JayCS’s Fibro Blog

Symptoms & Treatments
744

2022-03-23, Wednesday - 20%! Energy, no fatigue, but tired and unmotivated to move from 14:00 on.

v2: Up: 90%/1, back ex. and then 5’ of 7’ workout: limit there. 14:00 This may not feel “safe” yet, but it’s definitely much better!
pseudo-“80%”! → v1: evening (Tuesday) after 20:00 - fatigue suddenly hardly existent, at 22:00 I can move perfectly again without the least resistance, feels like “80%” physical activity, altho of course it would break down after 10-20’ at the latest . This is the first time after the 2nd jab, 40 days after it, whilst it happened several times after the 1st jab. 23:00 down to pseudo-“70%”.

Triggers & resulting Symptoms

SLEEP (click for details): 8h05, up 5x (40') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 90%/1 ✅!

warm shower (acupuncture) p0 Sleep 23:10-
0:45 5’ 70%/2 p0 st2 drink fw1’ cream (I’ve been forgetting to adjust st1 to st3…)
2:05 15’ 70%/2 p0 st2 drink fw10’ air cream
3:55 5’ 70%/2 p0 st2 drink fw1’ air cream
5:45 5’ 70%/2 p0 st2 drink fw1’ air cream
7:30 10’ 70%/3 p0 st2 drink fw1’ air cream b2-4
-7:55
Sum: 50+7h55-(5+15+5+5+10=)40’ = 8h45-40’ = 8h05, up 5x (40’)

ACTIVITIES (aim: 40%) ➔ ACHE: Evening when the fatigue went down: 80%/1 (still sighing/shortbreathed). Night good. Back exercises first thing, then even a 5’ workout, but not more, OK-ish. TT :ping_pong: 0:4, but only a bit of pain towards the end, no fatigue, no stiffness! ➔ 80%/2 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck? GI? I’d overseen this: Today my stiffness is pretty much gone st0-1, showing that it’s been up to st3-6 along with the fatigue.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: evening (Tuesday) after 20:00 - fatigue suddenly hardly existent, at 22:00 I can move perfectly again without the least resistance, feels like “80%” physical activity, altho of course it would break down after 10-20’ at the latest. This is the first time after the 2nd jab, 40 days after it, whilst it happened several times after the 1st jab. This like the longer time for the jab sfx to develop might imply that it will take 3-4x longer than the jab-sfx of the 1st jab (where I progressed from 10% to 30% in 72 days). Let’s see how long it does take. At least it suggests the fatigue is again histamine and the effect will decrease during the first part of the night and be back down again tomorrow, which would again suggest not to stop the antihistamine as originally planned. Alternatively this is an effect of the acupuncture… that I’ll see tomorrow…
23:00 tongue tip ‘burning’ is pretty surely due to a piece of walnut. Wondering if the walnut increases histamine which makes the fatigue go away for a bit and then crash :interrobang: Something to test…"
13:00 After helping someone 30’ and 4x TT 45’ I’m still OK, so it seems to’ve been the acupuncture and isn’t just a normal ebb of histamine!
14:00 Starting to feel feverish-tired around eyes and arms. That continued along with feeling unmotivated to do any activity… don’t know why… warmer weather? No tongue burning or anything like that today.
Fibro & Touch: Practicing touching regularly, trying to make the most of it, not too long, but regularly. Touch has of course partly got tougher from the MCAS, e.g. showering.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 22nd: Remained bad until the histaminey evening. If that’s gone tomorrow it “was” the walnut, if it isn’t it “was” the acupuncture…Did I say yesterday that she did a further almost 20 needles down my spine, instead of cupping my back. And the time before she realized that I was getting allergic symptoms. What I need to explain to her tomorrow is that this fatigue is likely mainly an allergic reaction. 14:00 Tired and more and more unmotivated to do some activity, but why, if I have energy?

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: facetime 2x1’, airing 3x2’, cream fc/ey/hd/ft 10x1’, teeth 2x2’, Timing, breath exercises 2’, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, twist-stretch 5’, = 60 :x:
Combine: next? RR!!
:x: cold shower (10’), HWB 3’, horse stance 1’, aloe vera 1’, massage gun 20’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while?! Didn't stop yesterday. Praps today.... 0x/d DAO. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:00 Chamomile tea.
/23:00 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/07:35 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:35 B4 “07:00” EGCg + Fev/MSM + Sily
/10:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:00 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 14:00 DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Only bit of forum-work, looking things up.
Lessons in self-care #254 Kept my activity down after table tennis, waiting for the levee to break, but didn’t…
Reasons to be cheerful #260 Wow! :partying_face: For the roughly 10th time: Is this it? - at least the brunt of the jab-sfx?