JayCS’s Fibro Blog

Symptoms & Treatments
702

2022-02-12, Saturday 20% - tomorrow is the day that shows where it’s going to - … today “OK”…

v1 16:00: still OK-ish, nipping each symptom by the bud … :smirk_cat:
However TT paining in the 4th game is worse than the last few days…

Triggers & resulting Symptoms

SLEEP (click for details): 8h40, up 5x (37') ✅, but ➔ Feeling 70-80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p2? Sleep 22:50-
0:02 3’ 80%/2 p0 st1 drink fw1’
1:14 3’ 70%/2 p0 st1 drink fw1’
3:10 11’ 70%/2 p0 st1 drink fw1’ nostrils: air, breath ex + acupressure. belly: chamomile tea, HWB.
5:43 13’ 70%/2 p0 st1 drink fw1’ slight headache: drink. Sinuses & skin burn (thighs) a bit: .1g GABA.
7:13 7’ 70%/2 p0 st1 drink fw1’ nostril: breath ex + acupressure. B2+3+4.
-8:07
Sum: 1h10+8h07-(3+3+11+13+7=)37’= 9h17-37= 8h40, up 5x (37’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 80%/2, resting, table tennis ➔ 90%/1 going up to 3 in the 4th game, neighbour had gotten a tree in our garden brought down without asking :anger: :angry: :rage: First it didn’t sink it when I saw it, but after, didn’t get worked up, more anguish/pain ➔ 60%/4, another breath-hold brought that back down a bit ➔ 70%/3. Repeat similar a few times a bit. Making music OK 80%/2, but too much singing & standing 70%/3, so breathing exercises. :face_with_monocle:
"HOW DO I LOOK?" 8:10 white lips :face_with_monocle: :trophy: :20 tired eyes, white lips :face_with_monocle: :trophy: 9:38 white lips, eye bags: cream :face_with_monocle: :trophy: 13:10 redblue lips, eyes OK-ish :face_with_monocle: :trophy: 15:55 same :face_with_monocle: :trophy:
ACTIONS ➔ PAINS: :white_check_mark: Coccyx hurting due to the bound angle sitting, better from cross-legged, so need to try that more altho it’s much more painful.

Treatments

Docs: Re-check for alpha-fodrin autoantibodies next (slightly increased July 2020), Serum TPO-Antibodies (thyroid) (were greatly increased July 2020). Why is my glucose always increased?
WHB (3 rounds) :one: 9:45 1’30’’ 2’ 2’ :trophy: :two: 1’30’’ 1’30’ 1’50’’ :trophy: good! :white_check_mark: :three: 1’10’’ 1’30’’ 1’30’’ :trophy:
RIBOSE: :zero:

SELF-PHYSIO (click for details): 3h41 ✅. Trying to increase combinations.

:white_check_mark: aloe vera 1’, facetime 5x1’, airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 8’, HWB 2x3’, breath exercises 2x3’, acupressure 2x3’, Timing, calendula/tea tree x1’, teeth 3x2’, hunchback-pillow 15’, hair/nails 3’, plantar/calf stretch 13’, twist-stretch 8’, neck 1+ 4’, left foot on/under right knee/cross-legged 2’ 17’ 14’ 12’, breath-hold 12’+12’ 11’, palpate 1’, belly 3’, back 8’, hand-exerciser 2’, yoga/stretching 4’, neck 2 2’, marionette-hang 6’, loins 2’,
:x:
Combinations
jolt-jump 1’, workout 7’, massage gun 20’, shaking dance 1’, bent leg fall 1’, AuTr 20’,
:question:: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.

Supps (Feb 12th: 31): Supp costs: ~344€/m, reduced by reducing CoQ10 & stopping Sr. Plus starting up vit. C., minus a few I'm now re-ordering which I haven't subtracted. CHANGE: NAC at "21:00", to help induce sleep, and vit. C at morning meal, for less stomach trouble. ALA (and pine bark when it comes): later, before getting up, as it increases alertness. Choosing CoQ10/ubiquinone instead of ubiquinol and keeping under 150mg/d because the studies show that's better for lp(a), and for now reducing the ubiquinol dose to 1/day as it's the more potent form. My honokiol isn't that good a product, contains stearate rice powder & gelatine, need to improve that, if possible (may not be), same goes for rhodiola: maltodextrine & stearate. Starting arginine soon. Magnesium malate is sposed to be good for waking, glycinate for sleeping. The latter isn't true for me I don't think. But I'll stop the malate in the evenings now (19:00). RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Nd, Arg, B3, Rib, Pe, Ps, Se, 0 Sr 0x31125k. (REGULAR as of Feb 12th (31, except I need new Mg Gly, Pf, pine bark, Zn & will be starting Ar soon): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 2250mg, Mg (Mal) 1245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:00 without Cr A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/21:45 without Pf#2 A3 “21:00” PF#2 .6 GABA&.6glu#1 & Lut (slp!) & Qc (slp! GI?) (+1NAC)
/00:00 Chamomile tea.
/00:05 without Pf#3 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid
/01:15 B1 “01:00” PF#4 0SRP#1
/07:15 !B2 “07:00” +ALA+2x pine bark, (teeth)
/07:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:15 B4 “07:00” EGCg + Fev/MSM
/09:00? MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! + 1 vit. C.
/09:00? Rupafin & C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
/13:30 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
0 14:00 DAO (D1) “13:00” 0psyllium deliberately tried without, as mainly veg.
/15:00 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/16:25 vit.D3
→ D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? Pf: A1+0A3+0A4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, 0Gi: C2,C4,D3 0x2Gly3x2Mal: C4+D3, A2 Qc: A2.A3.B3.D4 (not C3.D2) Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., A3:+NAC! B2: ALA+0x2! pine A3: Luteolin, B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Zn&Hon&C C3:2Th+Rupafin (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)

Development
Jab-sfx/MCAS/antihistamine: Specks of GABA sublingually for sinuses!?
Dry mouth/lips/thirst will be the antihistamine, as praps any headache, also better sleep. Actually somnolence & fatigue aren’t worse than before the antihistamine. And its still helping better sleep. However the pain today at TT is like before the antihistamine, but evenings quite good, considering standing and making music for 1.5h after freezing on a 45’ slow cycle-walk.

Research-search today:

Lessons in self-care #221 Brilliant quick reaction breath-holding after the rage about the sawn off tree, I think that helped my wife too to realize that we need to channel our anger, but not let it get to our health. Have to watch out for sleep tonight, it’ll probably come up then again, even tho that won’t change much, as we have already planned several apt consequences & modes of action.
Reasons to be cheerful #228 A sunny day again at last! :sun_with_face: