JayCS’s Fibro Blog

JayCS · February 20, 2022, 11:41am

2022-02-20, Sunday 15% → 10% → 5% - night OK, day bad: food or I think jab#2.

Triggers & resulting Symptoms

SLEEP (click for details): 9h01, up 4x (59') ✅, ➔ Feeling 90% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

cold shower p0 Sleep 22:55-
1:00 3’ 90%/2 p0 st1 drink fw1’
3:30 15’ 90%/2 p0 st1 drink fw1’ HWB air. temp. 35,3°C.
4:17 38’ 90%/2 p0 st1 drink fw1’ alternate shower. supp-mail. -4:55 (shdve tried GABA.)
7:22 3’ 90%/2 p0 st1 drink fw1’ B234. temp. 35,8°C.
7:00: Heating on!
-8:55 air. temp
Sum: 1h05+8h55-(3+15+38+3=)59’ = 10h-59’ = 9h01, up 4x (59’)

ACTIVITIES (aiming for 40% - well 20% - activity of pre-fibro) ➔ ACHE: Well despite resting I’m just not feeling well ➔ 70%/3 - 10’ cycle-walk was max…
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" poorly pale 10:30 12:35 16:10
ACTIONS ➔ PAINS:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:

Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
N-methylhistamine check. If not, next: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or leukotriene E4. Starting 9:30
(re-check my old Anti-P note.)

WHB (3 rounds) 1’20’’ 2’ 1’50’’ 12:55 3x1’30’’
RIBOSE:

SELF-PHYSIO (click for details): 3h53... ✅. Combine. List-prioritize: next. Axillary temperature 3:30 35.3°C 7:20 35.8°C 9:10 35.95°C, 12:20 36.15°C. 14:15 36.5°C (ate till 15:40) 16:20 36.3°C - so this is all normal, see below.

Supps (Feb 12th: 31): Supp costs: ~344€/m. CHANGE: CoQ10/ubiquinone <150mg/d better for lp(a), but tried high dosed today, to no avail. Look for better honokiol, rhodiola AND PASSIFLORA! Starting arginine soon for lipids. Tried capsule machine for carnitine, too, ages cos it went pretty wrong. RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Arg, B3/Nia, Mum, (Nd), Rib, Pe, Ps, Se, 0 Sr 0x31125k.
(REGULAR as of Feb 12th (31, Need new pine bark, Zn etc., still haven’t started Ar): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also contains L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 0250mg, Mg (Mal) 0245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/22:35 Chamomile tea.
/01:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:35 B1 “01:00” PF#4
Heating on! Warm shower?
/07:25 B2 “07:00” +ALA+2x pine bark, (teeth)
/07:25 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:25 B4 “07:00” EGCg + Fev/MSM + Sily
/10:40 +1=2Gi C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/10:40 +Gi C3 “MEAL” .5gC#1 2The2 (0NAC) ate -11:40
/12:40 C4 “11:00” (+2h/) gi#2 gly#1. Nd#? & Ellagic acid
/14:10 1 DAO (D1) “13:00” 0psyllium
/15:30 +4 Q10 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve: I put coQ10 +D4.
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? (0)Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
11:50 itchy-burning skin lower back and legs. Only thing I’ve changed is increasing CoQ10, except yesterday’s cheese and beans. 12:30 now arms too. 12:35 face & backside & knees
Using more CoQ10 this morning (phoenixrising) if at all worsened
’Research’ today:

Body temperature: Normal axilliary temperature can be as low as 34.7°C. Fluctuation of 1°C is normal, lowest at 3 (avg. 36°C), highest at 18 (avg. 37.2°C. REM sleep increases when the room temperature is warm and comfortable. For every ten years of life, it drops by around 0.1 to 0.15 °C.

https://medlineplus.gov/ency/article/003400.htm: armpit 0.3-0.6°C less. Fever is 1-1.5°C more.
Measuring body temperature using a tympanic thermometer | Nursing Times 36.0-37.5°C around 36.9°C. slight increases can occur in the evening, during exercise. * Hypothermia: temperature <36.1°C. 35.1-36.1°C: min. 4-6h observation.
What is core temperature? How is it measured? | ONiO

body temperature is always going up and down and even varies from person to person… Over the course of a day, your body temperature fluctuates several times, reflecting the many changes in your body’s state. Usually, core temperature is 1-2 degrees higher than the temperature at the periphery. At times when the peripheral temperature is increased, due to the adaptive mechanisms described above, the difference between the core and peripheral temperature is at its lowest. Direct measurement of core temperature requires the insertion of a surgical probe and measuring the temperature of the inner organs.

Normal Body Temperature: A Systematic Review
axillary at 35.97°C. on average, healthy elderly people have lower body temperature. … believed to be a phenomenon arising from a slowing of the human metabolic rate coupled with a decline in the ability to regulate body temperature in response to environmental changes such as seasonal changes … often not capable of mounting a strong inflammatory response to infection and disease, with their temperature failing to reach the temperature range of what is traditionally considered the fever temperature range …
Health Library | Michigan Medicine Body Temperature | Michigan Medicine Check your temperature in both the morning and evening. Body temperature can vary by as much as 1°F (0.6°C) during the day.
Wait at least 20 to 30 minutes after … you eat, or … drink… an hour after hard exercise or a hot bath. . An armpit temperature reading may be as much as 1°F (0.6°C) lower than an oral temperature reading.
https://www.microlife.com/magazine/fever/how-to-measure-body-temperature-correctly: in adult patients, the temperature of an axillary measurement is lower than a rectal measurement - up to 1.9 °C! The normal axillary temperature range is approximately between 34.7 °C and 37.3 °C.
Body temperature: normal ranges & how to measure - cosinuss° (German) Hypothermia is the term used for a drop in core body temperature below 35 °C. The core body temperature fluctuates between 0.5 and 1 °C during the course of a day. These diurnal fluctuations are known as the “circadian rhythm”. The temperature is lowest at around 3 a.m. and highest at around 6 p.m. (graph shows 2pm tho!), source: https://www.thieme.de/statics/bilder/thieme/final/de/bilder/tw_pflege/Kapitel_15.pdf: Am niedrigsten ist die Temperatur um ca. 3 Uhr, am höchsten um ca. 18 Uhr. Thus, an average of about 36.2°C orally (36.0°C axillary and 36.5°C rectal) is measured in the morning and about 37.5°C orally (37.2°C axillary, 37.8°C rectal) in the evening. The basal body temperature describes the individual minimum core body temperature at rest during sleep. In order to be able to record the basal body temperature, it is measured in the morning directly after waking up. Different phases are passed through during sleep. If we are in so-called REM sleep (REM = rapid eye movement) or “dream sleep,” our body is very active. However, as a study published in 2019 found, we are unable to regulate our body temperature during this phase. The researchers found that REM sleep increases when the room temperature is warm and comfortable. Special neurons in the hypothalamus appear to increase REM sleep when the room temperature is “just right” and thus the body’s need for thermoregulation is lowest, according to the study. With increasing age, a person’s body temperature decreases. For every ten years of life, it drops by around 0.1 to 0.15 °C. This is due, among other things, to the reduced release of pyrogens (fever-producing substances) and a decrease in thermoregulation. For this reason, older people often no longer exhibit significantly elevated temperature values even in the case of severe infectious diseases. Approximately 30% no longer develop a fever, even though a severe infection is present. meals can lead to a (temporary) increase in body temperature. [Many influences, external and internal listed.]

This thread on s4me questions MCAS as diagnosis, questions Afrin’s authority. As people I’ve “had a look” at Afrin, Molderings, Weinstock, Dempsey… and no - none of them convince me as people. But the concept is helping me. Continuing with that thread.

Lessons in self-care #229 Starting having to move extremely slowly again. Playing cards I slid my hand, cos my arms were so heavy.
Reasons to be cheerful #236 Not much, Big Bang Theory and just taking it like a dog.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

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JayCS’s Fibro Blog

2022-02-20, Sunday 15% → 10% → 5% - night OK, day bad: food or I think jab#2.

Triggers & resulting Symptoms

Treatments

Related topics