JayCS’s Fibro Blog

Symptoms & Treatments
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2022-03-07, Monday 10% - overdid :ping_pong: 3 games, pain up from 3 to 5, but fatigue OK - again acupuncture decreasing the fatigue, I think. Trying to get used to the pain. :face_with_monocle:

9:00 cancelled dentist… interesting experiment in wake-sleep: to test if I was sleeping I tried several times to imagine where I live now and where I used to live, and I wasn’t able to, around the 5th or 6th time I managed via now imagining the place, but the address, and then I could picture, but only roughly, what the front looks like… dunno what that counts as: lucid dreaming, sort of?

Triggers & resulting Symptoms

SLEEP (click for details): 7:30, up 2x (15') ✅, but ➔ Feeling 90-70% well, Ache 2-3 of 7 🧐, getting up: 80%/3 ❌

cold shower p0 Sleep 00:45- HWB
3:30 10’ 90%/2 p0 st1 drink fw2’ air B1
5:10 5’ 70%/3 p0 st1 drink fw2’ air nostrils/tongue: acupressure/breath ex.
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-8:30
Sum: 8:30-45-(10+5=)15 = 7:30, up 2x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Pain etc. from overdoing it in the music session yesterday went down a bit doing some fibro work revenge procrastination ➔ 70-80%/3-2. During TT :ping_pong: pain went up ➔ 80-80%/3-5, but feeling OK, trying to get used to continual pain and still carrying on doing something. Same all day. :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: Only MCAS symptoms.

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds) :zero: but lots of deep breathing
RIBOSE: :zero: unnecessary

SELF-PHYSIO (click for details): 1h17 ✅. Combine. List-prioritize: next. More deep breathing than breath-holding.

:white_check_mark: facetime 2x1’, airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 2x1’, teeth 2x2’, HWB 2x3’, breath exercises 15’, Timing, hunchback-pillow 10’, palpate 1’, belly 3’, back 12’, acupressure 6’, aloe vera 1’,
Combine: next?
:x: left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, bent leg fall 1’, horse stance 1’, calendula/tea tree x1’, .

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Stopping vitamin B2 this evening. Keeping passionflower at 4x.35g/d. Look for better honokiol. DAO: no. RIBOSE: no. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:40? A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:40 Chamomile tea.
/00:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:30 B1 “01:00” PF#4
Heating on! Warm shower?
/08:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:30 B4 “07:00” EGCg + Fev/MSM + Sily
/11:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/11:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
15:00 0 DAO (D1) “13:00” 0psyllium
/16:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:20 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Burnt tongue tip again. Most of the morning. I was thinking about saying it’s not the hazelnuts, but just the jab, but actually it might be those after all. Or is it the apple sauce? But here it says that’s OK: Grocery List- Low Histamine Diet – NAUGHTYLITTLEMASTCELLS and it’s not on the SIGHI list either. 15:10 tongue is hardly burning, I’ll now try apple sauce, no problem, then pumpkin seeds, then aloe vera (burns on the tongue a bit): 17:50 still hardly not burning, 18:20 now it is a little, altho I haven’t eaten, just drunken some almond milk; but I’ve been doing that all the time, it’d surprise me if it’s that…
Why have I got a wide red stripe on my left hand, which doesn’t hurt at all to touch?
Jemima asked me about luteolin for brain fog, which has made me realize that I am more alert now than a few months ago, e.g. I’m clearly winning almost every table tennis game, however bad my pain, stiffness & fatigue are. I also started 5 other new supps (EGCg, ellagic acid, feverfew, honokiol, silymarin) at the same time, however they have much less evidence for fog. Increasing ginkgo and GABA which are both definitely good for alertness, can’t have made that much difference,

’Research’ today: Looked up the 5 new supps and also proprioception, my ‘muscle sense’, which has got worse of late, did a finger-on-nose-eyes-closed-test which didn’t go well, and saw that vit. B6 can increase this. Doing the test quick works fairly well, but I’ve decided to stop the B6 as it’s only to support GABA, and a bit for sleep, and that’s not necessary.

Lessons in self-care #243 Testing how far I can go with less fatigue, but the pain is now 3-5 all the time, so I’ll ask the acupuncturist to focus on that.
Reasons to be cheerful #251Considering yesterday and not letting off today, I’m doing quite well!