JayCS’s Fibro Blog

Symptoms & Treatments
609

2021-12-06, Monday - 18+ jab-sfx: probably sick leave for almost 2 weeks…, but OK if I rest.

(v4: 17:45 I hate the feel of electric blankets (praps cos of synthetics), but I need it most of the time atm, adding long johns improves it. Made a list of almost 20 sfx below.
(v3: 12:20 Doc’s put me on sick leave till Friday, as my wife recommended)
(v2: 08:40 still feverish-nauseous upon being awoken by civil works)

Triggers & resulting Symptoms

SLEEP (click for details): 8h30, up 4x (50') +25.➔ Feeling on average 70% well, Ache 2 of 7 ❌, due to civil works outside our building I'd better go to bed earlier.

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 23:15- HWB
01:32 10’ 80%/2 p0 st1 drink fw1’
03:04 5’ 80%/2 p0 st1 drink fw1’ HWB
05:55 30’ 70%/2 p0 st1 drink fw1’ HWB
-08:35 5’ 70%/2 p0 st1 drink fw1’ feverish nauseous
+25 doze/AuTr
Sum: 45+8h35-(10+5+30+5=)50(+25) = 09h20-50 = 8h30, up 4x (50’) +25.

ACTIVITIES (aiming for 40% of pre-fibro) ➔ ACHE: ➔ 70%/2 as long as i DON’T MOVE :cross_mark:
(e.g. cycle :biking_man:, TT = :ping_pong:, meetings/social :speaking_head:, mask :mask:, kids :child:, work ➔ ?90%/1 ?:white_check_mark::cross_mark::face_with_monocle:)
ACTIONS ➔ PAINS: :white_check_mark:, except neck at night, back a little… :face_with_monocle: - need to exercise.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.) ?:white_check_mark::cross_mark::face_with_monocle:

Treatments

THERAPIES: Probably not, I’ve warned her❌ Which is not good. Definitely need to increase self-physio.
Supps to CHANGE: :face_with_monocle: Ar in cps. w. machine :face_with_monocle: Order D3+K2-MK7. (Ordered Pf+Sr.)

SELF-PHYSIO (click for details): 65' ✅.

:white_check_mark: plantar/calf stretch 5’, Timing, AuTr 2’, hunchback-pillow 15’, cold shower (10’), HWB 3x3’, neck 1+ 3’, palpate 1’, belly 3’, back 7’, foot on knee/cross-legged 10’,
:x: twist-stretch 5’, loins 2’, teeth 3x2’, jolt-jump 1’, neck 2 3’, plantar/calf stretch 5’, yoga/stretching 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’, red heat 3’,

25 Supps: PLANNED/TAKEN TODAY (click for details): 5 NEW/IRREGULAR/CHANGED: Sr 0. Arg, B3, Nd & Ri all: 0 today. Praps consider Pe & Ps again? (20 REGULAR: 0Ar B12 5mg/2m, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10:1, Qc1, Rs2, Ro2, Sa1, Se1, Sr 0x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before see the reference post)
/20:20 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/21:30 A3 “21:00” PF#2 .6 GABA#1&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/01:40 A4 “23:00” PF#3 .3 GABA&glu#2 = “PF+.3Ga/Glu”
/03:10 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/05:55 B3 “05:00” (30’) quercetin resveratrol#1 SAM-e1, “QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/08:40 (I think) C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=Cr.GaThe Gi n’AC/Z.
/11:00 (or before) C3 “08:00” NAC#3+ “Nc”. Nut > grain-Meal:
/13:00 C4 “11:00” (+2h/) ma#3+4 Nd#? :SRP#3+4 — MlNdSr (1st meal till: ?)
0 13:30 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:00 D2/3 “15:00” Cr#3,.3GA#4/glu#3,gink#2,mal#5+6.NAC#5, “Cr.GiGa/Gu.MaNc”
/17:50 or earlier (whoops) D4 “17:00” (“meal/acids+2h”) Nd#?.Q10.Rs#2,Sr#5+6. “Nd&Q1RsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B-12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+)Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1(/3),C1,C3,D3, Rs: B3,D4 Sr: B1,C4,D4
SINGLE: A2:P5/Ro/(Se)(Ω/Pq:meal), (B2:mu), B3:QcSa, B4:2xNADH+C2:Th,Zn,(D1: Pe)D4:Q1.

Development:
My jab-sfx (to be continued):

  1. exhausted.
  2. some energy (not overmuch tho) at the same time, depletes quickly.
  3. no strength in hands etc.
  4. achey-ness, similar but different to fibro-Ache, not as tough, but I feel I can move less and cold showering & cryotherapy doesn’t help.
  5. More sleep needed, despite same supps.
  6. Still tired throughout the day / earlier.
  7. severe sore throat at night, reminiscent of a cold/flu coming up. Only managed to improve that a little, but electric blanket seems to help most as I’m too cold for everything else. After a walk with long johns I left them on, but doesn’t seem to be enough.
  8. extremely cold feet, also hands, lips (often white), electric blanket rather than heat pad or HWB.
  9. nausea when I move, but also all the time, a bit like a tummy bug (like a few weeks ago)
  10. feverish ill feeling most of the time, similar but different to fibro, longer, not influenceable.
  11. feverish feeling increases with effort.
  12. actual “fever” of 1°C, which I never had from the FM-feverishness (36,5 instead of normally 35,5)
  13. burning skin all over torso sometimes (e.g. day 5 several hours)
  14. a few (new) local pains cropping up everywhere, like upper back ache for 4 days.
  15. Stiffness sometimes greatly increased, sometimes not.
  16. Headache the first few days.
  17. Problems moving around might be what Cort calls orthostatic problems. (Walk limited to 2x5’)
  18. A bit more cognitive problems than usual, but not much.
  19. (Bad wind today, no reason I can think of atm)…

Research-search today: I hadn’t seen because it wasn’t linked well, that Cort on healthrising has been publishing new poll results. I’d looked for it, because I realized I wasn’t finding words for all my sfx. Interesting that some people with CFS/FM get an improvement from it. 74 comments to date:

On Brendan’s blog proposing staggered smaller doses (based on the website and the facebook-group results), he mentions swollen glands & dizziness (with ME/CFS), both of which I haven’t had. The first comments under the blog are too anti-vaxx for my liking, but they get better.

In this blog in April on where docs tend to recommend to do the vaccine the first says not to take the 2nd jab if you are still suffering from the first and to take a few things I’m taking anyway (NAC & quercetin), plus Benadryl to stop allergy and fastidine to stop GERD, both of which aren’t my problem, plus rest: doing that.
The 3rd refers to Dr. Klimas and one like her says take antioxidants and don’t go in a flare, done that. Also mentioned are these, which I’m taking a lot of: alpha lipoic acid, ascorbic acid, B6, diamine oxidase enzymes (DAO), luteolin, N-acetylcysteine (NAC), Omega-3’s, riboflavin, SAMe, quercetin, and natural sources of theophylline like green and black teas. (That’s Nancy Klimas here)

I’ve now subscribed to healthrising’s newsletter, as I do like the type of information they provide.

Lessons in self-care #144 Rest rest rest!
Reasons to be cheerful #153 I’m quite OK when I don’t move, and hey: getting lots done!