, sitting ✅❌🧐, arms up ✅❌🧐, neck stiffness 90° ✅❌🧐, stiffness after poses ✅❌🧐, walking ✅❌🧐, fast cycling ✅❌🧐, bladder 0xp1-2 ✅❌🧐, GI ✅❌🧐, talking ✅❌🧐, mask-talking ✅❌🧐
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Treatments
SELF-PHYSIO: h ✅, fibro-work (fw)
Timing, AuTr 10’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’
*fw: Night: 5? + **
THERAPIES:
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
Supps to KEEP UP: amounts, spacing everything out/reducing: Evenings: selene, rosewort/Mg carbonate/B1, SLEEP: 4x passiflora (spaced out), tryptophan (spaced), theanine (spaced) ✅ WAKE/FOG: +8h theanine + GABA ✅ & PAIN (ACHE; stiffness?): 8:00 mg malate 5:00 etc. serrapeptase. Glutamine? ✅. 5:30 SAMe, serrapeptase & zinc (on empty stomach), 8:00 GABA, theanine & malate
For heartburn: Almonds first.
Supps TAKEN TODAY: The new 3x425 passiflora wasn't enough, a melatonin speck had to help. The early supps probably helped waking up after melatonin, it that's not enough I can still put ribose, NAC etc. on top of that. Melatonin caused the 'dropping asleep' feeling 10x, however 10x obviously means I was waking up again or staying awake. Arnica for elbows, tea tree for gums. Energy was OK, so just ribose before 1h10 service, me with mask all the time.
/19:50 !1x!425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal, "400"mg tryptophan
/20:55 600mg GABA & (before bed for the first time: ) 500mg !glutamine
/00:40 !1x!425 passiflora & !300mg theanine & !600mg GABA & "400"mg tryptophan
/2:20 !1x!425 passiflora and lavender gel
/5:15 0.2mg melatonin (first sublingually, then chewed maybe 0.05 off and took the rest encapsulated)
/7:30 SAMe (empty tummy!), 1 zinc, serrapeptase
/9:35 !600 GABA + !500mg theanine, !2x400 malate. !2x120 ginkgo
/15:00 arnica on elbows, tea tree oil on tooth infection. Prefer taking boosters after TT.
/17:30 arnica, tea tree oil, D-Ribose.
Supps UP NEXT: ACHE: Serrapeptase. 🧐 Mumijo: anti-inflammatory & IBS: ordered. +WAKE/FOG/FATIGUE: 1) Ribose 2) NAC for mitochondria, oxygen (may be good after mask?), praps reduces glutamine. 3) ALC (I have LC: orally or injected?) 4) order NADH/+ 5) try mg glycinate at daytime first. then 6) order glycine? +SLEEP: Melatonin specks, spaced, encapsulated. Similar, but now earlier. +STIFFNESS/Bladder: Not decreasing GABA/glutamine, just leaving it as it is. A) Schüssler B) SUPPS C) MEDS Info:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research.
SAMe - #2 by Anne (Sheila, links: Sahelian & webmd, now plus gapa)"]
NAC sleep -2400mg, better or worse
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
NAC = N-Acetylcysteine
Mitochondrial Enhancers for ME/CFS and Fibromyalgia Pt IV: N-Acetyl Cysteine (NAC) - Health Rising Antioxidant, normalize glutathione, 500-3600mg, sfx diarrhea, nausea, dry mouth.
https://www.elizabethpavka.com/nutrition-articles/nutrient-articles/NAcetylCysteineforDepression,Fibromyalgie,IBS,Cancer%20Prevention,DetoxificationandMore.pdf anti-oxidant and detoxification, IBS & FMS
The future: intranasal?
https://www.healthrising.org/blog/2020/05/25/intranasal-drugs-chronic-fatigue-syndrome-fibromyalgia/
GI-Sfx! blood thinner (good)! Fibromyalgia - N-Acetyl Cysteine (NAC) Benefits and Side Effects | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums
Cysteamine and Cystamine? Therapeutic Applications of Cysteamine and Cystamine in Neurodegenerative and Neuropsychiatric Diseases - PubMed
NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
Mumijo (origin unclear) for chronic pain (as well as IBS): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015)
Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
Bentonite or medicinal clay never stopped my gastric acidity in my twens.
C MEDS repeat?: levodopa, blood fat meds, blood pressure
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
Development:
Lessons in self-care #83
Reasons to be cheerful #87
- Highlights week 20th to 26th.
- My “How to symptom track & trigger hunt”
- Next up: Finishing off the treatment list & spreading that.
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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