JayCS’s Fibro Blog

2022-05-19, Thursday - 25% - drifting a bit, but OK-ish, TT 3:1

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11
Overall Ache Areas (mainly limbs): = 8.
Severity: 20% Suppleness (vs. stiffness) 80%
Local Pain Areas (mainly spine): = 3. 5%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3

(Energy 25%)
Waking unrefreshed 3 out of 3
(Sleep quality 85%.)
Cognitive symptoms 2 out of 3
(mainly fog; alertness 85%)

Headaches: 0 out of 1
Pain or cramps in lower abdomen: 1 out of 1

(some stomach ache etc., although avoiding triggers diligently)
Depression: 0 out of 1

Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 5%
(except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 9h13, up 2x!! (60') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅/🧐. Essentially 2 long stints of 4h and 5h, interrupted by a break of >1h, cold showering a 2nd time helping the 2nd stint. Less clothes after.

cold shower p0 Sleep 22:50-
03:00 15’ 70%/2 p0 st1 sip fw1’ air nostrils stomach nauseous A4. Stomach suggests not adding the 21:00 quercetin to the 19:00 one, but leaving it out instead. Don’t take Passiflora #4 in B1, just the GABA.
03:35 45’ 70%/2 p0 st1 sip fw30’ air (nostrils) stomach nauseous itchy scalp → Calendula essence (stings) ear plugs. Awake → FCS.
-9:03!
Sum: 1h10+9h03-(15+45=)60 = 10h13-1h = 9h13, up 2x (60’).

ACTIVITIES (aim: 40% energy)ACHE: 80%/2
TT :ping_pong: 3:1, Ache like usually coming up during the 2nd game, later online meeting (mainly listening) work ➔ 80%/2 :white_check_mark:.
ACTIONSPAINS: :white_check_mark: neck better, GI & jaw apparently quite good :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #18 on 17th :face_with_monocle:. (Sleep & +25% GABA helping.). Still OK.

SELF-PHYSIO (click for details):

:white_check_mark: airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, neck 1+ 2’, aloe vera 1’, yoga/stretching 5’,
Combine: next? RR!!
:x: facetime 2x1’, horse stance 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/03:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/9:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/9:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/9:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/11:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/11:00 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #309 Bit of colleagues Yin Yoga online again, but only 15’…
Reasons to be cheerful #313 Drifting. Actually TT most days is always a reason.
Things I love about myself #8 Very creative (fairly competently)