JayCS’s Fibro Blog

JayCS · January 25, 2022, 11:48am

2022-01-25, Tuesday - 10%: feeling wretched, but oxygenating exercises help.

v3: Self-care: Going thru ALL self-treatments to see if anything helps & what harms.
v2: 11:50 Feeling wretched today, crying instead of laughing.
v1: 19:30 skin burning without having eaten (but drunken a lot of soy milk…)

Triggers & resulting Symptoms

SLEEP (click for details): 8h19, up 6x (32'), plus 22' Y.Nidra = 8h41 ✅, but ➔ Feeling 90/70% well, Ache 2 of 7 🧐, waking up: 50%/3 thermostat broken ❌❌

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:10- (21:55 trying without cold shower jus cos tired; wasn’t working)
23:20 5’ 90%/2 p0 st1 drink fw2’
0:15 3’ 90%/2 p0 st1 drink fw2’
1:25 5’ 90%/2 p0 st1 drink fw2’
2:30 3’ 90%/2 p0 st1 drink fw1’ feverish, bit nauseous.
4:15 9’ 70%/2 p0 st1 drink fw7’ feverish, sinuses → GABA +0.3g. FCS?
6:33 7’ 70%/2 p0 st1 drink fw1’ sinuses a bit, bit nauseous
air, HWB, B3+B4 & tea.
7:01 thoughts, awake. cold. 5’ 70%/2 p0 st1 Y. Nidra -28 = 22’
-End?
Sum: 1h50+7h01-(5+3+5+3+9+7=)32 = 8h51-32= 8h19, up 6x (32’), plus 22’ Y.Nidra = 8h41

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Music lesson & Making & listening to music “up” to ➔ 60%/4. Some exercises & slow cycle-walk: air! ➔ 70%/3.
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" ? Crummy.
ACTIONS ➔ PAINS:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:
WHB (3 rounds)
9:45 1’30’’ 1’40’’ 1’30’’ (not feeling good after tho, didn’t help)
Breathing alternating thru nostrils:
12:35 10’ Other breath exercises >10’
Airing (Trophy only when regularly enough):
19:40 21:35 1:30 2:30 4:20 12:15 13:30 15:50 and more.

SELF-PHYSIO (click for details): 3h43 ✅✅. What's helping most?: Bound angle pose (but also straining/hurting as well). ✅ Breath-exercises ✅✅ angle / HWB / massage pistol ✅, airing ✅, horse stance 30'' ✅. Not sure about an iso-version of the 7'-workout yet? ✅ 🧐

airing 10x2’, twist-stretch 5’, hand-exerciser 3’, cold shower (8’), Timing, HWB 2x3’, aloe vera 1’, hunchback-pillow 10’, teeth 1x2’, back 4’, AuTr 22’, breath-hold 12’, left foot on right knee/cross-legged/bound angle 65’, breath exercises 20’, massage gun 12’, jolt-jump 1’, horse stance 2x30’’=1’, palpate 1’, belly 3’, back 12’, cream 2’, workout 5’, shaking dance 1’, marionette-hang 1’,
calendula/tea tree 2x1’, foot bath 15’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, acupressure 6’, nux vomica 1’.

Ordered, coming soon - keep doses till implemented & add costs per month.
B.5 ellagic acid (Granatapfel) .5g/d 30€/120x.2g = 15€/m. not meals it says on the bottle, but on the web it says nothing except that it’s antioxidant & anti-inflammatory and seems fairly unproven.
A.6 Diamine oxidase enzymes (DAO) – 2cps/meal Peas/lentils. 37€/60 = 55,50€/m!
B.7 Honokiol = Magnolia Bark (Magnolienrinde) 2x.2g/d, (120x.4g) 25,79 €. = 6,45€/m
B.3 Silymarin (Mariendistel) – 1-2x.5g/d.

Supps (Jan 23rd: 26): CHANGE: 4:20 GABA +0.3g. Integrated most of the new ones. If this all doesn't help, I'll stop them again, of course. Forgot to order SAMe & Akilwinter cream for feet. Need more PQQ(?) & microalgae Omega 3, too. RIBOSE! PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (24+2): ALA .2g, B2 1x.1g, B12 5mg/2m, Cr 3x1g, D3 1/w, EGCG: 250mg Fev: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Luteolin .2g Mg Gly 2x2, Mg Ma1x2, 0Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sr 3x1x125k, 0The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO!
/21:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!)
/ Chamomile tea.
/23:20 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid
/00:15 B1 “01:00” PF#4 SRP#1 (0NAC)
/01:25 B2 “03:00” +ALA+2x pine bark, (teeth)
0 “05:00” 1x the undefined capsules lying around…
/6:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/6:35 B4 “07:00” EGCg + Fev/MSM
/7:35 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,gink#1, Qc#2 Zn (0the2, 0NAC) DRINK! DAO! forgot
/7:35 C3 “08:00” .1gB2,0x.5gC#1 (0NAC)
/11:40&14:40 C4 “11:00” (+2h/) gi#2 gly#1+2 SRP#2. Nd#? & Ellagic acid
(D1) “13:00” 0psyllium
/15:45 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4,Qc#3 0NAC#5 DRINK! DAO: 1.
/17:50 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 Cr: A1+C1+D2, Ellagic acid: A4+C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc:B3.C3.D2.D4 Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2pine A3: Luteolin, B3:Sa B4: 1 EGCG&Fev/MSM C2:Zn. 0C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
2C:C2,D3 (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: 19:30 skin burning without having eaten (but drunken a lot of soy milk…) 21:40 Itchy back & arms. 7:00 “Thermostat” busted.
Research-search today: Nope…:
Lessons in self-care #200 Not ‘researching’ at all today.
Reasons to be cheerful #210 Oxygen feels good.

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · January 26, 2022, 11:04am

2022-01-26, Wednesday 20%! - Deep-breathing & earlier GABA!

Tuesday evening better… histamine level highest at 3:00 - that’d explain things & help! My left loin has improved: massage pistol helping! more oxygen & earlier supps helped the morning!: 20% And all day, despite too much to do to self-discipline enough

Triggers & resulting Symptoms

SLEEP (click for details): 8h20, up 4x (46') ✅, ➔ Feeling 90 well, Ache 2 of 7 🧐, waking up: 90%/2 🧐, except burning/itchy histaminey skin, sinuses only slight; feeling better than normal due to airing & deep-breathing, & advancing supps

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 23:05-
1:25 3’ 90%/2 p0 st1 drink fw1’
2:55 3’ 90%/2 p0 st1 drink fw1’ slightly burning/itchy skin
5:10 15’ 90%/2 p0 st1 drink fw10’ again burning/itchy skin
6:30 25’ 90%/2 p0 st1 drink fw1’ slightly burning/itchy skin, hungry, bit nauseous. burning/itching. Ate & supps B4 & C1-C3, plus Ell- from A4. → HWB, 4’ breath, air.nidra. → Nidra/AuTr/dozing 30’.
-8:11 slightly burning/itchy skin.
Sum: 55+8h11= 9h06-(3+3+15+25=)46’ = 8h20, up 4x (46’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: A mail cost energy ➔ 70%/3, but a reduced workout and a cold shower brought it back ➔ 90%/1 (except itchy skin), even 3xTT worked out OK too. As well as a lot work, altho that might’ve got the eustress-cortisol flowing… ➔ 90%/1 Video meeting with mates
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" First redder lips , 11:40 blue-white, but maybe cos of the cold shower . Maybe concentrate on lips…
ACTIONS ➔ PAINS:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:
WHB (3 rounds)
?
Breathing alternating thru nostrils:
22:10 just deep breathing 4’ Several times at night 11:00 During workout deliberately deeper
Airing (Trophy only when regularly enough):
23:00 1:30 2:55 5:10 6:30 8:10 11:40 17:20

SELF-PHYSIO (click for details): 2h28... ✅. Horse stance & breathing at 1:30 🧐 and 3:00 🧐. Heartbeat too fast. But with only breathing still too fast. Maybe advancing supps better than breathing at night. Not enough self-care!

plantar/calf stretch 8’, twist-stretch 15’, loins 5’, yoga/stretching 5’, hand-exerciser 3’, workout 10’, breath exercises 23’, airing 6x2’, cold shower 2x10’, Timing, aloe vera 1’, teeth 1x2’, hunchback-pillow 10’, left foot on/under right knee/cross-legged 5’, AuTr 20’, HWB 3x3’,
breath-hold 12’, calendula/tea tree 2x1’, cream 10’, palpate 1’, belly 3’, back 12’, foot bath 15’, neck 1+ 2’, neck 2 4’, jolt-jump 1’, gums 2x30’’, V 1‘, marionette-hang 1’, mirror 2’, shaking dance 1’, RR x2’, massage gun 20’, temperature 5’, acupressure 6’, nux vomica 1’.

All arrived now - keep doses till implemented & add costs per month.
B.5 ellagic acid (Granatapfel) .5g/d 30€/120x.2g = 15€/m.
A.6 Diamine oxidase enzymes (DAO) – 2cps/meal Peas/lentils. 37€/60 = 55,50€/m!
B.7 Honokiol = Magnolia Bark (Magnolienrinde) 2x.2g/d, (120x.4g) 25,79 €. = 6,45€/m
B.3 Silymarin (Mariendistel) – 1-2x.5g/d. 100x.5g = 13€/3m (4€/m, 1x/d)

Supps (26th: 26? Update!): CHANGE: Ordered SAMe, & Akilwinter cream for feet, more Quercetin (important!) & microalgae Omega 3. RIBOSE! PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (19+3): ALA .2g, B2 1x.1g, B12 5mg/2m, Cr 3x1g, D3 1/w, EGCG: 250mg Fev: .2g Ga: ~2g+(4), !3Gi, Glu:~1.2g+(4), Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sr 3x1x125k, 0The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO!
/22:00? A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!)
/22:00 Chamomile tea.
/01:25 A4 “23:00” PF#3 .6 GABA&.3glu#2
/01:25 B1 “01:00” PF#4 SRP#1 (0NAC)
/02:55 B2 “03:00” +ALA+2x pine bark, (teeth)
/05:10 0 “05:00” 1x the undefined capsules lying around…
/06:35 B4 “07:00” EGCg + Fev/MSM
/06:35MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,gink#1, Qc#2 Zn (0the2, 0NAC) DRINK! DAO! & Added Ellagic acid as forgot to add it to A4 in the template.
/06:35 C3 “08:00” .1gB2,0x.5gC#1 (0NAC)
/11:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/11:40 C4 “11:00” (+2h/) gi#2 gly#1+2 SRP#2. Nd#? & Ellagic acid
(D1) “13:00” 0psyllium
/17:20 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4,Qc#3 0NAC#5 DRINK! DAO!
/19:35 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc:B3.C3.D2.D4 Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2pine A3: Luteolin, B3:0Sa B4: 1 EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: It often getting better in the evening and worse at night (histamine goes up by 3) would also be a sign of HIT/MCAS. But how come it got worse Friday afternoon/evening? But better Saturday evening, for instance.
Research-search today:
This functional therapist (who maybe wants to make money, but discloses a lot) says breathing in the mornings…! And rewiring the mast cells using the “right form” of yoga, meditation and breathing.
Decided to look for forums, but can’t find any. Ben’s Friends does have livingwithmastcell, but not active, and it’s actually for mastocystitis, a rarer form.
But looking for forums I keep reading that certain triggers are normal, which I can’t say I have, not even necessarily food… hmm…

Lessons in self-care #201 Too much to do to relax today, but tomorrow! Pleeease!
Reasons to be cheerful #211 Maybe solving the night is the wa-haa-y… ?

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · January 27, 2022, 11:22am

2022-01-27, Thursday 25% - better night, but for that again less deep sleep… worth it. v2 15:10 Almond milk is OK. Getting used to the diet. And to watching for the sinuses. Loins better and bending over too… Progress.

Triggers & resulting Symptoms

SLEEP (click for details): 9h15, up 8x (1h10) (dozing quite a lot ✅, but ➔ Feeling 90 well, Ache 2 of 7 🧐, waking up: 90%/2 🧐

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:30-
23:50 5’ 90%/2 p0 st1 drink fw2’ B3?? A4
1:25?/1:31 25’/20’ 90%/2 p0 st1 drink fw19’ B1 too long → feverish
2:08 70%/2 9’ FCS fw3’ → 90%/2, but not really tired, so dozing
3:07 3’ 90%/2 p0 st1 drink fw2’ B2/, Yoga Nidra, sinuses starting up so breathing
3:46 3’ 90%/2 p0 st1 fw1’ Y.N. +15’ air/
4:45 8’ 90%/2 p0-1 st1 drink fw1’ air/ nostril acupressure, breath-ex. ->3x
6:30 12’ 90%/2 p0-1 st1 fw1’ air/ B3/
8:03 5’ 90%/2 p0 st1 fw1’
-8:55
Sum: 1h30+8h55-(5+25+9+3+3+8+12+5=)70’ = 10h25-1h10= 9h15, up 8x (1h10) (dozing quite a lot)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Resting & 3x TT ➔ 90%/1-2
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" I can’t win - I always feel I look better than my wife thinks.
ACTIONS ➔ PAINS: Loins almost gone! Sharp abdomen pain for an hour , till vibrated away.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

WHB (3 rounds)
12:20 1’30’’ 1’30’’
Breathing alternating thru nostrils:
3x evening till 2:15 7’ 3:10 1’ 10:00 In between 10’ Regularly often in between, more than noted
Airing (Trophy only when regularly enough):
22:50 2:10 3:45 4:45 6:30 8:00 09:00 13:40 17:40

SELF-PHYSIO (click for details): 4h09 ✅.

aloe vera 1’, Timing, airing 8x2’, breath exercises 28’, calendula/tea tree 2x1’, cold shower 2x(10’), loins 5’, belly 3’eve, back 6’eve, hunchback-pillow 15’, left foot on/under right knee/cross-legged 15’, cream 7’, plantar/calf stretch 5’,
HWB 2x3’, Y. Nidra 50’, teeth 1x2’, acupressure 3’, breath-hold 8’, palpate 12’, massage gun 10’, yoga/stretching 3’, twist-stretch 22’, marionette-hang 4’, hand-exerciser 4’,
foot bath 15’, neck 1+ 2’, neck 2 4’, jolt-jump 1’, gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, RR x2’, workout 7’, temperature 5’, nux vomica 1’.

Supps (23rd: 25): CHANGE: Ordered SAMe & Akilwinter cream, microalgae Omega 3 too. RIBOSE? PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (19+3): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, D3 1/w, EGCG: 250mg Fev: .2g Ga: ~2g+(4), !3Gi, Glu:~1.2g+(4), Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sr 3x1x125k, 0The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/21:00 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! Sinuses better from supps - altho NOT GABA - & eating?
/21:55 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!)
/21:55 Chamomile tea.
/23:50 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid
/01:31 B1 “01:00” PF#4 SRP#1 (0NAC)
/03:05 B2 “03:00” +ALA+2x pine bark, (teeth)
0 “05:00” 1x the undefined capsules lying around…
/06:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:35? B4 “07:00” EGCg + Fev/MSM
/10:00 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:).1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/10:00 C3 “08:00” 0x.5gC#1 Qc#2 2the, (0NAC)
/12:35 C4 “11:00” (+2h/) gi#2 gly#1+2 SRP#2. Nd#? & Ellagic acid
/14:00 0 (D1) “13:00” 1x DAO 0psyllium
/14:50 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4,Qc#3 0NAC#5 DRINK! DAO!
/17:35 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc:B3.C3.D2.D4 Q1&Rs:B3,D4 Sr1x: B1,C4,D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2pine A3: Luteolin, B3:Sa B4: 1 EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: Add nocturnal spike to sfx summary… Burning skin when my back is slightly exposed is what my skin feels like just now 3:10…
While eating at 14:30 my sinuses start hurting, so I know it’s time for the 15:00 GABA. At 15:10 they still are, and my skin may be burning, or it’s from the longjohns.
Research-search today: Bit of “youtube research”…
Both breathing exercises I use aside from Wim Hof are also recommended by Luanne for HIT, also I’d use that grounding exercise if I needed it, but I’m never anxious, I’d say, and she says histamine overproduction usually comes from anxiety?? Also all of the supps/herbs (esp. theanine & GABA) except taurine & ginger tea which don’t work for me.
Chris recommends vitamin A and Se for HIT, but I eat a lot of carrots and took selenium for a long time.
Cameron describes that mast cell overreaction not only creates hives via skin dilation, airways contract, but also gastric acid secretion which I am now getting in the early morning.
Kait explains it a bit more medically & for me clearly. Strangely she says olives & mushrooms are OK, but I spose she means fresh, not in jars.
Russel gets taught a different breath exercise with torso & hand movements up, and hitting on the sternum a few times on the 4th breath. I like that one, it makes a difference, almost makes you faint.
Dr. Berg says no to eggs, others yes… Seems again my own trigger elimination diet is again called for… I could do some cauliflower again too, but broccoli better. Intermittent fasting and also every 2 weeks 48h fasting.
Lessons in self-care #202 My evolving diet is getting a bit more fun since I’ve an almond drink that tastes OK at last. However I still don’t understand why that’s sposed to be better than soy drink.
Reasons to be cheerful #212 Feeling quite OK today, maybe even better 20%?

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · January 28, 2022, 9:36am

2022-01-28, Friday 30% - short night, but deep & OK, due to 4:50 cold shower. Day maybe overdoing it, hope to get control of that in the evening and night…

Triggers & resulting Symptoms

SLEEP (click for details): 7h25, up 5x (65') 🧐, but ➔ Feeling 90 well, Ache 2 of 7 ✅, waking up: 90%/1 ✅

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 23:50-
1:50 7’ 90%/2 p0 st1 drink fw3’ (B1)
4:21 5’ 90%/2 p0 st1 drink fw3’ (B2) air 2’, breath 2’. OK? 15’ cushion.
4:47 45’ fw3’ no, skin on arms & torso starting up, so FCS. fw40’ stupid!!
07:05 4’ 90%/2 p0 st1 drink fw1’ (B3+4)
-8:20 4’ 90%/2 p0 st1 drink fw1’
10+8h20-(7+5+45+4+4=)65 = 8h30- 65 = 7h25, up 5x (65’)
Sum:

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: 40’fw at night was stupid, but went OK, even falling asleep again with unguided yoga nidra ➔ 80%/2. And let myself get cold again in the morning, too: Foot bath helped ➔ 80%/2. 4x TT! ➔ 80%/2, bit cold, so a short foot shower: ➔ 80%/2, then a 45’ cycle-walk, still ➔ 80%/2, evening another 1h phone call tough, but still OK, 30’ shop & short talk still OK
"HOW DO I LOOK?" 10:00 White lips, but maybe just due to letting myself get cold, sillily. . Also might also be more ‘my thermostat’ than Ache.
ACTIONS ➔ PAINS:

Treatments

Docs: I was thinking about contacting 2 more pneumonologists to get a referral to the immunologist, but didn’t feel like it today.
WHB (3 rounds)
10:15 1’30’’ 2’ 2’30’’

SELF-PHYSIO (click for details): 3h12 ✅.

airing 7x2’, breath exercises 24’, cold shower 2x(10’), hunchback-pillow 20’, cream 7’, plantar/calf stretch 6’, hand-exerciser 3’, massage gun 6’, breath-hold 13’, foot bath 10’+5’, calendula/tea tree 1x1’, teeth 2x2’, AuTr 20’, HWB 3x3’, workout 7’, back 8’, marionette-hang 1’, acupressure 2’, twist-stretch 3’, yoga/stretching 1’, shaking dance 2’, jolt-jump 3x1’, loins 3’,
left foot on/under right knee/cross-legged 20’, Timing, palpate 1’, belly 3’, neck 1+ 2’, neck 2 4’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, aloe vera 1’, nux vomica 1’.

Supps (27th: 28): Working out the - now pretty immense costs of the supps. CHANGE: RIBOSE! PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:15 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO!
?/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!)
Chamomile tea.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid
/01:50 B1 “01:00” PF#4 SRP#1 (0NAC)
/04:25 B2 “03:00” +ALA+2x pine bark, (teeth)
0 “05:00” 1x the undefined capsules lying around…
/07:05 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:05 B4 “07:00” EGCg + Fev/MSM
/10:05 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, C2:.1gB2, gink#1, Zn (0NAC) 1xHon! DRINK! DAO!
/10:05 C3 “08:00” 0x.5gC#1 Qc#2 2The2 (0NAC)
/13:30 C4 “11:00” (+2h/) gi#2 gly#1+2 SRP#2. & Ellagic acid Nd#?
0 (D1) “13:00” 0psyllium
/16:25 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4,Qc#3 0NAC#5 DRINK! DAO!
/18:55 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc:B3.C3.D2.D4 Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2! pine A3: Luteolin, B3:Sa B4: EGCG & Fev/MSM & Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: Supps, breathing & cold showering seem to be helping.
Research-search today: Bit of forum work.

Lessons in self-care #203 Allowing myself to meet or phone a lot today, mainly with colleagues.
Lessons in self-care #204 Using phoning to do exercises & prepare supps, so self-caring.
Reasons to be cheerful #213 TT 4x and more - progress…

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

Freedom · January 29, 2022, 3:33am

Hi JayCS, you mentioned almond drink and soy drink. Are you referring to almond milk and soy milk? I want to think I heard soy milk can affect your hormones. I love almond milk. I also love oat milk. I’m not sure you have those in Germany. In the U.S., we have almond milk with or without sugar and vanilla almond milk with or without sugar. I drink vanilla almond mild without sugar. More later.

Freedom · January 29, 2022, 3:54am

Back again. Ok. I also really like the creaminess of oat milk. And I drink the kind without sugar.

JayCS · January 29, 2022, 9:39am

2022-01-29, Saturday 30% (well probably a bit less)

Jab #2?!?!
Histamine down, breaks up even more. Learning to combine self-treatments more, at the moment more Yoga Nidra

Triggers & resulting Symptoms

SLEEP (click for details): 8h37 ✅, dozing & Yoga Nidra a lot ❌, plus up 8x ❌ (1h51 ❌), but ➔ Feeling 90 well, Ache 2 of 7 ✅, waking up: 90%/2 🧐, energy, but tired eyes 🧐. So measures to decrease histamine are very successful, but increasing sleep breaks, whether cold showering or breath exercises. Try bed earlier first 🧐, so supps & eating earlier.

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:55-
0:05 5’ 90%/2 p0 st1 drink fw2’
1:40 20’ 90%/2 p0-1 st1 drink fw18’ air, B1
2:35 40’ thoughts & some sort of discomfort. Music. p0 Cold shower#2 Nidra 15’. B2
4:03 11’ 90%/2 p0 st1 drink fw2’ air. music. Ally 20’. bit cold.
4:38 24’ HWB. air. 6. → 5.04 ally 20’
5:35 5’ 90%/2 p0 st1 drink fw1’ Ally. 20’ = 1h15 Once more p0? Managed to control the ‘broken thermostat’ by moving the HWB around a lot.
7:18 3’ 90%/2 p0 st1 drink fw2’ Versöhnungsersuch SL. and up before once doze.
8:56 3’ 90%/2 p0 st1 drink fw2’ doze
-9:23
Sum: 1h05+9h23-(5+20+40+11+24+5+3+3=)1h51 = 10h28-1h51 = 8h37, up 8x (1h51)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Breath-holding & back exercising was still good, 4x TT also ➔ 90%/2, but a 10’ chat & 10’ shop broke the camel’s back ➔ 70%/3, so resting for a whole while now.
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" ? 9:35 Half-white lips, slightly pale.
ACTIONS ➔ PAINS: GI: Stomach burning a bit only upon getting up, at night almond drink sufficed. IBSD only once the last few days. No more abdomen pains, except the once, where massage pistoling sufficed.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:
WHB (3 rounds) 10:20 1’40’’ 2’20’’ 2’30’’

SELF-PHYSIO (click for details): 5h18 ✅✅✅✅✅. >3h by getting up at 9:30, so mostly at night! Do a bit more neck again. 10:00-:20 Breath-holding, -:33 belly & back plus Nidra: Intensifies both, combining more & more, like I've already been doing, will increase all self-physio & self-care. Listening to Nidra videos in between, e.g. while working or producing music may increase relaxation all day, by reminding consciously & subconsciously. 13:25-45 Y. Nidra helps relax again. (15:30: 4h45)

teeth 2x2’, breath exercises 7’+3’+5+3, aloe vera 1’+1’, twist-stretch 2’+1’+10’+3’, loins 3’+2’, yoga/stretching 1’+1’, hand-exerciser 3’+3’, airing 7x2’, cold shower 2x(10’), cream 9’+2’, plantar/calf stretch 2’+2’+2’, HWB 3x3’, Timing, hunchback-pillow 33’, massage gun 3’+4’, AuTr 1h15+10’ 13:25-45=20’, acupressure 3’, breath-hold 15’, palpate 1’, belly 3’, back 9’, left foot on/under right knee/cross-legged 13:28-46 18’, neck 1+ 2’, calendula/tea tree 2x1’, shaking dance 2’, jolt-jump 2’,
foot bath 15’, neck 2 4’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, RR x2’, workout 7’, temperature 5’, nux vomica 1’.

Supps (27th: 28): Working out the - now pretty immense costs of the supps. CHANGE: RIBOSE! PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:25 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO!
/21:55 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!)
/22:30 Chamomile tea.
/22:50 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid
/01:40 B1 “01:00” PF#4 SRP#1 (0NAC)
/03:00 B2 “03:00” +ALA+2x pine bark, (teeth)
0 “05:00” 1x the undefined capsules lying around…
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:00” EGCg + Fev/MSM
/11:20 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/11:20 C3 “08:00” 0x.5gC#1 Qc#2 2The2 (0NAC)
/13:20 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
(D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4,Qc#3 0NAC#5 DRINK! DAO!
/20:10 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc:B3.C3.D2.D4 Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2! pine, A3: Luteolin, B3:0Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: Now I may be more at 20-30% than 10-20% I’m - praps surprisingly - starting to debate with everyone whether I should get the 2nd jab or not. In October it wasn’t as clear as now, that omicron is going easier on us, so the likelihood of hospitalization has decreased. However it is still higher than that of hospitalization due to the jab. Altho my wife said this morning she felt close to wanting to take me to hospital last weekend - I thoroughly disagree with that tho. I think the probability that she will get omicron in the next 3 months is 70-80% and the probability that I will get it may be 50%. If my omicron were like a normal flu then pre-swine flu I wdn’t even be lying down, it like since the swine flu I would be lying down a lot of the day for 2 weeks. But not for 2-3 months like these histaminey jab side effects. However I may overreact to omicron like to the jab side effects. Also the proportion of omicron is increasing, but it was only 25% a month ago, Jan 5th, so delta is still there. Plus even very healthy people are getting lung problems after hardly any omicron-symptoms. I’ve kept saying that I don’t have lung problems. But the histaminey effect is showing oxygen problems, otherwise breath exercises wouldn’t be helping as much as they are. If that got worse I’d again have many more problems. So my slight tendency is I should get the 2nd jab (60:40) and a mate of mine agrees. The situation with work at the moment is that I keep saying I might be able to come the following week, keeping up the hope. But at the moment they are not reckoning with me. Also I need to get my tooth done, praps extracted, and the gastroscopy will be more of a strain on my histaminey body than it always is anyway, i.e. there’s lots happening. Regarding work I’ve actually been working quite a bit all the time, supporting my colleagues, pressing thru projects, so actually last week I worked more than I’d’ve been sposed to without sick leave. So that might be arrangement which they can live with. Whether the organisation as a whole can see it that way is another matter. But doesn’t yet need to be discussed.
Research-search today:
Heather mentions cold showers a few times to cool down itchiness etc. at night.
Almond milk lower in histamine than soy drink: “Non-dairy milk alternatives, including coconut, almond, rice, hemp, and oat milk, are safe alternatives to dairy milk and have the added advantage of containing no lactose.” “Low-histamine cheese options include cottage cheese, ricotta cheese, mozzarella cheese, Gorgonzola cheese.” " * Yogurt is in the gray zone. It may contain enough histamine from the starter cultures that it worsens symptoms if you eat a lot of it. If you try it, start with a small amount and see how you tolerate it.

Avoid all other fermented and raw dairy products, including kefir."
Lessons in self-care #205 Time to look at what’s up next differently: 2nd jab etc…
Reasons to be cheerful #214 Still good. Started a thread on a MCAS forum.

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · January 29, 2022, 12:20pm

Hi Freedom :-).
Yup I mean ‘milk’. I/we also usually call it that, too, altho it’s now legally incorrect here in Europe. (Also I like annonying my wife by calling ‘milk’ “cow milk” ).
Thanks for the reminder about soy and estrogen, rings a bell. I just looked it up and that’s only been in a few cases, actually it’s more good than bad. Also my docs know I’ve been drinking 2l per day & none said anything. The reason I started was that my alternative practitioner suggested and I realized it greatly decreased urinary frequency. Now I have the problem that soy increases histamine. So I need alternatives that work.
You’re right that the other plant milk types have only increased here in the last 10 years, in the US you’ve probably had them since the 1990s, I’d think?
Unfortunately oat and rice milk give me heartburn even in smaller amounts, so I can’t drink them between meals or at night. I actually love(d) oat milk most. Almond milk was the only type that seems OK, but the cheap soy and almond milks tastes awful to me, the ones that taste good are almost 2 (soy) re. 3 times (almond) as expensive as the cheapest soy milk, so I’ve been putting almond milk off. The ones with vanilla or chocolate are nice 'n normal 'n tasty, but too much sugar for my lipids. It sounds as if you don’t mind it being without sugar… I don’t eat much isolated sugar, no sweets etc. but I still find it takes some getting used to these drinks without sugar - don’t you?
Now I’d got really used to soy milk. But the histamine is making me turn to almond. I think almonds being nuts have quite some histamine too, but looking up various pages it seems walnuts and cashews OTOH and soy OTO have more, whilst almond milk is better than almonds themselves, I spose. However almond milk with vanilla is a new thought, I hadn’t seen that, so I’ll have a look out for that, thanks for the suggestion!

Freedom · January 30, 2022, 1:59am

If I read what you wrote correctly, you have been drinking 2 liters of soy milk a day? For how many years? Could you possibly be having symptoms from the amount of soy milk you’re drinking? Or both the jab and soy milk? Let me say, I’m not an expert on anything. But my cousin’s husband developed a severe allergy to soy as an adult. Could you be having a histamine reaction to soy? I don’t think I could drink that much almond milk in a day. In the U.S., you can buy a 2 liter bottle of soda. It gave me the visual of exactly how much 2 liters is. Or for me when I was working as a nurse, hanging a liter of IV fluids. Anyway my friend, it’s just a thought.

JayCS · January 30, 2022, 3:54am

2022-01-30, Sunday “30%”(?) - the abdominal pain will have been the morcel of cake, not histamine in general, but why the sleep problems after 5h now? Supps unchanged: but too late? Not much sleep, still good…

Triggers & resulting Symptoms

SLEEP (click for details): 5h08, up 4x (17'), plus 1h13 = 6h23 ❌, but ➔ Feeling 90 well, Ache 2 of 7 🧐, waking up: 70%/3, but only due to some tiredness ❌/✅

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 23:00-
0:22 6’ 90%/2 p0 st1 drink fw1’
1:37 4’ 90%/2 p0 st1 drink fw1’ still burnt/nauseous etc.
2:37 4’ 90%/2 p0 st1 drink fw1’ still burnt, nausea down.
3:27 3’ 90%/2 p0 st1 drink fw1’ Getting back to sleep after breaks going well. Slight stomach burn & nausea, so soy milk instead of chamomile tea, B2.
4:05 27’ 90%/2 p0 st1 drink fw3’ racing thoughts. 6. Nidra 20’, but thumping pulse, not there yet, so
4:51 2h09 fw till I’m a bit tired -7:00
OK, that was only 5h05, +20’ nidra, got to get a bit more… = <7
7.42-8:55 90%/2 (another, lesser, abdomen pang) p0 st1 drink fw1’
-8:55
Sum: 1h+4h05+20’-(6+4+4+3=)17’ = 5h08+1h13=5h08, up 4x (17’), plus 1h13 = 6h23

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: 5x TT, yardwork plus tried to saw a small branch up in a tree, gave up tho ➔ 90%/2
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" ? I’d call those them lips red for a change…
ACTIONS ➔ PAINS: p3-4 or rather abdomen stabs, at 23:00, praps due to the cake?? gone at 0:25. Same at around 8:00. Nothing else tho. Could work and sing & make music standing some of the time, about 30’ stints, quite good actually.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:
WHB (3 rounds) nope. And not much breath exercises or airing. But outside quite a bit.

SELF-PHYSIO (click for details): 2h18... ✅ No need to force 3h if everything's OK. New cream, "Akilwinter", that someone recommended for Raynaud, put it on my feet at night, but didn't feel a difference. RR at 13:30 went down from 140/85 83 to 121/70 73 in 7 minutes after coming in from table tennis. Temperatur 35,6°C, my usual low before the jab.

aloe vera 1’, cold shower (10’), airing 2x2’, breath exercises 3’, teeth 2x2’, cream 5’, shaking dance 6’, jolt-jump 3’, HWB 1’, hunchback-pillow 15’, AuTr 20’, acupressure 2’, plantar/calf stretch 6’, left foot on/under right knee/cross-legged 20’, palpate 1’, belly 3’, back 8’, neck 1+ 7’, neck 2 2’, marionette-hang 3’, loins 2’, yoga/stretching 2’, RR 5x2’, temperature 5’, = 2h18.
(RR 5x2’, 13:35 + 37 140/85 83, 13:39 & 13:41 & 13:41 128/78 78 13:42 121/70 73)
breath-hold 12’, twist-stretch 5’, workout 7’, hand-exerciser 3’, massage gun 20’,
(Timing), calendula/tea tree 2x1’, foot bath 15’, gums 2x30’’, V ‘, mirror 2’, nux vomica 1’.

Supps (27th: 28): Working out the - now pretty immense costs of the supps. CHANGE: RIBOSE! PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:45 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO!
/21.45 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!)
/Chamomile tea.
/01:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid
/02:40 B1 “01:00” PF#4 SRP#1 (0NAC)
/03:30 B2 “03:00” +ALA+2x pine bark, (teeth)
/09:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:35 B4 “07:00” EGCg + Fev/MSM
/11:35 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/11:35 C3 “08:00” 0x.5gC#1 Qc#2 2The2 (0NAC)
/16:20 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
0 (D1) “13:00” 0psyllium
/16:55 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4,Qc#3 0NAC#5 DRINK! DAO!
/18:40 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th & Jan around 8th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: March 8th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc:B3.C3.D2.D4 Q1&Rs:B3,D4 Sr1x: B1,C4,D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2! pine, A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: 21:45 After eating nuts & a small piece of cheese cake (I think “fresh” cheese) my tongue feels burnt like in the beginning directly after the jab and I’m starting to feel bad, burning, feverish, altho I was feeling good just now. Interesting. 22:55 After cold shower still feels burnt, me slightly feverish & nauseous. I do think it’s a food trigger, I think the cake, but I’m not sure it’s histaminey.
0:25 Still nauseous & burning.
5:00 Can’t sleep at all.
7:05 Severe abdomen pain and later again at around 9:00, but nothing worrying.
18:05 Tongue still burnt, that’s as long as if I’d really burnt it.
Research-search today:
Lessons in self-care #206 Lots of exercises yesterday, no need to pressure it.
Reasons to be cheerful #215 5xTT before the Ache started, but resting quickly got it down.
Drat: I wear 5 pairs of socks all day and night. The 2 outside pairs are woolen. Both pairs have now got holes in each. I’ve been wearing them for one month. One pair was extremely expensive, the other very expensive… Spose I’ll have to add 30€ for 2 pairs of good socks every month until my Raynaud improves - the Akilwinter cream isn’t doing much and alternating foot baths neither.

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · January 30, 2022, 4:28am

Thanks for your many ideas!: Amount, allergic, how long, soy…
You are of course right, as I am at the moment weaning off soy due to its histamines.
But, I’m proven not allergic to anything, incl. soy, but obviously intolerant of many foods, not incl. soy.
As these severe symptoms only started an hour after the jab and have continued for 2 months now, it’s definitely provoked only by the jab. Since the type of symptoms and the experience of experts suggest these are histamine over-reactions, it means since then I’m now not coping with the histamine load any more. But that isn’t just in the soy (200g in the soy milk, 100g in soy yogurt, 100g in tofu) - per day it’s also been 300-400g of beans and 200-300g of nuts per day, 200g of olives. So a great deal of what I’ve been eating has high histamine. But there’s very good reasons why I’ve been drinking and eating this: First - like my intolerance to water on my skin - my stomach and gut & bladder apparently have an intolerance of more watery drinks like water itself (and tea), which I was drinking 1-2 litres of until April 20, but was leading to a high urinary frequency & urge which was causing problems. Turning to soy milk was a marvellous improvement. Then in July 20 my GP & cardiologists & lipidologist found I have genetically high lipids endangering my life and so I desperately need to eat a Mediterranean diet, high in nuts, beans & olives. At the same time due to hyperacidity & IBSD I have great many food intolerances. When a colleague a few months suggested stopping lectins, another thing some people are intolerant of, I worked out that that would mean I’d only be able to eat nuts & a very few veggies. Nothing else. Now reducing histamines, incl. soy, is a similar difficult procedure. It means seemingly reducing the 20% of foods I can eat to about 5%. So my GP recommended I do not try. However I’m realizing that increasing the raw veggies I’m enjoying eating & tolerating anyway and decreasing but not completely stopping soy, beans & nuts, as well as at the same time increasing supps that degrade histamine is helping, along with breathing and more cold showering. The tougher way than all this would be antihistamines. However I agree with my GP that I wouldn’t tolerate these at all either.

So bottom line is: I’m intolerant of “everything” (“water”, many foods, meds), so whatever I do isn’t easy, I don’t have alternatives. I am intolerant of water, and do not seem intolerant of soy, apart from having to balance the amount of histamine intake due to the jab. The jab is causing me to turn to almond drink. I’ve been ordering 2x6 litres of soy drink per week, and have now changed that to 2x6 litres of almond drink. If that doesn’t work our due to again intolerance (e.g. due to the lectins in almond skins) I’m done for.

By the way, as you seem to think 2 litres is a lot - I’m sure you know that humans are supposed to try to drink 2 to 3 litres a day, i.e. more than 4 US pints per day. Mayoclinic even says 3.7 litres for men, 2.7 litres for women, of which 20% is via food. Most of my life I wasn’t reaching that at all, but my docs, incl. nephrologists, said that was OK, esp. as I eat a lot of raw veggies and yoghurt, so I’m getting much more than 20% via food. But I’ve grown more thirsty since fibro, and got a dryer mouth too…
I guess you just meant the amount of just one type of drink. To get histamine down I’m drinking 1-2 cups of fennel & chamomile tea per day/night, but that is again increasing the frequency, so also my sleep breaks to 6-8…

JayCS · January 31, 2022, 8:51am

2022-01-31, Monday - 30%+ Good sleep, fibro-work first thing didn’t do my body good tho… still didn’t do as much self-treatments as I’d’ve thought necessary and ended up quite well thru TT and getting a lot of things sorted.

Triggers & resulting Symptoms

SLEEP (click for details): 9h19, up 4x (26') ✅✅, but ➔ Feeling 90 well, Ache 2 of 7 🧐, waking up: 80%/2-3 🧐/❌, most importantly a 20 second cold shower at 3, vs. histaminey sinus pressure/burning staying a bit or building up again afterwards, whilst the burnt tongue is decreasing to a bit. Another treatment difference to the worse sleep before was drinking & not forgetting the (cold) chamomile tea, This shows that it's likely important to keep everything up day & night that I'm doing, as it's not even enough to keep the "histamine" down at night. Maybe the 10 seconds less in the shower wakes me up less; I thought it might not be enough, it was a decision on the spur of the moment, as often, but obviously it was enough, a 2.5h stint after (the longest). Also I targeted my face most. Question might be if a 3rd very short cold shower later, esp. if sleep isn't working might be worth a try. Also on my big supp grid I've just seen that quercetin is good for sleep as well as best with resveratrol, which is best taken when empty, so I'd keep 1 Rs with Qc at 17:00 and 7:00 (before the carb muesli), plus take the day's quercetin to after the evening meal, e.g. 19:00 and 21:00 and see if stomach problems are still OK, but sleep better - see research below.

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:30-
1:25 3’ 90%/2 p0 st1 drink fw2’
3:10 15’ 90%/2 p0 st1 drink fw2’ burning sinuses, nausea FCS#2: Akilwinter on feet. HWB air
6:00 3’ 90%/2 p0 st1 drink fw2’ sinuses a bit. air. Stomach pressure. B2
7:56 5’ 80%/3 p0 st2-3 drink fw2’ sinuses a bit. air. no stomach. B3+4
2nd cold shower at 3 or 4/
-8:15
Sum: 1h30+8h15-(3+15+3+5=)26’ = 9h45-26’ = 9h19, up 4x (26’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Resting with fw 1.5h first thing has done my mind good, but not my body ➔ 70%/3. But thru table tennis and after it was actually all quite OK, so ➔ 80-90%/2-1 most of the day, I guess.
"HOW DO I LOOK?" Didn’t look much, but my lips were much redder when I did.
ACTIONS ➔ PAINS: Only the jab-sfx, see below.

Treatments

Docs: Bracing myself for tooth clean and gastroenterologist tomorrow. Got the antigen test today already. I hope I remember everything.
WHB (3 rounds)

SELF-PHYSIO (click for details): 2h14 ✅. Hmm, after a good night, so little self-treatments, I've also had a good day, doing a lot (not too strenuous tho, but cycling quite a bit), feeling hardly any limits, I apparently haven't felt any need for any self-treatments either much... At least by my standards... 1.5h... Ah, I'll just add a bit of stuff while finishing this entry off, to get it above 2h at least... Also I'm just remembering some stuff I was doing during table tennis etc. I do quite a bit without thinking about it. But I might easily forget, knowing me...

airing 4x2’, left foot on/under right knee/cross-legged 40’, breath exercises 12’, twist-stretch 15’, Timing, HWB 2x3’, neck 2 6’, plantar/calf stretch 5’, loins 3’, cold shower (10’), shaking dance 3’, hunchback-pillow 15’, cream 5’, back 3’, marionette-hang 3’, neck 1+ 1’, yoga/stretching 1’, teeth 1x2’,

breath-hold 12’, calendula/tea tree 2x1’, AuTr 38’, palpate 1’, belly 3’, foot bath 15’, jolt-jump 1’, gums 2x30’’, V ‘, mirror 2’, RR x2’, workout 7’, hand-exerciser 3’, massage gun 20’, temperature 5’, acupressure 6’, aloe vera 1’, nux vomica 1’.

Supps (27th: 28): Still haven't worked out the - now pretty immense costs of the supps. See above: quercetin now at 19:00 and 21:00. After checking if any other supp is more for sleep, I've always taken that into account. CHANGE: I'm sure I could still add more RIBOSE! I think I'll place that more conspicuously, maybe I need some trophies for it, to make it a habit. PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/19:15 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/01:25 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/03:20 B1 “01:00” PF#4 SRP#1 (0NAC)
/06:00 B2 “03:00” +ALA+2x pine bark, (teeth)
/08:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:00 B4 “07:00” EGCg + Fev/MSM
/09:50 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
? C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
? C4 “11:00” (+2h/) gi#2 gly#1+2 SRP#2. Nd#? & Ellagic acid
(D1) “13:00” 0psyllium
/18:50 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! DAO! Taking Qc#3 to 21:00
/19:20 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2! pine, A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: Burnt tongue gone down to a bit first thing in the morning, but returning to medium. Sinuses OK all day, but recurring after 18:30.
Research-search today: On an MCAS forum (HU) someone answered me that antihistamines only make tired at the beginning, and in the evening can help sleep. That sounds better than I thought… Maybe I should research antihistamines more or just try them, esp. if I do decide to do a 2nd jab…
Quercetin: Looking up brain fog supps for a forum, I saw on my big supp grid that quercetin might be good for sleep, which would be killing 2 birds with one stone at night. However I feel a bit onion-like while and after taking it, and if that were the part of the onion that is bad for my GI, that’d make sleep worse. “Researching” it I can see some strange/wrong things being said (e.g. calling it a “brand”), and that the FDA are understandably wary of unproven health claims. But wikipedia is the most helpful source at the moment: Fennel, dill, carob, buckwheat, lovage & capers all contain more (increasing order) than red onions, so if it’s the onion smell, it’s not the same substance as causes my onion GI problems. (Here it says that a protein in onions can cause allergy type symptoms, fermentable carbohydrates (FODMAPs) would also be in sweet stuff like watermelons, peaches and dried fruit, which I have no issues with, or “onions” can just cause GERD. My stomach burning isn’t mentioned anywhere, probably associated with the latter tho.) OK, according to wp-e it has a half-life of only 1-2h, eliminated quickly, good to know. And it’s unsure if in vitro experiments are enough proof that it can work in vivo. The aglyconate form is less bioavailable, but I’ve just looked up: Mine is a biological form, from the Japanese pagoda tree, which was said to be a good form when I researched it. High fat foods may help ingestion (hmm: nuts, but they’re high in histamine… still need to eat them tho), rather than high carb foods (which I hardly eat anyway, except muesli! in the mornings!..). Regarding sfx Laura here adds: overdosing may cause inflammation, joint discomfort would be the sign. Stomach problems may occur, so I think I’ll not add the 4th dose at night aside from “7:00” and shortly before “17:00” and after “19:00” evening meals. Keep the single doses down to <.8mg and daily total <2.4g, so 3x.8mg, so my 4x.5mg should be fine.
Burning painful tongue (posted this at HU): Just ‘researched’ this, as I had the feeling of a “burnt tongue” (as in scalded) directly after my jab and again for 2 days now. Haven’t got a solution yet, but came across ‘burning mouth syndrome’ if there are things to see on it, which there isn’t in my case, also it probably wouldn’t just be at the tip of the tongue, but also on lips, cheeks. My suspicions histamine or anti histamine supps don’t seem to fit as generally my symptoms are improving due to my self-treatments and my last 4 supps I’ve been using in fairly low dose for almost a week now. As I had it on the days directly after the jab exactly 2 months ago, seems it’s revisiting me… maybe coming up as the other symptoms are going down, as a transition (!?!) Of course I didn’t eat or drink anything hot or even warm or cold, but it is hypersensitive to that, and an allergologist once stated that as indicative of a ‘hidden’ atopical dermatitis / neurodermatitis, i.e. all my skins are hypersensitive, inside and out (and all he could suggest was avoid all triggers, like I do. But there is no discernible trigger aside from the jab. Burnt tongue longer than the normal 24h would mean it’s not one single event, but a process.)
I’ll be asking my dentists and my gastroenterologist tomorrow, but I very much doubt it, same goes for my GP.

Lessons in self-care #207 It’s OK not pressuring self-physio, if it doesn’t seem necessary!
Lessons in self-care #208 Good to find how changing quercetin might improve histamine AND sleep! Goes to show that helping others helps me too.
Reasons to be cheerful #216 Much better day than it started, and the start was OK too.
Reasons to be cheerful #217 One “half” of my insurances mistakenly paid me double for 8 months of bills! - It’s fun telling them that! Of course the other way round’d be better.

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 1, 2022, 8:06am

2022-02-01, Tuesday - 25% → 20% (2h of tooth cleaning)

v2: Tooth cleaning tough. Breathing-holding helped. Yoga Nidra during it.
v1: 9:00 Night OK, but slow start, hope exercises & supps’ll do the trick fast: dentist & gastroenterologist today… This is normal FM, not jab tho.

Triggers & resulting Symptoms

SLEEP (click for details): 8h24, up 5x (37') ✅, but ➔ Feeling 70-90 well, Ache 2-3 of 7 🧐, waking up: 70%/3 ❌. Deep sleep till 6, then lighter. Delay sleep supps? Heavy limbs so breath-holding under bed-clothes, having aired well. (Airing helping might fit to MCAS-mold-sensitivity, that's an additional motivator. Better sleep the last few days may also be due to ear plugs all night again.

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 23:30- (wife’s finger splitter)
1:03 5’ 90%/2 p0 st1 drink fw2’
2:45 5’ 70%/3 p0 st1 drink fw2’
4:05 5’ 80%/2 p0 st1 drink fw2’ stomach
5:58 5’ 80%/2 p0 st1 drink fw2’ slight stomach & nausea & dry mouth upon getting up → chamomile tea, then soy drink (vivid dreams, ending trying to return home with son, forgetting both my rucksacks… )
7:42 17’ 90%/2 p0 st1 drink fw2’ Quite a bit of that dozing. Not really awake yet.
20’’ 2nd cold shower at 3 or 4/ praps a 3rd even shorter if that didn’t help.
-8:31
Sum: 30+8h31-(5+5+5+5+17=)37’ = 9h01-37’ = 8h24, up 5x (37’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Shakey-achey, despite exercises, supps, eating, ribose ➔ feeling 80% well, ache 3 of 7, tooth cleaning ➔ 50%/4-5. Supps didn’t do much, incl. NADH. But breath-holding: ➔ 80-70%/3-4, after eating, and gastroenterologist about the same.
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" 9:20 Lips medium white 11:55 lips medium white, eyes look hurting. 13:15 lips blue-white, despite breath-holding (but feel cold) HWB, but still blue-white… 15:00 redder lips, but still hurting ACTIONS ➔ PAINS: Stomach at 4:00: soy. Esophagus block at 9:35 - an orange pill had got stuck. Extremely stiff all over after the dentist.

Treatments

Docs: dentist: Sounds as if he wants take the 3-6 tooth out in any case…, altho I held against that… drat. Gastroenterologist… recommends having a look “inside” on Friday.
WHB (3 rounds) 8:45 1’ 2’20’’ 2’20’’
RIBOSE: 9:55 13:50

SELF-PHYSIO (click for details): 2h by 9:20, 3h37 by 11:55 (Yoga Nidra during tooth cleaning), 3h55 by 13:20 ... ✅

hand-exerciser 3’, twist-stretch 15’+3’, yoga/stretching 5’, aloe vera 1’, marionette-hang 10’, teeth 2x2’, cold shower (10’), HWB 3x3’, hunchback-pillow 20’, airing 4x2’, left foot on/under right knee/cross-legged 8’, Timing, breath exercises 2’+10+2’ plantar/calf stretch 2’+2’, breath-hold 13’+13’, jolt-jump 1’, shaking dance 2’, palpate 1’, belly 3’, back 8’, AuTr 1h,
calendula/tea tree 2x1’, cream 10’, foot bath 15’, neck 1+ 2’, neck 2 4’, loins 5’, workout 7’, massage gun 20’,
gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, acupressure 6’, nux vomica 1’.

Supps (27th: 28): Working out the - now pretty immense costs of the supps. See above: quercetin now at 19:00 and 21:00 CHANGE: RIBOSE! Yes, quite a bit 9:55 and 13:50, 2 NADH at 12:20 Whoopsie, need new glycinate, pine & Zn! PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:15 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
/23:10 Chamomile tea.
/23:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/01:05 B1 “01:00” PF#4 SRP#1 (0NAC)
/02:45 B2 “03:00” +ALA+2x pine bark, (teeth)
/08:50 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:50 B4 “07:00” EGCg + Fev/MSM
/09:30 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! Something orange got stuck.
/09:30 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/12:15 C4 “11:00” (+2h/) gi#2 gly#1+2 SRP#2. 2Nd! & Ellagic acid
0 (D1) “13:00” 0psyllium
/13:50 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! DAO! Taking Qc#3 to 21:00
/18:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2! pine, A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: I forgot DAO for the “midday” meal, but didn’t seem to need it, despite wholemeal rice (with broccoli), not much else. (I think that was meant to be for Monday…)
Docs my wife respects recommended to go to the 2nd jab, so everybody’s still saying it now… Oh well, at least it’s getting to be an old acquaintance…
Research-search today:

Tuesday:
Lessons in self-care #209 Tough day. My wife scolded me for thinking about going to work tomorrow… She thinks it’s much too dangerous considering the increasing CoV-numbers.

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

Freedom · February 2, 2022, 3:17am

Hi JayCS! Here are some thoughts about what you’ve written recently in your blog. You said you spent two hours at the dentist? And might need some teeth pulled? I don’t like going to the dentist either. Have you researched the correlation between periodontal disease and how it can affect your health? If you need the second jab, and you feel this awful anyway, you might consider getting it. Worse case scenario, you feel worse or the same? I know that sounds crazy, and you have to do what YOU think is best for you. I’m having a hard time articulating what I’m trying to say. Uh! Last thought, have you done any research about the benefits of unpasteurized honey? Oh, I lied. This is my last idea/ thought. Check out to see if Benadryl ( diphenhydramine) might work as a antihistamine for you. As always, I will say to everyone, that it is best to check with your doctor before trying any medication.

Freedom · February 2, 2022, 3:21am

JayCS, I have done a small amount of research on the benefits of honey and the health problems associated with periodontal disease. But not a lot.

JayCS · February 2, 2022, 12:26pm

2022-02-02, Wednesday - 30% -5% cos of yesterday’s tooth cleaning

v1: 13:25 quite good night and good day.

Triggers & resulting Symptoms

SLEEP (click for details): 8h29, up 7x (1h26) ✅, but ➔ Feeling 80 well, Ache 2 of 7 🧐, waking up: 80%/2 🧐. Pretty wide awake at 4:00, maybe deeper after NAC at 5:00, but that (or the mannit in my stupid product) caused diarrhea

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:00-
22:55 5’ 80%/3 p0 st2 drink fw2’
23:40 5’ 80%/3 p0-1 st2 drink fw1’ air
00:35 5’ 80%/3 p4! st2 drink fw2’ HWB. Various alternating pains, e.g. in right underarm.
3:08 5’ 80%/2 p0 st2 drink fw2’ massage pistol 2’
3:34 18’ 80%/2 p0 st1 drink fw2’ air#2 FCS#2 35’’, praps too long? Or was I hyper, but not histaminey enough for it to help? I wasn’t tired after, as I usually am.
4:15 45’ 80%/2 p0 st1 drink fw5’ 6 cos wide awake. + 1 NAC!
6:25 3’ 80%/2 p0 st1 drink fw2’ deeper from NAC?
-7:55
Sum: 2+7h55-(5+5+5+5+18+45+3=)86’ = 9h55-1h26= 8h29, up 7x (1h26)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Music/singing production, home office work ➔ 80%/2. Only managed 3x table tennis altho I thought I could do more ➔ 70%/3-4.
"HOW DO I LOOK?" Medium red lips, look fairly OK today, my wife said so too… … but independent of my pain!
ACTIONS ➔ PAINS: Pain in left elbow tendons at night , gone from 2’ massage pistol Hard standing longer than 10’. (haven’t been registering that much of late.) Neck still a bit stiff, not sure why, but time to do more . Tendons of right knee hurt from stretching with left foot on it , stretching that too helped.

Treatments

Docs: Daring plan: Recover from yesterday’s tooth cleaning (actually already OK again), then from Friday’s gastroscopy, then get tooth out if need be, on something like Monday, then jab on Thursday… then not being able to move again for a few months
Told my boss and a few colleagues already know and I’ve arranged that I’ll be generally now offering organising & talking via mail & video from home, seeing as this is probably gonna be my new life this year, unless I’ve cracked the histamine or the 2nd & 3rd jab’ll not be as bad as the first.
WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 1h49... ✅ - more breath-hold might've been better to move more, but I think that yesterday justifies keeping stuff down today.

airing 4’, cold shower 2x(10’), Timing, hunchback-pillow 10’, massage gun 2’, AuTr 10’, aloe vera 2’, teeth 3x2’, palpate 1’, belly 3’, back 8’, HWB 3x3’, plantar/calf stretch 1’, marionette-hang 1’, left foot on/under right knee/cross-legged 20’, neck 1+ 4’, neck 2 2’, breath exercises 4’, twist-stretch 2’,
breath-hold 12’, calendula/tea tree 2x1’, cream 10’, foot bath 15’, loins 5’, yoga/stretching 5’, jolt-jump 1’, gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, RR x2’, workout 7’, hand-exerciser 3’, temperature 5’, acupressure 6’, nux vomica 1’.

Supps (1st: 29): Working out the - now pretty immense costs of the supps. See above: quercetin now at 19:00 and 21:00 Adding .5g NAC at 5:00 helped sleep, but caused diarrhea (however mainly due to the additives, so try my other product instead). CHANGE: RIBOSE! PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:45 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
/21:50 Chamomile tea.
/23:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/00:40 B1 “01:00” PF#4 SRP#1 (0NAC)
/03:10 B2 “03:00” +ALA+2x pine bark, (teeth)
/09:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:15 B4 “07:00” EGCg + Fev/MSM
/09:55 /MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/09:55 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/12:30 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:15 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/18:30 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Mal0Gly: C4+D3, 2Mal: A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2! pine, A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: Bad sleep probably isn’t from the jab, but indirectly due to stopping the NAC. So trying that again now…
Research-search today:

Lessons in self-care #210 No pressure to do self-treatments.
Reasons to be cheerful #218 Fun getting the treatment & job plans sorted.

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 2, 2022, 8:26pm

2022-02-03, Thursday 30% - carpe diem before the race starts…

v2: 8:10 a bit agitated due to the prospect of the next few months, 16:20 done a lot, bit confused, still fit. Still haven’t done enough paperwork.

Triggers & resulting Symptoms

SLEEP (click for details): 8h19, up 4x (41') ✅, but ➔ Feeling 70-80% well, Ache 2 of 7 🧐, waking up: 80%/2 🧐, but agitated due to the prospect of the fasting before the gastroscopy and the next few months. Reducing 2nd cold shower to only 18 seconds, plus NAC-powder helped.

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:55-
1:20 5’ 70%/2 p0 st1 drink fw2’ air, A4 not feeling that well.
3:35 30’ 70%/2 p0 st1 drink fw2’ air, burn-itchy skin all over, B1+B2 incl. 1 NAC, pure, FCS#2, 18’’, a bit tough getting to sleep again, but OK.
5:31 3’ 70%/2 p0 st1 drink fw2’ hand cream. Drink for stomach ache (from NAC?)
7:16 3’ 70%/2 p0 st1 drink fw2’ sinuses, B3+B4.
-7:55 “excited” at the prospect of the ordeals coming up. Sinuses.
Sum: 1h05+7h55-(5+30+3+3=)41 = 9h-41’=8h19, up 4x (41’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: doc quick, then researching/resting a lot, then 1.5h video meeting! Rest/fw & 5xTT (the 5th was tougher with slight nausea, so I stopped ‘moving’ almost completely ➔ 80%/2
"HOW DO I LOOK?" ? medium red lips…
ACTIONS ➔ PAINS:

Treatments

Docs: GP said my tooth definitely has to come out FAST. But dentist has no appointments free next week. But I’ll keep on at it, phone every day. If need be I’ll have to postpone the jab, but my cardio can only do it on the 10th or the 3rd, so I’d need to find someone else to give it to me in between.
WHB (3 rounds) only 1 round at 16:00
RIBOSE: didn’t feel nec, I had a lot of energy before TT.

SELF-PHYSIO (click for details): 1h17 (✅)

breath exercises 1’, left foot on/under right knee/cross-legged 20’, airing 6x2’, cold shower 2x(10’), hunchback-pillow 10’, Timing, AuTr 5’, teeth 2x2’, loins 2’, aloe vera 2x1’, cream 1’,
breath-hold 12’, calendula/tea tree 2x1’, palpate 1’, belly 3’, back 12’, foot bath 15’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, yoga/stretching 5’, jolt-jump 1’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, RR x2’, HWB 3’, workout 7’, hand-exerciser 3’, massage gun 20’, temperature 5’, acupressure 6’, nux vomica 1’.

Supps (1st: 29): Supp tally seems about 371€/m atm.... CHANGE: +1 NAC at 3:00. Playing around with NAC & probably a 3rd try of vit. C, praps in the early night. RIBOSE! PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:00(?) A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/01:20 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/03:40 B1 “01:00” PF#4 SRP#1
/04:05 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” EGCg + Fev/MSM
/9:40 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO!
/9:40 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/11:55 C4 “11:00” (+2h/) gi#2 gly#1+2 SRP#2. Nd#? & Ellagic acid
/13:25 1 DAO (D1) “13:00” 0psyllium
/13:55 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, /13:55 0NAC#5 DRINK! Taking Qc#3 to 21:00
/16:30 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2,SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 2Gly: C4+D3, 2Mal: A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr1x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+2! pine, A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon. C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx: TT curbed at 4 games wasn’t the tooth, cos nausea came in the 5th, at night some skin burning and sinuses from late night till midday, altho not strong.
Research-search today:

Do vit.C & NAC really decrease DAO??
So I’m still looking for an explanation why vitamin C and NAC (also theophylline, and even the antihistamines Cimetidine & Prometazina) often help, altho according to this review from 2020, in Table 2 they decrease DAO. I’ve followed the 4 references given above that table: They are studies from 1985, 1988, 2009 & 2014 and none of the abstracts refer to vit. C or NAC, and neither general nor pubmed searches come up with anything relevant. So I’m wondering if this is a fluke?

NAC-intolerant subgroup of MCAS
But Lisa Dostmann refers to a study (which is here: Waring & Bateman 2008) that found histamine release after NAC in those that have side effects.
So that’d be “proof” of what we know that we generally react differently, and that NAC is a common problem - for a subgroup of MCAS.
I was actually taking 5x.5g a day before the jab with no problems.
At the moment I’m trying to add a bit of NAC again, hoping it can improve my morning sleep again, so a nightly dose after 3. “Funnily” I got diarrhea after the first time, so after a tip looked at the pill ingredients, which explained it: I’d got some pills from the same company I’d bought the powder from, without realizing that they’d put 6 additives in the pills, the filling agent being “a bit” laxative … Then returning to the powder (.5g, encapsulating it to protect esophagus & stomach) went quite well tonight (slight stomach ache).
NAC (amino acid derivative) also seems acidic, its half-life is 5-6h, and it takes 1-2h to work, so the sinuses start burning at 3… it might be worth trying taking it earlier whilst my stomach is fuller.
And taking 1-2 of my 4x.3g passiflora later instead.

Vitamin C
I’m not that flexible with varieties of vitamin C, it has to be buffered cos of my stomach acid, but I will have a look if I can find another sort. Or repeat the experiment a 3rd time first…
What healthline
says on vitamin C suggests rare side effects and help for my sinuses… draxe it’s best to take it with meals, but not necessarily a problem at night…

So I spose I’ll still be playing around with both NAC and vit. C…

Still haven’t found anything more about copper?, I can find only verywellhealth mentioning it.

Interesting that this old pig study from 1988 mentions spoilt food as DAO inhibitor, which is logical, but all this “old food” stuff is something that I’m gonna need to get used to, as I’ve been focusing on using up older food for sustainability reasons the last few years. Only a few months ago did I for the first time hear the opposite…

In this German study from 2014 they found heightened histamine due to seasickness, and they tested vitamin C, seeing as it helps in mastocytosis, and it helped, esp, <27yo.

Lessons in self-care #211 Doing what I can today, no pressure, enjoying life.
Reasons to be cheerful #219 Carpe diem - maybe it’s the last one for quite a time, who knows…

Jab-sfx-summary, being edited, major edit Jan 10th 12:35
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 2, 2022, 8:57pm

Hi Freedom, no, I understand fully what you’re saying/thinking…
Well my teeth used to be great. Since fibro they’ve got worse, possibly because dry mouth, but drinking more doesn’t help that. I practice good hygiene and the “tooth cleaner” said that too, but she does all she can to keep them that way, which then takes so long.
Of course you’re right that the jaw inflammation may be wreaking havoc, that’s why I’m taking so many supps to try to get the inflammation down. I know that taking the tooth out may be necessary/preferable, but I know that that will do other damage too.
Honey unfortunately is extremely detrimental to my teeth and my stomach, both hurt immediately, even if it’s only a trace. I used to love honey…
Well the thing with the 2nd & 3rd jabs is: With them, I will probably be down to 10% for months on end, be able to do hardly anything, incl. table tennis. Without them I’ll be continuing my way up from 25-30% to 35% and maybe even back to 40%. So it’s not the case that they’ll not make any difference to my activity. Also chances are if I am off work so long I will lose my job, praps in about 4-5 months, even tho I’m now (voluntarily and unpressured) working from home despite sick leave. Without the jab, at 40%, I’d be able to keep it.
The real question is: What’s worse, the slight risk of hospitalization due to catching CoV inside the next 3 months (and being down to 10% or even less) OR a pretty much guarantee to have to stay home sitting on the floor next to my couch with my laptop all day for half a year cos of the jabs, but knowing what to expect and what’s seemed to help. Maybe trying an antihistamine.
You’re right about Benadryl, it’s the one that is suggested most by the (functional) experts on my kind of jab-sfx. I’d asked my GP already, and he didn’t know it, cos I cdn’t tell him what it’s made up of, but told me he wdn’t want to prescribe it for me, because it’d make me tired. On an MCAS forum someone told me it only makes you tired at the beginning and can help sleep if you take it in the evening, but many other people have said that continues and almost everyone gets it. No way I’d want it to. It’s half life is about 7-9h for men my age, that’d mean half of it would still be in my blood in the mornings, much too much, and would need longer than another 10h to go down completely…
Thanks for reminding me to look up the substance tho! That of course we can get here under different names. However wikipedia says it doesn’t just make you tired, it gives you a dry mouth, vision problems and shouldn’t be given to people with urinary problems which are all things I’ve got already (the vision problems since the jab, the other two before, and worse since fibro). So I now know which antihistamine NOT to take Let’s see if my allergologist has a better suggestion.

So thanks, that’s got me much further, as I need to know everything about their devilishness if I do decide to try them…

ModSupport · February 3, 2022, 8:30am

Sorry to butt in here, but I just want to add my 2cents worth.
You talk of ‘dry mouth’ and I had a family member who had major issues with dry mouth and we were advised to purchase a product called ‘Biotene’. They make a product specifically for ‘Dry Mouth’. In fact, here’s the quote from their site:

        "Biotène products are specifically designed for people with a dry mouth
        and contain moisturising ingredients* to help coat and soothe a dry mouth".

They have toothpastes, mouthwash, mouth spray and gels. Something to meet almost everybody’s needs.

Hope it helps
Merl from the Modsupport Team

JayCS · February 3, 2022, 3:27pm

Merl: Thanks very much! I do have GC dry mouth gel, but I’m not particularly satisfied with it and didn’t think there’s anything else.
Unfortunately I can only find it from the US or UK (and one from Indonesia) which adds >+10€ to the price (UK additionally +6€ since Brexit…).
(Also complicated as ever it needs to be without mint for me cos of my hyperacidic stomach, but I’d think there will be sorts without.)

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JayCS’s Fibro Blog

2022-01-25, Tuesday - 10%: feeling wretched, but oxygenating exercises help.

Triggers & resulting Symptoms

Treatments

2022-01-26, Wednesday 20%! - Deep-breathing & earlier GABA!

Triggers & resulting Symptoms

Treatments

2022-01-27, Thursday 25% - better night, but for that again less deep sleep… worth it. v2 15:10 Almond milk is OK. Getting used to the diet. And to watching for the sinuses. Loins better and bending over too… Progress.

Triggers & resulting Symptoms

Treatments

2022-01-28, Friday 30% - short night, but deep & OK, due to 4:50 cold shower. Day maybe overdoing it, hope to get control of that in the evening and night…

Triggers & resulting Symptoms

Treatments

2022-01-29, Saturday 30% (well probably a bit less)

Triggers & resulting Symptoms

Treatments

2022-01-30, Sunday “30%”(?) - the abdominal pain will have been the morcel of cake, not histamine in general, but why the sleep problems after 5h now? Supps unchanged: but too late? Not much sleep, still good…

Triggers & resulting Symptoms

Treatments

2022-01-31, Monday - 30%+ Good sleep, fibro-work first thing didn’t do my body good tho… still didn’t do as much self-treatments as I’d’ve thought necessary and ended up quite well thru TT and getting a lot of things sorted.

Triggers & resulting Symptoms

Treatments

2022-02-01, Tuesday - 25% → 20% (2h of tooth cleaning)

Triggers & resulting Symptoms

Treatments

2022-02-02, Wednesday - 30% -5% cos of yesterday’s tooth cleaning

Triggers & resulting Symptoms

Treatments

2022-02-03, Thursday 30% - carpe diem before the race starts…

Triggers & resulting Symptoms

Treatments

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