JayCS’s Fibro Blog

Symptoms & Treatments
762

Ahhhhhhh, JayCS…I wasn’t talking about gaining weight. I was talking about having a lot of GAS! :grimacing::mask::flushed::nauseated_face::poop:

1 Like
763

2022-04-04, Monday 25% - v1: forum stuff, music, a 7’ workout - good day! (Too rainy for :ping_pong:)

Triggers & resulting Symptoms

SLEEP (click for details): 8h16, up 6x (36'), dozing/Y. Nidra the last 1.5h ✅, ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅, music in my brain all the time, incl. not-pressing ideas.

cold shower p0 Sleep 22:50-
23:50 10’ 80%/2 p0 st1 drink fw5’ air cream A4
01:15 5’ 80%/2 p0 st1 drink fw2’ air cream
02:30 5’ 70%/2 p0 st2->1 drink fw1’ air cream nostril: breathing exercises 2x3’
03:40 5’ 80%/2 p0 st1 drink fw1’ air cream nostril skin above right heel burning as if wool: cream.
5:45 5’ 80%/2 p0 st1 drink fw1’ air cream stomach ache nausea, no sinuses, nostrils better. B2
7:12 6’ 80%/2 p0 st1 drink fw3’ air cream B3+B4
-7:42
Sum: 1h10+7h42-(10+5+5+5+5+6=)36’ = 8h52-36’ = 8h16, up 6x (36’), dozing/Y. Nidra the last 1.5h

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2 all day. Doing a lot standing ➔ 80%/3-4 :face_with_monocle:, but I’d be very surprised if not!
ACTIONS ➔ PAINS: :white_check_mark: neck: OK. GI: There was something, something different, but I can’t remember… jaw: OK. Costochondritis from posture, esp. standing while music making? 5 kinds of self-physio inside of an hour. Better in the daytime. 19:35 neck spine hurting a bit.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: 19:35 Burning back when sitting down (skin stretching, is that it?)
Fibro & Touch: OK today.
Covid-danger: Still CoV-negative, like my wife, who’s wary what she’s to expect at work today.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break… Effect still holding on and even increasing.

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌. Ah, for once a local pain that really needs to be taken care of, sort of costochondritis to the left of my sternum, round the clavicle, but not the old clavicle pain I used to have. Treated it inside of 30' with massage gun, a bit of heat and stretches, then upon lying down to sleep lying on my hard cushion under my hunchback and also lying stretched out, left arm to the back.

:white_check_mark: massage gun 15’, cold shower (10’), airing 8x2’, cream fc/ey/hd/ft 8x1’, HWB 3’, Timing, teeth 2x2’, breath exercises 2’, hunchback-pillow 15’, back 8’, horse stance 1’, Y. Nidra 1.5h, hair/nails 15’, workout 7’, = 1h30+1h44= 3h14
Combine: next? RR!!
:x: facetime 2x1’, palpate 1’, belly 3’, aloe vera 1’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:35 Chamomile tea.
/23:50 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
Heating on! Warm shower?
/5:50 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:15 B4 “07:00” EGCg + Fev/MSM + Sily
/10:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:15 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Just wrote this somewhere:
What has helped me all along is “radical acceptance” (as in Acceptance & Commitment Therapy). As I accept where I am NOW (WITH all the pain and annoying symptoms), and am at peace with it, and am happy. So I DON’T (need to) waste energy on * braving the cleft between becoming perfectly healed and my state now, or * comparing my state to others, or * suffering from listening to others, for whatever reason, or * fighting myself or my fibro as in a war.

One of the pre-requisites is praps grieving properly. That took me a week upon getting the fibro diagnosis, a week upon realizing I have severe cardiovascular problems that needed me to take meds (which I’ve managed to get off of again tho), and no time at all realizing I also have MCAS and have had it for decades.

I am a “warrior” only in the sense that I’m a tumbler who never gives up to get ahead. But I am not at war with myself, exactly the opposite. My fibro and my MCAS are just reactions showing my need, showing that what I and others have expected from myself is not right and too much. I am now caring for a person who never got enough care in all his life, who desperately needs my love and care. I am a self-carer.

This opens up much more power to look how to install my new life. This is well paced (usually slow, sometimes fast). But mainly it is a slow steady self-care, watching what is good for me and what is bad for me and implementing it immediately, again: now.

Again another pre-requisite for that is mindfulness, being in my Here and Now.

But at the same time I again now have the power to turn all this into fruit for others, that I can listen to them and give, properly. Not any longer from something I haven’t got, but from something I have.

If you read my posts again, you will not have to read much about pain and suffering, you will see my coping and actively improving my situation all the time.

I don’t think about what people understand or don’t understand and I don’t fog over to enjoy. I tell them it’s nice to be with you, but my time is limited because it will increase my pain. I stop when it gets too much. Or sometimes I endure, if I want to, and that’s OK too. That way they can be sure I know what I’m doing. Since they feel powerless, and they are. Only I have the knowledge to self-care.

You’ve got the bud of peace in yourself already, you’ve written it all over. But you can overcome that war in this moment. “Hug” yourself, “stroke” yourself, be careful, take care, love yourself as thy neighbour. You are so precious. And you can have the blessings you talked about, be thankful and praise for them, every single second. You “just” have to decide to. That can open up peace inside yourself. Peace in paradise is cheap peace. Real peace is learning to be at peace altho the world is at war. And in that peace lies the strength to change whatever is in our power, and that is a lot. Even if only sharing here.

Lessons in self-care #266 I need to exercise more for my lipids, not just for pain :bangbang:
Reasons to be cheerful #271 Caught up with forums quickly. bit of music making, a workout…

764

Hehe, ah… so: feeling pregnant, rather than looking it… OK, when I didn’t have my triggers sorted out I did look ab bit pregnant for a few hours after midday…

Now you’ve really jogged my thoughts, tho! Someone else had said it before, but you always make me think, even if you don’t ask your brilliant questions. :stuck_out_tongue_winking_eye:
And thinking about it today, I know I used to bloat so much, with full IBS-D flares most of the day. But how come I am now eating all these veggies and even cabbage with hardly any problems? I think it was because I was eating quite a bit of processed foods, plus I didn’t have my triggers sorted out, so my gut and stomach were in a constant irritation.
Eating the “same” food in a restaurant would cause me to flare, because it just isn’t the same. There you get spices without them being able to tell you what they are. In a certain pizzeria I used to love, when I occasionally still ‘sinned’, I kept getting really bad stomach ache a short while after eating their pizzas. And I asked again and again what is in the tomato sauce. The third time I asked, they asked in the kitchen and got told that they had pepper in their pastry… In another place I had a specially made salad once or twice a week only with things I tolerate, but kept getting IBSD afterwards. We went thru everything together and realized it was the vinegar which they got without a declaration, but it was a herbal vinegar…

So: I’m not sure what you eat, but if you do eat processed foods, with spices, and in mixtures, plus simple carbs like sugar, praps also gluten, I’m pretty sure these are the actual reason and not the pure veg?

765

Oh contraire JayCS…:face_with_hand_over_mouth: I’m sure I would feel AND look pregnant if I followed your diet. :pregnant_woman:Hee Hee!!! :rofl::joy: But I was never able to have children. I’m glad this diet is more tolerable for you. I still haven’t adjusted my diet. When I do, I’m starting with taking gluten out of my diet. You would think with all the pain and suffering I’ve been through in 3 1/2 years, I’d be quick to try a new diet. My first thought is that I have given so much up, I’m not ready to give up something I enjoy which contains gluten. I admire your tenacity to find works best for you. :clap: I had my EMG/ NCS today. They tested my entire arm, right and left and my entire leg, both right and left. I feel electrified! :zap::boom:

1 Like
766

2022-04-05, Tuesday 25% - Powering with 6x TT, many hours of music making and 30’ housework is too much now, so I’ll call it 25% activity level today and best keep it down again.

Triggers & resulting Symptoms

SLEEP (click for details): 8h35, up 4x (25') ✅, and ➔ feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. A 3.5h stint! maybe helped by a hot water bottle and drinking less. But need to drink more in the mornings.

cold shower p0 Sleep 00:15-
1:40 5’ 80%/2 p0 st1 drink fw1’ cream
3:00 5’ 80%/2 p0 st1 drink fw1’ cream HWB
6:25 5’ 80%/2 p0 st1 drink fw1’ cream
8:20 10’ 80%/2 p0 st1 drink fw1’ air
-9:15
Sum: 9-(5+5+5+10=)25’ = 8h35, up 4x (25’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2. TT :ping_pong: 6:0, ➔ ?80%/2 meetings/social :speaking_head:, mask :mask:, kids :child:, work ➔ ?80%/2) ?:white_check_mark::x::face_with_monocle:*
ACTIONS ➔ PAINS: :white_check_mark: neck? GI? jaw?
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments:
Fibro & Touch: I’d thought of a good general idea, what the heck was it?
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break… Still good.

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 6x1’, teeth 1x2’, HWB 3’, breath exercises 2’, Timing, hunchback-pillow 15’, = 47’ palpate 1’, belly 3’, back 8’, Y. Nidra 30’, balance roll standing 5’, workout 1’, marionette-hang 1’, yoga/stretching 5’, “cross”-legged 10’, 111’ = 1h51
Combine: next? RR!!
:x: facetime 2x1’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/23:50 Chamomile tea.
/23:50 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/09:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/09:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:20 B4 “07:00” EGCg + Fev/MSM + Sily
/10:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:50 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
15:40? D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:45 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/20:10 A1+2
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #267 Got to watch it, today was slightly over the limit.
Reasons to be cheerful #272 Slogging on, taking on 3 “service gigs” plus all the practice now before Easter, which is really giving me an uplift. Hope it goes well…

767

Since I’ve been suffering from my teens (at the latest) on, and with severe gastritis in my 30s, it’s something I’ve grown very trained in, after then realizing more and more how much I can influence. I’d actually thought I was doing quite well 10 years before fibro. But when that came up and I first didn’t know how to get the main pains down, I started on all the side symptoms parallel, and I still hadn’t got the stomach & gut ones down to zero. Being on sick leave gave me the time to concentrate on it. People often say it’s the stress that leads to not being able to self-care, but I think for me more than that is we don’t have the time and energy. Then my “genetic lipid” came out to be sky high, so I had to go on a Mediterranean diet. And now the low histamine due to the MCAS. The positive feeling I had and still have was not one of reduction and not being able to treat myself, but one of self-care and eating “clean”. Also I’ve finally learnt to indulge the self-caring way: Much smaller amounts than I used to. Like basically putting good order into things, but a bit of controlled chaos is a good balance.

Oh dear, 4 times :bangbang: Didn’t want to go into it too much to not worry you, but when they deeply jabbed my thigh(s?) and they said: Now tense your muscles harder, no: even harder! - no, harder still! I was pretty much making noises close to shouting or screaming. Afterwards they told me every doc or I’d think at least neurologist has to do this in their training, so they know what it’s like. If results differ I’m sure mine was tough for some reason… I’m really keen to hear your results!

768

The technician that did the tests was awesome. She did one needle at a time starting with my right side, foot. I had to push against her hand, turn my foot inward like I was pigeon toed and flex my foot back. Only one time did a needle jab cause me to yell. It was on my right side and I think it was a tricep. For the NCS, she told me ahead of time what type of shock I would receive and what the intensity would be. What caught me off guard was that no matter the intensity or location of the shock, my body would almost have a seizure when the shock happened and continued even after the shock had stopped. Not sure if that means anything or not. Still waiting for the test results.

1 Like
769

2022-04-06, Wednesday 25% - early in bed, early start… with back exercises, a 4’ workout, 30’ of work and then lots of music, some forum work and a bit of table tennis.

Triggers & resulting Symptoms

SLEEP (click for details): 8h30, up 6x (35') ✅, but ➔ Feeling 70-80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

cold shower p0 Sleep 22:30-
23:45 5’ 80%/2 p0 st1 drink fw1’ air cream NO dry mouth yet
01:10 10’ 80%/2 p0 st1 drink fw1’ cream sore throat, dry mouth, teeth, calendula, HWB
02:25 5’ 70%/2 p0 st1 drink fw1’ air cream sore throat, dry mouth; HWB somehow too hot, so airing, also cos of nostrils
3:50 5’ 70%/2 p0 st1 drink fw1’ air, nostrils
7:00 5’ 70%/2 p0 st1 drink fw1’ air B2-4, nostrils OK-ish again.
7:17 5’ 70%/2 p0 st1 drink fw1’ OK-ish stools. nostrils OK-ish.
-7:35
Sum: 1h30+7h35-(5+10+5+5+5+5=)35’ = 9h05-35’ = 8h30, up 6x (35’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70-80%/2, TT :ping_pong: 5 games, but only 1:1 “proper”, the other games were ‘easy’, but still caused pain ➔ 70%/4) :x:. Before that tho I did too much standing and music making. Standing a lot of the day, but it’s a bit too much. But praps good training. Standing on a foam roller to balance doesn’t help.
ACTIONS ➔ PAINS: :white_check_mark: neck & GI OK :white_check_mark:. jaw: starting a bit again, gotta watch it. :face_with_monocle: Long standing is OK. Going for a short brisk walk is good, that’s the acupuncture suppleness. :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: OK, only nostrils a bit at night. :white_check_mark:
Fibro & Touch: OK.
Covid-danger: Masks have “fallen” - but many are still wearing them in my shops. I’ll be watching out for times of the day where there are only few people in the shops.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break… Still good…

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌. I'm taking "STIFF" out of this focus-list since acupuncture is taking care of it at the moment. I do deep breathing, sometimes with one nostril alternately clesd during anything difficult, like table tennis and cold showering, and haven't been noting it.

:white_check_mark: aloe vera 1’, airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 5x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’, horse stance 1’, workout 7’, marionette-hang 1’, balance roll standing 5’, =78’, twist-stretch 3’, yoga/stretching 2’, facetime 2x1’, 85’.
Combine: next? RR!!
:x: massage gun 20’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:20 Chamomile tea.
/23:45 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/07:00 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:00 B4 “07:00” EGCg + Fev/MSM + Sily
/09:35 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:35 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #268 I’m stretching it, but it’s OK. Gotta prepare for the gigs by toning down my activity more, especially the day before.
Reasons to be cheerful #273 Yesterday the first blackbird sang for us in the afternoon. We didn’t realize they start that late (and only sing properly till about June).

770

Thanks for reporting! I’d’ve though it’s “normal”…

771

2022-04-07, Thursday 25% - good despite lots of music making, overdoing it a bit.

Triggers & resulting Symptoms

SLEEP (click for details): 8h25, up 4x (30' ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

cold shower p0 Sleep 00:00-
1:35 5’ 70%/2 p0 st1 drink fw1’ cream A4?
2:55 5’ 70%/2 p0 st1 drink fw1’ air cream
5:45 5’ 70%/2 p0 st1 drink fw1’ air cream intense dreams, dry mouth, headache due to thirsty, not drinking enough.
7:30 15’ 70%/2 p0 st1 drink fw10’ cream B2-4 self-Y. Nidra
-9:00
Sum: 8h55-(5+5+5+15=)30’ = 8h25, up 4x (30’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2, but too much music practice, standing, ➔ 70%/3, whilst TT :ping_pong: (3:0, + 2 ‘easy’ games) didn’t increase it, rather ➔ 80%/2 :face_with_monocle:. I must say I’m overdoing it all a bit, but it seems to be OK. But dead tired in eyes and face, definitely need to go to bed at 22:00 the next few days to be prepared for Sunday. 1h of work too.
ACTIONS ➔ PAINS: :white_check_mark: neck: tough, but only at night. :face_with_monocle: GI: quite good. :white_check_mark: jaw: slight pain.:face_with_monocle:
MCAS/HIT-Symptoms/Triggers/Treatments: A little.
Fibro & Touch: Good. :white_check_mark:
Covid-danger: Down at the moment. :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break… Still good tho :white_check_mark:

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 6x2’, cold shower (10’), cream fc/ey/hd/ft 6x1’, teeth 2x2’, HWB 3’, hunchback-pillow 15’, palpate 1’, belly 3’, back 10’, aloe vera 1’, balance roll standing 5’, twist-stretch 2’, “cross”-legged 10’, Y. Nidra 20’ = 102 = 1h42
Combine: next? RR!!
:x: facetime 2x1’, breath exercises 4’, Timing, horse stance 1’, massage gun 20’, yoga/stretching 5’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:35 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:25 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
0 Chamomile tea.
/01:35? A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
B1 “01:00” PF#3
Heating on! Warm shower?
/07:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM + Sily
/12:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/12:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
14:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
-17:10 DAO (D1) “13:00” 0psyllium
/17:10 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #269 Didn’t do a workout today, but praps better as I’m concentrating so much on music (and standing doing so)
Reasons to be cheerful #274 Music is fun. Nice phone call with a colleague.

772

2022-04-08, Friday 25% - pretty balanced day, altho I’m a bit worried I’m forgetting something important. What I read about ideal CoV protection suggests doing the 3rd jab soon (3 months after the 2nd = May 10th)

Triggers & resulting Symptoms

SLEEP (click for details): 8h29, up 4x (26') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐

cold shower p0 Sleep 23:25-
1:25 5’ 70%/2 p0 st1 drink fw1’
2:45 8’ 70%/2 p0 st1 drink fw2’ air sore throat → calendula + HWB
4:20 5’ 70%/2 p0 st1 drink fw2’ air cream teeth
6:40 8’ 70%/2 p0 st1 drink fw2’ air cream B2-4.
-8:20 hunger pain
Sum: 35+8h20-(5+8+5+8=)26’ = 8h55-26’ = 8h29, up 4x (26’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2 TT :ping_pong: late: 5:1, meetings/social :speaking_head: 2h was good, managed to keep relaxed ➔ 80%/2 :white_check_mark:. Bit surprised cycling to TT that altho I felt fit I could only cycle at 70% of my full speed, even tho it was only a few minutes - no energy burst at the beginning. It was better on my way back. :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: neck: stiff at night, but otherwise OK. GI: slight belly ache after sweetheart cabbage. :face_with_monocle: And I do wake up with a gnawing nauseous hunger type pain in the mornings of late, I think independently of the supps I take before getting up. :face_with_monocle: jaw: bit better again. :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: Bit of burning back skin. I spose I could start histaminey foods again and see how they go. Been keeping back on the walnuts, but praps I could see what half a walnut a day does.
Fibro & Touch: Pretty good.
Covid-danger: My wife’s on leave from work, so less risk. Altho everyone is allowed to stop wearing masks in shops etc., 95% are still doing it, which is a comfort. Read today from our most reputable expert that the ideal immunity can only be got by getting 3 jabs and then 3 infections, preferably not omicron, preferably with some fairly strong symptoms. So I need to get the 3rd jab…

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break… Still good.

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 6x2’, cold shower (10’), cream fc/ey/hd/ft 6x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, yoga/stretching 3’ = 57’!
Combine: next? RR!!
:x: facetime 2x1’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:05 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/21:35 Chamomile tea.
/23:20 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/06:45 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:45 B4 “07:00” EGCg + Fev/MSM + Sily
/10:25 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:25 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:35 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:40 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #270 Bed earlier was better. Started out slow (NO workout, music making mostly later), but managed to get everything done all the same. A bit unrestful about something undefined. My right pinky and fourth finger hurt, later realized it’s due to some fast music playing, unaccustomed in the past years.
Lessons in self-care #271 Not even 1h of self-physio today… Is that OK? I was wanting to exercise more… Well at least I tried cycling fast, even it didn’t work at first. Didn’t even do my back exercises today, risky…
Reasons to be cheerful #275 Music practice going well. TT was good too.

773

2022-04-09, Saturday 25%, no 30% :bangbang: - still good… sleep OK too, despite needing Yoga Nidra once again…

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 7x (35') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐. Back to 1.5h stints... Last hour Y. Nidra, as thoughts getting me tense (praps fuelled by gig perspective).

cold shower p0 Sleep 23:30-
0:40 5’ 70%/2 p0 st1 drink fw1’ air cream
1:50 5’ 70%/2 p0 st1 drink fw1’ air cream p1
3:15 5’ 70%/3 p0 st1 drink fw1’ air. dry mouth: gel.
4:40 5’ 70%/3 p0 st1 drink fw1’ air dry mouth: drink. Vivid dream (Freeing blocked plug hole.)
6:10 5’ 70%/2 p0 st1 drink fw1’ air bit of nostril, bit of normal stools, nauseous stomach ache → almond milk. Y.Nidra
7:00 5’ 70%/2 p0 st1 drink fw1’ thoughts/tense, nostril & stomach more, air cream. Y.Nidra: Ally.
7:45 5’ 70%/2 p0 st1 drink fw1’ nostril & stomach less, Y.Nidra: Ally. B2-4
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-8:20
Sum: 30+8h20-(7x5’=)35’ = 8h15, up 7x (35’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2
TT :ping_pong: 5:1, not much pain, just a bit exhausted :white_check_mark:, lots of music practice ➔ 80%/3, resting/forum-work & a short walk ➔ 80-90%/2-1 :white_check_mark::white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck: :white_check_mark: GI: OK-ish. jaw: OK-ish. pee frequency very high night and day, but pee pain is OK. Maybe 200mg more GABA? Standing a lot now, needing my bar stool again, which I’d put in the kitchen for eating, as I hadn’t been able to use it for working any more, need to sit on the floor all the time.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark:. Activity level up to 30%! :white_check_mark:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break…

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:30 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/07:45 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:45 B4 “07:00” EGCg + Fev/MSM + Sily
/9:15 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/9:15 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/17:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/20:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/21:25 A1/2

“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Bits’n’bobs.
Lessons in self-care #272 Not enough self-discipline, but self-care altogether seems OK.
Reasons to be cheerful #276 Better everyday, unbelievable!

774

2022-04-10, Sunday 30% - just in case this activity level of 30% is stable, that’d mean the 1st jab took me about 72 days and the 2nd only 60 days to get from 10% to 30%. :white_check_mark: :smiley:

Triggers & resulting Symptoms

SLEEP (click for details): 8h30, up 4x (25') ✅, and ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅, but not feeling awake, I have to quickly tho!

cold shower p0 Sleep 22:55-
1:15 5’ 80%/2 p0 st1 drink fw2’ air cream
3:05 10’ 80%/2 p0 st1 drink fw2’ air. dry mouth. - > gel.
4:50 5’ 80%/2 p0 st1 drink fw2’ air cream. nostrils & mouth dry but OK. Put arnica cream on hands for better piano playing and neck for stiffness - seemed helpful, have to do that more, also
6:25 5’ 80%/2 p0 st1 drink fw2’ air cream nostrils & sinuses & eyes a little bit, mouth OK, vivid dreams, woke up with a short gasp fright, cos someone had been knocked by a bike.
-7:25
Sum: 1h05+7h25, up (5+10+5+5=)25’ = 8h30, up 4x (25’)

ACTIVITIES (aim: 40%) ➔ ACHE: while playing maybe 70%/3, very strenuous. Afterwards sad, cos 3 people did, but the pastor didn’t like my music, however the way he communicated it put him far off in the wrong, and talking about it with 2 people helped a lot. ➔ 80%/2 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck: still needs treatment. GI: :white_check_mark: jaw :white_check_mark:. Despite bladder problems I’m thinking I don’t want to change anything since everything else is really going upwards :arrow_upper_right: :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: 2 months after the 2nd jab today, up from 10% to 30% due to Chinese acupuncture. 1st jab I was down to 10% till Jan 25th = day 56, having started the supps, then up pretty quickly to 30%, partly 25%. Now the acupuncture brought it up off and on to between 10 and 20 until she changed it, up to 20% since Mar 29th = 18+29= 47 days, quickly 25%, and since Apr 9th 30% or more, after 60 days. I think that really is shorter than the 1st jab, and only due to the spine acupuncture. If it’s neither the supps nor the acupuncture, then I’m simply needing 2 months to recover from each of the jabs. However the 2nd jab felt worse than the 1st.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break… :white_check_mark:

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌. Instead of these neck massage & arnica'd would at the moment be the only important thing to do.

:white_check_mark: All that was necessary. white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:55 Chamomile tea.
/01:15 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
Heating on! Warm shower?
/6:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/6:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/6:30 B4 “07:00” EGCg + Fev/MSM + Sily
/8:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/8:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:35 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/17:25 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/21:50 “19:00”
/23:05 “21:00”
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #273 I don’t have to offer my music to people who can’t appreciate it.
Reasons to be cheerful #277 Quite some people enjoyed my music. Unfortunately the pastor didn’t. :poop: :face_holding_back_tears:

775

2022-04-11, Monday 30% - overdid it, considering, so trying to slow down.

v2: Overdoing a bit, but the limits are very clear.
v1: 09:25 made the very best of a difficult night. :white_check_mark:

Triggers & resulting Symptoms

SLEEP (click for details): 8h, up 2x (10') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/1 ✅ tired, because I went to bed very late, used Yoga Nidra all night for the first time (altho I did feel as if I was sleeping quite a bit), all due to the stress from the pastor's remarks about my music yesterday. But hardly any sleep breaks, probably esp. due to not drinking, using mouth gel instead or just leaving it dry. Interesting.

cold shower p0 Sleep 01:05-
2:50 5’ 70%/2 p0 st1 fw1’
6:20 5’ 70%/2 p0 st1 fw1’ nostril mouth gel
-9:15
Sum: 8h, up 2x (10’)

ACTIVITIES (aim: 40%) ➔ ACHE: Social phobic nausea. No TT, but housework, cycling (quite a bit, partly with 2 bikes) ➔70%/3 :face_with_monocle: - good, considering.
ACTIONS ➔ PAINS: :white_check_mark: neck: OK :face_with_monocle:. GI: good :white_check_mark:. jaw: good :white_check_mark:.
MCAS/HIT-Symptoms/Triggers/Treatments: Nostrils less tonight, after vacuuming the dust under my bed. Need to do that much more diligently.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break… Still good :white_check_mark:. She’s OK again, not sure if I want to go this week tho, but next week.

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: Just the important things, I’d think less than an hour. Plus “8h” Yoga Nidra, at least 1h net.
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:50 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/01:00 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/09:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/09:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:20 B4 “07:00” EGCg + Fev/MSM + Sily
/10:05 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:05 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA -10:45
/13:20 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:20 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/20:10 "19:00
/21:45 “21:00”
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Nope.
Lessons in self-care #274 Emergency mode at night opened a new possibility for less breaks: Not drinking was possible.
Reasons to be cheerful #278 Making the best of the destructive criticism by using emergency mode.

776

JayCS I have just reread what you said about your jab back in November. On Saturday I had my second booster jab for Covid. It is just not compatible with fibromyalgia. The pain and tiredness are horrendous since having it. Not able to concentrate on anything and making silly mistakes. This morning I could not even remember how to make fruit and jelly because of being so tired. I make this every week! Hopefully it will settle down soon.

1 Like
777

Oh dear, sorry to hear that, rosebud! I hope so too. :open_hands:
Praps I’ll’ve recovered from the 2nd jab before I get the 1st booster…
Had to get the 2nd before having recovered from the first… :face_with_monocle: :roll_eyes:

778

2022-04-12, Tuesday 30% (= activity level) - cutting bushes for 30’ +30’ easier garden work, quite a bit of music stuff, cycled 2x30’ to an MRI and back. 30’ slow evening :white_check_mark: (if it weren’t all so short I’d think I’m pretty fit ‘n’ healthy…)

Triggers & resulting Symptoms

SLEEP (click for details): 8h35, up 3x (20') ✅, but ➔ Feeling 70-80% well, Ache 2-1 of 7 ✅, getting up: 80%/1 ✅. Drinking much less at night, as it doesn't help the dry mouth anyway is working for reducing the sleep breaks.

cold shower p0 Sleep 23:50-
/02:05 5’ 80%/2 p0 st1 drink fw1’ air cream
/04:55 5’ 70%/2 p0 st1 drink fw1’. Nauseous stomach ache → drink.
/8:05 10’ 80%/2 p0 st1 drink fw2’ air cream A2-4
-8:40
Sum: 10+8h40-(5+5+10=)20’ = 8h50-15’ = 8h35, up 3x (20’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/1-2
2x30’ cycling :biking_man: ➔ 80%/2, rest all good, considering. :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck: GI: slight pressure :white_check_mark:. Jaw: OK-ish :white_check_mark:. Cycling 2x30’: knees, especially the left one.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Nostrils/sinuses a little bit, try removing more dust :soon:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs: Today: Spinal tumour’s doing fine, I could take the risk and take the checks down to every 2 years.
Chinese Acupuncturist - Still good :white_check_mark:, 2 weeks now. Next session: 19th. (Or shall I dare on the 14th?)

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 6x1’, teeth 2x2’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’ = 55’.
Combine: next? RR!!
:x: facetime 2x1’, HWB 3’, breath exercises 4’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:45 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
0 Chamomile tea.
/23:50 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/08:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:10 B4 “07:00” EGCg + Fev/MSM + Sily
/10:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/18:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:05 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 C4+D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/19:00 “19:00”
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #275 Massage gunning my knees before going for an evening walk was perfect. after the pain from cycling. No TT was also a good idea.
Reasons to be cheerful #279 Gardening, music, tumour good :white_check_mark:

779

2022-04-13, Wednesday 20% - down, probably the cycling yesterday a bit too much, plus too intense music making. But acupuncture tomorrow will hopefully help…

Triggers & resulting Symptoms

SLEEP (click for details): 8h40(?)(-30'?), up 3x (15') ✅, ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 80%/1 ✅ No ear plugs! Drinking upon getting up, only 3x1 mouthful before (no cramps, dry mouth gel sufficed.) Unrest improved with massage gun on lower back.

cold shower p0 Sleep 22:30? Needed a bit of time to get to sleep.
1:25 5’ 80%/2 p0 st1 sip fw1’ air cream gel
3:10 5’ 70%/2 p0 st1 sip fw1’ air cream gel Slightly nauseous stomach ache, nostril slight. Not really pee.
3:45 5’ 70%/2 p0 st1 sip fw1’ LBU: massage gun.
-7:25 70%/2 p0 st1 B2-4 (all without ear pugs)
Sum: 1h30+7h25-(5+5+5=)15’ = 8h40, up 3x (15’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/3
Didn’t do much today, 30’ of a certain difficult piece of music was overload, had to stop music altogether till the evening, I hope it’ll work out now…, seems to have been more than enough yesterday. Thankfully no cycling or table tennis, just 30’ shops, that was OK. Tired and Achey ➔ 70-80%/3-2 :face_with_monocle:.
ACTIONS ➔ PAINS: :white_check_mark: neck: 2x pain stab, so I hope then 2x massage gun helped and using it the last days wasn’t the cause(?) GI: :white_check_mark: jaw: bit :face_with_monocle:,
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - Still good :white_check_mark:. Next: Tomorrow, 14th after all, I’ll dare it. And 19th too.

SELF-PHYSIO (click for details) focus on: Neck massage: 2x3' - no problems tonight! ✅ ✅. But stabs at daytime. Repeated. Hope it wasn't the massager. RR? ❌. Deleted the others, as they aren't relevant at the moment.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Trying leaving one more passiflora off, as I feel a little too drugged at night and in the morning. I'm then down to 1x350mg! O.o PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/22:50 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#4
/07:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM + Sily
/08:25 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/08:25 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/10:50 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/17:30? D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/20:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #276 Had to stop music making for quite a time…
Reasons to be cheerful #280 Quite fun day all the say, nice contact talking about software & hardware synthesizers…

780

2022-04-14, Thursday 30%, yup, OK again :sunglasses: - maybe the acupuncture too, but also massage gunning my knee tendons.

Triggers & resulting Symptoms

"SLEEP (click for details): 8h45, up 3x (15') ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Still a bit zombified, until up for 10' minutes.

cold shower p0 Sleep
Only 1 Pf tonight, let’s see…
22:35-
00:00 5’ 80%/2 p0 st1 sip fw1’ air A4
01:40 5’ 80%/2 p0 st1 sip fw1’ air
03:55 5’ 80%/2 p0 st1 sip fw1’ air cream gel. Still zombified with only 1 passiflora, same at 7:35
07:35 5’ 80%/2 p0 st1 drink fw1’ air cream gel. Nostrils :white_check_mark:, sinuses :white_check_mark: & stomach nauseous hardly :white_check_mark:.
-End
Sum: 1h25+7h35-3x5 = 9h-15’ = 8h45, up 3x (15’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2
cycle :biking_man: 2x20’ & music making together 1.5h ➔ ?80%/2) :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck: massage gun. GI: loose. :face_with_monocle: jaw: took more care :white_check_mark:. Pee pain has been p0 of late I think, despite frequency partly, now also better. :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs: Got an appointment at a university allergist specialist centre in June to get a 2nd opinion on allergies/MCAS. They want me to bring a rest of the BioNTech/Pfizer jab, which’ll be no problem if I do the 3rd jab on the 10th.
Chinese Acupuncturist - Still good :white_check_mark:. Next: today. Good :white_check_mark:.

SELF-PHYSIO (click for details). In the morning I spontaneously started using my massage gun all around my knees because of the painful stiffness when I start(-ed) to move. Need to use it sideways like on the neck, so it doesn't bump around. Writing that reminded me that it doesn't bump or make waves as much on the higher speeds. But that's a bit tough on the head if I do my neck, need to do it very gently. Afterwards praps the elbows and fingers from the strain of holding it, but usually not necessary as that goes away inside of a few minutes. Lot less stiff! Repeated. RR? ❌

:white_check_mark: airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 2x1’, teeth 2x2’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’, massage gun 10’, twist-stretch 1’,
Combine: next? RR!!
:x: facetime 2x1’, HWB 3’, breath exercises 4’, horse stance 1’, aloe vera 1’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Down to only 1 passiflora at 21:00! Still good sleep, but some hyperactive brain times. Still zombified, but less long in the morning. Keep it there first, so my brain doesn't get into the wrong rut again? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:15 A1/2 “19:00” 0PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:15 1xPF
/22:45 A3 “21:00” 0PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00.00 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” 0 PF#4
Heating on! Warm shower?
/07:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM + Sily
/09:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:35 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

I’m curious if I’ve made a new discovery using the massage gun gently & sideways on my knees for the painful stiffness, not only on my kneck :stuck_out_tongue_winking_eye:

’Research’ today: No.
Lessons in self-care #277 Still looking for & finding new tricks for my toolbox.
Reasons to be cheerful #281 Good Thursday before Good Friday. :wink:

781

2022-04-15, Good Friday 20% - pimping myself up to 30% at 16:00 for the evening ‘gig’…

v6 21:10 Gig successful using my cortisol, maybe supported by the extra supps, a 3rd focal seizure at 20:30; now coming down, see where I land…
v5 16:30 a short walk & jog round the block, 2x200m, now supps that occasionally boost: ribose, NADH… 16:45 another short focal seizure.
v4 14:50 A Wim Hof breath exercise has helped, altho I had a tiny focal seizure whilst doing it.
v3 14:25 Now I’m thinking it may be the colder weather?
v1 9:30: night OK, but not too well - from some music making? v2 11:10 No, this is not 30%, it’s 20%… My gig’s this evening, I’ll be better by then.

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 3x (15') ✅, but ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. I think the Ache may have been down from 2 to 1, whilst I feel OK-ish at night, I'll have a look tonight if it's 90%. But taking passiflora down to zero has been OK, I'd think, as I slept and woke up well.

cold shower p0 Sleep 22:55-
0:35 5’ 80%/1 p0 st1 sip fw1’ air cream gel A4
2:20 5’ 80%/1 p0 st1 sip fw1’ air gel
4:25 5’ 80%/1 p0 st1 sip fw1’ air gel cream stomach ache nauseous: almond milk.
-7:25 5’ 80%/1 p0 st1 sip fw1’ despite annoying itchy scalp, party people; little bit of nostrils, stomach. No sinuses all night. Hardly stiff.
Sum: 1h05+7h25-15’ = 8h15, up 3x (15’)

ACTIVITIES (aim: 40%) ➔ ACHE: Music making: ➔ 70%/3, rest isn’t making a difference. Praps cos it’s a bit colder today, or feels it (but my wife says it is) :x:. Bad till I went for the short walk, then jog round the block, then supps, hypering to get cortisol up for the gig (service; me with mask on all the time). ➔ 90%/1 :white_check_mark:. See where I now land tonight & tomorrow, praps it’ll end alright. :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: neck? GI: fairly loose & then liquid & normal at the same time. :face_with_monocle: :roll_eyes: jaw: Only after nuts for 15’. Hardly stiff at all after acupuncture. 9:40 Left thigh pain: massage gun.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark:. I’m wondering whether the specks of balsamico vinegar I’ve been using have been making the next day a problem. (Wednesday & now Friday).
Fibro & Touch: :face_with_monocle: Not too keen on touch, feel a bit fragile. Better with cortisol up.
Covid-danger: :white_check_mark: - kept my mask on all the time at someone else’s house yesterday.
Focal seizures at 15:00 and 16:45, first in quite a time. Is this too much or too little GABA, or generally not too good, or the gig stress overdoing it. 16:50 maybe a bit of burnt tongue, so I’ll take added 200mg of GABA. :face_with_monocle: Nothing till a 3rd seizure at 20:30. Edit 17th: Pretty sure that was the acupuncture, and looked at research: decreases histamine, increases serotonin, see conclusion there.

Treatments

Docs:
Chinese Acupuncturist - Not sure - today was a bit of a downer, and I’m :x:. 14th: seemed good yesterday, but today was quite a trial and tribulation, needing a lot of health engineering. Next: 19th.

SELF-PHYSIO (click for details) focus on: Neck & knee massage gadget, also tried thighs after standing too long. Wim Hof breath exercise (1'30'', 2'15'', 1', 2'00'') for the first time in ages did help. RR? ❌

:white_check_mark: airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 4x1’, teeth 2x2’, HWB 3’, Timing, hunchback-pillow 10’, palpate 1’, belly 3’, back 8’, aloe vera 1’, breath-hold 12’, hair/nails 3’, massage gun 5’, = 72’. twist-stretch 5’ = 77’.
Combine: next? RR!!
:x: facetime 2x1’, breath exercises 4’, horse stance 1’,balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Last of my ten 5mg methylcobalamin B12 injections s.c., 3 months after the last. Maybe getting it checked in a few months to see if it needs further upping then.

Supps Mar 13th (24?): Supp costs:~277€/m (Apr 14th) CHANGE: Trying to stop passiflora tonight as it's the only sleep thing I can reduce...? No wait, let me go down with theanine from 2 to 1. That's now reducing the costs, esp. as I've stopped taking the expensive extra Ω3... PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” 0PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:35 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” 0 PF#4
Heating on! Warm shower?
/07:25 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:25 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:25 B4 “07:00” EGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/16:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#1! +!Ro + ribose.
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Interesting current debate between researchers about more active treatment of chronic lower back pain.
Lessons in self-care #278 Took care to rest a lot, didn’t help, so various treatments: hot water bottle, chamomile tea, breath-holding.
Reasons to be cheerful #282 Worked out well, success (very nice, and not too many mistakes…)!