Hi Merl! Nice to hear from you! JayCS, are you able to order anything from Amazon?
2022-02-04, Friday - endoscopy showed a Schatzki-ring constriction.
v2: 12:20 endoscopy went well due to all measures taken: a “Schatzki ring”-constriction is the main problem & would need 2 days of ballooning as an impatient 
inpatient. 
But Ache, fatigue and abdomen pain continuing… 
Triggers & resulting Symptoms
SLEEP (click for details): 9h06, up 5x (31') ✅, and ➔ Feeling 80-90% well, Ache 2 of 7 🧐, getting up: 80%/2 ❌, bit of belly ache. 🧐. I think ear plugs all the time may be better for my brain at night, not just 'hearing things'.
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:07-
0:33 12’ 90%/2 p0 st1 drink fw2’ A4.B1.B2 + NAC + vit. C No skin burning, sinuses only very slightly.
2:15 3’ 90%/2 p0 st1 drink (tea) fw1’ Very slightly burning skin.
3:45 10’ 90%/2 p0 st1 drink (tea) fw1’ air HWB 16’’ FCS#2, tired after.
5:42 3’ 80%/2 p0 st1 drink (tea) fw1’ itchy right hand → cream.
7:15 3’ 80%/2 p0 st1 drink (water, last drink) fw1’
20’’ 2nd cold shower at 3 or 4/ praps a 3rd even shorter if that didn’t help.
-7:40
Sum: 1h53+7h40-(12+3+10+3+3=)31’ = 9h37-31’ = 9h06, up 5x (31’)
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Pain & fatigue from the endoscopy ➔ 70-60%/3-4 all day. 
, Focal seizures due to propofol at 14:45 and 17:20, see research. 
"HOW DO I LOOK?" Maybe I should put a mirror next to where I always sit… Tried a video tool: lips look OK, eyes looked tired. 
Mirror with bright light: That impression was right, and I look much better than I feel . Have to ask my wife.
ACTIONS ➔ PAINS: GI: Bit of belly ache & slight diarrhea at 8 (from NAC?/vit.C at 1?) 13:10 Fast typing is a strain on my left underarm. . Right abdomen hurting - my wife says “normally that can’t be from the tissue samples, but knowing you it might be”. Moving around is getting better at 18:00, but the abdomen pain, now central, is worse. .
Treatments
Docs: Gastroscopy, or rather endoscopy: (Drat: in the hospital I’d written half an hour after the endoscopy how everything went, but moving my laptop lost me all of that, because I had another tab without that open. So I’ve decided to generally close the 2nd tab I always have open now, to reduce the temptation.) Well seeing as I always freeze and get a sore throat in the wake-up room, today I took a HWB and longjohns with me, asked and put the longjohns on under my trousers before, which was great. Everything went quick this time, and I remembered to ask the prof. before about MCAS, so he decided to not just look at and pick up some stuff in the esophagus, but to go down into the lower duodenum to check if he can pick up anything there (thus endoscopy, and not much of a gastroscopy). The preparing nurse helped by tucking me in as she knew what it’s like to get cold quickly, also takes a HWB everywhere. And a very young intern who joked around with me revealed where I can quickly get any jab any time with no waiting time, which’ll make my plan easier. Upon waking my pulse went from 67 to 60, my bp was 102/75 and my oxygen 95-97, all satisfactory (what my oxygen is like I’ve been wanting to know). When offered to get up, I immediately accepted, altho I was dizzy, to be free of all the gadgets and be able to decide what I need, just moved very slowly, and that was a good idea. My doc told me I have a “Schatzki ring”-constriction in the esophagus, which would need ballooning for 2 days as an inpatient. Generally it was excellent for me that I was alone there and back, without my wife, because it meant I could concentrate on myself better and do what’s good for me. With brilliant timing, cycled there slowly, spot on time as I already knew all procedures and how far I’d have to walk, where everything was and had everything prepared. And afterwards I waited for half an hour sitting in the waiting area, drinking a litre of soy milk I’d brought with me (with hardly any allergic or histamine reaction btw, praps a bit itchy skin) to make up for hunger and took all the supps I’d missed. Then tested walking to the bathroom and saw it’d work. Dizzy and slightly nauseous tho. But interestingly, being able to cycle “blindfolded” with absolutely no problem (if I’m tired with eyes closed some of the time) I realized that cycling slowly was much better than walking. When any cars or pedestrians came, I stopped immediately, until they were well past and looked 4x before crossing any roads. So: success and no sore throat, no cold. And at home sitting with legs straight or in Bound Angle Pose with blanket and HWB, talking a bit was a bit of strain, eating OK, now typing…
WHB (3 rounds) 
8:45 1’30’’ 2’00’’ 2’10’’ ( at the same time first finger vibrating, then massage pistoling my belly ache, then lying in Bound Angle Pose, so duplicating my self-physio time, something I’m often doing, but think I can do more.
RIBOSE: ?
SELF-PHYSIO (click for details): 2h06 ✅.
Timing, cold shower 2x(10’), teeth 1x2’, breath exercises 4’, airing 6x2’, hunchback-pillow 4x5’, breath-hold 13’, palpate 1’, massage gun 2’, left foot on/under right knee/cross-legged 10’+20’+10’, yoga/stretching 2’, twist-stretch 1’, HWB 3x3’,
calendula/tea tree 2x1’, AuTr 38’, cream 10’, belly 3’, back 12’, foot bath 15’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, jolt-jump 1’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, RR x2’, workout 7’, hand-exerciser 3’, temperature 5’, acupressure 6’, aloe vera 1’, nux vomica 1’.
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: Playing around with NAC & probably a 3rd try of vit. C, praps in the early night. 1 of both at 0:45, yesterday I think I had skin burning BEFORE the NAC. This morning some loose stool which is OK, but I don't really want, cos it's probably better for my gut without. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/19:40 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
/00:40 Chamomile tea.
/00:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/00:40 B1 “01:00” PF#4 SRP#1
/00:40 B2 “03:00” +ALA+0x2x pine bark, (teeth) (+1NAC + 1 vit. C)
/10:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/10:15 B4 “07:00” EGCg + Fev/MSM
/12:05 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/12:15 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/14:45 C4 “11:00” (+2h/) gi#2 gly#1+2 SRP#2. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:20 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/19:10 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2! pine, A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx:
Research-search today:
Focal seizures from propofol: This study suggests “propofol has the capacity to promote seizure activity, particularly when there is an underlying seizure predisposition.” This review from 2002 includes 11 seizure seizure patients of which 64% got full seizures upon waking up.
However this letter from 2009 says it causing real seizures in people with epilepsy is extremely rare.
But reading that gave me the idea that as an anticonvulsant reacting on GABA/serotonin may have added to the GABA I’m taking, so may be serotonin syndrome. In any case it’s caused seizures in me, as I haven’t had any for a long time (I think directly after the jab was the last time), there’s no doubt for me.
Interesting to hear/read possible explanations for melatonin not working for me by Matt Walker himself in a 2’ video. However I have to smile at his alternatives there, in these notes on “Why We Sleep” and similar recommendations here: I’ve had to find, analyze & alleviate >30 triggers. Sleep lab didn’t help, but supps, cold showers, yoga nidra. Regarding melatonin it seems what they are not refuting is that if you take the pure stuff, possibly in minute amounts, it may help initiate sleep: did that, didn’t…
[/details]
Lessons in self-care #212 Good to see how I do well if I am independent and others don’t distract me,
Lessons in self-care #213 Good to see me self-advocating more about my sensitivity like cold intolerance.
Reasons to be cheerful #220 Glad I’ve got in done, glad it went well, glad it’s brought at least one result.
- Jab-sfx-summary, being edited, major edit Jan 10th 12:35
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…
Amazon, being the rogues they are, hide Biotène from view if I try from the German amazon. We use eBay much more here than amazon, cos that doesn’t hide things and has a much less perfidious and aggressive sales pitch. On amazon com instead, I can get the Biotène products, but the same shipping as via eBay, of course, and anything from the UK we have to collect from the post office and pay at least an extra 6€ tax. But I avoid amazon where I can - one of the most devilish companies on earth.
And I couldn’t agree more, but who are you going to order from? It’s either those rogues or one of the other lot, 'cos let’s face it, none of them could be called ‘squeeky clean’ in their practices. ‘It’s covid’ related or it’s ‘Cost of fuel’ related or it’s ‘Lack of staff’ related. But even after (if there is an after) covid those ‘additional’ cost will remain as part of normal pricing.
I just thought you might be able to find an alternative product available to you, depending on the ingredients in it. But upon reading through the MSDS (safety info) you’d probably need a chemical engineering degree to translate it all to work out just what’s in it, so that didn’t work.
Being ‘Oral Health Specialists’ you’d think Biotene would simply have to have something non-mint.
Here’s another option, Biotene’s parent company is GlaxoSmithKline (GSK), they own a few differing oral care brands such as Sensodyne and Polident among others. You could contact GSK’s customer support, quiz them about it. Someone has to make another option somewhere.
Merl from the Modsupport Team
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Thanks Freedom.
I’m always lurking around here somewhere (Evil laugh) 
Merl from the Modsupport Team
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Thanks Merl: good idea to try a different product, altho mine is non-mint and maybe non are perfect.
Seems my “genetical disposition” for a chemical engineering degree 
is enough: The (M)SDS of their dry mouth toothpaste and their dry mouth gel as the name says only list hazardous contents (in the case of the toothpaste: an abrasive substance, a fluoride, and 4 antimicrobial substances, 3 of them interestingly found in all human secretions like saliva, tears, mucus and milk; in the case of the gel: nothing). Their slightly fuller ingredient lists show sorbitol as a so-called “humectant” (sort of moisturizing agent) in the gel, that’s the only mint-free product they have… ah, but thanks for the effort all the same, and it was an interesting challenge.
Regarding the rogues…: Well… I analyze, research and test, and I do think there’s a lot differences, and I buy/avoid accordingly, seldom misjudge, whether it’s Gillis’ EpicGenetics which I had a bad feeling about right from the start, versus small idealistic companies or organic food producers etc. And eBay may be dirty, but I (and sellers I know) can see that the way they treat buyers and sellers is a lot fairer, so prefer it.
Hi JayCS, what an interesting blog. Did you have the endoscopy without any sedation? If you did, I’m impressed. I would be gagging the whole time. When I’ve had an endoscopy, I was always sedated. I couldn’t drive myself. And I had to have someone with me for 24 hours. Also, when they did the endoscopy, they did the ballooning at the same time. I’m going to look up Shatski ring. Very interesting. 
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2022-02-05, Saturday - v1: Night quite OK-ish… I keep thinking I’m up 10x for hours, so tallying helps relieve that feeling.
Triggers & resulting Symptoms
SLEEP (click for details): 8h30, up 5x (61')(felt more)+ 26' doze = 8h56. ✅, but ➔ Feeling 70-80% well, Ache 22 of 7 🧐, getting up: 80%/2 ✅
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:45- (belly pain down, bit of nausea, so nux vomica, burning in right front of thigh air)
0:10 18’ 80%/2 p0 st1 drink fw2’ A4 youtube.
1:45 16’ 70%/2 p0 st1 drink fw10’ air B1
3:15 15’ 70%/2 p0 st1 drink fw12’ B2 Waking up wondering (after about my recent songs) further about jab-sfx and realizing a very burnt tongue & also wondering if cold water might help that like cold showers help my skin. Drinking the chamomile tea seems to help, tried a 2nd ALA.
5:00 7’ 70%/2 p0 st1 drink fw2’ Dream of bus driver problems, then a plane disintegrating, cardboard boxes showering over roads. Stomach ache - chamomile, soy drink. air. HWB. Splashed cold water on face, since I didn’t really feel a cold shower was necessary or worth it.
6:35 5’ 70%/2 p0 st1 drink fw2’
-8:16 8’ 80%/2 p0 st1 drink fw 2’ sinuses OK, torso/arm/bum skin itching a bit. B3. Dozing a bit.
-8:50 = + 26’ B4
Sum: 1h15+8h16-(18+16+15+7+5=)61’ = 9h31-61’ = 8h30, up 5x (61’)(felt more) + 26’ = 8h56.
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Resting most of the day ➔ 80%/2, outside 2x25’ ➔ 70%/3
"HOW DO I LOOK?" At 21:00 I asked my wife how I look, and she confirmed what I’d seen in the laptop camera (eyes!) and it was the look in the mirror that made me look better, so I think I’ll try that more often now. Found a pocket mirror right on my desk I hadn’t “seen”. 8:25 Lips medium, eyes tired. White lips 10:30 Lips redder
ACTIONS ➔ PAINS: Managing to stand well & long in the morning, but getting a stiff back due to not stretching enough: A quick twist-stretch does the trick. I’ve never realized how stiff my back can get and that can make it harder to bend down & get up. No GI any more. Hands hurt while cycling slowly downhill , bit better after stretching .
Treatments
WHB (3 rounds) 
RIBOSE:
SELF-PHYSIO (click for details): 1h58 ✅.
Timing, airing 10x2’, breath exercises 4’, left foot on/under right knee/cross-legged 10’, cold shower (10’)+4’, marionette-hang 10’, hand-exerciser 8’, AuTr 5’, teeth 2x2’, HWB 3x3’, aloe vera 1’, nux vomica 1’, hunchback-pillow 15’, cream 3’, plantar/calf stretch 2’, twist-stretch 3’, neck 1+ 1’, massage gun 5’, yoga/stretching 3’,
breath-hold 12’, calendula/tea tree 2x1’, palpate 1’, belly 3’, back 12’, foot bath 15’, neck 2 4’, loins 5’, jolt-jump 1’, gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, RR x2’, workout 7’, temperature 5’, acupressure 6’,
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: Added a 2nd ALA (B1 3:30). Playing around with NAC & vit. C in the early night? Carnitine's gone bad, get new. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se, Sr. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:30? A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
/03:30 Chamomile tea - seems to improve my tongue.
/00:10 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/01:50 B1 “01:00” PF#4 0SRP#1
/03:30 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/08:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:55 B4 “07:00” EGCg + Fev/MSM
/10:40 MEAL! C1/2 “+30’=Meal” 0x2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/10:40 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/11:00 vit. D3
/12:30 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/15:40 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/19:40 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly: C4+D3, 3x2Mal: A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B1: 1Nc(0:A3,B1,C1,C3,D2) B2: ALA+0x2! pine, A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+)
Development
Jab-sfx: Haven’t been keeping too tight note on these of late, just writing 1-2 symptoms down as they become more conspicuous (again). But I still haven’t been able to transgress the 30% mark of physical activity back to 40%, altho most don’t seem that conspicuous to me any more. If I compare once again to the list of jab-sfx here JayCS’s Fibro Blog - #615 by JayCS, quite a few have decreased, but I still have 1-7, 11, and partly 12, 13, 15, 17, 18, 25, which is 14 of 25 (21 of which were there on day 12 and long following). A new one is not being able to focus my eyes properly a lot of the day. And my tongue just started up at 3:00. Looking here again ALA seems to be better at .6g, however I’m taking the more bioavailable R-enantiomer. But still I’m trying 2x.2g now at 3:30.
Splashing cold water on my face at 5 instead of cold showering may have helped.
MCAS may be caused by mold. Airing and breathing exercises reduce mold amounts. There are certain areas of something like slight mold in my bedroom… So airing may be helping that. The whole flat had quite a few mold problems when I moved in…
Jab#2 or not?: A friend of ours phoned just to say he does NOT think it’s right for me to get another jab, it’s others who need to, to protect people like me. Problem is others don’t, and more importantly he can’t guarantee I won’t get it (esp. via my wife).
Research-search today:
This video more for docs is helping me get the basics Dr. Lawrence B. Afrin, MD, Immunology and Allergy: Mast Cell 101 - YouTube
Reminded me to look for similar German vids to find names of German docs.
Lessons in self-care #214 Improving.
Reasons to be cheerful #221 Nothing spectacular, just bits of progress, finding someone near me with MCAS on youtube.
- Jab-sfx-summary, being edited, major edit Jan 10th 12:35
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…
The first time I had a gastroscopy 20 years ago I was not sedated and thought I was going to die, a really traumatic experience. I hate using any meds, including sedation, I’ve lived my basic ideology as anti-vivisectionist most of my life; but next to certain things my dentist likes to do with me a gastroscopy is something I’d never again do without sedation! No, not impressive…
However I was impressed how well I self-cared & self-advocated.
Asking to keep me warm and remembering to ask to take biopsies for MCAS while already lying on my side - so glad I did that.
Seems my sedation was less dangerous than yours, seeing as I could slowly and carefully cycle home and didn’t need anyone at my side at all. Apart from the 2.5 seizures it worked very well.
My step-dad also asked why they didn’t do the ballooning at the same time: Firstly there were >4 different causes of the dysphagia (constriction, allergy, histamine, eosinophilic esophagitis, Barret’s esophagus etc.) as well as the MCAS to be clarified with biopsies (and I had enough pain after as it was). And secondly he said the ballooning would need 2 days - and while sedated he couldn’t ask if I had my toothbrush with me 
Ahh now sorbitol also has another effect. One of my clients was on some pretty awful medication and his stools could set solid, he was on a daily dose of sorbitol to loosen him up. Post surgery I’d been eating opiate medication like a kid in a candy store and it was having some bad gastro side effects. So, I thought ‘Yea, sorbitol works. I’ll give that a shot…’. So following the directions, I took the morning dose and all was OK. I took the PM dose, no issue. The following morning it hit, it didn’t just loosen my stools, it evacuated my entire digestion system in one shot. Nasty.
Sorbitol is VERY sweet and is used as a sweetener in some products, especially some drinks and some mints, but please be aware an excess of these products can have some awful consequences.
Merl from the Modsupport Team
1 Like
2022-02-06, Sunday - 20%: MCAS… 
anti-(rib-)P (= lupus…)
v2 16:15 research on MCAS (and antibody anti-P) shows anyone with a whole load of inflammatory seeming symptoms should have a look at it.
v1: 14:15 managed some singing / recording, but aching, so needed quite a lot of rest, but had a few research ideas…
Triggers & resulting Symptoms
SLEEP (click for details): 8h46, up 5x (44') ✅, ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 90%/2 ✅
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:40- air
0:15 10’ 90%/2 p0 st1 drink fw2’
1:48 5’ 90%/2 p0 st1 drink fw2’ B1 air
3:51 15’ 90%/2 p0 st1 drink fw2’ B2 air - quite a bit of wind even now.
4:35 9’ 90%/2 p0 st1 drink fw2’ air HWB FCS (LBU - lying too long on it?)
7:15 5’ 90%/2 p0 st1 drink fw2’ B3 air
-8:10 air back ex
Sum: 1h20+8h10-(10+5+15+9+5=)44’ = 9h30-44’ = 8h46, up 5x (44’)
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: singing recording ➔ 70%/3, resting ➔ 80%/2(?), errh, no, moving again turns out 70%/3, and after singing was ➔ 70%/4. After eating it’s still similar, not getting better. But still going out for a cycle-walk. Stays 70%/3 the whole day. Don’t know why.
"HOW DO I LOOK?" ?
ACTIONS ➔ PAINS: Clavicle , but trigger pointing helped. . Stiff after standing a long time is “normal”… . Hand pain while cycling slightly better than the days before .
Treatments
Docs: Preparing for GP and allergologist on Tuesday…
WHB (3 rounds) ?
RIBOSE: ?
SELF-PHYSIO (click for details): 2h21... ✅.
airing 8x2’, cold shower 2x(10’), HWB 5x3’, teeth 1x2’, cream 2’, Timing, hunchback-pillow 15’, AuTr 3’, breath exercises 4’+10’, left foot on/under right knee/cross-legged 5’+5’+30’, palpate 4’, belly 3’, back 7’,
breath-hold 12’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, mirror 2’, shaking dance 1’, workout 7’, hand-exerciser 3’, massage gun 20’, acupressure 6’, aloe vera 1’,
: calendula/tea tree 2x1’, foot bath 15’, gums 2x30’’, V ‘, RR x2’, temperature 5’, nux vomica 1’.
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: Playing around with NAC vit. C in the early night? Carnitine's gone bad, get new. Srp is out, but stopping it for a while, it's so expensive, and I'm not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:40 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:40? A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/00:20 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/01:50 B1 “01:00” PF#4 0SRP#1
/03.:50 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:35 B4 “07:00” EGCg + Fev/MSM
/10:50 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/10:50 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/14:15 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/16:15 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/18:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+0x2! pine, A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx: 14:15: Sinuses histaminey-aching…
Research-search today:
At this point of the Afrin-video on MCAS he mentions “substance P, which is a neuropeptide, docks with the substance P receptor on the mast cell” making a mast cell release tons of mediators…
which reminds me of a blood donor pass I have which says I have antibody anti-P = anti--P/anti-ribose-P/anti-rib-P, which spawned loads of research (click for details) and checking my doc papers which all say: no ANAs.
I does start slow and I was wondering whether I wanted these deep fundaments on MCAS before I’m even quite sure I have it. But at Dr. Lawrence B. Afrin, MD, Immunology and Allergy: Mast Cell 101 - YouTube shows the impressive “explosively degranulating” mast cell. Now what exploded in me even more at that moment was him mentioning substance P. It reminded me of my blood donor pass of 40 years back, which notes I have a complicated blood type including “antibody anti P” (which isn’t the same thing tho). I was told nothing really to worry about at the time (but how would they’ve known?). OTOH I’ve had antinuclear antibodies screened by 2 rheums, a centre for rare diseases and a rheum clinic, and anti-(ribose-)P seems to be a regular one to look for. But maybe it has to be more specific or something different was meant… If it’s true, it’d point me in the direction of autoimmune/lupus/nephritis/hepatitis…
-
Brazil 2014 review The clinical utility of anti-ribosomal P autoantibodies in systemic lupus erythematosus - PubMed
https://www.tandfonline.com/doi/abs/10.1586/1744666X.2014.966692
Anti-P (if it’s the same one as mine) seems a biomarker (present in 10-13%) in SLE (lupus) - which I don’t have much symptoms of, but still an exciting indication: "Anti-ribosomal P protein (anti-Rib-P, anti-P) antibody, described in the 1980s, is a serological marker for SLE that is present in 13-20% of cases. ".
In the fuller text it adds stuff about kidneys, liver and often starting early, plus: “Anti-Rib-P may identify a subgroup of overlap syndromes that is particularly associated with lupus.” -
Croatia 2021 review Assessment of antinuclear antibodies (ANA): National recommendations on behalf of the Croatian society of medical biochemistry and laboratory medicine - PubMed
full: Assessment of antinuclear antibodies (ANA): National recommendations on behalf of the Croatian society of medical biochemistry and laboratory medicine
Here it says 10-35% in SLE (High specificity for SLE) -
France 2019 case report
Chronic hepatitis associated with antiribosomal-P autoantibodies in a 14-year-old girl - PubMed and full:
full: Chronic hepatitis associated with antiribosomal‐P autoantibodies in a 14‐year‐old girl
It’s also occasionally associated with chronic hepatitis
“mainly known to be lupus‐specific and have shown little association with autoimmune hepatitis. Only one study has reported the presence of these autoantibodies in 10% of adults with AIH. From diagnosis until 1‐year follow‐up, no other clinical manifestations of lupus occurred.” “this could be the first reported case of pediatric AIH with negative common laboratory investigation results but positive antiribosomal‐P autoantibodies.” -
study from 2021 Clinical aspects and risk factors of lupus nephritis: a retrospective study of 156 adult patients - PubMed
Clinical aspects and risk factors of lupus nephritis: a retrospective study of 156 adult patients
“anti-ribosomal P protein antibody positivity rates were all significantly increased in patients with active LN compared with inactive LN.” LN = lupus nephritis. But again - hardly any of those symptoms. in Table 1 of “Clinically most relevant ANA specificities in inflammatory connective tissue diseases” ANA = antinuclear antibodies,
Significant as in 54% as opposed to 3%, where renal damage is not necessary (40% as opposed to 52% with renal damage(?)) -
China 2018 The Predictive Value of Autoantibody Spectrum on Organ Damage in Patients With Systemic Lupus Erythematosus - PubMed
The Predictive Value of Autoantibody Spectrum on Organ Damage in Patients With Systemic Lupus Erythematosus
evaluated retrospectively: positive anti-Rib antibodies in renal damage. -
2018 Paris Detection in whole blood of autoantibodies for the diagnosis of connective tissue diseases in near patient testing condition - PubMed
Detection in whole blood of autoantibodies for the diagnosis of connective tissue diseases in near patient testing condition
A novel technology to measure antibodies, photonic ring immunoassay (PRI) is good & faster.
Anti-Rib-P: https://www.orgentec.com/de/produkte/alegria/Autoimmundiagnostik/Rheumadiagnostik/ORG+217.html
Labor und Diagnose 2020 | Kapitel 27: Blutgruppenantigene und -antikörper Anti-P und Anti-Tja (Anti-P, Anti-P1, Anti-Pk): Diese Antikörper kommen extrem selten vor, da nur wenige Menschen diese Antigene nicht selbst besitzen (Tab. 27-11 – P-System).
Die Alloimmunisierung erfolgt in diesen seltenen Fällen meist schon in früher Kindheit, da es sich um ubiquitäre Antigene handelt. Die Antikörper sind dann zwar Kälte reaktive, natürliche Alloantikörper (IgM), zeigen aber auf Grund ihrer breiten Temperaturamplitude und ihrer Fähigkeit, Komplement zu aktivieren, starke hämolytische Aktivität.
DG114 - Der Histamin Irrtum - Interview mit Heilpraktikerin Kyra Kauffmann
Podcast Histamin Kyra Kaufmann DG114 - Der Histamin Irrtum - Interview mit Heilpraktikerin Kyra Kauffmann, amazon reviews Amazon.de:Kundenrezensionen: Der Histamin-Irrtum: Weg von Radikaldiäten und Verbotslisten - die Formel für ein gesundes Leben MIT Histamin
Incidentally, here Dr. Lawrence B. Afrin, MD, Immunology and Allergy: Mast Cell 101 - YouTube Afrin says “rare” disease, but isn’t he the one who says something like 17%? get it?
Dr. Lawrence B. Afrin, MD, Immunology and Allergy: Mast Cell 101 - YouTube What a BRILLIANT cartoon, using the old Indian analogy of 5 blind people (in this case doctors) describing an elephant from the part they see - and whaddyaknow - my fibromyalgia, GERD and praps CFS are in there too…
Here the “typical presentation” Afrin focuses on MCAS patient journeys Dr. Lawrence B. Afrin, MD, Immunology and Allergy: Mast Cell 101 - YouTube
Nice little allergy joke:
Thinks that "UTI"s without inflammation, lipids, esp. triglycerides high…
Interesting thought of Afrin here in the video of his talk using Occam’s razor: “No, the patient probably is not so uniquely unlucky as to have coincidentally acquired so many different problems all of them independently of one another and it is much more likely that they have one problem that is biologically capable of causing directly or indirectly most or all of the issues that have shown up.”
Treatment: 1) Identify (as precisely as possible) and avoid triggers. 2) Inhibit mediator production. (antihistamines) 3)-6) Trying loads of different medications. State of the science is so immature that only trial & error is possible.
Bottom line for me after this video is, which Afrin also specifies on this slide: Anyone with many more inflammatory seeming symptoms than might be expected in fibromyalgia should have a look at MCAS.
Lessons in self-care #215 Singing despite more pain = “singing in the rain”!
Reasons to be cheerful #222 Learning is fun and helps understand.
- Jab-sfx-summary, being edited, major edit Jan 10th 12:35
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…
Ooh, thanks for that reminder, a laxative is something I definitely do not need, never!
2022-02-07, Monday 30% - Tooth NOT OUT! The inflammation hadn’t progressed! 
OK at 12:10 despite less sleep. Tooth appt. looming up.
v1: Stopped sleep at 5:20, Missing 1.5h.
Triggers & resulting Symptoms
SLEEP (click for details): 6h50, up 6x (1h15) ❌ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Maybe shdve cold showered at 4:40 instead of just face & tongue, instead of getting up. But as long as I feel OK... Just gotta keep healthy for the tooth.
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:35-
23:50 5’ 80%/2 p0 st1 drink fw2’ A4.
01:05 6’ 80%/2 p0 st1 drink fw4’ B1. Burning left calf skin, a 2nd time (red, took picture), altho the HWB was much lower, skin slightly burning “all over”.
2:25 11’ 80%/2 p0 st1 drink fw2’ air. B2, finishing chamomile.
4:25 5’ 80%/2 p0 st1 drink fw2’ slightly tummy nauseous/hungry.
4:40 3’ 80%/2 p0 st1 drink fw2’ burning tongue (I always thought this was dry mouth 
) HWB.
Cold showered face and cold water for tongue helped. But then ideas kept me dozing… Also my stomach started aching after using dry mouth gel…
5:22 45’ writing down thoughts - now sinuses a bit tho…
-6:40 1h25+6h40-(5+6+11+5+3+45=)1h15 = 8h05-1h15 = 6h50, up 6x (1h15)
20’’ 2nd cold shower at 3 or 4/ praps a 3rd even shorter if that didn’t help.
-End
Sum:
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Typing, paperwork, singing/music production, incl. lesson ➔ 80%/2. Let’s try table tennis “one last time”… 4 games…no problems ➔ 80%/2, then managed to get a tooth appt. this afternoon… Cortisol flowing, due to less sleep, so I could do some housework and a 30’ phone meeting, then dentist’s appt.
(e.g. cycle 
, TT = 
, meetings/social 
, mask 
, kids 
, work ➔ ?80%/2) ?
"HOW DO I LOOK?" ?
ACTIONS ➔ PAINS: Bladder pain much less since stocking/stacking up the supps, so not just from the GABA.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
Treatments
Docs: Preparing for the allergologist by editing the jab-sfx post.
WHB (3 rounds) - hmm, shdve I think…
RIBOSE: not really necessary due to the cortisol from sleeping less.
SELF-PHYSIO (click for details): 1h56... ✅.
hand-exerciser 4’, cold shower (10’), airing 7x2’, HWB 3x3’, breath exercises 8’, hunchback-pillow 15’, left foot on/under right knee/cross-legged 20’, AuTr 10’, Timing, teeth 2x2’, marionette-hang 20’, acupressure 4’, cream 2’,
calendula/tea tree 2x1’, breath-hold 12’, palpate 1’, belly 3’, back 12’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, workout 7’, massage gun 20’, shaking dance 1’, aloe vera 1’,
: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: Playing around with NAC vit. C in the early night? Carnitine's gone bad, get new. Srp is out, but stopping it for a while, it's so expensive, and I'm not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/22:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/23:50 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/01:10 B1 “01:00” PF#4 0SRP#1
/02:30 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/11:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/11:30 B4 “07:00” EGCg + Fev/MSM
/08:20 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/08:20 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/08:20 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+0x2! pine. A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx: I realized tonight that my painfully dry mouth in the 2nd part of the night could also be explained by “burning mouth” and MCAS. But I had it before the jab. As I say, my tooth cleaner says my symptoms had always reminded me of her histamine patients.
Getting a dry mouth due to not drinking reminds me of the difference at night: I need to drink a bit every time I get up, but still my tongue/mouth sometimes burns. This is different to the burnt tip of the tongue tho.
14:45 Eating pumpkin seeds - controversial about histamine - my left tongue started burning. That reminded me that my often - not always - tongue burns from eating walnuts, which are very high in histamine… Not a proof, might be a hypoallergic reaction to something else in walnuts…
Research-search today:
Lessons in self-care #216 Time to celebrate and concentrate on the next steps.
Reasons to be cheerful #223 Wahaaay - tooth still in, inflammation’s been stopped… I say: by all the supps.
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…
Ohh yea, forget going and having a colonic irrigation. Overdose on that stuff and you’ll be lucky to have any colon left to worry about (And…Ahh, those ain’t tears of joy )
Merl from the Modsupport Team
2022-02-08, Tuesday - MCAS pretty much confirmed…
v2 doing quite a lot, so probably OK, considering…
v1 10:55 bed earlier, up early, but 1h ouch first, then OK. 3 “docs”. TT was a strain after the 2nd game.
Triggers & resulting Symptoms
SLEEP (click for details): 9h21, up 6x (31') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 21:30-
22:00? 3’ air
23:15 3’ 90%/2 p0 st1 drink fw1’ air
0:45 5’ 80%/2 p0 st1 drink fw2’ A4 Still strong pee urge / frequency
3:19 14’ 80%/2 p0 st1 drink fw2’ B1+B2(+NAC) burning itchy skin 18’’-FCS HWB
6:00 3’ 80%/2 p0 st1 drink fw1’ air nostrils
-7:22 3’ 70%/3 p0 st1 drink fw1’ air (nostrils)
20’’ 2nd cold shower at 3 or 4/ praps a 3rd even shorter if that didn’t help.
-End
Sum: 2h30+7h22-(3+3+5+14+3+3=)31’ = 9h52-31’ = 9h21, up 6x (31’)
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Evening tired-Ache-pain, hard in shower ➔ 70%/4, night OK, morning pain ➔ 70%/3, then better after resting for an hour, also after GP & psychologist ➔ 80%/2, worse after 4xTT (after the 2nd game, which is a bad sign) ➔ 70%/3. OK later after rest and at allergologist ➔ 80%/2, but that was a strain so again ➔ 70%/3 for 1-2 hours, while phoning etc…
"HOW DO I LOOK?" pretty OK…
ACTIONS ➔ PAINS: High pee urge & frequency Monday to 23:00… Every local pain quite OK on Tuesday tho. despite overall pain. Jab: tongue/mouth.
Treatments
Docs:
Bloods at GP, few days for the results.
psychologist: Summed up how so much has been succeeding & falling into place. Further development of the 
-exercise: Practising 1) a self-caring, fond look at myself, 2) being conscious of God’s fond look at me, 3) noting how I look - to self-care if I’m overdoing it, and 4) self-caring more for my appearance too - counting the latter as self-treatment.
allergologist: To put the 25 symptoms shorter:
“MCAS”(?) symptoms pre-fibro: stuffy nostrils, (burning sinuses), itchy skin, oversensitive GI, oversensitive to meds. Pre-jab: burning mouth, fibro with all it comes with, incl. broken thermostat for a time.
Since jab: flu-like, incl. nausea, able to move only for minutes for weeks, later if very slowly for under an hour, incl. much more strongly frequent (esp. at night) burning sinuses & broken thermostat), at day feverish-feeling, & (from afternoons) blurry eyes; bouts of feeling good, esp. in evenings, worse in mornings. 17:40 Something else that has worsened sind jab just occurred to me
Reaction of my allergologist: I’m doing everything right, very likely I have MCAS, she kept nodding her head with everything I was saying, gave me a questionnaire by a German expert on MCAS, who has published together with Afrin, where 14 points or above confirms MCAS: I got 19, altho many further symptoms I have weren’t asked for. The way she pronounced MCAS with the English pronunciation (“m-kas”) showed she knew exactly what we were talking about. She explained she could actually do some of the tests, but there are a lot of them, most can only done far away, are very costly, usually not paid for by insurance and the use is pretty dire as the only other thing apart from everything I’m doing already is trial and error with about 20 meds, the use of many of which she is extremely skeptical about.
She says MCAS is one of very few reasons for exemption from the jab, and there are experts who say don’t; but she still does think it’s a good idea to do the 2nd one, commends me for wanting to, even if takes me down to 10% again.
WHB (3 rounds)
RIBOSE:
SELF-PHYSIO (click for details): 2h17 ✅.
airing 2’, cold shower 2x(10’), cream fc/ey/hd/ft 3’+, teeth 3x2’, HWB 2x3’, breath exercises 4’, Timing, hunchback-pillow 10’, left foot on/under right knee/cross-legged 22’, AuTr 5’, breath-hold 12’, palpate 1’, belly 3’, back 12’, plantar/calf stretch 7’, twist-stretch 7’, loins 8’, aloe vera 1’,
face?, neck 1+ 2’, neck 2 4’, calendula/tea tree 2x1’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, hair
: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: Playing around with NAC in the early night: at "3:00", and vit. C in the morning. Carnitine's gone bad, get new. No Srp left, but stopping it for a while, it's so expensive, and I'm not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/19:25 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/00:50 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/03:20 B1 “01:00” PF#4 0SRP#1
/03:20 B2 “03:00” +ALA+0x2x pine bark, (teeth) +1NAC
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:20” EGCg + Fev/MSM
/10:40 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! + 1 vit. C.
/10:40 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/13:00 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:55 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/19:10 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly3x2Mal: C4+D3, A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+0x2! pine+NAC! A3->B1: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon+C C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx: Burning mouth, esp. tongue most of the day.
Research-search today: A little around MCAS.
Lessons in self-care #217 I’ve been doing well & may need a bit for the half-confirmation of MCAS to sink in fully.
Reasons to be cheerful #224 I was right and am doing well.
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…
2022-02-09, Wednesday - 25% - hunting MCAS: Doesn’t help much now being pretty sure it’s that, but it puts a name, or rather: idea to all my oversensitivies
Triggers & resulting Symptoms
SLEEP (click for details): 7h24, up 4x (41') ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up early: 80%/2 🧐. MCAS: Early morning: belly ache at 3, sinuses, tongue/mouth, stomach ache at/after 5:15.
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 23:15-
0:55 5’ 80%/2 p0 st1 drink fw1’ A4
2:50 18’ 80%/2 p0 st1 drink fw10’ B1+2 air HWB. Bit belly-ache
5:23 15’ 80%/2 p0 st1 drink fw1’ air. Sinuses: Cold wash face 8x. Burnt tongue: cold chamomile tea.
5:52 3’ 80%/2 p0 st1 drink fw1’ severe belly ache, tea praps worse. No almond milk, so 5 almonds. More dozing/self-nidra than sleeping.
-7:20
Sum: 45+7h20-(5+18+15+3=)41’ = 8h05-41’ = 7h24, up 4x (41’)
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Preferred less sleep. ➔ 80%/2. Quite OK, and it an only have been the antihistamine (rupatadine) allowing me to play 6x table tennis, then buying food and doing a bit of housework and cooking. So it seems while it might be making me tired and maybe not improving mouth burning and itchiness, it is decreasing my pain.
"HOW DO I LOOK?" OK , tired - my wife pointed it out, but then I saw it, my eyes are slightly more closed. Also managed more of an affectionate look.
ACTIONS ➔ PAINS:
Treatments
Docs: Sorted out further MCAS diagnostics with GP, taking bloods tomorrow. He supported taking the rupatidine for 1-2 weeks if I tolerate it.
WHB (3 rounds)
RIBOSE:
SELF-PHYSIO (click for details): 2h ✅.
cream fc/ey/hd/ft 4x1’, airing 7x2’, cold shower (10’), teeth 3x2’, HWB 2x3’, breath exercises 2x4’, hunchback-pillow 15’, AuTr 15’, loins 2’, marionette-hang 10’, faceTime 5x1’, Timing, left foot on/under right knee/cross-legged 20’, plantar/calf stretch 4’,
calendula/tea tree 2x1’, breath-hold 12’, palpate 1’, belly 3’, back 12’, hair, neck 1+ 2’, neck 2 4’, twist-stretch 5’, yoga/stretching 5’, jolt-jump 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’,
: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: Playing around with NAC in the early night: at "3:00", and vit. C in the morning. Carnitine's gone bad, get new. No Srp left, but stopping it for a while, it's so expensive, and I'm not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/23:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/00:55 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/02:40 B1 “01:00” PF#4 0SRP#1
/02:40 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM
/10:00 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! + 1 vit. C. (meal was at 9:30)
/10:00 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
0 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
1x DAO (D1) “13:00” 0psyllium
/17:15 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/18:40 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly3x2Mal: C4+D3, A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+0x2! pine+NAC! A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon&C C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx/MCAS: Early morning: sinuses, tongue/mouth, belly ache at night, stomach ache, slightly itchy. What I’d completely forgotten on the symptom list which occurred to me before my allergologist gave me the MCAS questionnaire was BREATHLESSNESS, which I’d had thru fibro pre-jab, and now more again in the longest part of the jab sfx. It’s not in the questionnaire, but I’ve seen it on symptom lists.
The allergologist prescribed the antihistamine rupatadine (as ‘Rupafin’), supposedly non-sedatory, but somnolence may be one of the side effects. I took it at 10:00, my sfx atm are itchy skin (altho last shower was 11h ago) and a burning tongue. My GP agreed to try it, for about 1-2 weeks now to take the brunt off the jab. At 11:00 and at 12:15 unchanged, but tired and pressure in head, eyes feel and appear glazed, but I haven’t been airing. Table tennis: 6 games, no Ache!!!, even after 6 games, shops, bit of housework. Itchy & burning all day, praps a bit less itchiness in the late afternoon, more again in the evening, but very tired since taking it, altho that might’ve been from not enough sleep.
Research-search today:
Looking at my doctor’s reports, the centre for rare diseases had found slightly increased alpha-fodrin autoantibodies which had lead to a suspicion of Sjögren’s. Having another look at this, I’ve found that it is mainly used for Sjögren’s, not Lupus, however in this Hannover study from 2007 was also strongly associated with sicca syndrome.
IgA 3 of 4, IgG 2 of 4. I’m interested in my alpha-fodrin autoantibodies levels atm, so that’d be something for the next bloods.
Also slightly interesting: Increased Basophils, strongly: S-TPO-AK (MAK), S-IgG4, decreased Lymphocytes (CD wonky; also Aug20), but both basophils & lymphocytes OK Sep20.
Basophils are a type of leukocyte (white blood cells) first thought to be identical with mast cells, so have to do with immune defence.
I keep seeing higher glucose, not sure, maybe ask doc.
Added to my count of 19-20 points in the questionnaire, which is enough already, any of the following test results would add to that:
- inflammation or too many mast cells biopsy of upper and/or lower GI tract.
- too much bilirubin (0 Jul20 & Aug20), gammaGT (0), GPT (+), GOT (+) (however both no longer in Nov before the jab, so I asked to repeat them), cholesterin (aha! +1), unless transaminase GOT is increased 10x or M. Meulengracht is present,
- too much tryptase (esp. >2x), chromogranin A, heparin / factor VIII / fibrinolysis-parameter.
- leaving urinal N-methylhistamine (esp. >10x),
So I’m now up to about 21.
Burning mouth I’ve seen here can be caused by B-complex-deficiency esp. B6, but I’m supplementing that and eating healthy. My feeling that it might be more from almonds I can’t find.
Lessons in self-care #218 Again did what I felt was most important, fun & workwise.
Reasons to be cheerful #225 MCAS: end of a quest? End of an odyssey?
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…
I had surgery to remove a benign tumor in my left hip area. They used MAC, which is conscious sedation. But I don’t remember anything. It’s not general anesthesia. The surgical site doesn’t hurt. My endless Fibro flare is way worse. Ah!
2022-02-10, Thursday 25% - jab#2 day… OK so far…
Triggers & resulting Symptoms
SLEEP (click for details): 9h05, up 4x (20'), due to the antihistamine ✅, but ➔ Feeling 80-70% well, Ache 2 of 7 🧐, getting up: 70%/2 ❌
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:05-
0:10 5’ 80%/2 p0 st1 drink fw2’ stiff neck, sore throat. air
2:50 5’ 80%/2 p0 st1 drink fw2’ sore throat. A4 air
5:30 5’ 70%/2 p0 st1 drink fw2’ sinuses: cold wash air HWB. Zombified more by Rup, so less Pf.
6:40 5’ 70%/2 p0 st1 drink fw2’ sinuses: cold wash air. Zombified eyes. Belly ache, nausea. Not too much itching.
Would actually be enough sleep, but tough with this pressure.
-07:30 B3+B4. Nausea, stomach ache.
Sum: 1h55+7h30-(5+5+5+5=)20’ = 9h25-20’ = 9h05, up 4x (20’), due to the antihistamine
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 70%/2. 11:50 despite resting: Pain, fatigue, arm energy, thermostat all not OK. Fairly OK after jab, so played table tennis, hardly moving, 4 games again with no pain after ➔ 80%/2, just stiff & tired.
"HOW DO I LOOK?" 8:15 white lips take care… 11:50 blue-white lips (‘broken thermostat’) 12:30 lips redder (from cycling?) 18:45 small eyes. 19:10 lips medium. Whoops, forgot a self-caring look.
ACTIONS ➔ PAINS: GI: 8:05 Cramping loose stool after stomach/belly ache, initial constipation, abdomen stabs after. Tongue/mouth & skin better from the night on. Neck a bit stiff, so stretching it. . Temperature before jab#2: 36°C. Bladder: p4 and p3 in the afternoon. . Doing ear/vagus massage I realized I can’t hold my arms up long without them hurting, that hasn’t been the case for quite some time either. Generally stiff .
Treatments
Docs: Lipoprotein (a) has gone up again to 148, so I’ll have to my (atorva)statin again I spose, as the triglycerides and cholesterin are double what they then should be.
Re-check for alpha-fodrin autoantibodies next (slightly increased July 2020)? No, that and IgG4 is only Sjögren’s and that’s been excluded. Serum TPO-Antibodies (thyroid) (were greatly increased July 2020). Why is my glucose always increased?
WHB (3 rounds) 7:55 1’40’’ 2’ 2’ Helped sinuses/nostrils a bit, but itchiness increased.
RIBOSE:
SELF-PHYSIO (click for details): 2h51 ✅.
airing 6x2’, cold shower 2x(10’), facetime 7x1’, calendula/tea tree 2x1’, cream fc/ey/hd/ft 5’, teeth 1x2’, HWB 3x3’, breath exercises 6’, Timing, hunchback-pillow 15’, breath-hold 13’, left foot on/under right knee/cross-legged 25’, palpate 1’, belly 3’, back 12’, acupressure 6’, neck 1+ 2’, neck 2 2’, twist-stretch 1’, hair 15’, marionette-hang 2’, aloe vera 1’,
AuTr 20’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’,
: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: NAC still at "3:00", and vit. C in the morning. Carnitine's gone bad, get new. No Srp left, but stopping it for a while, it's so expensive, and I'm not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/21:35 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/00:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/02:55 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
0 B1 “01:00” PF#4 0SRP#1
/05:30 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM
Rupafin.
/09:00 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! + 1 vit. C.
/09:00 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/11:40 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:30 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/19:10 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly3x2Mal: C4+D3, A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: 0B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+0x2! pine+NAC! A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon&C C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx/MCAS/antihistamine: Overall pain decreased soon, tongue/mouth & itchiness decreased at night, i.3. after 12h, tiredness with pressure on eye and head day and esp. night, still up 4x5’ (of course…)… Cramping loose stool after initial constipation.
11:50 ‘thermostat’ → HWB. Tongue/mouth still good. Skin OK on arms and chest, slight burny-itch on flanks. Pain, fatigue, arm energy all not OK.
13:10 Bit dizzy at times. Sometimes reminding me of a seizure aura - got 3 last time the next day. Tongue starting a bit again, but not much. No nausea yet.
14:00(?) Bladder pain for the first time in ages, an MCAS symptom, meaning GABA is down, so took some extra.
17:00 Small eyes from the antihistamine.
19:00 Still no nausea, cold/flu, headache, spinning, hardly burnt tongue or itchiness or burning… just tired, fatigued.
20:00 Bit nauseous, esp. when walking.
My wife reminded me “I have 2 new conditions” - meaning my Schatzki-ring esophagus constriction. But for me that’s not a new condition, just a name for something I’ve had for ages, and for a change: something that can be done about it. But she’s not wrong, since MCAS is also a name for…
Research-search today:
Is histamine a hormone? Sort of, a local / tissue hormone, but actually more of a neurotransmitter.
Is MCAS autoimmune? No. No antibodies are created that attack the body, “just” hyperactive mast cells.
Someone suggested doing pharmacogenetic testing to see what kind of meds I tolerate. Looking up I’ve seen test kits costing about 200€. Apparently they vary quite a bit in their specificity.
Someone else suggested vagus massaging by Sukie Baxter: the ear spots relax me, but if I do it too long, my arms hurt and I get nauseous.
A Schatzki-ring naturally prevents a Barret’s esophagus developing after reflux it says in this study. Repeat dilations usually necessary.
Lessons in self-care #219 I’m not at all nervous about the diagnoses & jab, as opposed to my wife.
Reasons to be cheerful #226 Bit excited what’ll happen next. 
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…
Had to look that one up: “Monitored anaesthesia care”. Yup, that’s what I had. Propofol, marketed as ‘Diprivan’. Didn’t remember anything either, but as I said: belly did hurt after. Others have told me they couldn’t walk home after and needed looking after, but maybe that was more than just sedation. I wasn’t really aware of the distinction… Yes I agree - that pain is ‘nothing’.
2022-02-11, Friday 20% - eye of the storm? GABA helps my sinuses most(?)
v2: 12:00 sinuses, breath-holding didn’t help, suddenly remembered the anti-histamine 
v1: eye of the storm? Well full-burning sinuses… - not really an eye…
Triggers & resulting Symptoms
SLEEP (click for details): 8h49, up 4x (25') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐. Burning sinuses, rest OK.
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0/ Sleep 22:35-
1:10 3’ 80%/2 p2 st1 drink fw2’ air A4
3:15 10’ 80%/2 p0 st1 drink fw1’ air 0B1 B2 HWB chamomile#2 nostrils: blow, acupressure. sinuses.
cold wash face, cream. GABA sublingual 150mg.
5:00 3’ 80%/2 p0 st1 drink fw2’ strong stomach ache with nausea - almond drink. dozing cos mind (with good idea of phoning GI-doc before mailing, but also work, not helping)-
5:41 9’ 80%/2 st1 drink fw2’ 15’’ cold shower
-7:47
20’’ 2nd cold shower at 3 or 4/ praps a 3rd even shorter if that didn’t help.
Sum: 1h25+7h47-(3+10+3+9=)25’ = 9h14-25’= 8h49, up 4x (25’)
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 70%/2 (jab-sfx), resting %80/1, moving %70/1-2: bit histaminey jab-sfx, esp. 4xTT
nausea, dizzy, itchy… but a bit better from breath-holding, resting etc.
"HOW DO I LOOK?" 8:55 tired eyes, medium lips . 14:45 tired eyes, white dry (chapped; no reason) lips. 17:00 tired eyes, lips medium.
ACTIONS ➔ PAINS: 21:30 Bladder p4. Arms up tough today, as of late. And fairly stiff.
Treatments
Docs: Re-check for alpha-fodrin autoantibodies next (slightly increased July 2020), Serum TPO-Antibodies (thyroid) (were greatly increased July 2020). Why is my glucose always increased?
Yesterday: My cardio/angio said wait for the lipids are too high
WHB (3 rounds) +:two: 11:30 (sitting, ordering supps) 1’10’’ 1’30’’ 1’30’’ 1’ 1’30’’ 1’30’’ double! 18:45 1’30’’ 1’30’’ 1’50’’
RIBOSE: ?
SELF-PHYSIO (click for details): 3h29 ✅. Trying to increase combinations. breath-holding during ordering (work/fw/), even double.
cream fc/ey/hd/ft 4x1’, twist-stretch 18’, airing 7x2’, cold shower 3x(10’), facetime 3x1’, Timing, HWB 3x3’, calendula/tea tree 2x1’, breath exercises 4’, hunchback-pillow 15’, breath-hold 3x12’, teeth 1x2’, hair/nails 3’, left foot on/under right knee/cross-legged 20’+7’+6’+9’+5’+10’, loins 2’, hand-exerciser 3’, marionette-hang 2’
Combinations
AuTr 20’, palpate 1’, belly 3’, back 12’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, yoga/stretching 5’, jolt-jump 1’, workout 7’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’
: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: NAC still at "3:00", and vit. C in the morning. Carnitine's gone bad, get new. No Srp left, but stopping it for a while, it's so expensive, and I'm not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/21:50 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
/22:00 Chamomile tea.
/01:10 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
0 B1 “01:00” PF#4 0SRP#1
/03:15 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/08:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:45 B4 “07:00” EGCg + Fev/MSM
/10:00 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! + 1 vit. C.
/10:00 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/12:00 Rupafin
0 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
/12:30 + 200mg GABA sublingually for the sinuses.
/13:20 nux for nausea
/14:45 1 DAO (D1) “13:00” 0psyllium
/15:00 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK!
/19:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.0Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Take ALA & pine bark away from the night, as it makes alert!
Arg: Capsules? Pf: A1+0A3+0A4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly3x2Mal: C4+D3, A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., A4: NAC! B2: ALA+0x2! pine+NAC! A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon&C C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx/MCAS: Night & morning: Sinuses full-blown, occasional bladder, occasional nausea. Trying to reduce them: breath-hold, breath exercises, 3rd cold shower (but skin itchy/burning after), had forgotten the antihistamine, almost forgot to phone cardio that everything’s ‘normal-histaminey’. Praps some GABA sublingually now. Burning back skin. Nausea when I walk around, so nux. But still energy.
13:20 sinuses bit better. 17:15 heaviness & itchiness increasing, nausea, so air & breath-hold.
20:00 Bit better upon eating, 21:30 sinuses again, and bladder: p4, so need GABA quick, rest OK.
Research-search today: Hours looking for a good CoQ10-product - so many with additives!
Lessons in self-care #220 Looking at/caring for myself more today is helpful.
Reasons to be cheerful #227 At last found away of breath-holding more regularly, “in passing”.
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…