2022-05-18, Wednesday - 25% Felt in limbo today, not sure what to do with myself, expectations from music & work, but no direct pressure (yet)
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 +1 = 12
Overall Ache Areas (mainly limbs): = 8.
Severity: 30-20% Suppleness (vs. stiffness) 85%
Local Pain Areas (mainly spine): = 3 + (+0jaw left & right, +1 shoulder left). 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3
(Energy 25%)
Waking unrefreshed 3 out of 3
(Sleep quality 80%)
Cognitive symptoms 2 out of 3
(mainly fog; alertness 85%)
Headaches: 0 out of 1
Pain or cramps in lower abdomen: 1 out of 1
(some stomach ache etc., although avoiding triggers diligently)
Depression: 0 out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)
Treatments overview
Self-treatments >1h/d
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 8h03, up 6x (1h12) ✅, ➔ Feeling 80(-70)% well, Ache 2 of 7 🧐, getting up: 80%/3 ->2, not sure whether to get up yet or not. ❌. Started getting slight stress remembering that I'd wanted to write down for yesterday that I'd got the Ache from the 2nd TT game on. Why does that put me on edge a bit? Anyway utmost concentration got it to sleep all the same, by "keeping it in the air" and "diffusing it" mentally. Again mental power at 1:45. Mind over - hypersensitive - matter. Quite a while to wake up or even decide whether it's right to get up or not, lying down didn't help the decision either, so got up, hoping cold showering and earlier bed tonight will work and do the trick.
(cold)warm shower p0 Sleep 23:00-
23:20 20’+20* 80%/2 st1 sip fw1’ ear plugs burnt tongue tip - why?
01:30 17’ 80%/2 p0 st1 sip fw15’ air A4
03:20 5’ 80%/2 p0 st1 sip fw1’ air ear plugs. Overheated, no FCS, so clothes off. lying without duvets for a while to cool down. B1
05:10 5’ 80%/2 p0 st1 sip fw1’ air (ear plugs). Still only a T-shirt on.
6:45 5’ 70%/2 p0 st1 sip fw1’ air nostrils & stomach nauseous & sore throat slightly, (ear plugs)
-8:15
Sum: 1h+8h15-(20+20+17+5+5+5=)1h12 = 9h15-1h12= 8h03, up 6x (1h12)
ACTIVITIES (aim: 40% energy) ➔ ACHE: ?70%/3
TT 
0 (didn’t fit in), so bits of housework, tidying up, cleaning out, praps 1h, ➔ ?80%/2 
(Hehe, 80/2 seems the new normal, with fibro alone 90/1 was normal.)
ACTIONS ➔ PAINS: neck: hurting a bit in bed 
GI: OK . jaw: hurting a bit, left and right.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. 
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - #18 on 17th . (Sleep & +25% GABA helping.) No backlash, except praps the strange 1h yesterday, but that’d be more typical for GABA, never had it for acupuncture up to now.
SELF-PHYSIO (click for details):
airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 2x1’, teeth 2x2’, HWB 0x3’, breath exercises 1’, Timing, hunchback-pillow 25’, palpate 1’, belly 3’, back 12’, aloe vera 1’, massage gun 5’, twist-stretch 1’, hair/nails 15’, neck 1+ 2’,
Combine: next? RR!!
facetime 2x1’, horse stance 1’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/22:20 Chamomile tea.
/01:35 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/03:20 B1 “01:00” .6g GABA PF#4
/08:20 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:20 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:20 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
’Research’ today: No.
Lessons in self-care #308 It’s OK to feel at a loss what to do. Praps that means progress, i.e. I’m capable of doing more than I feel I should… and gathering momentum?
Reasons to be cheerful #312 Almost got rid of a blue itchy blemish under right foot using tea tree oil on it daily after the shower.
Things I love about myself #7 Grown fairly wise.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…