2022-02-08, Tuesday - MCAS pretty much confirmed… 
v2 doing quite a lot, so probably OK, considering…
v1 10:55 bed earlier, up early, but 1h ouch first, then OK. 3 “docs”. TT was a strain after the 2nd game.
Triggers & resulting Symptoms
SLEEP (click for details): 9h21, up 6x (31') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 21:30-
22:00? 3’ air
23:15 3’ 90%/2 p0 st1 drink fw1’ air
0:45 5’ 80%/2 p0 st1 drink fw2’ A4 Still strong pee urge / frequency
3:19 14’ 80%/2 p0 st1 drink fw2’ B1+B2(+NAC) burning itchy skin 18’‘-FCS HWB
6:00 3’ 80%/2 p0 st1 drink fw1’ air nostrils
-7:22 3’ 70%/3 p0 st1 drink fw1’ air (nostrils)
20’’ 2nd cold shower at 3 or 4/ praps a 3rd even shorter if that didn’t help.
-End
Sum: 2h30+7h22-(3+3+5+14+3+3=)31’ = 9h52-31’ = 9h21, up 6x (31’)
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Evening tired-Ache-pain, hard in shower ➔ 70%/4, night OK, morning pain ➔ 70%/3, then better after resting for an hour, also after GP & psychologist ➔ 80%/2, worse after 4xTT (after the 2nd game, which is a bad sign) ➔ 70%/3. OK later after rest and at allergologist ➔ 80%/2, but that was a strain so again ➔ 70%/3 for 1-2 hours, while phoning etc…
“HOW DO I LOOK?” pretty OK… 
ACTIONS ➔ PAINS: High pee urge & frequency Monday to 23:00…
Every local pain quite OK on Tuesday tho. despite overall pain. Jab: tongue/mouth.
Treatments
Docs:
Bloods at GP, few days for the results.
psychologist: Summed up how so much has been succeeding & falling into place. Further development of the 
-exercise: Practising 1) a self-caring, fond look at myself, 2) being conscious of God’s fond look at me, 3) noting how I look - to self-care if I’m overdoing it, and 4) self-caring more for my appearance too - counting the latter as self-treatment.
allergologist: To put the 25 symptoms shorter:
“MCAS”(?) symptoms pre-fibro: stuffy nostrils, (burning sinuses), itchy skin, oversensitive GI, oversensitive to meds. Pre-jab: burning mouth, fibro with all it comes with, incl. broken thermostat for a time.
Since jab: flu-like, incl. nausea, able to move only for minutes for weeks, later if very slowly for under an hour, incl. much more strongly frequent (esp. at night) burning sinuses & broken thermostat), at day feverish-feeling, & (from afternoons) blurry eyes; bouts of feeling good, esp. in evenings, worse in mornings. 17:40 Something else that has worsened sind jab just occurred to me
Reaction of my allergologist: I’m doing everything right, very likely I have MCAS, she kept nodding her head with everything I was saying, gave me a questionnaire by a German expert on MCAS, who has published together with Afrin, where 14 points or above confirms MCAS: I got 19, altho many further symptoms I have weren’t asked for. The way she pronounced MCAS with the English pronunciation (“m-kas”) showed she knew exactly what we were talking about. She explained she could actually do some of the tests, but there are a lot of them, most can only done far away, are very costly, usually not paid for by insurance and the use is pretty dire as the only other thing apart from everything I’m doing already is trial and error with about 20 meds, the use of many of which she is extremely skeptical about.
She says MCAS is one of very few reasons for exemption from the jab, and there are experts who say don’t; but she still does think it’s a good idea to do the 2nd one, commends me for wanting to, even if takes me down to 10% again.
WHB (3 rounds) 
RIBOSE:
SELF-PHYSIO (click for details): 2h17 ✅.
airing 2’, cold shower 2x(10’), cream fc/ey/hd/ft 3’+, teeth 3x2’, HWB 2x3’, breath exercises 4’, Timing, hunchback-pillow 10’, left foot on/under right knee/cross-legged 22’, AuTr 5’, breath-hold 12’, palpate 1’, belly 3’, back 12’, plantar/calf stretch 7’, twist-stretch 7’, loins 8’, aloe vera 1’,
face?, neck 1+ 2’, neck 2 4’, calendula/tea tree 2x1’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, hair
: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.
[details=“Supps (1st: 29): Supp costs: ~371€/m. CHANGE: Playing around with NAC in the early night: at “3:00”, and vit. C in the morning. Carnitine’s gone bad, get new. No Srp left, but stopping it for a while, it’s so expensive, and I’m not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:”]
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/19:25 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/00:50 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/03:20 B1 “01:00” PF#4 0SRP#1
/03:20 B2 “03:00” +ALA+0x2x pine bark, (teeth) +1NAC
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:20” EGCg + Fev/MSM
/10:40 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! + 1 vit. C.
/10:40 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/13:00 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:55 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/19:10 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
[/details]
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly3x2Mal: C4+D3, A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+0x2! pine+NAC! A3->B1: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon+C C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx: Burning mouth, esp. tongue most of the day.
Research-search today: A little around MCAS.
Lessons in self-care #217 I’ve been doing well & may need a bit for the half-confirmation of MCAS to sink in fully.
Reasons to be cheerful #224 I was right and am doing well.
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…