JayCS’s Fibro Blog

Symptoms & Treatments
748

2022-03-27, Sunday 20%! 84h!- TT 1:3 (last game 21:8 tho, after a longer break) revealed I think it’s pain (of 4-5) counter-acting the suppleness & energy. Lots of music making at the moment. Covid danger… separating this week.

Triggers & resulting Symptoms

SLEEP (click for details): 9h29, up 4x (41') ✅ (longer breaks 'deliberate'), but ➔ Feeling 70-80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐. And hauled a bit of yesterday's sleep in, altho 20' was only dozing.

cold shower p0 Sleep 22:35-
23:50 15’ 70%/2 p0 st1 drink fw10’ air cream. Bit tongue, nostrils slightly.
01:55(=2:55) 30’ 70%/2 p0 st1 drink fw2’ air cream. Tongue & nostrils slightly.
(5:00=)6:00 3’ 70%/2 p1! st1 fw1’ air cream. dry mouth: gel.
8:10 10’ 80%/2 p0 st1 drink fw2’ air cream. Nostril, dry mouth. B2-4.
-8:45
Sum: 1h25+8h45-(15+13+3+10=)41’ = 10h10-41’ = 9h29, up 4x (41’)

ACTIVITIES (aim: 40%) ➔ ACHE: ?70%/3 Haven’t written it down, but I’ve been doing 2-4h of music production incl. singing, which means standing. 3-4h music today too. Standing too long, too few breaks, hypering, tough! Even fibro-forum-work today standing a lot. Need to sit/exercise now. Long phone call a bit strenuous but also OK. 80%/2 :face_with_monocle:. After that lots more lying down.
TT :ping_pong: 1:3, last game 21:8 tho, after a break. 70%/5 → 4 :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: neck: bit stiff, doing exercises. GI: stools fairly normal. p1-2 sometimes - GABA not adjusted yet(?), but improving again. jaw: Only pain at/after meals - hazelnuts were too much and tough yesterday evening, 10 midday today were OK - Overall good today, better than ever in the last few weeks…
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Can’t be sure the green beans yesterday didn’t contribute to the histamine-y reactions Friday morning. This evening’s test: 20 hazelnuts. Burnt tongue feeling after these and apple sauce. But not that bad. At night: bit of tongue, nostrils & dry mouth.
Fibro & Touch: 2-3’ touch last night was completely OK. No more touching my wife for a time, cos of…:
Covid-danger: People at my wife’s work probably have CoV, so we’re separating for this week. I could go to a room in another flat, but I think it might work out in our one, as I’ve taken all my stuff out of the shared rooms (bathroom & kitchen). It stresses her tho, so I might be going over at least for the daytime, like tomorrow. Of course you know me: I’m not scared of CoV, I’ll take it like everything else in my stride, if necessary. But I’m not gonna shout for it, you can bet on that. Physical distancing, airing and mask wearing indoors nearer each other, but I feel strangely totally accustomed to it, that was different a year ago.

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th: STILL continuing, hardly any histamine-y symptoms. But pain now increasing again if I overdo it.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! 1x/d DAO? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:00 Chamomile tea.
/23:50 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
Heating on! Warm shower?
/08:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:10 B4 “07:00” EGCg + Fev/MSM + Sily
/09:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Lessons in self-care #259 Covid danger: Watching out.
Reasons to be cheerful #264 Wow, so much music, and acupuncture still partly working, pain is only with exertion, and I can make music with task-switching.