JayCS’s Fibro Blog

Symptoms & Treatments
742

2022-03-21, Monday 8% - “too good” sleep, tough day, all day :face_with_monocle:

Triggers & resulting Symptoms

SLEEP (click for details): 10h10!, up 2!x (10'!) ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐. Still 'dead' tired upon waking, with energy, but also exhausted, and mentally starting to chatter. Not sure why, but I didn't take B2-B4 at 6.

cold shower p0 Sleep 22:25-
0:15 5’ 70%/3 p0 st1 drink fw2’ cream A4
6:20 5’ 70%/3 p0 st1 drink fw2’ cream
-8:45
Sum: 1h35+8h45-(5+5=)10’ = 10h20-10’ = 10h10!, up 2!x (10’!)

ACTIVITIES (aim: 40%) ➔ ACHE: Starting at 70%/3, but standing at my work desk is becoming more and more of a strain ➔ 60%/3. First TT :ping_pong: seemed tough, 2nd OK, so I tried a 3rd, but tough, only winning when I could put energy into it. ➔ 60%/4, going back up thru lots of rest. :x:
ACTIONS ➔ PAINS: :white_check_mark: neck & GI good.
MCAS/HIT-Symptoms/Triggers/Treatments: Only a bit of nostrils at night, but no sinuses etc., altho I don’t know what to make of this too-sleepiness after a few days of too-awakeness.

Treatments

Docs:
Chinese Acupuncturist - next: Tuesday 22nd: after 10% on treatment day, 17th, now 3 days on 15%, so slightly better for longer, not crashing, but now today back to 10%. I keep feeling this relying on acupuncture may be inhibiting my self-care.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, RIBOSE: 3g yes ✅, but to no avail ❌, FACE ❌, NECK ✅ & STIFF ❌.

:white_check_mark: cold shower (10’), airing 4x2’, cream fc/ey/hd/ft 5x1’, teeth 2x2’, breath exercises 4’, Timing, hunchback-pillow 10’, massage gun 5’, 46’
Combine: next? RR!!
:x: HWB 3’, facetime 2x1’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: 1x/d DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:40 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: 0 DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/21:30 Chamomile tea.
/0:10 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/08:50 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:50 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:50 B4 “07:00” EGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Bits’n’bobs on the forums.

743

2022-03-22, Tuesday 8% - bad start, acupuncture brought Ache down to 1, but nothing else :face_with_monocle: Fatigue suddenly less at 20:00: histamine :bangbang:

Triggers & resulting Symptoms

SLEEP (click for details): 9h30, up 6x (30') ✅, but ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 70%/3 ❌

cold shower p0 Sleep 22:45-
0:10 5’ 70%/3 p0 st1 drink fw1’ air cream A4
1:35 5’ 70%/3 p0 st1 drink fw1’ air cream
3:25 5’ 70%/3 p0 st1 drink fw1’ air cream
4:40 5’ 70%/3 p0 st1 drink fw1’ air cream
6:20 5’ 70%/3 p0 st1 drink fw1’ air cream b2-b4
7:45 5’ 70%/3 p0 st1 drink fw1’ cream
-8:45
Sum: 1h15+8h45-(6x5’)30’ = 10h-30’ = 9h30, up 6x (30’)

ACTIVITIES (aim: 40%) ➔ ACHE: Cold shower before bed was really tough, hurting, but very necessary to get the pain down for better getting to sleep. 70%/3. A bit of work and TT :ping_pong: 1:1 took the Ache up from 3-4 to 5 ➔ 60%/5 :x:, Acupuncture brought it down to 1 work ➔ 60%/1) :x::face_with_monocle:. Strangely fatigue down in the evening, which feels histaminey, so plan to drop antihistamine on a verge.
ACTIONS ➔ PAINS: :white_check_mark: neck? GI? Slight headache in the evening (from 19:00?)…
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Fatigue suddenly less at 20:00: histamine :bangbang: burnt tongue starting up and sinuses very slightly, probably cos of a bit of a walnut.
Fibro & Touch: Starting to try to get used to touch a bit more, sometimes better than other times. Often I have to rub the part that was touched. Me touching my wife is easier than being touched by her. Short is usually easy. Above 2-3 minutes it starts getting harder.

Treatments

Docs:
Chinese Acupuncturist - next: today, Tuesday 2nd:
I’m not directly tired, but pressure round the eyes all the same, and limbs in tar and heavy.
My overall Ache is similar to the heaviness, immobilizing, so please I’d like to have all the pains back, but be able to move…
My 7th acupuncture session (SE03EP07 :smirk:) just took the Ache of 4 down to 1, but nothing else: Fat lot of use that is…
Spontaneously I started praying during the session, something I haven’t been wanting to do recently, but I think I’ll do it more now: Puts life into a different perspective.
But as I haven’t got the choice to swap pain for heaviness, I’ll focus :microscope: on enjoying :partying_face: not feeling pain, using body scans and mindfulness.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! My eyes and fatigue feels like it's a med! 1x/d DAO 0. RIBOSE didn't help, so I'm stopping it completely. Quercetin for the first time again now, evening 21st. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:55 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:10 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/06:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:20 B4 “07:00” EGCg + Fev/MSM + Sily
/10:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:45 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
0 12:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:35 C4+D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Bits’n’bobs for fibro-work again.

744

2022-03-23, Wednesday - 20%! Energy, no fatigue, but tired and unmotivated to move from 14:00 on.

v2: Up: 90%/1, back ex. and then 5’ of 7’ workout: limit there. 14:00 This may not feel “safe” yet, but it’s definitely much better!
pseudo-“80%”! → v1: evening (Tuesday) after 20:00 - fatigue suddenly hardly existent, at 22:00 I can move perfectly again without the least resistance, feels like “80%” physical activity, altho of course it would break down after 10-20’ at the latest . This is the first time after the 2nd jab, 40 days after it, whilst it happened several times after the 1st jab. 23:00 down to pseudo-“70%”.

Triggers & resulting Symptoms

SLEEP (click for details): 8h05, up 5x (40') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 90%/1 ✅!

warm shower (acupuncture) p0 Sleep 23:10-
0:45 5’ 70%/2 p0 st2 drink fw1’ cream (I’ve been forgetting to adjust st1 to st3…)
2:05 15’ 70%/2 p0 st2 drink fw10’ air cream
3:55 5’ 70%/2 p0 st2 drink fw1’ air cream
5:45 5’ 70%/2 p0 st2 drink fw1’ air cream
7:30 10’ 70%/3 p0 st2 drink fw1’ air cream b2-4
-7:55
Sum: 50+7h55-(5+15+5+5+10=)40’ = 8h45-40’ = 8h05, up 5x (40’)

ACTIVITIES (aim: 40%) ➔ ACHE: Evening when the fatigue went down: 80%/1 (still sighing/shortbreathed). Night good. Back exercises first thing, then even a 5’ workout, but not more, OK-ish. TT :ping_pong: 0:4, but only a bit of pain towards the end, no fatigue, no stiffness! ➔ 80%/2 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck? GI? I’d overseen this: Today my stiffness is pretty much gone st0-1, showing that it’s been up to st3-6 along with the fatigue.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: evening (Tuesday) after 20:00 - fatigue suddenly hardly existent, at 22:00 I can move perfectly again without the least resistance, feels like “80%” physical activity, altho of course it would break down after 10-20’ at the latest. This is the first time after the 2nd jab, 40 days after it, whilst it happened several times after the 1st jab. This like the longer time for the jab sfx to develop might imply that it will take 3-4x longer than the jab-sfx of the 1st jab (where I progressed from 10% to 30% in 72 days). Let’s see how long it does take. At least it suggests the fatigue is again histamine and the effect will decrease during the first part of the night and be back down again tomorrow, which would again suggest not to stop the antihistamine as originally planned. Alternatively this is an effect of the acupuncture… that I’ll see tomorrow…
23:00 tongue tip ‘burning’ is pretty surely due to a piece of walnut. Wondering if the walnut increases histamine which makes the fatigue go away for a bit and then crash :interrobang: Something to test…"
13:00 After helping someone 30’ and 4x TT 45’ I’m still OK, so it seems to’ve been the acupuncture and isn’t just a normal ebb of histamine!
14:00 Starting to feel feverish-tired around eyes and arms. That continued along with feeling unmotivated to do any activity… don’t know why… warmer weather? No tongue burning or anything like that today.
Fibro & Touch: Practicing touching regularly, trying to make the most of it, not too long, but regularly. Touch has of course partly got tougher from the MCAS, e.g. showering.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 22nd: Remained bad until the histaminey evening. If that’s gone tomorrow it “was” the walnut, if it isn’t it “was” the acupuncture…Did I say yesterday that she did a further almost 20 needles down my spine, instead of cupping my back. And the time before she realized that I was getting allergic symptoms. What I need to explain to her tomorrow is that this fatigue is likely mainly an allergic reaction. 14:00 Tired and more and more unmotivated to do some activity, but why, if I have energy?

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: facetime 2x1’, airing 3x2’, cream fc/ey/hd/ft 10x1’, teeth 2x2’, Timing, breath exercises 2’, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, twist-stretch 5’, = 60 :x:
Combine: next? RR!!
:x: cold shower (10’), HWB 3’, horse stance 1’, aloe vera 1’, massage gun 20’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while?! Didn't stop yesterday. Praps today.... 0x/d DAO. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:00 Chamomile tea.
/23:00 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/07:35 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:35 B4 “07:00” EGCg + Fev/MSM + Sily
/10:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:00 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 14:00 DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Only bit of forum-work, looking things up.
Lessons in self-care #254 Kept my activity down after table tennis, waiting for the levee to break, but didn’t…
Reasons to be cheerful #260 Wow! :partying_face: For the roughly 10th time: Is this it? - at least the brunt of the jab-sfx?

745

2022-03-24, Thursday 10% → 20% after acupuncture again. Till when? 19:35 Just realized that the tired-feverishness is a sign that what the acupuncture is doing is NOT “REAL”, it’s just increasing my cortisol… Drat! :bangbang: :face_with_monocle:

v4: :ping_pong: 3:1 then 30’ gardening. v3: sinuses still “boring”.- not stiff, but quickly exhausted, v2: then acupuncture around spine again: fatigue down, energy fairly good, but again feverish; plus needles on sinuses, which seemed to help first, again about 40 needles, absolutely no pain from after they were in, like last time.

Triggers & resulting Symptoms

SLEEP (click for details): 9h33, up 4x (27') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌ mainly sinus/headache pain due to stopping the rupafin.

cold shower p0 Sleep 22:00-
23:05 5’ 70%/2 p0 st1 drink fw2’ cream
0:40 5’ 70%/2 p0 st1 drink fw2’ air cream
Turned over twice.
4:00 7’ 70%/2 p0 st1 drink fw2’ air cream teeth
Sleep good, no nostrils etc., but sore throat. Despite stopping rupafin!
TOOTH ACHE worse again since day before yesterday!
7:20 10’ 70%/2 p0 st1 drink fw2’ cream. No rup: Bit sore throat, nostrils, sinuses. Feeling drugged. B2-4
-8:00
Sum: 2+8-(5+5+7+10=)27’ = 10h-27’ = 9h33, up 4x (27’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/3, but acupuncture got me moving again, so TT :ping_pong: 3:1, then 30’ light gardening (yeah, I know, shouldn’t’ve, my wife already chided with me) ➔ ?80%/2) :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck: stiff after acupuncture, but OK. GI OK, but loose in the morning.
MCAS/HIT-Symptoms/Triggers/Treatments: Sinus/headache pain due to stopping the rupafin. Acupuncture in there seemed to help a bit, but started again soon afterwards, getting worse at 15:00. Maybe need to keep GABA up, and not down…? First take eat and take the next GABA, bit late at 16:00. Sinuses still there all day. And sposed not to take rupafin? Then at least GABA I spose.
Fibro & Touch: 0.

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th: Report to her: “Last time a great 24h with more energy, less fatigue & stiffness, but suddenly very tired after that, even tho I’d kept my activity down (5’ workout and 4xTT was the most, nothing else). Sinus/headache pain due to stopping the rupafin last night, only a little skin burn/itch the last 2 days, loose stools this morning. Starting: stiffness down, but quickly exhaustible, no workout like yesterday.” Today: Almost 20 needles left & right of spine again: afterwards stiffness & fatigue down, energy fairly good, but again feverish; plus needles on sinuses, which seemed to help first, again about 40 needles, absolutely no pain from after they were in, like last time, so keeping the rupatadine off now. However sinuses starting up at 13:50 already, and maybe the “feverishness” is also an allergic reaction.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! Due to the feverish-tiredness I'm wondering which supp to go down with. As sleep is too much at the moment I'd think passiflora and GABA first, then rhodiola and praps even quercetin, have to watch my blood pressure tho! 1x/d DAO? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:05 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/07:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:00” EGCg + Fev/MSM + Sily
/10:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:15 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:55 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Not really, but got all forums posts running, so could now get some other stuff done.
Lessons in self-care #255 Still got to keep myself in check again.
Lessons in self-care #256 Worrying a bit how to adapt the med/supps, but it’s all trial & error anyway.
Reasons to be cheerful #261 Let’s see what happens this time. Should be quite good till midday tomorrow… O.o

746

2022-03-25, Friday 20% - acupuncture success continuing 34h…

v2 16:00 Quite good actually, rest after :ping_pong: 4:0, hardly any histaminey or cortisol symptoms! Keeping it slow ‘n’ easy tho.
Not fatigued, but feverish-tired, then not tired enough to get to bed early… - Is this all the cortisol connection (praps also the same as the people feeling better from jabs or from CoV itself…) :interrobang:

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 2x (15') ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌. Good long starting stint, considering going to sleep took quite a bit and I didn't feel tired... cortisol or no? I think so. Getting up seemed hard, then suddenly wasn't. Amount of tiredness in the evening of 25th perfect.

warm shower (acupuncture) p0 Sleep Hmm, not tired! Cortisol! cream/ 23:35-
2:45 10’ 70%/2 p0/ st1/ drink/ fw2’/ air/ cream/ A4
5:25 5’ 70%/2 p0 st1 drink fw2’ air cream - only slight histaminey symptoms (skin, tongue, sinuses: mainly nostrils → breath exercise) slightly feverish-nauseous.
-8:05 - still only slightly, nostrils, rest down again.
Sum: 25+8h05-(10+5)15’ = 8h30-15’ = 8h15, up 2x (15’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2, TT :ping_pong: 4:0, hardly Ache. hardly histamine reactions, hardly cortisol-feverishness :white_check_mark:. Two phone/video calls pretty tough, especially the video one in the evening 1h30.
ACTIONS ➔ PAINS: :white_check_mark: neck: still stiff, but still flexible :face_with_monocle:. GI: Wind at 1 explains pain in upper right abdomen at 20:00. :face_with_monocle:. Keeping jaw/tooth pain down by chewing mainly on the other side, need to use calendula essence again… :face_with_monocle:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Slowly increasing the risks: No DAO, no antihistamine, instead only acupuncture, eating lots of Cashews twice a day now, at 15:00 tried green beans again for the first time in ages, the only beans sort which seem to be OK for some, altho not that low histamine.
Fibro & Touch: 0.

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th: Success in all areas continuing to at least night 25th… without feverish-tiredness.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 4x2’, cream fc/ey/hd/ft 4x1’, teeth 2x2’, breath exercises 2’, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, neck 1+ 2’, yoga/stretching 5’, “cross”-legged 20’, hand-exerciser 3’, = 78’
Combine: next? RR!!
:x: facetime 2x1’, cold shower (10’), HWB 3’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! 1x/d DAO? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:10 Fennel & chamomile tea.
/02:45 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/08:05 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:05 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:05 B4 “07:00” EGCg + Fev/MSM + Sily
/09:35 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:35 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
Forgot C4 yesterday… :roll_eyes:
/13:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:05 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

I tried to post this here today, so I’ll save it here just in case it doesn’t get published: My Pfizer-jabs triggered what I now know is MCAS. Thanks to the above info it only took me a 1-2 months to identify it, educate myself and my docs, get the diagnosis confirmed. My oversensitivities were what made me wary about and wait with taking the jabs and these are now revealed as part of MCAS.

The 1st jab took me down from 40% activity level from fibro to 5-10% activity level, despite taking quercetin, vit. C and NAC already. After 72 days I was back up to 30%. Armed with hope, MCAS-supps, an antihistamine and lowered histamine food, I took the 2nd jab. It took 2 weeks for my activity level to decrease again to 5-10%, but most other symptoms are under control better. 6 weeks after the jab my activity levels are still at 10%, but acupuncture (by a Chinese) is managing to get them up to 20% for a time.*
Like the experts above from almost 2 years ago, my allergist recommended me to take the 2nd jab rather than the unpredictable risk of getting CoV. Some people with FM and some people with MCAS may be OK with CoV, but my good feeling for my body, with many more strange diagnoses, tells me that it’s not that easy…

** supps = the A-Team and B-Team recommended by Bruce Hoffman https://hoffmancentre.com/natural-treatments-for-mcas/*

’Research’ today:
Lessons in self-care #257 Did strenuous unphysical things: 2 long phone/video calls.
Reasons to be cheerful #262 Seems to be holding on beyond midday… :face_with_monocle:

747

2022-03-26, Saturday 20% - acupuncture success continuing 60h, also stabilizing :partying_face: , but with Ache… :partly_sunny:

v3: 16:15 Not tired or fatigued, but Ache of 4.
v2: 12:55 tired & Achey after :ping_pong: 2:2, but fatigue & stiffness OK.
v1: night too short, got too histaminey. Forgot 2x.6g GABA.

Triggers & resulting Symptoms

SLEEP (click for details): 7h16, up 5x (19') (strong urge due to forgetting 2x0.6g GABA) + 20' doze = 7h36 🧐, ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌ histaminey symptoms altho still tired, maybe also due to forgetting the GABA. However not much stiffness, Ache or fatigue ✅, praps cortisol or still the acupuncture.

cold shower p0 Sleep 0:05-
1:20 5’ 70%/2 p0 st1 drink fw2’ air cream. Nostrils & tongue a tiny bit. Strong pee urge. Drugged tired.
2:45 5’ 70%/3 p0 st1 drink fw1’ air cream. sore throat, dry mouth (thirsty all evening)
3:05 3’ 70%/3 p0 st1 drink fw1’ cream. Very dry mouth & throat, cough, all evening as well, then praps also due to mucus not just the dryness. Gel.
5:05 3’ 70%/3 p0 st1 drink fw1’ cream. Nausea & dry mouth.
7:05 3’ 70%/2/ p0 st1 drink fw1’ cream. Sinuses, dry mouth, sore throat. B2-4
-7:40 (30’ 70%/3 p0 st1 drink fw2’ air cream) Sinuses, sore throat, nausea. headache 8:C1-3
+20’ doze
Sum: 7h35-(5+5+3+3+3=)19’ = 7h16, up 5x (19’) + 20’ doze = 7h36.

ACTIVITIES (aim: 40%) ➔ ACHE: Starting at 70%/2, TT :ping_pong: 2:2, due to Ache increasing in the 2nd game, but not getting much worse after the 4th ➔ 80%/4 :face_with_monocle:, energy/fatigue/tiredness all OK :white_check_mark:. Again it feels as if I could praps ignore = push thru the Ache… but better not…
ACTIONS ➔ PAINS: :white_check_mark: neck? GI: stools loose again. Bladder urge and p2 very likely to missing the GABA-doses.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: All night, increasing: Nostrils / tongue stopped again, but then dry mouth, dry throat, sore throat, ending on some nausea, sinuses and headache.
Fibro & Touch: Now the Ache is increased to 4 I feel less like wanting touch. At 1-2 touch is OK for a time, but 3-4 is difficult. Praps this is also

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th: Effect still seems to be ongoing, but couldn’t stop the histaminey symptoms coming on this morning stopping sleep. Stools started normal, then soft, then liquid.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 4x1’, teeth 2x2’, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’, neck 1+ 2’, “cross”-legged 10’, = 65’ + hair 15’ = 80’
Combine: next? RR!!
:x: facetime 2x1’, HWB 3’, breath exercises 4’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, Y. Nidra 20’, breath-hold 12’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Forgot GABA A3+A4: many histaminey symptoms at 7. STOP rupafin for a while! 1x/d DAO? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
Forgot GABA /22:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:00 Chamomile tea.
Forgot GABA /00:05 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/07:05 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:05 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:05 B4 “07:00” EGCg + Fev/MSM + Sily
/07:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/07:45 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:55 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:35 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #258 Do I have to watch the Ache or is pushing thru OK? :face_with_monocle:
Reasons to be cheerful #263 Acupuncture effect ongoing… :smiley:

748

2022-03-27, Sunday 20%! 84h!- TT 1:3 (last game 21:8 tho, after a longer break) revealed I think it’s pain (of 4-5) counter-acting the suppleness & energy. Lots of music making at the moment. Covid danger… separating this week.

Triggers & resulting Symptoms

SLEEP (click for details): 9h29, up 4x (41') ✅ (longer breaks 'deliberate'), but ➔ Feeling 70-80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐. And hauled a bit of yesterday's sleep in, altho 20' was only dozing.

cold shower p0 Sleep 22:35-
23:50 15’ 70%/2 p0 st1 drink fw10’ air cream. Bit tongue, nostrils slightly.
01:55(=2:55) 30’ 70%/2 p0 st1 drink fw2’ air cream. Tongue & nostrils slightly.
(5:00=)6:00 3’ 70%/2 p1! st1 fw1’ air cream. dry mouth: gel.
8:10 10’ 80%/2 p0 st1 drink fw2’ air cream. Nostril, dry mouth. B2-4.
-8:45
Sum: 1h25+8h45-(15+13+3+10=)41’ = 10h10-41’ = 9h29, up 4x (41’)

ACTIVITIES (aim: 40%) ➔ ACHE: ?70%/3 Haven’t written it down, but I’ve been doing 2-4h of music production incl. singing, which means standing. 3-4h music today too. Standing too long, too few breaks, hypering, tough! Even fibro-forum-work today standing a lot. Need to sit/exercise now. Long phone call a bit strenuous but also OK. 80%/2 :face_with_monocle:. After that lots more lying down.
TT :ping_pong: 1:3, last game 21:8 tho, after a break. 70%/5 → 4 :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: neck: bit stiff, doing exercises. GI: stools fairly normal. p1-2 sometimes - GABA not adjusted yet(?), but improving again. jaw: Only pain at/after meals - hazelnuts were too much and tough yesterday evening, 10 midday today were OK - Overall good today, better than ever in the last few weeks…
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Can’t be sure the green beans yesterday didn’t contribute to the histamine-y reactions Friday morning. This evening’s test: 20 hazelnuts. Burnt tongue feeling after these and apple sauce. But not that bad. At night: bit of tongue, nostrils & dry mouth.
Fibro & Touch: 2-3’ touch last night was completely OK. No more touching my wife for a time, cos of…:
Covid-danger: People at my wife’s work probably have CoV, so we’re separating for this week. I could go to a room in another flat, but I think it might work out in our one, as I’ve taken all my stuff out of the shared rooms (bathroom & kitchen). It stresses her tho, so I might be going over at least for the daytime, like tomorrow. Of course you know me: I’m not scared of CoV, I’ll take it like everything else in my stride, if necessary. But I’m not gonna shout for it, you can bet on that. Physical distancing, airing and mask wearing indoors nearer each other, but I feel strangely totally accustomed to it, that was different a year ago.

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th: STILL continuing, hardly any histamine-y symptoms. But pain now increasing again if I overdo it.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! 1x/d DAO? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:00 Chamomile tea.
/23:50 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
Heating on! Warm shower?
/08:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:10 B4 “07:00” EGCg + Fev/MSM + Sily
/09:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #259 Covid danger: Watching out.
Reasons to be cheerful #264 Wow, so much music, and acupuncture still partly working, pain is only with exertion, and I can make music with task-switching.

749

2022-03-28, Monday 15% - adjust the % for the last few days according to table tennis? But fairly hard to put it into ONE number, so maybe I’ll leave it at 20 for the last days and today 15, at least somewhere between 15 and 20. For short periods all symptoms are down, but pain comes up same as pre-acupuncture. Bit of research on ADHD and fibro (after also not finding anything relevant about autism and FM)

Triggers & resulting Symptoms

SLEEP (click for details): 7h30, up 3x (25') ✅, ➔ feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 ❌, again too early, cos of not feeling sleepy in the evening, plus again stomache ache.

cold shower p0 Sleep 0:00-
1:30 5’ 80%/2 p0 st1 drink fw1’ air cream
3:50 15’ 80%/2 p0 st1 drink fw10’ air cream. Nostrils fine, but nausea-stomach ache.
7:10 5’ 80%/2 p0 st1 drink fw1’ air cream B2-4
-7:55
Sum: 7h55-(5+15+5=)25’ = 7h30, up 3x (25’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2, supple & fairly energetic, altho due to the CoV-danger I need to go up- & downstairs now, which does lead to leg weakness back at tne top. TT :ping_pong: 2:2 80%/4. Absolutely 0 pain in the first game, very slight in the second, up in the 3rd and 4th (pretty tangible despite the cortisol kick) and together with increasing arm weakness very much influencing my play in the 4th :face_with_monocle:.
ACTIONS ➔ PAINS: :white_check_mark: neck: good. :white_check_mark: GI: stools in evening fairly hard, morning too. Severe belly ache again starting at around 3, but almond milk is enough to calm it down. :face_with_monocle:. jaw: Midday it seemed the small bits of chocolate (very dark) at the end of the meal was the problem, nothing before. Gotta watch that. :face_with_monocle: Standing has got better and walking a lot better due to the acupuncture, but everything is still limited compared to fibro-pre-jab, pee pain is back to zero after having forgotten the GABA.
MCAS/HIT-Symptoms/Triggers/Treatments: Histaminey symptoms well under control even without the antihistamine now. The fatigue is an effect of the jab, but hadn’t been improved by the antihistamine anyway. Slightly nostrils, sinuses and tongue at night.
Fibro & Touch: It’d be OK today, depending on pain level.
Covid-danger: Now airing a lot.

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th/Tuesday 29th: Tell her "Playing 4 games isn’t really “20%” physical activity - I am now able to pick up balls more and move supply, but the pain AND WEAKNESS still start increasing during the 2nd game and I need 1 or 2 breaks or end up pretty weak, futilely aimless. So whilst it is true that the effect of the acupuncture is still there, it isn’t like in the first days where I could really play 4 games without pain. 15% is truer. Sleep is still good, and that and the histaminey symptoms are well under control even without the antihistamine now. The fatigue is an effect of the jab, but hadn’t been improved by the antihistamine anyway. Main side problem, disturbing sleep, is now the new stomach ache and getting to bed too. Still no hot water bottle necessary at night, and sleep still good, even without the antihistamine."

SELF-PHYSIO (click for details) focus on: RR 15x and analysis ✅✅, WHB ❌, FACE ❌ & STIFF ❌. At 17:15-30 my RR was 145/90, despite being fairly relaxed (but reading something... O.o) and able to decrease my pulse from 66 to 61. This again is worrying, and no sense of measuring it when I get up to see if POTS is an issue. But OK, let's do it. Well actually bp was reduced when standing, then higher, as I'd expected, then even after going down stairs and up again completely normal sinking 130-120/90-85, pulse of 60. Sitting down after that: now still down at 135/85

:white_check_mark: airing 6x2’, cold shower (10’), cream fc/ey/hd/ft 7x1’, teeth 2x2’, breath exercises 4’, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’, twist-stretch 5’ = 69’… + 30’ = 129’ = 2h09
Combine: next? 15xRR!!
:x: facetime 2x1’, HWB 3’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: No rupafin, no DAO, but don't feel like further experiments yet. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
0 Chamomile tea.
/01:35 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/07:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” EGCg + Fev/MSM + Sily
/08:10 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/08:10 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:50 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
->18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: In answer to a request for studies about ADHD and fibromyalgia:
I think the results of most of these studies are faulty, as they are simply measuring brain fog and calling it ADHD (the criteria are identical), without checking whether the fibromites had ADHD before the fibro.
I’m not sure what anyone’ll be able to glean from them. …
I’d say they are firstly finding that it’s the case,
secondly that it’s a double whammy, increases symptoms, disability (functional impairment in work/school), depression, substance use disorders (esp. opioids), decreases quality of life.

From pubmed, ordered new to old:
Adult attention deficit hyperactivity disorder in patients with fibromyalgia syndrome: Assessment and disabilities - PubMed 2021
Attention-deficit hyperactivity disorder symptoms and quality of life in female patients with fibromyalgia - PubMed 2021
Childhood and adult attention deficit hyperactivity disorder symptoms in fibromyalgia: associations with depression, anxiety and disease impact - PubMed 2020
Screening for Adult ADHD in Patients with Fibromyalgia Syndrome - PubMed 2018 This is the abstract to the 2017 study I’ve linked to below.
Attention-deficit hyperactivity disorder and impulsivity in female patients with fibromyalgia - PubMed 2018
High frequency of childhood ADHD history in women with fibromyalgia - PubMed 2011

The pointer to the 2017 study comes from here:
Connection between Fibromyalgia and ADHD | Everyday Health
And this is that study https://academic.oup.com/painmedicine/article/19/9/1825/4584482 (see abstract above)
And this is a second paper in the same edition https://academic.oup.com/painmedicine/article/19/9/1825/4584482

Above everydayhealth are actually stating that the researchers do see a difference between fibro fog and ADHD. However I remember reading one full article where the researchers themselves admitted they were no ADHD experts and were just using ADHD criteria.

750

2022-03-29, Tuesday 10% → 20% with acupuncture

Triggers & resulting Symptoms

SLEEP (click for details): 9h07, up 4x (23') ✅, but ➔ Feeling 70-80% well, Ache 3-2 of 7 🧐, getting up: 70%/3 ❌, feeling more sleep need and "Aching" all over as soon as I move, a sort of yucky "ill" Ache, rather than direct pain. Praps I need to do some breathing? But why? Haven't I managed to haul in yesterday's lack of sleep?

cold shower p0 Sleep 23:20-
0:45 5’ 70%/3 p0 st1 drink fw1’ cream A4
2:10 5’ 70%/3 p0 st1 drink fw1’ cream. Lying is OK, but getting up yucky, pain 3. Stomach pain starting up.
5:30 8’ 80%/2 p0 st1 drink fw1’ air cream.
7:40 5’ 80%/2 p0 st1 drink fw1’ air cream. Nostrils/sinuses a bit. B2-4
-8:50 70%/3…
Sum: 40+8h50-(5+5+8+5=)23’ = 9h30-23’ = 9h07, up 4x (23’)

ACTIVITIES (aim: 40%) ➔ ACHE: TT :ping_pong: 3:0, first game dead easy, then only just about, cos of pain and weakness. ➔ 70%/2->4 :face_with_monocle:, then after recovering from acupuncture about 80%/2 and lots of music making.
ACTIONS ➔ PAINS: :white_check_mark: neck: sometimes supple :white_check_mark:, sometimes stiff :face_with_monocle:. GI: Hardly stomach pain tonight. :white_check_mark: jaw: Eating chocolate one-sided in the middle of the evening meal was OK. :white_check_mark: Apple sauce (low sogar, acidic) is tough for the teeth, if not for the jaw.:face_with_monocle:
MCAS/HIT-Symptoms/Triggers/Treatments: Continuing hazelnuts has been OK. Adding soft cheese also.
Fibro & Touch: The kind of yucky Ache I got up with today does not want to be touched at all! Better after that got better, but still not really wanting/needing touch.
Covid-danger: My wife started getting a bit lax yesterday, playing the amount of contact she had down (only a few minutes, with mask, distanced and with all doors & windows open). But I’m not sure, so playing it pretty safe. Eating only with 5 yards distance, airing and disinfecting etc. all the time. Getting unsure if it’s necessary, lax partly.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th: A neighbour just asked me “Is a goal in sight?” Good question. I answered “I’m a bit hopeful.” What would be a goal? Toughest goal would be to reach the 40% of physical activity before the jabs. Alternatively something similar, where I’m praps suppler than pre-jab, but more pain. Not necessarily to be able to go to work properly again tho. Perspective for acupuncture is now going down from next week to 1x/w, for another 10-20x.

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 6x2’, cold shower (10’), cream fc/ey/hd/ft 6x1’, teeth 2x2’, Timing, hunchback-pillow 15’, = 47’.
Combine: next? RR!! palpate 1’, belly 3’, back 8’!
:x: breath exercises 4’, HWB 3’, facetime 2x1’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! 1x/d DAO? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:05 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:45 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/07:40 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:40 B4 “07:00” EGCg + Fev/MSM + Sily
/09:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
0 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:25 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:25 Ellag acid + D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Nolotil is highly used here in Germany as ‘Novalgin’: Bloods need to be checked for (rare but deadly) agranulocytosis as soon as flu-like symptoms, even temperature, occur. In Spain it’s being systematically overdosed, which needs to be changed.
Sort of interested in an article that a few Britains in Spain have died from using it. I Got big-eyed seeing that’s metamizole / di-pyrone.Invented here in Germany 100 years ago and still highly used as ‘Novalgin’.
My first/only rheum.-prescription for fibromyalgia…! (But my skin reacted strongly to it.)
I’ve always wondered why I’m the only one who got this…!

The main problem is that it “very rarely” causes agranulocytosis - deadly if not recognized.
The numbers vary greatly according to studies, as is usual with very rare occurrences.
Agranulocytosis and neutropenia are caused by a very large number of meds, e.g. in the UK and elsewhere people need to be nationally registered for monitoring if they are taking clozapine for schizophrenia etc.

Workarounds in Germany for still highly using it:
a) Don’t take with methotrexate (esp. autoimmune diseases),
b) check bloods if there is any suspicion and especially
c) stop intake immediately with flu-like symptoms, even just temperature/light fever,
d) educate & inform GPs and patients about this.

Several Spanish articles from 2021 also suggest: It’s been systematically overdosed there (2g per 8h) and that desperately needs to be changed, e.g. Are we overdosing parenteral metamizole? | Cirugía Española (English Edition)

Lessons in self-care #260 Used the energy etc. for a bit of work and a lot of music, not really overdoing it, I think.
Reasons to be cheerful #265 Acupuncture good again!

751

Yikes JayCS! I don’t like those side effects. I take 2 mg of klonopin every night for sleep. My body hurts so much, it takes me a long time to fall asleep. I saw a neurologist today. I moved so I needed a new one and a second opinion regarding my abnormal GAD65 AB. He is increasing my klonopin to 2 mg three times a day. He also ordered a brain, cervical spine and thoracic spine MRI and EMG/ NCT. He said that the first line of treatment for Stiff Person’s Syndrome is Klonopin. I need to look up side effects for that high dose of klonopin. He’s putting me on topamax to prevent migraines since I have about 7 a month. But I’m super med sensitive. Oh, smart JayCS, do you have any information about reflex scales? The neurologist wrote my reflexes were 4/5. I’m having trouble finding what that exactly means. I looked up a couple responses on the internet, but just got more confused.

752

2022-03-30, Wednesday 20% - acupuncturist CoV-positive :face_with_monocle: Getting nearer… double whammy: The only treatment that’s helping is stopped and also the risk of getting it myself has increased…

Triggers & resulting Symptoms

SLEEP (click for details): 8h28, up 3x (42') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: ?70%/2 🧐

cold shower p0 Sleep 23:40-
01:05 32’ 70%/2 p0 st1 drink fw30’ air cream
05:25 5’ 70%/2 p0 st1 drink fw30’ air cream dry mouth
07:05 5’ 70%/2 p0 st1 drink fw30’ air cream headache dry mouth a lot, sinuses a bit.
-08:50
Sum: 20+8h50-(32+5+5=)42’ = 9h10-42’ = 8h28, up 3x (42’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70 → 80%/2, TT :ping_pong: 3:1, lost first game, then fairly controlled, suppleness & energy there all day, only slight pain & exhaustion after 2h video meeting (passive), a few longer phone calls 80%/2 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark:. neck: Problems = pretty severe pain at night when I want to move or find a comfy position, altho still flexible. Something for acupuncture? :face_with_monocle: GI: good I think :white_check_mark: jaw: good I think (small bits of chocolate in middle of meal instead of at) :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: Sinuses and burning skin a bit, but had forgotten A4 at night.
Fibro & Touch: Improved in comparison to the days before.
Covid-danger: Now turned over, now it’s me who’s in focus, but my wife now has 7 people at work off due to CoV, and my main contact, my acupressurist also, it’s getting closer than ever before and we’re keeping very restricted contact.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th: Good so far, I think… Thursday 31st: Dry mouth? Neck seizung up? Oh dear, postponed due to CoV… Still good, feels fairly normal and I’m getting used not to use the full capacity! :white_check_mark:

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 5x2’, cream fc/ey/hd/ft 5x1’, teeth 2x2’, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’, twist-stretch 5’, = 49’ (only!)
Combine: next? RR!!
:x: facetime 2x1’, cold shower (10’), HWB 3’, breath exercises 4’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Apparently I didn't take "A4" last night (GABA, glutamine and ellagic acid), so no wonder if anything goes wrong. Edit: Didn't. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:50 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
Apparently 0! A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/23:40: 1PF that’s one I took extra, added later, instead of A3, so still only 2xPf.
0 B1 “01:00” PF#3
/10:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/10:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/10:20 B4 “07:00” EGCg + Fev/MSM + Sily
/11:15 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/11:15 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:15 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Nope. Too much work (and music and rest).
Lessons in self-care #261 Managing to enjoy the illusion of being healthier since I’m feeling the limits less, but still not overdoing it.
Reasons to be cheerful #266 Again quite a good day, so I spose that makes it a pretty good week, at 20% most of the time.

753

Freedom, a second opinion is great. Just the question who you think is “righter” in the end, the first or the 2nd…

And now Stiff Person’s Syndrome after all?!?
Last May you’d said here that the 1st opinion was that the neurological exam was not in favour of SPS. Is taking the klonopin meant to “diagnose”, if it helps then it is SPS, and a sort of shot in the dark as well?

‘Klonopin’ = clonazepam, a benzo. Ouch…
When taken for seizures max. is 20mg & panic max. 4mg a day, So 3x2mg=6mg is not necessarily that high. Except that taking these meds at all is a high risk of side effects. BTW wikipedia says diazepam is the more commonly used benzodiazepin for SPS.
As they relax the muscles by increasing GABA I still wonder like I’d already once asked you, if taking GABA itself might not be a risk-free way of trying to keep the meds down. Especially as you say you’re med sensitive (like me…). That’s exactly how I use it: To relax the muscles, which decreases pain and stiffnes… So really, I’d experiment with quickly increasing doses of GABA (again: the amino acid gamma-Aminobutyric acid). Some docs still believe that this is can’t cross into the brain, altho my experience and recent research shows it is.
Next in line after the benzo has had to be increased to a point where the side effecds outweigh the main effects might be baclofen, again a GABA-derivative (see my post on GABA-derivatives.)

Aside from the direct effects the interactions between these two may also be an increased problem. I spose it’ll be hard to distinguish what’s from what if you’re increasing the clonazepam plus adding topiramate.

Essentially of course you’re the one who’s got to decide if the main vs. side effects and risks are worth taking (not your doc - he’s just guessing and there’s hardly any real medical evidence to go by for SPS)…

Reflex scales. The one your doc used is the “DTR (deep tendon reflex) scale”. Since 5 there means clonus, rhythmically regular contractions, 4 would be the highest level apart from that. 2 is normal, 0 is no reflex (bad). So your reflexes are “too good”…

754

2022-03-31, Thursday 20% - CoV-test neg., trying not to worry too much, getting a balance between new lax rules and minimizing risk.

Triggers & resulting Symptoms

SLEEP (click for details): 8h09, up 4x (36') ✅, ➔ Feeling 70% well, Ache 2 of 7 🧐, 1-2h dozing with Yoga Nidra (necessary cos of worrying about how to handle being a CoV-contact), getting up: 70%/2 🧐.

cold shower p0 Sleep 00:15-
1:35 3’ 70%/2 p0 st1 drink fw1’.
2:55 3’ 70%/2 p0 st1 drink fw1’.
5:00 15’ 70%/2 p0 st1 drink fw10’. Slight sore throat: calendula essence. (CoV or normal?) air
6:25 15’ 70%/2 p0 st1 drink fw1’. cream air, dozing with Yoga Nidra.
-09:00
Sum: 9h-15 = 8h45-(3+3+15+15=)36’ = 8h09, up 4x (36’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/2, bit “tired” in face and around the eyes. My TT mate said OK, just a bit more careful than ever, and TT :ping_pong: 4:0 with Ache only directly after ➔ 80%/4 for an hour or two then ➔ 80%/3, :white_check_mark:, quite a bit of work and lots of music making ➔ 80%/2 :white_check_mark:.
ACTIONS ➔ PAINS: :white_check_mark: neck: a bit better. Praps try the massage gun on it? GI: OK :white_check_mark:. jaw: good again :white_check_mark:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Not much today - nostrils and sore throat at night.
Fibro & Touch: Due to CoV-risk we’re not touching much, but had to hug once with masks.
Covid-danger: Decided to the service ‘gigs’ till I’m sure I wasn’t infected.

Treatments

Docs:
Chinese Acupuncturist - CoV.

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: Not that much, but really long Yoga Nidra
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
?/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:15 Chamomile tea.
/00:15 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/09:00 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/09:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:00 B4 “07:00” EGCg + Fev/MSM + Sily
/14:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/14:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/20:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #262 Making the decision to decline the gigs wasn’t easy, but definitely the right thing to do.
Reasons to be cheerful #267 Covered a song I’ve been meaning to do for years. :church: :hugs:

755

Who really knows if I have SPS? If I end up as a lawn statue, then yes??? :rofl: I just got home from having an MRI of the brain, cervical and thoracic spine. I could feel my body starting to seize up after about an hour of not moving. I hope I find out the results today. Tuesday is the EMG/ NCS. JAYCS, have you even had that test? If so, did it hurt? I think the neurologist is just trying the increased dose of klonopin to see if my symptoms reduce or go away. I wouldn’t say this neurologist would be the one to officially say whether or not I have SPS, but he is repeating some of the tests I had 3 years ago. He didn’t repeat the blood test. And I do have a follow up visit with him. I want his opinion about doing a lumbar puncture. I’m tired so I’m going to take a nap. :sleeping::yawning_face:

1 Like
756

Hmm… yes… and … yes… but the lumbar puncture was worse… But as we want clarity…

1 Like
757

2022-04-01, Friday 20% - snow! But that wasn’t the reason for many inside, no outside activities: music, work, online meetings. Bit worried as my grandchild may have MIS-C = PIMS, caused by CoV. Similarly unspecific as my MCAS, but also immune system, unfortunately with possible heart involvement…

Triggers & resulting Symptoms

SLEEP (click for details): 8h55, up 3x (20') ✅, but ➔ Feeling 70-80% well, Ache 2 of 7 🧐, getting up: 70%/2-3, but histaminey symptoms ❌

cold shower p0 Sleep 23:45-
1:30 5’ 70%/2 p0 st1 drink fw2’ air cream A4
3:35 10’ 80%/2 p0 st1 drink fw2’ air cream snow-photo HWB
6:25 5’ 70%/2 p0 st1 drink fw2’ air cream
-9:00 A bit: nostrils sinuses incl. forehead nausea.
Sum: 9+15’-(5+10+5=)20’ = 8h55, up 3x (20’)

ACTIVITIES (aim: 40%) ➔ ACHE: Starting at praps 70%/2 an esophagus block, some rest and back exercises ➔ 60%/3. Lots of rest, bit of music ➔ 80%/2, after 3h of video meetings with family & friends ➔ 80%/3, but much better than a year ago. :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck: seems OK. GI also. Jaw: I’m starting to cut up my raw veggies more, so it’s easier on jaw and esophagus, seems to be helping. Esopaghus block: After quite a long period without problems, if I react quickly to any pressure, one of the 11 capsules B2-B4 got stuck, I think EGCg, came up.
MCAS/HIT-Symptoms/Triggers/Treatments: 16:55 burnt tongue tip after lots of hazelnuts (20?), but not much/long considering, praps 2x5’. 20:35 200ml coconut jogurt…
Fibro & Touch: Would’ve been mainly OK today, a bit irky., whatever that means.
Covid-danger: Even more people infected at wife’s work. Mate of mine has been eating together with his wife altho she has CoV. My wife & I are just at a risk and don’t eat toegether.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th: Still quite good effect from then. CoV.

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 7x2’, cold shower (10’), breath exercises 1’, cream fc/ey/hd/ft 8x1’, teeth 2x2’, palpate 1’, belly 3’, back 7’, Timing, hunchback-pillow 10’, “cross”-legged 10’, plantar/calf stretch 1’ = 69’
Combine: next? RR!!
:x: facetime 2x1’, HWB 3’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/23:40 Chamomile tea.
/01:30 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/09:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/09:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:10 B4 “07:00” EGCg + Fev/MSM + Sily
/10:55 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:55 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:10 C4 “11:00” (+2h/) 0=out gi#2 0gly#1. Nd#? & Ellagic acid
/0 (14:45) DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #263 Feels strangely normal not to do so much self-physio, just a few basics or when I’m bored.
Reasons to be cheerful #268 Got quite a bit done, after a seemingly slow start.

758

2022-04-02, Saturday 20% - Supple all day, limited again by pain, high pee frequency - maybe allergic…

v3: out for a cycle-walk, very supple, not particularly cold tolerant, and strong pee urge again while in a shop for 10’ to warm up and buy food.
v2: such a strain causing pain having to go to pee 8x/h (“touch” hypersensitivity inside making me touch hypersensitive outside too…)
v1: TT 3:1 (snow water on table makes for more ‘fun’), pain 5 of 7 after, but no exhaustion or stiffness.

Triggers & resulting Symptoms

SLEEP (click for details): 8h05, up 5x (55') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐. Deep sleep, despite going at midnight, but then stress thoughts at 7, so needed Yoga Nidra to get me up to >8h. THAT's the problem with going to bed late, the daylight when I have to get up in between.

cold shower p0 Sleep 0:05- A4
2:20 5’ 70%/2 p0 st1 drink fw1’ air cream
3:35 5’ 70%/2 p0 st1 drink fw1’ air cream
5:50 5’ 70%/2 p0 st1 drink fw1’ air cream. No symptoms. Deep sleep, despite after midnight. bit dry mouth
6:55 5’ 70%/2 p0 st1 drink fw1’ air cream. Dry mouth, stomach ache.
7:20 35’ awake, too many thoughts (2 gigs), so had to de-stress a bit, than Yoga Nidra. B2-4. Dry mouth.
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-9:03
Sum: 9:05-5-(5+5+5+5+35=)55’ = 8h05, up 5x (55’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/2, supple all the time, but TT :ping_pong: 3:1 ➔ 80%/5 :face_with_monocle:, music making ➔ 70%/4 :face_with_monocle:. Tiredness pressure around the eyes.
ACTIONS ➔ PAINS: :white_check_mark: neck: often “seizes up” at night. GI: good first (I think) :white_check_mark:, but after midday meal pain from upcoming loose stools, obviously allergic, but not sure what from: almond milk was strange, lumpy, but not off, and I tried half a walnut 15 minutes before :face_with_monocle:. jaw: pretty good, esp. due to cutting up the raw food. :white_check_mark:. Dry mouth and belly ache moments at night not that bad tonight. :face_with_monocle:. 8x to the loo in an hour, what the heck is that now, is it just cos I decided I want to drink more again at the moment?!
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: No sinus, nostrils, hardly any sore throat. Supple all day, even increasing at 18:00 (that’s a histamine effect tho).
Fibro & Touch: Touch would be OK-ish today. But high pee frequency and IBSD are kinds of touch intolerance inside. Also building up a strain & pain which makes me want no more touch… No that’s
Covid-danger: Getting used to wearing mask indoors in rooms we both use incl. the stairs outside the flat.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th: Still supple, still pain building up, but mainly noticeable after the table tennis at the moment. :slight_smile:

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 8x2’, cold shower (10’), cream fc/ey/hd/ft 6x1’, teeth 2x2’, HWB 3’, breath exercises 1’, hunchback-pillow 15’, palpate 1’, belly 3’, back 10’, twist-stretch 3’, Y. Nidra 30’, neck 1+ 1’, calendula/tea tree x1’: 109’ = 1h49.
Combine: next?
:x: facetime 2x1’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ ().

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:05 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:05 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/07:55 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:55 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:55 B4 “07:00” EGCg + Fev/MSM + Sily
/09:50 vit. D3
/09:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:20 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

I’ve never noted what I’m eating at the moment, what with IBS-D, hyperacidic stomach, genetically high lipids and histamine/MCAS, altho it’s a big question if it’s enough. I think it is if you look at this…:
Food: only 3 meals, never anything in between (to decrease lipids) this is what I eat (usually everything organic):
Mornings (somewhere between 7:00 and 11:00):
Lots of

  1. berry
  2. gluten-free muesli with
  3. almond milk.

Midday (between 13:00 and 16:00): a mix of chopped

  1. (with almond jogurt (rarely
  2. soy or
  3. dairy), either sweet: e.g.
  4. vanilla, or plain with
  5. salt &
  6. Provençal herbs)

or in one piece of raw

  1. alfalfa sprouts,
  2. bell peppers (yellow; not green or red),
  3. broccoli,
  4. carrots,
  5. chicory,
  6. courgette/zucchini,
  7. cucumber,
  8. china cabbage,
  9. fennel,
  10. sweet potatoes (love them raw, hate them cooked),
  11. seldom the (roughly 10) various lettuce forms nowadays,
  12. I could try bok choi.

Plus cooked

  1. quinoa (or
  2. amaranth, but I don’t like that taste; less
  3. rice &
  4. jacket potatoes, altho they may be OK)

with one cabbage form usually steamed after gently roasting in

  1. olive oil, plus again sea salt and Provençal herbs
  2. broccoli,
  3. cauliflower,
  4. red cabbage,
  5. white cabbage,
  6. sweetheart/pointed cabbage, and sometimes:
  7. green beans,
  8. brussel sprouts,
  9. pumpkins, what I could do more is
  10. green cabbage.

Evenings (between 19:00 and 21:00)
Raw veggies like midday, but more likely also a 2-3 slices of

  1. wholemeal bread than at midday, maybe 4x/wk, with
  2. almond butter, sometimes
  3. soft cheese or mozarella, or experiments.

Almost every meal:

  1. Pumpkin seeds,

or often (‘other’) nuts, altho a bit histaminey:

  1. almonds,
  2. cashews,
  3. hazelnuts,
  4. one brazil nut a day,
  5. hardly any walnuts or
  6. peanuts/peanut butter or
  7. sunflower seeds any more and
  8. one dried fig.
    Drink:
    Aside from 2l of Almond milk (see #3),
  9. 1 cup of chamomile tea.
    Sweets: Aside from one fig a day
  10. a little bit of very dark chocolate, 70% or 85%.

*Edit April 3rd:

  1. 2 small sweet apples a day and
  2. some sour apple sauce (not sugared nuch).*

So who says I haven’t got much to eat? (My wife does actually, but she’s happy that I’m widening it out a bit and cooking almost every day now.) That’s about 20 different foods every day, and changing.

’Research’ today: Nope. Too much making music.
Lessons in self-care #264 De-stress about the service gigs coming up.
Reasons to be cheerful #269 Table tennis pain only starts after 4 games at the moment.

759

I don’t know what to say JayCS. But if I ate what you are eating, I’d look like I was pregnant with triplets! :rofl:

760

2022-04-03, Sunday 25% - I know it was cortisol, but I could do so much today. Let’s see, my guess is it’ll be OK-ish tomorrow…

Triggers & resulting Symptoms

SLEEP (click for details): 7:02, up 3x (36') ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Still a bit tired, but actually feeling quite well, despite only 7h of sleep, so using that and try bed earlier today... Music around my head, best I stop making music in the early afternoon...

cold shower p0 Sleep 1:00- Shit!
4:00 3’ 70%/2 p0 st1 drink fw2’ air cream
5:55 3’ 80%/2 p0 st1 drink fw2’ air cream
7:20 30’ 80%/2 p0 st1 drink 6 cream 7:50 B2-4
-8:38
Sum: 7:38-(3+3+30=)36’ = 7:02, up 3x (36’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2, despite TT :ping_pong: 4:1 (pain up to 4 during end of 4th and then 5th game, a few breaks :white_check_mark:.
ACTIONS ➔ PAINS: :white_check_mark: neck: A little better. :white_check_mark: GI: Also. :white_check_mark: jaw: Also. :white_check_mark:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: No nostrils, no sinuses, a little sore throat, a little burning skin. 11:25 skin on back and thighs suddenly burning strongly.
Fibro & Touch: Seems OK.
Covid-danger: My wife’s 7th day after risk and my 5th… Wife’s work is keeping us wary & careful.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break…

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 6x1’, teeth 2x2’, HWB 3’, breath exercises 1’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’ = 63’
Combine: next? RR!!
:x: facetime 2x1’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/01:00 Chamomile tea.
/01:00 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/07:50 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:50 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:50 B4 “07:00” EGCg + Fev/MSM + Sily
/9:50+10:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:50 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 15:15 DAO (D1) “13:00” 0psyllium
16:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/20:05 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Nope, not even forums, just a service & music (for services).
Lessons in self-care #265 Need to watch bed even more now!
Reasons to be cheerful #270 Wow, so much musik making, and 5x TT and supple! (But cortisol due to 1h sleep less.)

761

Hehe, really?! My wife is always scared I’m losing weight, not eating enough and not varied enough, that’s why I’m putting it down on ‘paper’ for ‘all’ to see… (she’s never ever looked on my blog…)

So how come you think these veggies with a few unsaturated fats and complex carbs could make anyone gain weight?
The nuts I have to eat as I don’t eat meat or much dairy don’t forget…
Always same weight (whatever my wife thinks…:stuck_out_tongue_winking_eye: - she’s just worrying.)