2022-05-09, Monday - 25%
Sleep 65%
Energy (FM + MCAS) 25%
Suppleness 86%
Alertness 85%
Feeling Well - sleep 85%, sleep breaks 80% day 80%
Ache 30%-
Local Pains 10%
MCAS (except energy) 5%
Self-treatments >1h/d
Chinese acupuncture 2.5h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 8h48, up 6x (2h10) ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐
warm / cold shower p0 Sleep 23:30- ear plugs
2:35 5’ 80%/2 p0 st1 sip fw1’ air cream B1
3:50 15’+10’ 80%/2 p0 st1 sip fw15’ air cream gel stomach nauseous Yo.Ni. No help.
4:45 1h30 80%/2 p0 st1 sip fw1h cream stomach nauseous: ate, ear plugs
7:55 5’ 70%/2 p0 st1 sip fw1’ nostrils (ear plugs)
9:35 5’ 80%/2 p0 st1 sip fw1’ air cream (ear plugs) B2-4
-10:28 80%/2 p0
Sum: 30+10h28-(5+15+10+1h30+5+5=)2h10 = 10h58-2h10 = 8h48, up 6x (2h10)
ACTIVITIES (aim: 40%) ➔ ACHE: 80%/3, TT 
and dentist, quite a bit of the day ➔ 70%/3 
ACTIONS ➔ PAINS: 
neck: fairly stiff 
GI: first too hard, then too loose. , jaw: , but filling fell out, had to be repaired, it’s still the question whether the inflammation can come down enough and if it is influencing my fibro versus if I get a substitute and that may also inflame… . Standing etc. OK, arms up could’ve been better
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - #16 on 5th . Sleep not helping any more & +25% GABA helping. I desperately need to track how my sleep has developed this bad!
SELF-PHYSIO (click for details):
Combine: next? RR!!
facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).
Supps May 4th (~25): Supp costs:~277€/m (May 4th) CHANGED: 4 passiflora. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, P-5-P, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” 0PF Cr#1 0mal#1+2 0P5P (0Se) PQQ 0xΩ3 & Qc. Meal: DAO.
/21:40 A3 “21:00” 1PF#1 .6 GABA&.4glu#1 & 0Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:30 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/02:40 B1 “01:00” .6g GABA 0 PF#4
/09:40 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:40 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/11:25 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO
/11:25 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
’Research’ today:
Interestingly, the fibromyalgia diagnostic criteria modified 2016 actually don’t even ask for the severity of pain at all, just for how widespread it is, to exclude all regional pain conditions.
Whilst the Symptoms Severity Score (SSS) only considers fatigue, waking unrefreshed (clever one, that!), cognitive symptoms
and distinguishes mainly “2=moderate, considerable problem, often present” from “3=severe, pervasive, continuous, life-disturbing.”
So they measure fibromyalgianess by the severity of those 3 plus if 3 other symptoms are a “problem”, plus how widespread the pain is.
For me it works: my SSS and my WPI are high, my fibromyalgianess severe Check mark button . And they say it works better than other ways of diagnosing.
Edit / Part 2: Oh, and to come back and clarify why “diagnosis of exclusion” is inappropriate and outdated:
These criteria may be vague, but they are clearer and work better than just a diagnosis of exclusion, which is “We can’t see/find anything”.
There are many diagnoses where docs “can’t find anything”, but they are not all chronic widespread pain diagnoses with fatigue, insomnia etc., which is what fibromyalgia is. So previous arguments clarify that “exclusion” is not a sensible definition.
An early (2009) editorial by Wolfe on “fibromyalgianess” here https://onlinelibrary.wiley.com/doi/epdf/10.1002/art.24553
Lessons in self-care #299 Should have timed TT , seeing as I was playing against someone else without points/games - overdid it, unncecessarily.
Reasons to be cheerful #303 Got a bit done, despite being pretty tired.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…