JayCS’s Fibro Blog

Symptoms & Treatments
741

2022-03-20, Sunday 15% - 2:2 :ping_pong:, bit of gardening & housework, all hardly moving.

Triggers & resulting Symptoms

SLEEP (click for details): 7h18, up 3x (9') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 ❌. Bed too late.

cold shower p0 Sleep 00:15-
2:00 3’ 70%/2 p0 st1 drink fw1’ air
Awake twice without getting up
6:10 3’ 70%/2 p0 st1 drink fw1’ cream
7:05 3’ 70%/2 p0 st1 drink fw1’ cream LBU → stretching legs backwards, dozing
-7:40
Sum: 7h25-(3+3+3=)9’ = 7h18, up 3x (9’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/2 TT :ping_pong: 2:2, 70%/2 :face_with_monocle: Tired, being very careful: keeping it slow, but steady.
ACTIONS ➔ PAINS: :white_check_mark: neck OK. GI: belly ache in afternoon, didn’t drink enough and forgot afternoon supps, scraped tongue tip with nuts, so burnt feeling now due to that. “Peanuts”.
MCAS/HIT-Symptoms/Triggers/Treatments: OK, despite bit of cashews, yoghurt etc. and no DAO.

Treatments

Docs:
Chinese Acupuncturist - Thursday 17th:

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, RIBOSE ❌, FACE ❌ & STIFF ❌.

:white_check_mark: palpate 1’, belly 3’+3’, back 10’+7’, airing 4x2’, cold shower (10’), breath exercises 4’, cream fc/ey/hd/ft 5x1’, massage gun 5’, hunchback-pillow 10’, teeth 2x2’, aloe vera 1’, = 69’.
Combine: next? RR!!
:x: facetime 2x1’, calendula/tea tree x1’, HWB 3’, Timing, balance roll standing 5’, cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’, horse stance 1’.

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: Passiflora 2-3x.35g. 1x/d DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

Pure (only +SiO2) honokiol here extremely expensive 61€: https://www.mcsformulas.com/de/vitamins-supplements/pure-honokiol, on the other hand the bad from pipingrock directly costs 20€ for 2 bottles https://de.pipingrock.com/magnolia-bark/magnolia-bark-honokiol-400-mg-120-quick-release-capsules-3722?prisp=1 instead of 25€ for 1 bottle on eBay. In all cases 120 capsules per bottle, so the pure version is 61/12030=15€/m, while the eBay bottle is 6€/m and the 2 piping rock bottles 2,50€/m.
The other alternative is not buying Hoffman’s B-Team any more and seeing if that makes any difference… But after I’ve finished off the acupuncture…
ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:35 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/07:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” EGCg + Fev/MSM + Sily
/9:10 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/9:10 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/19:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
0 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

Adding to what I wrote yesterday: Bit depressing looking back a year to see how much table tennis I could play pre-jab, despite fibro. But OTOH my local pains at “zero” now is great. My sleep is good now. I’ve got so much to be thankful for.
Touch: I tried to tolerate holding my wife for longer than 5 minutes. The standing fairly still was one problem (she was sitting), but the touch turned into Ache and a big sense of unrest and irritation after we stopped. I had to move around a bit, and had a feeling of needing to cold shower soon (later was OK tho). Altho it was kind of nice and no direct negative reaction, but also no positive reaction. What have we come to if that changes so much… sigh. :roll_eyes:
This evening I kept a bit of slight touch contact quite a long time and it was good.

’Research’ today:
Lessons in self-care #253 No self-chastising, just need to always try to get to bed earlier.
Reasons to be cheerful #259 Even tired I’m getting things done.