JayCS’s Fibro Blog

Symptoms & Treatments
821

2022-05-23, Monday - 20% (I thought 25-30% first, how “funny”). OK, considering it’s “The Aftermath”. So much churning me up! Ally’s Yoga Nidra once again helped thru the rough night, much more than my own attempts (tonight & recently)… Taking it very easy, like planned. TT :ping_pong: 1:3, not much chance.

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11
Overall Ache Areas (mainly limbs): = 8. Severity: 20%-? Suppleness (vs. stiffness) 85%
Local Pain Areas (mainly spine): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)

Headaches: 0 out of 1 (Rare, mainly in the weeks after the jabs)
Pain or cramps in lower abdomen: 1 out of 1 (despite avoiding triggers: stomach & gut)
Depression: 0 out of 1 (No; seldom blue)

Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 25% (except energy, subsumed under FM-fatigue above) Being outside a bit got chokey throat and sinuses for ~5h.

Treatments overview

Self-treatments >1h/d (Ally’s Yoga Nidra for hours)
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h45, up 5x (1h50) ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐. Couldn't manage a cold shower for "Ache" or something. ❌

warm cold shower p0 Sleep 23:00- ear plugs
0:40 5’ 80%/2 p0 st1 sip fw3’ air (ear plugs) A4
01:02 40’ 80%/2 p0 st1 sip fw1’ (ear plugs) 6 awake/unrestful B1, dozing after for praps 1h
3:55 20’ 80%/2 p0 st1 sip fw1’ air belly ache, stomach slightly nauseous, sore throat (ear plugs). Video + Mail. doze.
4:40-5:15 35’ 80%/2 p0 st1 sip/muesli fw20’ air stomach nauseous (ear plugs) FCS + Yo.Ni.
8:45-8:55 10’ 80%/2 p0 st1 sip fw1’ air stomach ache (nauseous) (ear plugs) B2-4 + YN
-9:35
Sum: 1h+9h35-(5+40+20+35+10)=1h50, 10h35-1h50 = 8h45, up 5x (1h50)

ACTIVITIES (aim: 40% energy) ➔ ACHE: ?70%/3
TT :ping_pong: 1:3 ➔ 70%/3-4 :x: and 2 small cycle trips (10’+20’), 5+15’ shops ➔ 80%/2) :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck :white_check_mark: GI: Now it’s definite - I’m getting a bit of heartburn every time I drink some sheep’s milk! :face_with_monocle: jaw :white_check_mark:. I choked on my own saliva which ended up coughing, burping and almost vomiting, my wife held her hands on me to calm it down.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x: Sinuses & throat from being outside. :x:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #18 on 17th :face_with_monocle:. (Sleep & +25% GABA helping.) #19 on 27th.

SELF-PHYSIO (click for details): 49' + Yoga Nidra 3h+

:white_check_mark: airing 4x2’, cream fc/ey/hd/ft 2x1’, teeth 2x2’, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, Y. Nidra 3h, plantar/calf stretch 2’, neck 1+ 2’,
Combine: next? RR!!
:x: facetime 2x1’, cold shower (10’), HWB 3’, breath exercises 4’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, loins 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO. (ate muesli + baked beans & chocolate - hope I survive that - without DAO :wink:
/22:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:45 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:45 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/08:55 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:55 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:55 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/13:05 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/13:05 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/19:50 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #313 Kept everything toned down.
Reasons to be cheerful #318 Lots of positive feedback.
Things I love about myself #12 Cheerful.