JayCS’s Fibro Blog

My daily symptom & trigger hunt, preventing & alleviating, can be generalized.

2021-11-26, Friday - hearing “drop” for 3h & generally needing to take it slow

(v4: 18:10 - hearing drop stopped at 12:00, taking it slow.
(v3: 12:15 still OK, but hearing dropped about 30 dB on my right ear at 9:00, cf. development)
(v2: 8:15 good night, good getting up, B3-flush, whoops…)
(v1: eve before: good :white_check_mark:)

Triggers & resulting Symptoms

"SLEEP (click for details): 8h30, up 5x (20') ➔ Feeling 90% well, Ache 1 of 7 ✅, self-disciplined, due to having to get up early & despite the stress involved.

No fw! lbu: belly tensing? No half-sitting on sofa!
FCS p1-2 Sleep 22:20-
00:50 5’ 90%/1 p0 st1 drink fw2’ PF+.3Ga/Glu
02:19 6’ 90%/1 p1 st1 drink fw1’
04:02 3’ 90%/1 p1 st1 drink fw1’
05:29 3’ 90%/1 p1 st1 drink fw1’ QcRsSa
06:09 3’ 90%/1 p1 st1 drink fw1’ twist-stretch
-7.17
Sum: 1h40+7h17-(5+6+3+3+3=)20’= 8h57-20= 8h30, up 5x (20’)

ACTIVITIES (aiming for 40% of pre-fibro) ➔ ACHE: Good after 15:00 & at grandchild's yesterday ➔ 90%/1, still quite good in the morning overall, but hearing loss & unstable walking (needing banisters) ➔ 70-80%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings, Grandchild, Work/Mask-talking, Socializing/Talking.

ACTIONS ➔ PAINS: ✅, except: bit stiffer than usual after sitting, walk unstable, praps increased by hearing drop, loin-rest right more than left.

:white_check_mark: :x: :face_with_monocle:
Lying, standing, loins, sitting, arms up, neck stiffness 90°, stiffness after poses, walking, fast cycling, bladder 0xp1-2, GI, talking, mask-talking.
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy, plantar fasciitis after
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee, plantar fasciitis after
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

24 Supps: PLANNED/TAKEN TODAY (click for details): 20' B3-flush at 8:30 3 NEW/IRREGULAR/CHANGED: B3: 3x↘0.1g, Nd ↘0x5mg, Pqq 1, Ri 0.g. 4 OUT: ↘0Mumijo ↘0Gly ↘Pe ↘Ps (↘21 REGULAR: Ar 3x2g, B12 5mg/2m, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Gy3, Ma3, Mu2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pectin1, Psyllium1, Q10:1, Qc1, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

(Template: B3: 3x↘0.125g, Nd 1x5mg, Ri 0.g)
Abbreviations resolved under “supps to KEEP”.
What-when-details:
/20:20 A1,2+Ar “19:00” PF#1 Ar#1B3#1Cr#1 0gly/mal#1 P5P/2Rho/0Se Ω3 = “PfArB3Cr Ml P5Ro, Pqq&Ω3/meal”
/21:20 A3 “21:00” PF#2 .6 GABA#1&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:55 A4 “23:00” PF#3 .3 GABA&glu#2 = “PF+.3Ga/Glu”
/02:20 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
0 B2 “03:00” 0mumijo#2 (teeth)
/05:30 B3 “05:00” (30’) quercetin resveratrol#1 SAM-e1, “QcRsSa” + 0NAC#
B4 “Up” 2xNADH#?
/07:25 C1,2+Ar “+30’=Meal” Ar#2,B3#2Cr#2 6gGAB#3,the2,gink#1,gly#2,.5g NAC#2,Zn=ArB3Cr.GaThe GiGly n’AC/Z.
/8:20 C3 “08:00” gly#3 .5gNAC#3+ “GyNc”. Nut > grain-Meal:
/11:10 C4 “11:00” (+2h/) ma#2 Nd#? :SRP#3+4 — MlNdSr x.2g Rib jaw. (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15.45 D2,3,Ar “15:00” Ar#3,B3#3,Cr#3,3gGA#4/glu#3,gink#2,mal#3.NAC#5, “ArB3Cr.GiGa/Gu.MaNc”
/18:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Q10.Rs#2,Sr#5+6. jaw “Nd&Q1RsSr2” jaw Meal: >19:15
eve:
“18:00” Prepare tomorrow: 1) Complete & copy changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” here 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B-12 5mg methylcobalamin s.c.; next: Jan 4th.)

Amounts: Ar 3g(2/2) B3: 3x50->500mg/2w, Cr 4x1g, glyc/mal 2x3 Nc: 2.4g, Nd 2-7x5mg? Ri 0.5g+
Not with meals, Nd Sa Rs Sr Mu Q1:oil/Nd(Se).
Jaw locally too: tea tree oil/calendula/myrrh, arnica, heat

16 compartments a complete day in advance, 'down' to 10'!

Pf: A1+3+4+B1, Nia+Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1(/3),C1,C3,D3, Rs: B3,D4 Sr: B1,C4,D4
SINGLE: A2:P5/Ro/(Se)(Ω/Pq:meal), (B2:mu), B3:QcSa, B4: 2xNADH+ C2:Th,Zn, (D1: Pe.) D4:Q1.

Supps to CHANGE:

  • :stop_sign: Stopped mumijo, gly, Pe & Ps for the time being.
  • :face_with_monocle: Tried tea tree oil once again.
  • :face_with_monocle: Watching B3 vs. NADH (as “activated form of B3”) - stopped NADH first.
  • :face_with_monocle: Order 20.000IE D3 with K2-MK7 (ApoOrtha)
Supps to KEEP (click for details here & in chart above): Ar = L-Arginine, B12 = vitamin B12, Cr = L-Carnitine, D3 = vitamin D3, Ga = !GABA, Gi = ginkgo, Gu or Glu = !glutamine, Gy or Gly = magnesium glycinate, Ma or Ml or Mal = magnesium malate, Mu = mumijo, Nc = !NAC, Nd = !NADH, Ω3 = omega 3, P5 = P5P (form of vitamin B6), Pe = Pectin, Pf or PF !Passiflora, Ps = Psyllium, Q10 or Q1 = CoQ10, Qc = Quercetin, Rs = Resveratrol, Ro = Rhodiola, Ri = Ribose, Sa = SAM-e/SAMe, Se = Selenium, Sr = serrapeptase, Th or The = theanine, Z or Zn or Zi = zinc.

SLEEP: !GABA (+glutamine / P5P), !Passiflora, NAC! & Rhodiola, Q10, Quercetin, SRP, not Mg gly
:face_with_monocle: theanine: relaxation & alertness, so helped effective & shorter sleep - better not at the moment.
WAKE/FOG: GABA/theanine, magnesium glycinate & malate (<7x!), NAC, NADH, ALC, ginkgo
:white_check_mark:/:face_with_monocle: ALC. Studies: for fog, not fatigue. Not together with LC/carnitine.
ACHE: !GABA, NAC, !NADH, magnesium malate, mumijo, omega 3, Q10, SAM-e, SRP
ENERGY/FATIGUE: !Ribose :white_check_mark: (GI-sfx: 3x0.2g), !NADH :white_check_mark::white_check_mark:, NAC (5x.5g), L-carnitine, CoQ10, ginkgo
:white_check_mark::white_check_mark: NADH/NAD+: B3-coenzyme for ATP & post exertional malaise: 2.5mg (5x0.5g). No meals/acids.
:white_check_mark:/:face_with_monocle: L-Carnitine (LC) better than ALC for physical fatigue, cf. PLC.
:face_with_monocle: CoQ10: fatigue, sleep, bp, lipids, flow, gums, 3-6m, ubiquinol more bio-available vs. ubiquinone more research.
:face_with_monocle: INFLAMMATION: mumijo, NAC, Rhodiola, SAMe, SRP, Zn; Q10 & local treatments for jaw.
:white_check_mark: gums/jaw locally/regularly: tea tree oil, calendula, arnica, myrrh, red heat lamp, teeth.
:face_with_monocle: Zinc bisblycinate with breakfast (picolinate before). GP: Not too much.
STIFFNESS: !GABA NADH! (since Nov 14th). Glutamine doesn’t help me.
NOSTRILS STUFFY at night: Q10? :white_check_mark: Better since taking it… :white_check_mark: tea tree oil, “Breathe well” oils: acid).
EVERYTHING: :white_check_mark:/:x:/:face_with_monocle: B12? Schüssler 2, 4 & 7 (3-6m.?) :white_check_mark: Vitamin B12: injections again.
ACID: !almonds
:face_with_monocle: Mumijo wasn’t working for GI first: But heartburn/hungriness OK as of Nov 1st.
:face_with_monocle: Bentonite?: (= 95% Montmorillonite; zeolithe? IBSD & -C; not together with other supps… (ZdG))
RAYNAUD’S: Menthol, arginine: sfx mainly skin, praps gut, overdose: fog. Blood flow & bp.
BLOOD FATS “research-search today” on Nov 1st.
:face_with_monocle::face_with_monocle::face_with_monocle:Guaifenesin/Amand???

SELF-PHYSIO (click for details): 55' ✅

:white_check_mark: yoga/stretching 5’, plantar/calf stretch 5’, twist-stretch 10’, Timing, AuTr 2’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, teeth 1x2’,
:x: neck 1+ 4’, loins 2’, foot on knee/cross-legged 5’, jolt-jump 1’, neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, red heat 3’,

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development:

Research-search today:

  • Just read on leo that US & UK aren’t much aware of temporary hearing loss as an illness, neither wikipedia on hearing loss nor webmd strangely mention stress or spine issues, which are said to be common causes here in Germany. In my case, work was a bit strenuous today.

Lessons in self-care #135 Hearing drop means increasing self-care, doing less…
Reasons to be cheerful #143 Preparing meds went “quick” at last, praps 10’. :slight_smile:
Reasons to be cheerful #144 Having made a pro-vaxx decision is a clear path, wherever it’ll take me.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

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