JayCS’s Fibro Blog

Symptoms & Treatments
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2021-12-12, Sunday - Day 12 & altogether worse rather than better. Development: it’ll probably take a few weeks.

(v1: 14:45 eve slightly better, morning worse: 1 NADH immediately may have bettered it a little, but only for a while, now very stiff, Achy.)

Triggers & resulting Symptoms

SLEEP (click for details): 8h10, up 6x (20') plus 68' dozing = 9h18 ➔ Feeling 70% well, Ache 2 of 7 at night, and ➔ 70/3 upon getting up: Achey & shaky ❌

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p2 Sleep 23:00-
0:20 4’ 70%/2 p2 st1 drink fw1’
1.47 4’ 70%/2 p0+3 (stinging piercing pain directly only in bladder) st1 drink fw1’ neck 1 3’
3:48 3’ 70%/2 p0 st3 drink fw2’
4:22 3’ 70%/2 p0 st3 drink fw2’ stomach spasmic pain. 2’ calf exercise on loo.
5:40 3’ 70%/2 p0 st2 drink fw1’ dry throat
-7:30 3’ 70%/2 p0 st2 drink fw1’ nose stuffy

  • 20’ dozing, but sleep prevented by stuffy nose, another 68’ a bit better with nose strip and breath oil
    Sum: 1h+7h30-(4+4+3+3+3+3=)20’ = 8h30-20+68’ dozing = 8h10, up 6x (20’) plus 68’ dozing = 9h18
    8:30-9:18=48’ dozing

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Evening from 17:00 (still NADH?): ➔ 80%/2 ➔ with a bit more energy & strength & movement (still slow) possible, overcome most of the cold symptoms, but nausea off and on. Some jab symptoms a quarter, others half the max(?) :face_with_monocle:, morning, despite effective, seemingly restorative sleep ➔ 70%/3 :x:
(e.g. cycle :biking_man:, TT = :ping_pong:, meetings/social :speaking_head:, mask :mask:, kids :child:, work ➔ ?90%/1 ?:white_check_mark::x::face_with_monocle:)
ACTIONS ➔ PAINS: :white_check_mark:, except 3xp2, 1:47 stinging piercing pain directly only in bladder.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.) ?:white_check_mark::x::face_with_monocle:

Treatments

THERAPIES: Still don’t think acupressure was worth it on Friday. :x:*
Supps to CHANGE: Wash capsule machine. Order B2 (& lots for others) and D3+K2-MK7.

SELF-PHYSIO (click for details): 1h44 ✅.

:white_check_mark: twist-stretch 25’, neck 1+ 8’, neck 2 4’, yoga/stretching 10’, HWB 1x3’, plantar/calf stretch 5’, Timing, AuTr 4’, hunchback-pillow 10’, cold shower (4’), teeth 2x2’, hand-exerciser 6’, foot on knee/cross-legged 10’, palpate 1’, belly 3’, back 7’, :white_check_mark:
:x: loins 2’, jolt-jump 1’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’, red heat 3’,

23 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: 1 Nd at 9:30 as Ache is up. Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: 0Ar 3x2g, B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:50 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/23:00 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/01:50 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/05:45 B3 “05:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
/09:40 B4 “Up”: 2xNADH#?
/12:05 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/12:05 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/16:30 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?) teeth
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps. teeth
/17:10 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc” teeth
/19:15 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:15 teeth
eve:
“18:00” Prepare: 1) Complete & copy changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1(/3),C1,C3,D3, Rs: B3,D4 Sr2x: B1,C4,D4
SINGLE: A2:P5/Ro/(Se)(Ω/Pq:meal), (B2:mu), B3:Q1QcSa, B4:2xNADH+C2:B2,Th,Zn,D4:Q1Qc (D1:Pe)

Development:
:one: My wife thinks it’s getting better slowly, despite the “cold” affliction after acupressure.
:two: And my mum asked how much the setback is (2 months she thought…).

So I’ll compare the 25 additional symptoms I’ve been having (above) with
:two: how much I had them with just FM and with
:one: now on Day 12 (+% = improvement).

  1. exhaustion: Worse for longer than ever with just FM, still the case, praps +30% now on Day 12.
  2. some energy, but depletes quickly: Same as 1.
  3. little strength, arms/hands often heavy: Same as just FM, +60%.
  4. Ache different to fibro: Same as 1, +0%, i.e. unchanged.
  5. showering very unpleasant: Same as 1, +10%.
  6. movement of more than 1-2 mins feels bad. For slow walking 10’ is the max. (occasional exceptions): Same as 1, +40%.
  7. More sleep: Not as bad as FM before April. Now on Day 12: +80% compared to Day 4 etc.
  8. still tired or dead tired: Same as 7.
  9. Strong sore throat for 7 days, until getting it gone by: Worse than just FM. +100%, i.e. 0
  10. permanent heat (electric blanket, 5th pair of (woolen) socks, long johns inside, hot water bottles at night). Much worse than just FM, +20%.
  11. Otherwise usually extremely cold feet, hands, lips often white. Much worse than just FM, +20%.
  12. Usually slight nausea: Much worse than just FM, +20%.
  13. if I move: more: Much worse than just FM, +30%.
  14. feverish-ill usually, a bit different to fibro, longer, not influenceable, Much worse than just FM, +40%.
  15. worse from slight movement, even more from slight strain, Much worse than just FM, +30%.
  16. actual “fever” of 1°C higher than usual (36,5°C instead of 35,5) Not in FM at all, -10% cos 36,6°C today.
  17. Burning “skin” over the whole torso (partly legs) sometimes, then for several hours: Not in FM at all, +100% (but comes in bouts, so may still return).
  18. stiffness more: Like just FM before GABA etc., +40%.
  19. brain fog more: Like just FM before GABA etc., +40%.
  20. “sore muscles” in backside more: New, +60%.
  21. Sometimes better for a few hours (often evenings, different to fibro) or half a day. Like FM, +50%, slightly getting more.
    In the first few days:
  22. local pain (upper back, hands): still gone.
  23. headache: still gone, except during the “almost-cold”. (COVID-symptom)
  24. 3 focal seizures: still gone. (not a COVID-symptom, but possible jab-effect)
  25. “burnt tongue”: returned once, but gone. (not a COVID-symptom)

So :one: of the 25, 5-6 have improved to :zero:: local pain, headache, seizures, burnt tongue, praps the bouts of burning skin, (sore throat (but only as long as I keep very warm)). These I would call the immediate ‘normal’ reactions everyone might have in the first week.
However:
+80% improvement: more sleep, tired - since the 2nd week.
60%: Strength/heavy arms (may be too optimistic), sore backside muscles.
50%: bouts of improvement.
40%: stiffness, brain fog, movement/walking.
30%: feverish-ill, slight movement/strain, nausea upon moving, exhaustion, energy & depletion.
20%: nausea without moving, cold extremities, permanent heat nec.
10%: showering unpleasant.
0%: Ache (different)
-10%: +1°C “fever”.
So if these were chronic, but improving at a similar rate, then it’d take another 4 weeks for these core problems to maybe improve: movement/energy/exhaustion, nausea & cold.

:two: How much setback?

(6 months (June): tiredness/sleep, brain fog?)
8 months (before GABA (but despite still using it!)): Stiffness,
16 months: short bouts of energy (then due to cryotherapy), continual Ache.
never had it with FM: +1°C “fever”, almost continual nausea,
or had it long or as severely: feverishness, cold intolerance, movement, showering unpleasant, exhaustion & exhaustibility, sore backside muscles.
So overall if at all my symptoms now were comparable to fibro plus the symptoms in the week after the spinal tap. I think Mar20, almost 2 years ago, but that’s not a setback it’s a worst-case scenario. My mum’s sure I’ll find away out, my wife is hoping for a miracle - and everyone inclined is :pray:.

Research-search today:

Lessons in self-care #150 Focusing on this blog more now will improve self-discipline.
Reasons to be cheerful #163 Body so bad, mind so good! :crazy_face: