My daily symptom & trigger hunt, preventing & alleviating, can be generalized.
2021-11-21, Sunday - esophagus OK; NADH-energy there, despite not taking it.
(v3: 17:00 burning esophagus after 4 amino acids & acid-tasting carnitine)
(v2: 10:15 sleep, adjusted supps, 2 reasons to be cheerful)
(v1: eve before at 22:50: pretty NADH-wonderful again, but not falling for it this time! 
Esophagus block AGAIN 
, my wife’s worried…)
Triggers & resulting Symptoms
SLEEP (click for details): 8h47, up 4x (21') ➔ Feeling 90% well, Ache 0 of 7 ✅ - good night.
No fw! lbu: belly tensing? No half-sitting on sofa!
FCS p0 Sleep 23:40-
01:20 5’ 90%/1 p0 st1 drink fw1’ Pf+Nc.Sr teeth
03:12 5’ 90%/1 p1 st1 drink fw1’ mumijo
04:42 3’ 90%/1 p1 st1 drink fw1’
06:15 8’ 90%/1 p1 st1 drink fw1’ QcRsSa
-8:58
Sum: 20+8h48-(5+5+3+8=)21’= 8h47, up 4x (21’)
ACTIVITIES (aiming for 40% of pre-fibro) ➔ ACHE: eve before at 20:00 ➔ 90%/0, bit tired tho, feeling 100% while cycling & buying food. So not taking NADH in the morning. ➔ 90%/1, same during the day - energy quite OK, could do 1h housework & 30' yardwork, short walk, 2 zoom services.
Ache = also Exhaustion/Tired 
➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings, Grandchild, Work/Mask-talking, Socializing/Talking.
ACTIONS ➔ PAINS: ✅. but 20:00 at the same time as feeling great a really long esophagus block/spasm, felt it coming, so stopped swallowing - to no avail, spat that out after 10', still no avail, had to get more out twice. My wife worrying, and wants me to get it checked, but I have had the earlier form checked before in a major clinic (when I had my salivary glands checked for Sjögren's.) This is a bit different, it's not quite as painful, but takes 20-30' to loosen again, been happening almost every day when eating, more often in the evening, this evening I put cold things out before eating them, as it even happens with soy yoghurt, and it still happened. So funny that every time once it's all out (or down if I'm lucky) I can continue eating with absolutely no problems, like the previous tougher but rarer form. That makes it again unlikely that it's eosinophilic esophagitis. Slight esophagus burning after 4 amino acids plus carnitin at "15:00" (16:20). Treatments see below. No block this evening, so stopping tea tree oil and encapsulating the evening carnitine may have helped.
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Lying, standing, loins, sitting, arms up, neck stiffness 90°, stiffness after poses, walking, fast cycling, bladder 0xp1-2, GI, talking, mask-talking.
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy, plantar fasciitis after
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee, plantar fasciitis after
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Esophagus blockages: See ‘pains’ above. None of the reasons the websites say is really viable in my case. What docs cd do is dilate it. Sometimes carbonated liquid can help, but it can also make it worse, they might also inject glucagon to relax it - so I could try increasing my relaxing supps, like GABA, however I’m taking 10 of these already. Praps taking them (e.g. the 19:00 batch, e.g. Pf, P5P & rhodiola) before the evening meal might help. Usually these kinds of things are allergic reactions in my case, the only substance I can imagine is the tea tree oil I’m using on my gums to try to reduce the jaw inflammation, so I’m going to stop using that. Another idea is that the hyperacidity I’ve always had may be OK now, but may have left its toll. Sure the amino acids are acidic, but that’s the reason why I’m encapsulating them and making sure they are swept down into the stomach quickly. Oh yes, as regards allergic foods: I ate the same stuff at noon as now in the evening, and the same before and after the block. So it wdnt make sense, even if it were the nuts and the soy (yoghurt & tofu). Maybe an elimination diet is nec. but it’s gonna be tough, as there’s enough I can’t eat already… Cleveland Clinic say that eosinophilic esophagitis is hard to diagnose, as there’s not always something (e.g. white rings) to see, maybe I do have it, and the clinic I was at & I myself didn’t try hard enough, seeing as it was only occasional. *So stopping tea tree oil, and will watch out even more closely when it happens at the beginning of the next (evening?) meals. Praps increasing GABA a little & trying something fizzy can’t make it worse than it is already. 17:00: Carnitine is now my main suspect after the acid batch without meal. Either I need to move it all forward to the meal (meaning pectine & psyllium won’t work as well, or encapsulate them.) *
Treatments
28 Supps: PLANNED/TAKEN TODAY (click for what-when-details): Left out NAC from 8:00 cos everything got later again. 7 NEW/IRREGULAR/CHANGED: B3: 3x↗0.1g, NADH 0x5mg, Pectin 1/Psyllium, Ribose 0.g Serrapeptase 3x2x125k (21 REGULAR: Arg 3x2g, B12 5mg/2m, Car 3x1g, D3 1/w, GAB: ~2g(4), gin2, glu:~1.2g(4), gly3, mal3, mum2, NAC: 2.5g(5, incl. 2x1/night), Ω3, P5P1, PF4, Q10:1, Qc1, Res2, Rho2, SAMe1, Se1, the: .2g, Zn1)
Template: B3:3x0.1g, NADH (2+1+1)x5mg, Pectin/Psyllium, Ribose 0.g, Serrapeptase 3x2x↗125k
/21:35 “19:00” PF#1 Ar#1B3#1Cr#1 gly#1/mal1 P5P/2Rho/Se Ω3 = “PfArB3Cr MlGly P5RoSe,Ω3/meal”
/22:50 “21:00” PF#2 .6 GABA#1&.4glu#1 NAC#1 (PF+.6GaGl Nc) = "PF+.6GaGlu+Nc
/23:40 “23:00” PF#3 .3 GABA&glu#2 (PF+.3GaGl) = “PF+.3Ga/Glu”
/01:25 “01:00” PF#4 NAC#2 SRP1#+2 (PF+2S) “PF+Nc+Sr2”.
/03:15 “03:00” mumijo#1+2 (teeth)
/06:20 “05:00” (30’) quercetin resveratrol#1 SAM-e1 “QcRsSr” + NAC#2or3?
No! “Up”: 2xNADH#
/09:30 “+30’=Meal” Ar#2,B3#2Cr#2 6gGAB#3,the2,gink#1,gly#2,.5g NAC#2,Zn=ArB3Cr.GaThe GiGly n’AC/Z,
/11.25 “08:00” gly#3 0NAC# “GyNc”. Nut->-grain-Meal: -09:50
FILL NEW!! ToGo C: Ma, Nc, Nd Q? & (S), ((Rib!!)) & ToGoA was NAC (red-yel) gy ma Sr (+NADH) Old srp 2x5 in 3rd comp.-box.
/11:50 “11:00” (+2h/) ma#2 Nd#3? :SRP#3+4 — MlNdSr x.2g Rib jaw. (1st meal till: 9:50)
/13:23 “13:00” Pectin and/or psyllium with meal, no other supps. (2nd meal till: -14:15.)
/16:20 “15:00” Ar#3,B3#3,Cr#3,3gGA#4/glu#3,gink#2,mal#3.NAC#5, “ArB3Cr.GiGa/Gu.MaNc”
Next: Carnitin & praps Arginine in capsules.
/18:20 “17:00” (“meal/acids+2h”) 0Nd#.Q10.Rs#2,Sr#5+6. jaw “Nd&Q1RsSr” jaw Meal: ?19:10-50
eve: Block?
“18:00” Prepare tomorrow’s: 1) Complete & copy praps details of planned, if changed, ‘change’, supps to KEEP if changed. Always note here where something’s been changed, e.g. KEEP. 3) Complete/delete lessons/reasons & change # in template. 4) Tally irreg. here 5) Remove “v3” here
6) Cut template 7) Save this 8) Paste & unhide template in tomorrow’s 1x, paste a 2nd (add 1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B-12 5mg methylcobalamin s.c.; next: Jan 4th.)
Amounts: Arg 3g(2/2) B3: 3x50mg increasing the dose to 3x100…200, 300, and ??500 every 2 weeks, Car 1-4g. glyc/mal -6, NAC: 5 (2.4g), NADH 2-7x5mg (max. 35mg+(1800 inpatient)). Ribose 0.1g+ 1/4 tsp.: GI?
Not with meals, e.g. 11h, 15h: NADH, SAM-e?, resveratrol .5-1.5g, SRP -6, mumijo 4:00 (not meds either). Q1:oil/Nd(Se).
Jaw locally too: tea tree oil/calendula/myrrh, arnica, heat
-
Reducing NADH to “on demand”. Sublingually? Order ENADA?
-
Stopping tea tree oil on my gum to see if my esophagus gets better then.
-
Encapsulating carnitine. One or both of these helped this evening.
-
I’ll try to prepare the supps for a day in advance now.
- Ordered NAC in ready made capsules (instead of me encapsulating) it’s worth it.
-
Ordered PQQ (Pyrroloquinoline quinone) (difficult to get it without stearic acid, but aside from a really expensive sort Dr’s Best seemed best).
- Order passiflora & praps Mg bisglycinate.
-
Order D3 with K2, as my D3 is still at the minimum, despite 20.000IE/w.
Supps to KEEP (details here & in chart): L-Arginine, L-Carnitine, vitamin D3, !GABA, ginkgo, !glutamine, magnesium glycinate, magnesium malate, mumijo, NAC, !NADH, P5P, !Passiflora, CoQ10, Quercetin, Resveratrol, Rhodiola, Ribose, Selenium, serrapeptase, theanine, zinc.
SLEEP: !GABA (+glutamine / P5P), !Passiflora, NAC! & Rhodiola, Q10, Quercetin, SRP, not Mg gly
theanine: relaxation & alertness, so helped effective & shorter sleep - better not at the moment.
WAKE/FOG: GABA/theanine, magnesium glycinate & malate (<7x!), NAC, NADH, ALC, ginkgo
/ ALC. Studies: for fog, not fatigue. Not together with LC/carnitine.
ACHE: !GABA, NAC, !NADH, magnesium malate, mumijo, omega 3, Q10, SAM-e, SRP
ENERGY/FATIGUE: !Ribose (GI-sfx: 3x0.2g), !NADH , NAC (5x.5g), L-carnitine, CoQ10, ginkgo
NADH/NAD+: B3-coenzyme for ATP & post exertional malaise: 2.5mg (5x0.5g). No meals/acids.
/ L-Carnitine (LC) better than ALC for physical fatigue, cf. PLC.
CoQ10: fatigue, sleep, bp, lipids, flow, gums, 3-6m, ubiquinol more bio-available vs. ubiquinone more research.
INFLAMMATION: mumijo, NAC, Rhodiola, SAMe, SRP, Zn; Q10 & local treatments for jaw.
gums/jaw locally/regularly: tea tree oil, calendula, arnica, myrrh, red heat lamp, teeth.
Zinc bisblycinate with breakfast (picolinate before). GP: Not too much.
STIFFNESS: !GABA NADH! (since Nov 14th). Glutamine doesn’t help me.
NOSTRILS STUFFY at night: Q10? Better since taking it… tea tree oil, “Breathe well” oils: acid).
EVERYTHING: // B12? Schüssler 2, 4 & 7 (3-6m.?) Vitamin B12: injections again.
ACID: !almonds
Mumijo wasn’t working for GI first: But heartburn/hungriness OK as of Nov 1st.
Bentonite?: (= 95% Montmorillonite; zeolithe? IBSD & -C; not together with other supps… (ZdG))
RAYNAUD’S: Menthol, arginine: sfx mainly skin, praps gut, overdose: fog. Blood flow & bp.
BLOOD FATS “research-search today” on Nov 1st.
Guaifenesin/Amand???
SELF-PHYSIO (click for details): 78' ✅
Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 10’, foot on knee/cross-legged 10’, yoga/stretching 15’, neck 1+ 1’, teeth 3x2’; just realized I’d been treating my gums at least 4x per day - except today…
loins 2’, jolt-jump 1’, neck 2 3’, plantar/calf stretch 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, red heat 3’,
THERAPIES: Loins pretty good, praps combination of acupressure, stretching and NADH.
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
Development:
- Just remembered that I once took NADH in the morning thinking I was feeling good already and thinking: Wow, what a booster this could give me - and it didn’t…
- I’m sure these supps are getting really expensive, let’s guess >200€/month; but I’m not looking at the total cost, just trying to get the best value for money, cos nothing’s more important, because it is enabling everything else. And at the moment I’m keen on paying a LOT to keep my tooth: 500€’d be nothing compared to keeping it.
Research-search today: Just deciding on which supp-products to order (NAC & PQQ).
Lessons in self-care #130 Kept activity medium - used the energy, but didn’t overuse it.
Reasons to be cheerful #137 My fingernails are all OK again, almost perfect, but I’ll keep putting urea cream on them.
Reasons to be cheerful #138 Taking NADH less makes meals etc. less complicated.
- My “How to symptom track & trigger hunt”
- Next up…: Oct-Summary (& add to blog-summary); finishing off the treatment list…
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “
” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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