JayCS’s Fibro Blog

2022-02-10, Thursday 25% - jab#2 day… :roll_eyes: OK so far…

Triggers & resulting Symptoms

SLEEP (click for details): 9h05, up 4x (20'), due to the antihistamine ✅, but ➔ Feeling 80-70% well, Ache 2 of 7 🧐, getting up: 70%/2 ❌

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 22:05-
0:10 5’ 80%/2 p0 st1 drink fw2’ stiff neck, sore throat. air
2:50 5’ 80%/2 p0 st1 drink fw2’ sore throat. A4 air
5:30 5’ 70%/2 p0 st1 drink fw2’ sinuses: cold wash air HWB. Zombified more by Rup, so less Pf.
6:40 5’ 70%/2 p0 st1 drink fw2’ sinuses: cold wash air. Zombified eyes. Belly ache, nausea. Not too much itching.
Would actually be enough sleep, but tough with this pressure.
-07:30 B3+B4. Nausea, stomach ache.
Sum: 1h55+7h30-(5+5+5+5=)20’ = 9h25-20’ = 9h05, up 4x (20’), due to the antihistamine

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro)ACHE: ➔ 70%/2. 11:50 despite resting: Pain, fatigue, arm energy, thermostat all not OK. :x: Fairly OK after jab, so played table tennis, hardly moving, 4 games again with no pain after ➔ 80%/2, just stiff & tired. :white_check_mark:
"HOW DO I LOOK?" 8:15 white lips :x: :trophy: take care… 11:50 blue-white lips (‘broken thermostat’) :x: :trophy: 12:30 lips redder (from cycling?) :face_with_monocle: :trophy: 18:45 small eyes. :face_with_monocle: :trophy: 19:10 lips medium. :face_with_monocle: :trophy: Whoops, forgot a self-caring look. :white_check_mark:
ACTIONSPAINS: :white_check_mark: GI: 8:05 Cramping loose stool after stomach/belly ache, initial constipation, abdomen stabs after. :face_with_monocle: Tongue/mouth & skin better from the night on. :white_check_mark: Neck a bit stiff, so stretching it. :face_with_monocle:. Temperature before jab#2: 36°C. Bladder: p4 and p3 in the afternoon. :x:. Doing ear/vagus massage I realized I can’t hold my arms up long without them hurting, that hasn’t been the case for quite some time either. :x: Generally stiff :face_with_monocle:.

Treatments

Docs: Lipoprotein (a) has gone up again to 148, so I’ll have to my (atorva)statin again I spose, as the triglycerides and cholesterin are double what they then should be.
Re-check for alpha-fodrin autoantibodies next (slightly increased July 2020)? No, that and IgG4 is only Sjögren’s and that’s been excluded. Serum TPO-Antibodies (thyroid) (were greatly increased July 2020). Why is my glucose always increased?
WHB (3 rounds) :one: 7:55 1’40’’ 2’ 2’ :trophy: Helped sinuses/nostrils a bit, but itchiness increased.
RIBOSE: :zero:

SELF-PHYSIO (click for details): 2h51 ✅.

:white_check_mark: airing 6x2’, cold shower 2x(10’), facetime 7x1’, calendula/tea tree 2x1’, cream fc/ey/hd/ft 5’, teeth 1x2’, HWB 3x3’, breath exercises 6’, Timing, hunchback-pillow 15’, breath-hold 13’, left foot on/under right knee/cross-legged 25’, palpate 1’, belly 3’, back 12’, acupressure 6’, neck 1+ 2’, neck 2 2’, twist-stretch 1’, hair 15’, marionette-hang 2’, aloe vera 1’,
:x: AuTr 20’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’,
:question:: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.

Supps (1st: 29): Supp costs: ~371€/m. CHANGE: NAC still at "3:00", and vit. C in the morning. Carnitine's gone bad, get new. No Srp left, but stopping it for a while, it's so expensive, and I'm not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:

Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/21:35 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/00:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/02:55 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
0 B1 “01:00” PF#4 0SRP#1
/05:30 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM
Rupafin.
/09:00 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! + 1 vit. C.
/09:00 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/11:40 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:30 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/19:10 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly3x2Mal: C4+D3, A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: 0B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+0x2! pine+NAC! A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon&C C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx/MCAS/antihistamine: Overall pain decreased soon, tongue/mouth & itchiness decreased at night, i.3. after 12h, tiredness with pressure on eye and head day and esp. night, still up 4x5’ (of course…)… Cramping loose stool after initial constipation.
11:50 ‘thermostat’ → HWB. Tongue/mouth still good. Skin OK on arms and chest, slight burny-itch on flanks. Pain, fatigue, arm energy all not OK.
13:10 Bit dizzy at times. Sometimes reminding me of a seizure aura - got 3 last time the next day. Tongue starting a bit again, but not much. No nausea yet.
14:00(?) Bladder pain for the first time in ages, an MCAS symptom, meaning GABA is down, so took some extra.
17:00 Small eyes from the antihistamine.
19:00 Still no nausea, cold/flu, headache, spinning, hardly burnt tongue or itchiness or burning… just tired, fatigued.
20:00 Bit nauseous, esp. when walking.

My wife reminded me “I have 2 new conditions” - meaning my Schatzki-ring esophagus constriction. But for me that’s not a new condition, just a name for something I’ve had for ages, and for a change: something that can be done about it. But she’s not wrong, since MCAS is also a name for…

Research-search today:
Is histamine a hormone? Sort of, a local / tissue hormone, but actually more of a neurotransmitter.
Is MCAS autoimmune? No. No antibodies are created that attack the body, “just” hyperactive mast cells.
Someone suggested doing pharmacogenetic testing to see what kind of meds I tolerate. Looking up I’ve seen test kits costing about 200€. Apparently they vary quite a bit in their specificity.
Someone else suggested vagus massaging by Sukie Baxter: the ear spots relax me, but if I do it too long, my arms hurt and I get nauseous.
A Schatzki-ring naturally prevents a Barret’s esophagus developing after reflux it says in this study. Repeat dilations usually necessary.

Lessons in self-care #219 I’m not at all nervous about the diagnoses & jab, as opposed to my wife.
Reasons to be cheerful #226 Bit excited what’ll happen next. :slight_smile: