2022-05-20, Friday - 15% (only TT 4:1), dragging myself thru the day.
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11
Overall Ache Areas (mainly limbs): = 8.
Severity: 30-40% Suppleness (vs. stiffness) 80%
Local Pain Areas (mainly spine): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3
(Energy 15%)
Waking unrefreshed 3 out of 3
(Sleep quality 80%)
Cognitive symptoms 2 out of 3
(mainly fog; alertness 80%)
Headaches: 0 out of 1
Pain or cramps in lower abdomen: 1 out of 1
(some stomach ache etc., although avoiding triggers diligently)
Depression: 0 out of 1
Feeling Well: sleep 70%, sleep breaks 70%, day 70%!
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)
Treatments overview
Self-treatments <1h/d
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 9h15, up 5x (1h30), 1-2h dozing ✅, but ➔ Feeling 80-70% well, Ache 2 of 7 🧐/ ❌, getting up: 70%/2 ❌
cold shower p0 Sleep 22:50- ear plugs
00:30 5’ 80%/2 p0 st1 sip fw1’ nostrils (ear plugs) gel dozing, so →
01:10 5’ 80%/2 p0 st1 sip fw1’ air (ear plugs) FCS
03:10 5’ 70%/2 p0 st1 sip fw1’ (ear plugs). Some bloating / pressure / wind. B1.
04:25-5:20 55’ 70%/2 p0 st1 sip fw15’ air nostrils stomach nauseous despite less quercetin (ear plugs) 6.
8:10 20’ 80%/2 p0 st1 sip fw1’ stomach nauseous (ear plugs) B2-4
-09:35
Sum: 1h10+9h35-(5+5+5+55+20=)1h30 = 10h45-1h30 = 9h15, up 5x (1h30), 2h dozing?
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3, TT 
4:1 ➔ 70%/4, not much less before, not coming down much after 
/
, actually 70%/4-3 all day, dragging myself thru.
ACTIONS ➔ PAINS: 
neck: OK-ish . GI: pressure in the late afternoon and evening, partly not going in time, partly maybe food, praps coconut soy joghurt in the afternoon, and something else… Hopefully the chamomile tea at night will help a bit… jaw: Took 5 minutes to get my main problem tooth free of food again.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . 21:00 2 half walnuts mixed in with veggies, after 1 DAO.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - #18 on 17th . (Sleep & +25% GABA helping.) #19 on 27th.
SELF-PHYSIO (click for details):
airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 1x2’, hunchback-pillow 15’,
Combine: next? RR!!
facetime 2x1’, HWB 3’, breath exercises 4’, Timing, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. Changing quercetin (taking 2nd one earlier in evening with meal, or omitting that dose) didn't improve stomach at night. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc.
Meal: 1 DAO
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/22:30 Chamomile tea.
/22:50 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
Help, overdose at 23:00!?
/03:10 B1 “01:00” .6g GABA PF#4
/08:30 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:30 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:00 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:55 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
’Research’ today: No.
Lessons in self-care #310 Toning down is fine if I’m dragging myself thru. Slowly preparing for a gig on Sunday.
Reasons to be cheerful #314 Nice songs I’ve selected, I’m sure I’ll get motivated soon.
Things I love about myself #9 Varied. (Wide ranges, colourful.)
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…