JayCS’s Fibro Blog

Symptoms & Treatments
745

2022-03-24, Thursday 10% → 20% after acupuncture again. Till when? 19:35 Just realized that the tired-feverishness is a sign that what the acupuncture is doing is NOT “REAL”, it’s just increasing my cortisol… Drat! :bangbang: :face_with_monocle:

v4: :ping_pong: 3:1 then 30’ gardening. v3: sinuses still “boring”.- not stiff, but quickly exhausted, v2: then acupuncture around spine again: fatigue down, energy fairly good, but again feverish; plus needles on sinuses, which seemed to help first, again about 40 needles, absolutely no pain from after they were in, like last time.

Triggers & resulting Symptoms

SLEEP (click for details): 9h33, up 4x (27') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌ mainly sinus/headache pain due to stopping the rupafin.

cold shower p0 Sleep 22:00-
23:05 5’ 70%/2 p0 st1 drink fw2’ cream
0:40 5’ 70%/2 p0 st1 drink fw2’ air cream
Turned over twice.
4:00 7’ 70%/2 p0 st1 drink fw2’ air cream teeth
Sleep good, no nostrils etc., but sore throat. Despite stopping rupafin!
TOOTH ACHE worse again since day before yesterday!
7:20 10’ 70%/2 p0 st1 drink fw2’ cream. No rup: Bit sore throat, nostrils, sinuses. Feeling drugged. B2-4
-8:00
Sum: 2+8-(5+5+7+10=)27’ = 10h-27’ = 9h33, up 4x (27’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/3, but acupuncture got me moving again, so TT :ping_pong: 3:1, then 30’ light gardening (yeah, I know, shouldn’t’ve, my wife already chided with me) ➔ ?80%/2) :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck: stiff after acupuncture, but OK. GI OK, but loose in the morning.
MCAS/HIT-Symptoms/Triggers/Treatments: Sinus/headache pain due to stopping the rupafin. Acupuncture in there seemed to help a bit, but started again soon afterwards, getting worse at 15:00. Maybe need to keep GABA up, and not down…? First take eat and take the next GABA, bit late at 16:00. Sinuses still there all day. And sposed not to take rupafin? Then at least GABA I spose.
Fibro & Touch: 0.

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th: Report to her: “Last time a great 24h with more energy, less fatigue & stiffness, but suddenly very tired after that, even tho I’d kept my activity down (5’ workout and 4xTT was the most, nothing else). Sinus/headache pain due to stopping the rupafin last night, only a little skin burn/itch the last 2 days, loose stools this morning. Starting: stiffness down, but quickly exhaustible, no workout like yesterday.” Today: Almost 20 needles left & right of spine again: afterwards stiffness & fatigue down, energy fairly good, but again feverish; plus needles on sinuses, which seemed to help first, again about 40 needles, absolutely no pain from after they were in, like last time, so keeping the rupatadine off now. However sinuses starting up at 13:50 already, and maybe the “feverishness” is also an allergic reaction.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! Due to the feverish-tiredness I'm wondering which supp to go down with. As sleep is too much at the moment I'd think passiflora and GABA first, then rhodiola and praps even quercetin, have to watch my blood pressure tho! 1x/d DAO? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:05 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/07:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:00” EGCg + Fev/MSM + Sily
/10:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:15 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:55 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Not really, but got all forums posts running, so could now get some other stuff done.
Lessons in self-care #255 Still got to keep myself in check again.
Lessons in self-care #256 Worrying a bit how to adapt the med/supps, but it’s all trial & error anyway.
Reasons to be cheerful #261 Let’s see what happens this time. Should be quite good till midday tomorrow… O.o