JayCS’s Fibro Blog

JayCS · March 1, 2022, 11:21am

2022-03-01, Tuesday 10% - spontaneously today: allergologist & Chinese acupuncture. 14:50 I’m excited about the acupuncturist: top or flop? 17:20 Top, I’d say , up to 20-25% (but my face doesn’t look good, my wife says) 18:45 Fatigue is down down down, energy up up, but Ache level is also still up up at about 3, and so very conspicuous now, very strange feeling

Triggers & resulting Symptoms

SLEEP (click for details): 8h49, up 3x (16') ✅, but ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 90%/2 ✅ - not having to get up so much, very stiff and fatigued and tired, but that's all OK, hardly any problems, bit of skin burn and nostrils.

cold shower p0 Sleep 22:20-
01:10 8’ 90%/2 p0 st1 drink fw2’ air cream A4
3:46 3’ 90%/2 p0 st1 drink fw2’ air cream B1
6:40 5’ 90%/2 p0 st1 drink fw2’ air cream nostrils
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-7:25
Sum: 1h40+7h25-(8+3+5=)16’ = 9h05-16’ = 8h49, up 3x (16’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Allergologist early, after good sleep, bit of housework, rest ➔ 70%/3, praps slightly better after more rest/fw. ➔ 80%/3 - the Ache is hurting very acupunctury before I’m there, so she’ll have a tough job!
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" 21:15 very tired. 12:00 Much better than I feel
ACTIONS ➔ PAINS: 22:10 sudden sore throat, then realized I’d been wearing only 4 pairs of socks instead of 5… talk about oversensitive Back keeps hurting, grabbed a homeopathic cream (Schuessler 4) I’d no idea about if it can help, but that seems to have helped better, twice, than arnica cream or massage gun. Might be clever to look it up, esp. as a quick look on the web says it’s good for skin. Did: In my book copy it doesn’t say anything about skin… Oh well, I don’t care - it seemed to help. Pretty much gone at last. Zero tolerance!
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:
Allergologist today, with a bit of a wait: Re-confirms MCAS and that further diagnostics won’t help me. Thinks there is such a diagnosis and that it fits to me. Didn’t really think low histamine would help, pleasantly surprised that I feel it does, also that the rupatadine as well as GABA is definitely helping, and that I’m trying the other supps like vit. C, quercetin, luteolin. Was once on the phone for 45’ with Molderings without being able to get a word in between. But thinks docs like Afrin and Molderings probably need to be a bit nutty to get the word out. Gave me the acupuncture script, so I can go there today.
Chinese Acupuncturist - today: Listened, altho I did have to explain a lot, and had the feeling I had to explain it in very simple terms, altho she is a doc (senior doc, Chinese), but she did the all the right TCM stuff: tongue, my different pulses and hand on belly. Kept the amount of needles down to about 12, took the one that hurt too much out (forehead), came to watch when my right arm had a tremor for 5 minutes, and afterwards I didn’t have any pain much, except the inside ligament under my left knee, which I could treat myself (acupressure and stretches), whilst the fatigue went down, energy up, just pretty big Ache was left. Next appointment on Thursday…
Cardiologist - Thursday: Factor VIII up: MCAS and CVD? Hyperlipidemia from MCAS?? White Lips? Blue fingers. Atorvastatin vs. rupatadine?
GP - next Monday: Mg level instead of just stopping it?
Psychotherapist - next Tuesday (has CoV): Do I talk too medical? (details on Saturday’s entry)

WHB (3 rounds)
RIBOSE: 13:10 no help.

SELF-PHYSIO (click for details): 89'... ✅. Combine. List-prioritize: next.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d? I'm actually sticking at 4 and may be helping get the last hour of sleep deeper. Look for better honokiol. Quercetin and EGCg may increase anxiety, insomnia and pain, but that doesn't seem to be happening. Decreased DAO (expensive) after decreasing histamine (quinoa instead of rice, keeping cheese, bread & soy yoghurt down even more). RIBOSE at 13:10 (tired & achey-fatigued). PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:35 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/ Chamomile tea.
/01:15 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:45 B1 “01:00” PF#4
Heating on! Warm shower?
/06:45 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:45 B4 “07:00” EGCg + Fev/MSM + Sily
/7:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/7:45 C3 “MEAL” .5gC#1 2The2 (0NAC) -9:30
/12:15 11:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
However I seem ot have confused D2/3 with C1/2/3, as I just had Cu…
/18:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Bit of skin burning, good sleep, nostrils last hour of sleep. Slight bit of skin and sinuses at daytime.

’Research’ today: Read quite a bit of Afrin so-called MCAS-‘bible’. Bit boring, finding studies more interesting, but it’s OK, easy read, easy to jump around finding things that might be interesting and ignoring the details of the case studies, which always boil down to hundreds of different strange symptoms pointing praps to one single condition at the root, praps MCAS…

Lessons in self-care #237 Going slow, seeing as appointments were in focus, big enough steps.
Reasons to be cheerful #244 Fun getting 2 appointments done quick.
Reasons to be cheerful #245 Wow, Chinese acupuncture actually helped!!

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 2, 2022, 7:28pm

2022-03-02, Wednesday 15-20% - up due to yesterday’s acupuncture! Problem was just that I couldn’t sleep well for several reasons and also didn’t know what level of activity is OK

Triggers & resulting Symptoms

SLEEP (click for details): 6h24, up 4x (34')+ 37' nap = 7h01 ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌

cold shower p0 Sleep 22:15- Y. Nidra at least 45’
00:00 15’ 90%/2 p0 st1 drink fw5’ air highly strung due to Ukraine overload from my wife & colleagues and not being able to cold shower due to the (positive) acupuncture. Y. Nidra. 30’
0:50 3’ 90%/2 p0 st1 drink fw1’ 6. air Y.N. -2:05 +10’
2:50 3’ 90%/2 p0 st1 drink fw1’ air Y.N. 10’
3:20 3’ 90%/2 p0 st1 drink fw1’ air Y.N. 10’
4:28 25’ 90%/2 p0 st1 drink fw1’ air HWB Y.N. 10’/doze
-5:13
+14:30-14:57= 37’
Sum: 1h45+5h13-(3+3+3+25=)34’ = 6h58-34’ = 6h24, up 4x (34’) +37’ power-nap

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 80%/2 except dead tired from more yoga nidra than sleep tonight - cycling and shops quite OK, much less fatigue, less Ache than yesterday.
"HOW DO I LOOK?" Dead tired
ACTIONS ➔ PAINS: Got all small pains after the acupressure down. Managed to stand and cycle quite a lot, less stiff.

Treatments

Docs:
Chinese Acupuncturist - next: tomorrow = Thursday again. Exciting again!
Cardiologist - Thursday: Factor VIII up: MCAS and CVD? Hyperlipidemia from MCAS?? White Lips? Blue fingers. Atorvastatin vs. rupatadine?
Psychotherapist - next Tuesday: Do I talk too medical? (details on Saturday’s entry)
GP - next Monday: Mg level instead of just stopping it?

WHB (3 rounds) cos too much fw too little self-discipline due to being tired.
RIBOSE: ?
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube

SELF-PHYSIO (click for details): 2h54 ✅. Combine. List-prioritize: next. Mainly Yoga Nidra from chatterbrain (Ukraine)

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d or 4/d? Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:00 Chamomile tea.
/00:10 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/00:50 B1 “01:00” PF#4
Heating on! Warm shower?
/06:45 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:45 B4 “07:00” EGCg + Fev/MSM + Sily
/09:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:20 C3 “MEAL” .5gC#1 2The2 (0NAC)
/12:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium but almond yoghurt with apple…
/14:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:40 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Bit of sinuses in the afternoon could’ve been from tiredness.
’Research’ today: Lots of fw. I think too much, but got some posts off my chest.
Lessons in self-care #238 Mustn’t beat myself up today: Acupuncture disallowed cold showering, and I did everything else to at least get pseudo-sleep and take a short power nap too… and that caused some lack of self-discipline, but I still did get lots of things done, just not “satisfactorily”, i.e. perfect enough.
Reasons to be cheerful #246 I’m still surprised about the effect of the acupuncture.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 3, 2022, 9:44pm

2022-03-03, Thursday 10% - down, more “histaminey” than before, acupuncture increased the problems.

Triggers & resulting Symptoms

SLEEP (click for details): 9h37, up 3x (15') ✅, but ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 70%/2 🧐. Should've tried warm showering a 2nd time last night.

cold shower p0 Sleep 21:45-
23:55 5’ 90%/2 p0 st1 drink fw2’ A4
2:10 5’ 90%/2 p0 st1 drink fw2’ B1 right nostril → air, nausea stomach → almond milk
4:40 5’ 90%/2 p0 st1 drink fw2’ left nostril/sinus → air, cold wash, nausea → almond milk. Tendons under knees, esp. left → stretches.
-7:36 80%/2 p0 st1 drink fw2’ left nostrils/sinus: From (almond) yoghurt? +1rup! nausea. B2-4 (however are they helping much at all?) +10’
Sum: 2h15+7h36-(5+5+5=)15’ = 9h51-15 = 9h37, up 3x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 70%/3, before the acupuncture and different but just as strong after it, the feeling I’d better not do much, but doing a bit is OK, doesn’t make it worse. But really really knackered, physically, not mentally, right into the evening…
"HOW DO I LOOK?" I can’t really see the pain and exhaustion, my wife can.
ACTIONS ➔ PAINS: Only acupuncture.

Treatments

Docs:
Chinese Acupuncturist By the morning, fatigue had increased a bit again, even more so stiffness and pain. Treatment today was tougher: More needles, longer (20’), some needles hurt quite a bit while putting in, but not once they were in, and not the turning after 10’. Made sure my lower back was comfy with 2 pillows under the sides, my upper back by getting the head end put down. She put heat lamps on feet and belly, just about warm enough. Next time: cushion under hunchback, praps a smaller or no roll under my knees (praps I’d then have less problems with the tendons under my knees) and idealer would be a cotton blanket instead of acrylic.
She also did some cupping (only 7’) which hurt normally, wasn’t as bad as 2 years ago, but has left extremely strong marks on my back - which don’t hurt tho. 16:35 Whoops, now they are itching and burning, maybe shouldn’t’ve thought about it…
Main thing tho: I have been totally Achey-exhausted after the treatment, not just 2 hours like she’s said, but at 16:30 still, not just limb muscles, but bladder too, also stiffer, not just limbs, but my neck. So as was the case with acupressure, she probably did too much this time.
Certain needled spots on hands and feet are also still stinging. Trying breath-holding, but cross-legged sitting hurts more than ever.

Cardiologist:

Factor VIII up: CVD too? Yes, it can become a problem, but doing the sonos regularly is enough.
White Lips? She explains it with my Raynaud’s.
Atorvastatin vs. rupatadine? Didn’t get round to that, because we were talking generally about the many benefits and too high disregard of alternative medicine. But I’ll take it with me to the next appointment in 6 weeks.
(Hyperlipidemia from MCAS is unnecessary/unhelpful to ask, forget it!)

GP - next Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: “Do I talk too medical?” (details on Saturday’s entry)

WHB (3 rounds) +:two: 1’30’’! 1’50’’! 2’! 1’30’’ 1’30’’ 1’30’’ Ah, great, despite not concentrating on it at all! And cross-legged was OK too, once I got started.
RIBOSE: ?

SELF-PHYSIO (click for details): 2h31 ✅. Combine. List-prioritize: next.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: R-ALA and new: PEA have arrived, but not taking PEA yet, as that'd be a too big a change and I want to wait what acupuncture brings "first". Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:10 B1 “01:00” PF#4
Heating on! Warm shower?
/07:35 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:35 B4 “07:00” EGCg + Fev/MSM + Sily
/09:15 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:15 C3 “MEAL” .5gC#1 2The2 (0NAC)
/12:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/19:30 “19:00”
/21:05 “21:00”
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: nostril/sinus, slight nausea, 2nd antihistamine isn’t helping. Only better after eating at 14:00

’Research’ today:
It is a grey and developing area but it would not be correct to characterise nociplastic pain as idiopathic pain, according to Chronic nociplastic pain affecting the musculoskeletal syste... : PAIN
“Chronic pain conditions such as fibromyalgia, complex regional pain syndrome type 1, and irritable bowel syndrome are examples of pain conditions, where nociplastic pain is typically present.15 These conditions have documented changes of nociceptive processing in the nervous system,12,17–19 thus precluding the classification of their pain as “pain of unknown origin” (idiopathic pain). The classifier “pain of unknown origin” should be reserved for patients with pain that cannot be designated as nociceptive, neuropathic, or, now, nociplastic and is a label awarded by exclusion.”
However Niki Jones at Footsteps ‘21 asks Irene Tracey about why she apparently calls the 3rd type of pain idiopathic on her site. Queen of Pain - Professor Irene Tracey discusses pain science imaging chronic pain management - YouTube. Can’t find the site she’s referring to. I haven’t seen it anywhere else either.
Since the Klosek, Clauw et al. review is from 2021, so just as new (or maybe written earlier in the year than the interview?) and I also can’t find anything more than this about idiopathic pain: Is this distinction of theirs a new one, maybe not agreed upon by Tracey? My problem tho is that whilst Jones’ question seems clear(?!), Tracey answers saying she prefers to use “simple bins”, but I don’t understand how that explains how she uses idiopathic as a third definition instead of nociplastic. It sounds a bit as if she wants to keep it flexible between nociplastic and nociceptive, but it wouldn’t make sense to make the 3rd definition include the first. It would make more sense if she reserved ‘idiopathic’ for a continuum between maybe all three types. Or I’m just coming to think: is Jones’ assumption wrong, but stands uncorrected by Tracey?
Answer: It is probably “a moving discussion and there will be flexibility in the conversations around it. Idiopathic seems to be to be less applicable and will become more applicable as we have defined nociplastic. I am sure some clinicians will continue to use idiopathic but it may be better to use it as an adjective on the pain type. Idiopathic nociplastic pain when you have not been diagnosed with fibro or other condition that is categorised as you would have idiopathic neuropathic pain that is not down to diabetes or SFN for example.” (DQ from FMA UK)

Lessons in self-care #239 Acupuncture probably overdosed.
Reasons to be cheerful #247 Lots of nice things. Good talk with cardiologist too.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 4, 2022, 9:08am

2022-03-04, Friday 5-10% - icy cold start, still bad from the acupuncture, death-defyingly 2x

Triggers & resulting Symptoms

SLEEP (click for details): 8h29, up 6x (76') ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌, feeling very cold.

warm, painful shower p0 Sleep 22:45-
1:05 5’ 80%/2 p0 st1 drink fw2’
2:27 10’ 80%/2 p0 st1 drink fw2’ air nostrils, nausea, breath ex. 3’ doze
2:57 Y.N.10’ 9’ burning skin, wide awake → (mod.) warm shower → not nice, feel cold. Blowing nose freed, face forehead torso burning. cream
3:16 Y.N.30’
4:30 10’ 80%/2 p0 st1 drink
5:15 35’ 80%/2 p0 st1 drink 6. stomach ache.
7:15 7’ 80%/2 p0 st1 drink
-08:30
Sum: 1h15+8h30-(5+10+9+10+35+7=)76’ = 9h45-1h16 = 8h29, up 6x (76’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: slow start ➔ 70%/3, TT 2 games hurt all the time, not getting worse, but better to stop. . Making music was good distraction, altho painful, and gradually managed to tone it down, so it didn’t stress too much.
"HOW DO I LOOK?" 5x+ White.
ACTIONS ➔ PAINS: GI: medium upper abdomen pain night and morning. Cauliflower?

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds) 1’15’’ 1’40’’ 1’30’’
RIBOSE: 15:20 (I think I forgot after all…)

SELF-PHYSIO (click for details): 1h47 ✅. Combine. List-prioritize: next.

airing 4x2’, hunchback-pillow 5’, Timing, warm extra shower (10’), cream fc/ey/hd/ft 4x1’, teeth 2x2’, HWB 3’, breath exercises 2’, Y. Nidra 40’, facetime 4x1’, left foot on/under right knee/cross-legged 15’, breath-hold 12’,

Combine: next?
palpate 1’, belly 3’, back 12’,
calendula/tea tree x1’,
hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d or 4/d? Look for better honokiol. DAO 0, RIBOSE 0(?) PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/01:05 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:30 B1 “01:00” PF#4
Heating on! Warm shower?
/07:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:00” EGCg + Fev/MSM + Sily
/09:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:00 C3 “MEAL” .5gC#1 2The2 (0NAC)
/11:05 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:15 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: nostrils & burning torso from 2-4.
’Research’ today: Nope, not even any forum-work much.
Lessons in self-care #240 was worth it, altho I could hardly appreciate it.
Reasons to be cheerful #248 Making music all day for a gig on Sunday was eustress & fun.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 5, 2022, 10:36pm

2022-03-05, Saturday 10-15% - 13:00 Knackered after 60’ slow cycling. Energy better, but changed / strange, pain high.

10:00 Achey-shakey, annoying histaminey stuff.

Triggers & resulting Symptoms

SLEEP (click for details): 8h50, up 3x (28') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐. Brain chatter (from music making and a small conflict) was OK, nostril(s) bad the last 2h, altho breathing ex., acupressure and blowing nose helped at first, experimenting this time it was better to lie on the side with the shut nostril. Bit of headache & nausea probably a result of it. Didn't try shower, but HWB made it worse, if at all. Managed most of the night without ear plugs, but at around 8 5 words outside the window made me start, so ear plugs do tone me down. A bit shakily unwell upon getting up, again different to at night. Numbness tonight wasn't that strong, altho I was worrying I might've taken .35g passiflora too much. Maybe try a second antihistamine again today? But normally eating and supps will clear the nose. Actually.... even some being up and movement alone (writing this and back exercises) got the nose free again.

cold shower p0 Sleep 23:35- A4
2:20 10’ 90%/2 p0 st1 drink fw1’ mus8’ air
5:35 10’ 90%/2 p0 st1 drink fw1’ air nauseous, nostrils only a bit, HWB just in case.
7:23 8’ 90%/2 p0 st1 drink fw1’ air nostrils a lot, HWB hadn’t helped, bit of sore throat.
-8:55
Sum: 25+8h55-(10+10+8=)28’ = 9h18-28’ ) = 8h50, up 3x (28’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 80%/3 60’ cycle , no TT but lots of music, energy enough.
ACTIONS ➔ PAINS:

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 1h13 ✅. Didn't feel the need for more. Combine. List-prioritize: next.

facetime 3x1’, airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 2x1’, HWB 3x3’, breath exercises 4’, Timing, teeth 3x2’, hunchback-pillow 10’, palpate 1’, belly 3’, back 10’, twist-stretch 5’,
Combine: next?
calendula/tea tree x1’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d or 4/d? March 5th: Replaced ubiquinol with ubiquinon, and added PEA for pain (C3-batch) and replaced Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:35 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/2:25 B1 “01:00” PF#4
Heating on! Warm shower?
/07:25 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:25 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:25 B4 “07:00” EGCg + Fev/MSM + Sily
/09:35 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:35 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
/13:10 vit D3
DAO (D1) “13:00” 0psyllium
/16:10 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Burning tongue after evening meal. (5? hazelnuts and) a dried fig… Didn’t take DAO beforehand, so didn’t try yoghurt. Tried GABA and cold water. 11:50 Burnt tongue again slightly. Also after midday meal, where I took 1 DAO, but ate about 15 hazelnuts and no fig. So that’d be the nuts. Tongue increased and stayed till at least 23:40.
’Research’ today: Nope. Music.
Lessons in self-care #241 Music. Wasn’t too much. Self-discipline not particularly necessary.
Reasons to be cheerful #249 Cycling. Music. Energy’s improved, pain stayed.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 6, 2022, 8:40am

2022-03-06, Sunday 10% - Acupuncture makes a little difference; overdoing it was fun!

17:30 3h music session with others for a service - deliberately overdid it to see what happens: pain is ‘only’ 4, but the “fatigue” is a stiffness and heaviness comparable with carrying a 40kg cement sack, movement down to 10 yrds per minute, shuffling, 3 mph cycling.
12:10 Still energy, despite pain and exhaustion.
quite a ‘good’ night & start, despite possibly overdoing it yesterday, mid-term effect of the acupuncture, I feel.

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 3x (30') ✅, and ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 80%/2 🧐

cold shower p0 Sleep 23:40-
1:40 5’ 90%/2 p0 st1 drink fw2’ air (burnt tongue)
3:30 5’ 90%/2 p0 st1 drink fw2’ air, dry, sore throat, bit burnt tongue.
5:30 20’ 90%/2 p0 st1 drink fw2’ (burnt tongue, nostrils, bit sore throat)
-8:25
Sum: 20+8h25-(5+5+20=)30’ = 8h45-30’ = 8h15, up 3x (30’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: waking, music “working” ➔ 80%/2, after 3h music session 80%/4, but hardly able to move for stiffness & fatigue, head & face not OK, but feeling good inside all the same, so “80%”.
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
ACTIONS ➔ PAINS:

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds) 12:35 1’20’’, 1’30’’ 1’50’’ 1’30’’ 50’’(!) 1’
RIBOSE: 13:55 5g.

SELF-PHYSIO (click for details): 1h54... ✅. Combine. List-prioritize: next.

aloe vera 1’, facetime 2x1’, airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 3x1’, teeth 2x2’, HWB 1x3’, breath exercises 3’, Timing, hunchback-pillow 10’, cross-legged 20’+25’, breath-hold 25’
Combine: next? palpate 1’, belly 3’, back 12’, horse stance 1’,
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube
hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, bent leg fall 1’, Y. Nidra 20’, calendula/tea tree x1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Tried 1x.5g NADH after the music session. Passionflower .35g 3/d or 4/d? March 5th: Replaced ubiquinol with ubiquinon, and added PEA for pain (C3-batch) and replaced Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/01:40 B1 “01:00” PF#4
Heating on! Warm shower?
/08:40 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:40 B4 “07:00” EGCg + Fev/MSM + Sily
/08:55 +1 rupatadine to see if it can improve the ‘burnt’ tongue.
/09:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:05 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/13:55 D2/3 + 5g Ribose “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:05 + NADH D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

I’ve taken off “HOW DO I LOOK?” as a category, since I almost always look tired and pale, and the ‘white lips’ would seem to be Raynaud, so indirectly relevant, but not directly. But I can still get “minute points” every time I check.
Jab-sfx/MCAS/antihistamine:
8:45 Still burnt tongue tip, sore throat’ll probably decrease, whilst nostrils got free at night during the slightly longer sleep break already. 8:55 trying rupatadine.
12:05 nothing has helped the burnt tongue. Strong pee urge at 11:00, bladder pain now. Fatigue still OK, despite a lot of music work, however more sitting today, up to now.
’Research’ today: Nope.
Lessons in self-care #242 Might take a while to recover from today, let’s see. Worth it!
Reasons to be cheerful #250 Finishing off music, plus gig.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 7, 2022, 6:58pm

2022-03-07, Monday 10% - overdid 3 games, pain up from 3 to 5, but fatigue OK - again acupuncture decreasing the fatigue, I think. Trying to get used to the pain.

9:00 cancelled dentist… interesting experiment in wake-sleep: to test if I was sleeping I tried several times to imagine where I live now and where I used to live, and I wasn’t able to, around the 5th or 6th time I managed via now imagining the place, but the address, and then I could picture, but only roughly, what the front looks like… dunno what that counts as: lucid dreaming, sort of?

Triggers & resulting Symptoms

SLEEP (click for details): 7:30, up 2x (15') ✅, but ➔ Feeling 90-70% well, Ache 2-3 of 7 🧐, getting up: 80%/3 ❌

cold shower p0 Sleep 00:45- HWB
3:30 10’ 90%/2 p0 st1 drink fw2’ air B1
5:10 5’ 70%/3 p0 st1 drink fw2’ air nostrils/tongue: acupressure/breath ex.
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-8:30
Sum: 8:30-45-(10+5=)15 = 7:30, up 2x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Pain etc. from overdoing it in the music session yesterday went down a bit doing some fibro work revenge procrastination ➔ 70-80%/3-2. During TT pain went up ➔ 80-80%/3-5, but feeling OK, trying to get used to continual pain and still carrying on doing something. Same all day.
ACTIONS ➔ PAINS: Only MCAS symptoms.

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds) but lots of deep breathing
RIBOSE: unnecessary

SELF-PHYSIO (click for details): 1h17 ✅. Combine. List-prioritize: next. More deep breathing than breath-holding.

facetime 2x1’, airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 2x1’, teeth 2x2’, HWB 2x3’, breath exercises 15’, Timing, hunchback-pillow 10’, palpate 1’, belly 3’, back 12’, acupressure 6’, aloe vera 1’,
Combine: next?
left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, bent leg fall 1’, horse stance 1’, calendula/tea tree x1’, .

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Stopping vitamin B2 this evening. Keeping passionflower at 4x.35g/d. Look for better honokiol. DAO: no. RIBOSE: no. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:40? A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:40 Chamomile tea.
/00:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:30 B1 “01:00” PF#4
Heating on! Warm shower?
/08:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:30 B4 “07:00” EGCg + Fev/MSM + Sily
/11:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/11:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
15:00 0 DAO (D1) “13:00” 0psyllium
/16:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:20 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Burnt tongue tip again. Most of the morning. I was thinking about saying it’s not the hazelnuts, but just the jab, but actually it might be those after all. Or is it the apple sauce? But here it says that’s OK: Grocery List- Low Histamine Diet – NAUGHTYLITTLEMASTCELLS and it’s not on the SIGHI list either. 15:10 tongue is hardly burning, I’ll now try apple sauce, no problem, then pumpkin seeds, then aloe vera (burns on the tongue a bit): 17:50 still hardly not burning, 18:20 now it is a little, altho I haven’t eaten, just drunken some almond milk; but I’ve been doing that all the time, it’d surprise me if it’s that…
Why have I got a wide red stripe on my left hand, which doesn’t hurt at all to touch?
Jemima asked me about luteolin for brain fog, which has made me realize that I am more alert now than a few months ago, e.g. I’m clearly winning almost every table tennis game, however bad my pain, stiffness & fatigue are. I also started 5 other new supps (EGCg, ellagic acid, feverfew, honokiol, silymarin) at the same time, however they have much less evidence for fog. Increasing ginkgo and GABA which are both definitely good for alertness, can’t have made that much difference,

’Research’ today: Looked up the 5 new supps and also proprioception, my ‘muscle sense’, which has got worse of late, did a finger-on-nose-eyes-closed-test which didn’t go well, and saw that vit. B6 can increase this. Doing the test quick works fairly well, but I’ve decided to stop the B6 as it’s only to support GABA, and a bit for sleep, and that’s not necessary.

Lessons in self-care #243 Testing how far I can go with less fatigue, but the pain is now 3-5 all the time, so I’ll ask the acupuncturist to focus on that.
Reasons to be cheerful #251Considering yesterday and not letting off today, I’m doing quite well!

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 8, 2022, 7:16pm

2022-03-08, Tuesday 10%-15% - good considering… from acupuncture, before & after…

Triggers & resulting Symptoms

SLEEP (click for details): 8h45, up 4x (25') ✅, and ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 80%/3 🧐

cold shower p0 Sleep 22:30- Cold shower pretty painful - from acupuncture increasing pain?
0:40 5’ 70%/2 p0 st1 drink fw2’ air A4 cream
2:10 5’ 70%/2 p0 st1 drink fw2’ air B1 cream
3:30 10’ 70%/2 p0 st1 drink fw2’ air cream dry mouth → gel
6:30 5’ 70%/2 p0 st1 drink fw2’ air cream B2-4
-7:40
Sum: 1h30+7h40-(5+5+10+5=)25’ = 9h10-25’ = 8h45, up 4x (25’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: psychologist ➔ 80%/2, still 10% activity, but a bit more like before acupuncture. Even managed 3 games with pain only starting then. Then acupuncture and cupping was OK today, ➔ 80%/2
ACTIONS ➔ PAINS:
MCAS/HIT-Triggers:
22:00 Cold showering was really tough, not funny at all, despite deep breathing a lot before. And my tongue tip started feeling burnt afterwards for a few minutes.
3:35 sore throat. Nostrils, sinuses & tongue tip still OK.
14:40 No burnt tongue tip since getting up! (despite aloe vera, ehm, no forgot, now, 14:45. Didn’t sting. Quite a bit of chocolate, no problem.)

Treatments

Docs:
Psychotherapist - today: No I don’t talk too medical…
Chinese Acupuncturist - Tuesday: No pillow, roll. Changed.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 82' ✅. Combine. List-prioritize: next. Not feeling the need to concentrate on this much, I spose because of the acupuncture. Deleting the new youtube exercises in the details from now on and backlogged, but keeping them in the template/"today".

facetime 2x1’, airing 6x2’, cold shower (10’), teeth 2x2’, HWB 2x3’, breath exercises 6’, Timing, cream fc/ey/hd/ft 5x1’, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, acupressure 6’.
Combine: next?
calendula/tea tree x1’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps (Feb 25th: 29): Supp costs: ~341€/m. CHANGE: Stopped vit. B6 (P-5-P). Look for better honokiol. DAO + RIBOSE: no PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:05 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:40 Chamomile tea.
/00:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:10 B1 “01:00” PF#4
Heating on! Warm shower?
/06:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:30 B4 “07:00” EGCg + Fev/MSM + Sily
/09:25 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:25 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/17:55 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:55 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today: Nope.
Lessons in self-care #244 Didn’t feel like acupuncture, but turned out good: like a cold shower.
Reasons to be cheerful #252 3 games of without pain is quite good going.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 9, 2022, 7:32pm

2022-03-09, Wednesday 20%! - Chinese acupuncture working again, even better!

Triggers & resulting Symptoms

SLEEP (click for details): 8h18, awake 3x (37') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

warm shower (after acupuncture): hurt, skin. p0 Sleep 22:55-
0:40 30’ 80%/2 p0 st1 drink fw2’ A4 6 air cream
5:32! 5’ 80%/2 p0 st1 drink fw2’ 0B1 air cream. NO nostrils, hardly pee urge, slight sore throat, dry mouth, NO chamomile, NO HWB. Woken up only by this year’s blackbird - first concert!
7:00 2’ nostrils & tongue tip a bit.
-7:50
Sum: 1h05+7h50-(30+5+2=)37’ = 8h55-37’ = 8h18, awake 3x (37’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Managed 4xTT (4th game hurt, 3rd did NOT (much)) 80%/2 , some work & housework 90%/1 bit of rest, but also a bit on the move, e.g. cooking in the evening, often standing, always seeming to slightly overdo it, but it not seeming to matter…
ACTIONS ➔ PAINS: GI: aloe vera rest (midday) had mould in it, probably wasn’t the white cabbage after all. Lower back unrest, need to exercise better. GI: after midday I again had wind problems, without aloe vera or white cabbage… Continued with belly ache in the evening. What the heck is that?? Not the acupuncture, surely?
MCAS/HIT-Triggers:
1:05 nothing, not apple sauce, not chocolate. Next: yoghurt; hazelnuts.
5:30 4h sleep stint! NO nostrils, hardly pee urge, slight sore throat.
16:55 1h after eating almond yogurt no histaminey symptoms yet, tongue only very slight.
20:00 no almond yogurt, but hazelnuts with darkest chocolate. No histaminey problems.

Treatments

Docs:
Chinese Acupuncturist - Thursday: cushion under hunchback?

WHB (3 rounds) unnec.
RIBOSE: unnec.

SELF-PHYSIO (click for details): 55'!! ✅. PRIZE FOR NOT DOING MORE THAN APPARENTLY NECESSARY! ;-) Combine. List-prioritize: next.

facetime 2x1’, airing 6x2’, cream fc/ey/hd/ft 5x1’, teeth 2x2’, breath exercises 2’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, twist-stretch 5’.
Combine: next?

Supps Mar 8th (27): Supp costs: ~341€/m. CHANGE: Stopped vit. B6 (P-5-P). Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 8th (27): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#4
Heating on! Warm shower?
/08:00 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:00 B4 “07:00” EGCg + Fev/MSM + Sily
/10:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/17:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:35 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today: Nice fairly recent article (Galvez-Sánchez & Reyes del Paso 2020) showing the limits of current fibro diagnostic criteria: https://www.mdpi.com/2077-0383/9/4/1219/pdf
Lessons in self-care #245 Need to watch at least my supp times better, if not nec my exercises.
Reasons to be cheerful #253 Upwards?! ?

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 9, 2022, 7:36pm

2022-03-10, Thursday 20%! - 4x , painless 4th Chinese acupuncture session again good

Triggers & resulting Symptoms

SLEEP (click for details): 9h52, up 5x (23') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐, too zombified, so try one passiflora less at "23:00".

luke warm/cold shower (tough) p0 Sleep 22:30-
0:15 3’ 80%/2 p0 st1 drink fw2’ air cream
2:00 5’ 70%/2 p0 st1 drink fw1’ cream
3:30 5’ 70%/2 p0 st1 drink fw2’ cream HWB
5:10 5’ 70%/2 p0 st1 drink fw2’ air cream vivid dreams. nostril a bit: acu & breath.
6:45 5’ 70%/2 p0 st1 drink fw1’ air cream vivid dreams. nostril a lot. acu & breath. B2-4.
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-8:45 very tired, so go down with passiflora!
Sum: 1h30+8h45-(3+5+5+5+5=)23’ = 10h15-23’ = 9h52, up 5x (23’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Long phone with son was good, TT 3:1 ➔ 80%/3, no real pain-increase point, then work/phoning 1h ➔ 80%/3. Coming from acupuncture ➔ 90%/1, but talking to my wife realized it was tougher and I need to rest.
ACTIONS ➔ PAINS: GI: Bit of wind again, but better.
MCAS/HIT-Triggers: Nostrils starting at 5, waking up with bit of nauseous stomach ache, bit sinuses.

Treatments

Docs:
Chinese Acupuncturist - Thursday: Hunchback cushion: Yep, better. Told the acupuncturist about the wind daily, the nostrils nightly and the freezing. When I said maybe allergic she asked “hayfever” about the nostrils, and I said yes to make it easier.

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 80'... ✅. Combine. List-prioritize: next.

airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 5x1’, teeth 2x2’, HWB 2x3’, breath exercises 4’, hunchback-pillow 25’, Timing, palpate 1’, belly 3’, back 7’, twist-stretch 3’, yoga/stretching 3’, horse stance 1’.
Combine: next?
Delete from Feb 18th on…
facetime 2x1’, calendula/tea tree x1’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’,

Supps Mar 8th (27): Supp costs: ~341€/m. CHANGE: Better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 8th (27): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:45 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/Chamomile tea.
/00:15 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:00 B1 “01:00” PF#4
Heating on! Warm shower?
/06:45 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:45 B4 “07:00” EGCg + Fev/MSM + Sily
/09:25 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:25 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:20 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:55 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:25 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today:
A colleague asked me about glutathione: Glutathione has been mentioned occasionally, but not explicitly for FM or MCAS, so I haven’t targeted it. The German page ZdG is very informative. It is an antioxidant, of which I already take 20. As a peptide of glutamic acid, cysteine and glycine, it is unattractive to me because I have ambivalent reactions to these amino acids. They specifically don’t recommend liposomal glutathione, and think that you should at least reduce the dose, because of the higher bioavailability. I know from experience that it is easy to overdose on amino acids, and I guess it is similar with peptides. When overdosing them, my experience is that you get the same symptoms as when underdosing.
They recommend having several glutathione values checked beforehand. I’ve tried everything that is mentioned round about glutathione, I have deliberately discontinued many of them (Mg, Se, NAC), but I continue to take some: B2, Ω3, raw vegetables.

Lessons in self-care #246 Seemed great directly after acupressure, but I’m actually always knackered, sweaty feeling around my eyes, that means my body is “working on it”.
Reasons to be cheerful #254 Again progress! More pain-free table tennis etc.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 11, 2022, 4:30pm

2022-03-11, Friday 20% - 6x TT - OK that needed a really long break! But after that I started doing lots of housework

Triggers & resulting Symptoms

SLEEP (click for details): 8h35, up 3x (15') ✅, and ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Felt at 4 it's better to get up and re-arrange my bones (back) and nostrils, altho I actually didn't need to pee or anything.

luke cold shower p0 Sleep 22:05-
1:45 5’ 80%/1 p0 st1 drink fw2’ air cream sore throat - calendula ess. A4
4:10 5’ 80%/1 (p0) st1 drink fw2’ air cream sore throat - calendula ess. 0B1 Dry mouth, nostrils a little. At 6h sleep praps best not to take B1. twist-stretch 3’
5:06 5’ 80%/1 (p0) st1 drink fw2’ cream dry mouth, cough. → dry mouth gel.
(6:00 awake, dozing a bit I spose)
-06:55
Sum: 1h55+6h55-(5+5+5=)15’ = 8h50-15’ = 8h35, up 3x (15’)

ACTIVITIES (aim: 40%) ➔ ACHE: 6x TT , 3h+ housework, 2h video meeting with friends , 30’ phone work ➔ 80%/2
ACTIONS ➔ PAINS: Cold: Showering cold was again not possible, had to do it luke warm alternately with luke cold
MCAS/HIT-Triggers: Experimenting with fig, as well as hazelnuts, a bit of yogurt, chocolate, so if this works either my histamine bucket is empty or it wasn’t anything to do with. 9:20 Tried a few cashews, since fig & hazelnuts went quite well.

Treatments

Docs:
Chinese Acupuncturist - Tuesday: sore throat in the early nights, dry mouth, cough, & nostrils in the late nights?

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 103' ✅. Combine. List-prioritize: next.

Timing, airing 5x2’, luke cold shower (10’), cream fc/ey/hd/ft 5x1’, hunchback-pillow 15’, teeth 2x2’, breath exercises 2’, palpate 1’, belly 3’, back 8’, twist-stretch 2’, facetime 2x1’, workout 7’, horse stance 1’, left foot on/under right knee/cross-legged 10’, neck 1+ 2’, neck 2 2’, yoga/stretching 2’, marionette-hang 2’, hair/nails 15’,
Combine: next?
calendula/tea tree x1’, HWB 3’, Y. Nidra 20’, breath-hold 12’, plantar/calf stretch 5’, loins 5’, jolt-jump 1’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’,

Supps Mar 8th (27): Supp costs: ~341€/m. CHANGE: Went down to 2x.35g with passiflora and no longer zombified, but awake slightly early. Better honokiol? DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 8th (27): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/01:45 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
Heating on! Warm shower?
/07:00 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:00 B4 “07:00” EGCg + Fev/MSM + Sily
/09:15 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:15 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:25 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 13:55 DAO (D1) “13:00” 0psyllium
/16:15 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
19:55 A1/2.
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #247 Doing so much at the moment, but I don’t think I’m gonna crash cos fw is making me rest in between.
Reasons to be cheerful #255 6x !

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 12, 2022, 7:03am

2022-03-12, Saturday 15% → 10% - backlash: Must’ve been overdoing it, no signs. Praps the acupuncture is improving energy/fatigue, but not the resources to cope with moving that much, as in the evening I’ve got energy again, but still pain & nausea.

Triggers & resulting Symptoms

SLEEP (click for details): 8h38, up 5x (37') ✅, but ➔ Feeling 90-70% well, Ache 1-2 of 7 🧐, getting up: 70%/2 ❌

luke cold shower p0 Sleep 22:35-
23:40 6’ 90%/1 p0 st1 drink fw2’ cream A4
0:35 6’ 90%/1 p0 st1 drink fw2’ cream
1:55 5’ 90%/1 p0 st1 drink fw2’ air cream
4:30 10’ 90%/1 p0 st1 drink fw2’ air cream. nostrils: acupressure 5’. dry mouth: gel.
6:45 10’ 70%/2 p0 st1 drink fw2’ air cream, nostrils fairly OK, dry mouth: drink, LBU: twist-stretch, sinuses bit. B2-4. Dream: Only 1h of being at work was too much, what’ll I have to do next, being part of the people there, them missing me.
-7:50 Dream of joke a black tall person having broken the mould. Very slightly feverish.
Sum: 1h25+7h50-(6+6+5+10+10=)37’ = 9h15-37 = 8h38, up 5x (37’)

ACTIVITIES (aim: 40%) ➔ ACHE: At first 70%/3, TT 1:3 , neck stiff, not enough energy to go for the ball, pain building up indescernably. ➔ 60%/4. carrying on most of the day, despite sitting, very slow cycle-walk, quick grocer’s .
ACTIONS ➔ PAINS: Neck: Worse from the exercises - so I have to keep them up regularly, but not so “much” (2’+2’) in one go? Stiff all day, all round, not just one-sided. GI: OK.
MCAS/HIT-Triggers: 21:00 fig, hazelnuts, lots of cow yogurt, no DAO atm. 4:35 Nostril a bit, fairly OK again at/after 6:45. A fig again at 14:00. Unless my increased pain atm is from food triggers? But why are all the other small symptoms almost gone??

Treatments

Docs:
Chinese Acupuncturist - Tuesday: sore throat in the early nights, dry mouth, cough, & nostrils in the late nights, cold shower tolerance down, neck muscles. Increased pain!

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 1h21+ ✅. Combine. List-prioritize: next.

facetime 2x1’, airing 5x2’, luke cold shower (10’), cream fc/ey/hd/ft 5x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 10’, hair/nails 10’, acupressure 6’, palpate 1’, belly 3’, back 12’, neck 1+ 1’,
Combine: next? breath-hold 12’,
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube
neck 2 4’, calendula/tea tree x1’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, aloe vera 1’, bent leg fall 1’, horse stance 1’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’.

Supps Mar 8th (27): Supp costs: ~341€/m. CHANGE: Tying to go down to 3x.35g with passiflora, since the acupuncture is helping sleep and I'm waking zombified. Better honokiol? DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 8th (27): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:55 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:55 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/ Chamomile tea.
/23:40 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
Heating on! Warm shower?
/06:45 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:45 B4 “07:00” EGCg + Fev/MSM + Sily
/10:25 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:25 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/10:35 Vit. D3
/13:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today:
I saw a balance board mentioned and had a look for types, cos there’s so many, found a German video (automatic translations) compares 7 balance things: 7 types in 20’, not sure of the English translations (you can put on automatic translation, but you get some funny incomprehensible parts):
1) a balance pad, 2) a therapy “top”, 3) balance “hedgehog” (praps translated “stepping stones”?? with “nubs”), 4) balance “bone” (?, sort of small beam), 5) round balance “seesaw”, 6) Bosu Pro (circular board with a hemisphere on one side) and 7) a balance board (a straight one on a cylinder). Most of all he recommends a balance “pad” for anyone and everyone, beginner’s and advanced. (Doesn’t look that interesting to me.) But he also says just look around what you have a home, and I just found a foam roller my wife bought me. It’s standing in the corner cos it’s much too hard for me, but I’m now standing on it, typing which is fun. Let’s see how long… Face with monocle - I’m starting to get sea-sick as I’ve just had a backlash of a pain after acupuncture is helping fatigue/energy but not pain, which is unbalancing my body in a different way and making me nauseous… But my back feels better. Probably as ever a matter of dosage, e.g. one minute on, 4’ off…

Lessons in self-care #248 Ooh, gotta watch out today, not too ambitious.
Reasons to be cheerful #256 It is fun that needs to be curbed when the fatigue goes down but the pain stays up.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 13, 2022, 11:01am

2022-03-13, Sunday 10% - fairly cautious start OK.

Triggers & resulting Symptoms

SLEEP (click for details): 8h35, up 3x (25') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐, OK getting up despite taking a 3rd passiflora at 6:30 by mistake.

luke cold shower p0 Sleep 22:45-
02:25 15’ 70%/2 p0 st1 drink fw2’ air cream nostrils
04:30 5’ 70%/2 p0 st1 drink fw2’ air cream nothing much, bit of burnt tongue. no B1.
06:25 5’ 70%/2 p0 st1 drink fw2’ air cream nostrils. B1 by mistake!! B2-4.
-7:45
Sum: 1h15+7h45-(15+5+5=)25’ = 9h-25’ = 8h35, up 3x (25’)

ACTIVITIES (aim: 40%) ➔ ACHE: Again showering before bed painful ➔ 70%/4, thought I’d better not TT as I was at 70%/2 the whole day. .
ACTIONS ➔ PAINS: neck? GI OK. Seizure at 14:45… (praps dizzy from too much movement of the other person in a short video meeting), but again at 16:30, which makes me think it’s serotonin as ever, also I’d had a bit of pee pain. But too much or too little serotonin => GABA.
MCAS/HIT-Symptoms/Triggers: Leg skin always burning a bit when first stretching.

Treatments

Docs:
Chinese Acupuncturist - Tuesday: sore throat in the early nights, dry mouth, cough, & nostrils in the late nights, cold shower tolerance down, neck muscles. Increased pain, focal seizures.

WHB (3 rounds) 13:00 2x1’30’’ 2’
RIBOSE:

SELF-PHYSIO (click for details): 116'+ ✅. Combine. List-prioritize: next.

hand-exerciser 3’, aloe vera 1’, massage gun 5’, airing 3x2’, luke cold shower (10’), cream fc/ey/hd/ft 4x1’, teeth 1x2’, Timing, hunchback-pillow 10’, balance on foam roller 20’, breath exercises 4’, acupressure 4’, left foot on/under right knee/cross-legged 10+12’, breath-hold 12’, marionette-hang 1’, facetime 2x1’, twist-stretch 5’, yoga/stretching 5’,
Combine: next?
calendula/tea tree x1’, HWB 3’, Y. Nidra 20’, palpate 1’, belly 3’, back 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, jolt-jump 1’, workout 7’, shaking dance 1’, bent leg fall 1’, horse stance 1’.

Supps Mar 8th (27): Supp costs: ~300€/m (Mar 13th, the new one PEA is 36€/m, then PQQ 1x/, quercetin 4x/d and Ω3 which I'm thinking of leaving for just regular canola oil). CHANGE: Tying to go down to 3x.35g with passiflora, since the acupuncture is helping sleep and I'm waking zombified. Better honokiol? DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 8th (27): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, no longer DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:50 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:30 Chamomile tea.
/02:25 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/06:25!! by mistake B1 “01:00” PF#3
/06:25 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:25 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:25 B4 “07:00” EGCg + Fev/MSM + Sily
/09:05 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:05 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:55 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
->17:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #249 Better to tone down today.
Reasons to be cheerful #257 Quite nice services today and a nice slow cycle-walk…

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 14, 2022, 10:56am

2022-03-14, Monday 10% - good night, again bad start… kept down (2:0), but 2h online workshop 2h… and short slightly strenuous cycle went quite well.

Triggers & resulting Symptoms

SLEEP (click for details): 8h23, up 2x (17') + 1h05 doze = 9h28 ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2-3 ❌

luke cold shower p0 Sleep 22:30-
0:15 6’ 70%/2 p0 st1 drink fw2’ air cream A4
2:00 11’ 70%/2 p0 st1 drink fw2’ air cream B1 nostrils (dry clots)
-7:10, 7:15-8:20 = 1h05 dozing
Sum: 1h30 +7h10-(6+11=)17’ = 8h40-17 = 8h23, up 2x (17’)

ACTIVITIES (aim: 40%) ➔ ACHE: Starting at 70%/3 , resting most of the day - 2:0, 2h online workshop all I’d say 70%/(2-)3
ACTIONS ➔ PAINS: neck OK. GI: Morning stools getting looser every day (& slight nausea) - wind better tho.
MCAS/HIT-Symptoms/Triggers: Bit of burning here and there, mainly the fatigue. Wondering if I should increase the antihistamine.

Treatments

Docs:
Chinese Acupuncturist - Tuesday: Sore throat in the early nights, dry mouth, cough, & nostrils in the late nights, improving tho, cold shower tolerance down (shower etc.) since Tues - warning sign? (but not needing HWB at night strangely), neck muscles stiff, then hurting. Increased pain: Sat, Sun (also slight nausea)! Mon? GI: Wind better, stools worse. Sleep good.

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 59'...+ ✅. Combine. List-prioritize: next.

belly 3’, back 8’, airing 6x2’, luke cold shower (10’), cream fc/ey/hd/ft 9x1’, acupressure 2’, teeth 2x2’, Timing, breath exercises 4’, hunchback-pillow 8’, plantar/calf stretch 1’,
Combine: next? palpate 1’, belly 3’, back 8’, breath-hold 12’, cross-legged 20’, neck 1+ 1’,
facetime 2x1’, calendula/tea tree x1’, HWB 3’, Y. Nidra 20’, hair/nails 3’, neck 2 4’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps Mar 13th (26): Supp costs:~300€/m (Mar 10th) CHANGE: Tying to go down to 3x.35g with passiflora, since the acupuncture is helping sleep and I'm waking zombified. Better honokiol? DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:45 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:15 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:00 B1 “01:00” PF#3
Heating on! Warm shower?
/07:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” EGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development - Bit confused why I’m getting this setback… not sure if it’s just overdoing it without being able to detect why…

’Research’ today: Nope

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 15, 2022, 7:04pm

2022-03-15, Tuesday 10% -

Triggers & resulting Symptoms

SLEEP (click for details): 8h35, up 4x (25') ✅, but ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 70%/3 ❌. Sinuses worse at 7:30 despite 2nd antihist: severe short nausea & headache attack. Luke warm alternating shower didn't help much, eating & supps usually does, didn't much tho.

cold shower p0 Sleep 22:30-
0:55 5’ 70%/2 p0 st1 drink fw2’ air cream slight nostrils, sore throat
3:20 5’ 70%/2 p0 st1 drink fw2’ air slight nostrils, sore throat
4:35 5’ 70%/2 p0 st1 drink fw2’ cream slight nostrils, sore throat (noises outside)
6:30 10’ 70%/2 p0 st1 drink fw2’ air cream sinuses → antihist, massage gun 4’ right thigh & neck
-7:30 Sinuses worse despite antihist: severe short nausea & headache attack. Luke warm alternating shower.
Sum: 1h30+7h30-(5+5+5+10=)25’ = 9h-25’ = 8h35, up 4x (25’)

ACTIVITIES (aim: 40%) ➔ ACHE: Starting at 70%/3 once again, resting and a bit of exercise didn’t make much difference, neither did acupuncture ➔ 60-70%/2-3.
TT 1:1, short walk, shop 20’+5’ 70%/2)
ACTIONS ➔ PAINS: neck OK-ish GI: abdomen pain. Sinuses developed into either a headache or forehead sinus burning. 16:00 wind after raw and directly after broccoli/red quinoa.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers: 21:00 energy etc. better, sinuses a bit. 0-5 nostrils & sore throat, sinuses accompanied by nausea. 9:00 frontal headache, slowly better during and after acupuncture. Looking up the amaranth I’ve been trying I’ve seen it’s low in histamine, high in oxalates which can liberate histamine. But thinking a bit more I think it’s more likely the walnuts I’ve been trying without taking DAO beforehand. Just for the/my record: walnuts are the worst nuts “3”, peanuts, 2nd “2”, whilst almonds, hazelnuts and even cashews are only “1”, so I’d been getting that totally wrong. 16:00 Very itchy flanks suddenly for a while - “stretching”?

Treatments

Docs:
Chinese Acupuncturist - Tuesday 15th: “Sore throat in the early nights, dry mouth, cough, & nostrils in the late nights, improving tho, cold shower tolerance down (shower etc.) since Tues - warning sign? (but not needing HWB at night strangely), neck muscles stiff, then hurting. Increased pain: Sat, Sun (also slight nausea)! Mon? GI: Wind better, stools worse. Sleep good.” - told her most of that. Very much clearer now I know I have MCAS that lying on my back like there, the mucus is running down the back of my throat, so I have to clear it every few minutes. It was OK to lie there with needles and then cups, but a bit tough getting up and home. Nothing changed from before. Felt a little better afterwards, but still my eyes, face and body tired.

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 95' ✅. Combine. List-prioritize: next.

facetime 2x1’, airing 5x2’, luke warm / cold shower 2x(10’), cream fc/ey/hd/ft 6x1’, teeth 2x2’, breath exercises 4’, Timing, hunchback-pillow 8’, massage gun 5’, palpate 1’, belly 2+3’, back 8+12’, neck 1+ 2’, twist-stretch 1’, aloe vera 2x1’, HWB 3’, marionette-hang 2’,
Combine: next?
calendula/tea tree x1’, HWB 3’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’, horse stance 1’.

Supps Mar 13th (26): Supp costs:~300€/m (Mar 10th) CHANGE: Passiflora down is still OK. Antihistamine up didn't work at all, if at all made sinuses & headache worse... O.o. Better honokiol? DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:05 A1/2 “19:00” PF#1 .1vB2 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:25 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/0055 Chamomile tea.
/0055 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
Heating on! Warm shower?
/06:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:30 B4 “07:00” EGCg + Fev/MSM + Sily +1 Rupafin#2
/07:55 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1vB2, gink#1, Cu or Zn 1xHon! DAO?
/07:55 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:05 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:05 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, 2xB2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

No Walnuts… at least without DAO? (Food trigger after all?)
’Research’ today: Nope.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 16, 2022, 6:45pm

2022-03-16, Wednesday 10% - drifting & paddling a bit so I can do things, but not too much.

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 4x (20') ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌

cold shower p0 Sleep 22:30- air cream
00:15 5’ 70%/2 p0 st1 drink fw2’ air cream sore throat. A4
01:50 5’ 70%/2 p0 st1 drink fw2’ air sore throat.
03:45 5’ 70%/2 p0 st1 drink fw2’ cream
05:10 5’ 70%/2 p0 st1 drink fw2’ air cream nausea slight sore throat
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-7:05
Sum: 1h30+7h05-(5+5+5+5=)20’ = 8h35-20 = 8h15, up 4x (20’)

ACTIVITIES (aim: 40%) ➔ ACHE: ?70%/3
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
ACTIONS ➔ PAINS: neck? GI?
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Nostrils and/or sinuses upon waking. Sinuses in the evening despite a lot of cashews early afternoon without DAO.

Treatments

Docs:
Chinese Acupuncturist: Starting it Mar 1st:
2022-03-01 Ac#1 10% → 20-25% energy/fatigue but Ache → 3.
2022-03-02 15-20% hard adjusting activity, sleep problem.
2022-03-03 Ac#2 10% histaminey, Ac. worsened.
2022-03-04 5-10% cold, bad.
*2022-03-05 10-15% energy up, pain too.*
2022-03-06 10%
*2022-03-07 10% fatigue down, “overdid” 3 TT, pain up.*
2022-03-08 Ac#3 10-15%
2022-03-09 20%
2022-03-10 Ac#4 20%
2022-03-11 20% 6xTT Didn’t feel it, but overdid it??
2022-03-12 15 → 10% backlash.
2022-03-13 10% Cautious.
2022-03-14 10% Cautious.
2022-03-15 Ac#5 10%
2022-03-16 10%
The acupuncture & cupping fakes an activity level of 15-20% by increasing energy / decreasing fatigue/heaviness…
but when I act accordingly, pain increases to 3, 4 or even 5 and then energy & heaviness crash me all the same.
So to not crash now I’m having to counter-fake an activity level of only 10%, which is a mindscrew,
as the pain is the same, showers hurt, and I have a little more energy than is good for me - good for… the next tiger attack?
I’d learnt what to look for to not overdo it. Now either I have to adjust or fine tune that…
Feel like in limbo at the moment, drifting apparently aimlessly, because there’s nothing to rub against, can’t even be too bothered with exercising (only 1-2h) and blog, but getting quite a bit done all the same when I think about it.

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 2h05 ✅. Combine. List-prioritize: next.

airing 7x2’, cream fc/ey/hd/ft 8x1’, teeth 2x2’, acupressure 6’, breath exercises 4’, Timing, hunchback-pillow 15’, balance roll standing 25’, left foot on/under right knee/cross-legged 20’, neck 1+ 2’, hair/nails 20’, twist-stretch 2’, hand-exerciser 5’,
Combine: next?
facetime 2x1’, cold shower (10’), calendula/tea tree x1’, HWB 3’, Y. Nidra 20’, breath-hold 12’, palpate 1’, belly 3’, back 12’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, massage gun 20’, shaking dance 1’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Passiflora 2-3x.35g. Doubled vit. B2 and now taking DAO again sometimes, due to the histaminey symptoms on Tuesday. Better honokiol? DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:20 Chamomile tea.
/00:20 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
B1 “01:00” PF#3
/07:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
?15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:25 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today: Bits’n’bobs.
Lessons in self-care #250 Feeling aimless is OK.
Reasons to be cheerful #258 Still getting quite a bit done, even annoying things.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 17, 2022, 9:28pm

2022-03-17, Thursday 10% - acupuncture strenuous, no TT possible afterwards…

Triggers & resulting Symptoms

SLEEP (click for details): 9h05, up 5x (25') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐

cold shower p0 Sleep 21:45-
23:05 5’ 70%/2 p0 st1 drink fw2’ air cream nostrils+?, lower abdomen pain
0:15 5’ 70%/2 p0 st1 drink fw2’ air cream lower abdomen pain
1:35 5’ 70%/2 p0 st1 drink fw2’ air cream nostrils/sinuses slightly → GABA-speck.
3:10 5’ 70%/2 p0 st1 drink fw2’ air, sinuses slightly, pee urge seems quite often tonight.
5:45 5’ 70%/2 p0 st1 drink fw2’ air cream sinuses slightly. Plantar → exercise
-7:15 sinuses
Sum: 2h15+7h15-(5+5+5+5+5=)25’ = 9h30-25’ = 9h05, up 5x (25’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/3 all day, or worse.
ACTIONS ➔ PAINS: neck stiff, and all over, panting a lot. GI OK, but esophagus blocks about once a day the last few days, pretty tough this evening, took ages, annoying.
MCAS/HIT-Symptoms/Triggers/Treatments: OK-ish, seems DAO in the evenings is helping. Cashews feels OK, that and a fig and dark chocolate in the evening.

Treatments

Docs:
Chinese Acupuncturist - Thursday 17th: last/5th time didn’t do anything, the 2nd worsened, the 1st improved energy, but worsened pain, the 3rd and fourth were “best”, but ended in a total crash. “Best” means up from 10% to 20%. Again today no progress, several hours to recover, no TT possible, only a bit of yardwork.

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 1h39 ✅. Combine. List-prioritize: next.

twist-stretch 15’,Timing, hunchback-pillow 25’, neck 1+ 4’, facetime 2x1’, airing 6x2’, cream fc/ey/hd/ft 8x1’, HWB 3’, teeth 2x2’, left foot on/under right knee/cross-legged 15’, balance roll standing 5’, hair/nails 1’, RR 2x2’
Combine: next?
cold shower (10’), calendula/tea tree x1’, breath exercises 4’, Y. Nidra 20’, breath-hold 12’, palpate 1’, belly 3’, back 12’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Ordering new quercetin esp., as I've used it up today, I'll watch what happens tomorrow; and pine, ellagic acid & Sily in time. Passiflora 2-3x.35g. 1x/d DAO. Better honokiol? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/23:10 Chamomile tea.
/23:10 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
B1 “01:00” PF#3
Heating on! Warm shower?
/07:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:00” EGCg + Fev/MSM + Sily
/08:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/08:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/19:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/?15:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

See above for acupuncture development over the last 2+ weeks…

Lessons in self-care #251 Back, WHB + Ribose more tomorrow.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 18, 2022, 1:46pm

2022-03-18, Friday 15% - better again, repeat of last Friday…Saturday - careful does it…

Triggers & resulting Symptoms

SLEEP (click for details): 7h51, up 3x (49'), 20' doze = 8h11 ✅, but ➔ Feeling 70% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌

cold shower p0 Sleep 23:00-
00:15 33’ 70%/2 p0 st1 drink fw2’ air cream 6 A4
3:55 8’ 70%/2 p0 st1 drink fw2’ cream bit feverish
5:45 8’ 70%/2 p0 st1 drink fw2’ air cream bit feverish
-7:40 15’ 70%/3 p0 st1 drink fw1’ cream B2-4 +20’ doze
Sum: 8h40-(33+8+8=)49’ + 20’ doze = 7h51, up 3x (49’), 20’ doze = 8h11

ACTIVITIES (aim: 40%) ➔ ACHE: ➔ 80%/2. managed 4x TT (3:1) with 20’+10’ break, so have to watch it now. Weather better today, sunny. Whoops, 40’ gardening much too long! Trying cold shower… Seems to have helped. A little bit of very slow housework, no more activities, like walk or grocer’s. 40’ phone with son no problem ➔ 80%/2.
ACTIONS ➔ PAINS: neck OK-ish. GI: stool a bit hard(!), probably acupressure. Slight thigh problem → massage gun. (p1-2 yesterday from pain)

MCAS/HIT-Symptoms/Triggers/Treatments: Better at 22:30, even started doing a cold shower, before I realized I shouldn’t due to acupuncture. So cold tolerance seems a bit better. No sinuses, less nostrils, but still skin and slightly feverish since yesterday. Showed GP the allergologist-bill with “MCAS” on it. Said “It’s possible to get fleas and lice at the same time, but very unlikely” - meaning the same as the title of Afrin’s book “Never Bet Against Occam”, that all my oversensitivities are more likely to have one cause than to have 100s of independent causes. And the MCAS diagnosis is helpfully pointing me to histamine.

Treatments

Docs:
Chinese Acupuncturist - Thursday 17th: Bit better day after. Stool harder now. Pain down. Energy up. Careful!

SELF-PHYSIO (click for details): ✅. I'm motivated enough without "counting minutes", and this is not helping me to remember certain things, so I'll be stopping this tally, leave the list of possible exercises in here and praps make a daily note of things to focus next, at the moment that'd be measuring BLOOD PRESSURE ("RR") ❌, as that was high yesterday evening (140/95) and I want to check for POTS/dysautonomia, then WHB: ✅ 1'40'' 1'50'' 2' + 1' ✅, RIBOSE ❌ and of the new videos I still haven't integrated enough FACE relaxation and STIFFness. This will simplify and speed up each blog entry and allow me to focus more on what's relevant right now.

Combine: next?
Combine. List-prioritize: next.
facetime 2x1’, airing x2’, cold shower (10’), calendula/tea tree x1’, cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, balance roll standing 5’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, palpate 1’, belly 3’, back 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Passiflora 2-3x.35g. 1x/d DAO. Better honokiol? DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:50 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:35… Chamomile tea.
/00:15 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/07:55 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:55 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:55 B4 “07:00” EGCg + Fev/MSM + Sily
/09:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:20 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:25 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:25 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #252 Whoa, careful does it if the energy “surge” is coming again…
Reasons to be cheerful #259 Beautiful day, hope rising.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 19, 2022, 3:29pm

2022-03-19, Saturday 15% - still OK-ish, without quercetin… but not managing much, 3x TT (hardly moving feet) and a video meeting.

Triggers & resulting Symptoms

SLEEP (click for details): 8h, up 3x (55') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌.

cold! shower p0 Sleep 23:45-
1:15 45’ 70%/2 p0 st1 drink fw2’ cream
4:35 5’ 70%/2 p0 st1 drink fw2’ air cream
6:45 5’ 70%/2 p0 st1 drink fw2’ air cream penetrant dreams (about helping zoos, me doing dare-devil things successfully, of course , nurtured by the Ukraine zoo topic)
-8:40
Sum: 15+8h40-(45+5+5=)55 = 8h55-55’ = 8h, up 3x (55’)

ACTIVITIES (aim: 40%) ➔ ACHE: TT 1:2 (hardly moving feet). Lots of rest, video meeting 70’, 10’ shops ➔ 70%/3
ACTIONS ➔ PAINS: neck OK stiff . GI: stools hard and soft. Esophagus blocks daily and severe .
MCAS/HIT-Symptoms/Triggers/Treatments: No sinuses or nostrils, just skin burning.

Treatments

Docs:
Chinese Acupuncturist… last session: Thursday 17th - : Energy higher, today still, seem to have managed it better yesterday, maybe she adapted it well, after I said that last week was better than this. Still no hot water bottle at night for a week. No sinuses, just skin. Stools hard again at 08:00, very loose at 16:30.

SELF-PHYSIO (click for details) - focus on: RR (POTS?) ❌, WHB ❌, Ribose ❌, face ❌ & stiff ❌.

facetime 2x1’, airing 6x2’, cold shower (10’), breath exercises 4’, Timing, cream fc/ey/hd/ft 8x1’, teeth 2x2’, hunchback-pillow 10’, neck 1+ 2’, twist-stretch 1’, massage gun 5’, hair/nails 5’, = 63’
Combine: next? RR!!
calendula/tea tree x1’, HWB 3’, balance roll standing 5’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, palpate 1’, belly 3’, back 12’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Better honokiol? 0 DAO. 0 RIBOSE. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
NO QUERCETIN ATM!?! Organic apples, unsweetened cocoa and cranberries, blueberries… Grrreat!
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:35 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/08:50 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:50 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:50 B4 “07:00” EGCg + Fev/MSM + Sily
/11:05 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/11:05 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:55 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/vit.D3
/19:45 (whoops) D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

Getting up today I noticed how many small pains I have upon waking up at night and also in between, so when I keep saying I have my local pains down to zero due to last year’s acupressure, it is true, but “zero” is truer.

Looking at starting GABA last May it’s a bit depressing to see how much table tennis I could play pre-jab (8x), despite fibro. But OTOH my local pains at “zero” now is great. And if I don’t move I’m pretty fine. Well, sort of…

’Research’ today:
Lessons in self-care #252 I miss playing more table tennis. I think I need to do make music again.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 19, 2022, 10:39pm

2022-03-20, Sunday 15% - 2:2 , bit of gardening & housework, all hardly moving.

Triggers & resulting Symptoms

SLEEP (click for details): 7h18, up 3x (9') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 ❌. Bed too late.

cold shower p0 Sleep 00:15-
2:00 3’ 70%/2 p0 st1 drink fw1’ air
Awake twice without getting up
6:10 3’ 70%/2 p0 st1 drink fw1’ cream
7:05 3’ 70%/2 p0 st1 drink fw1’ cream LBU → stretching legs backwards, dozing
-7:40
Sum: 7h25-(3+3+3=)9’ = 7h18, up 3x (9’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/2 TT 2:2, 70%/2 Tired, being very careful: keeping it slow, but steady.
ACTIONS ➔ PAINS: neck OK. GI: belly ache in afternoon, didn’t drink enough and forgot afternoon supps, scraped tongue tip with nuts, so burnt feeling now due to that. “Peanuts”.
MCAS/HIT-Symptoms/Triggers/Treatments: OK, despite bit of cashews, yoghurt etc. and no DAO.

Treatments

Docs:
Chinese Acupuncturist - Thursday 17th:

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, RIBOSE ❌, FACE ❌ & STIFF ❌.

palpate 1’, belly 3’+3’, back 10’+7’, airing 4x2’, cold shower (10’), breath exercises 4’, cream fc/ey/hd/ft 5x1’, massage gun 5’, hunchback-pillow 10’, teeth 2x2’, aloe vera 1’, = 69’.
Combine: next? RR!!
facetime 2x1’, calendula/tea tree x1’, HWB 3’, Timing, balance roll standing 5’, cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’, horse stance 1’.

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Passiflora 2-3x.35g. 1x/d DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

Pure (only +SiO2) honokiol here extremely expensive 61€: https://www.mcsformulas.com/de/vitamins-supplements/pure-honokiol, on the other hand the bad from pipingrock directly costs 20€ for 2 bottles https://de.pipingrock.com/magnolia-bark/magnolia-bark-honokiol-400-mg-120-quick-release-capsules-3722?prisp=1 instead of 25€ for 1 bottle on eBay. In all cases 120 capsules per bottle, so the pure version is 61/12030=15€/m, while the eBay bottle is 6€/m and the 2 piping rock bottles 2,50€/m.
The other alternative is not buying Hoffman’s B-Team any more and seeing if that makes any difference… But after I’ve finished off the acupuncture…
ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:35 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/07:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” EGCg + Fev/MSM + Sily
/9:10 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/9:10 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/19:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
0 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

Adding to what I wrote yesterday: Bit depressing looking back a year to see how much table tennis I could play pre-jab, despite fibro. But OTOH my local pains at “zero” now is great. My sleep is good now. I’ve got so much to be thankful for.
Touch: I tried to tolerate holding my wife for longer than 5 minutes. The standing fairly still was one problem (she was sitting), but the touch turned into Ache and a big sense of unrest and irritation after we stopped. I had to move around a bit, and had a feeling of needing to cold shower soon (later was OK tho). Altho it was kind of nice and no direct negative reaction, but also no positive reaction. What have we come to if that changes so much… sigh.
This evening I kept a bit of slight touch contact quite a long time and it was good.

’Research’ today:
Lessons in self-care #253 No self-chastising, just need to always try to get to bed earlier.
Reasons to be cheerful #259 Even tired I’m getting things done.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

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