JayCS’s Fibro Blog

Symptoms & Treatments
843

2022-06-10, Friday - Energy 15 → 10%(5%) / Sleep 70%

Positive summary of symptom-%s:
Σ(+): energy 15-10%, slp 70%, Acheless 60%, painless 85%, alert 60%, GI 95%, feeling 60%, PT >1h - like a severe flu today

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 40% Suppleness (vs. stiffness): 75%
Local Pain Areas (mainly spine, 3): = 3. 15%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15-10-5-10%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 60%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 70%, day 70-60%
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above).

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 7h30, up 4x (1h45) ✅/❌, ➔ Feeling 70-80% well, Ache 2 of 7 ❌, getting up: 70%/2-3 ❌ Long break, probably due to not cold showering cos of acupuncture. Gotta sort out whether that's really necessary! Cold showering in the morning before acupuncture didn't help. But also should have taken the 5th passiflora at 0:50, esp. since I went to bed earlier. Good break management & discipline though, no time wasting.

warm shower (after acupuncture) p0 Sleep 22:05- ear plugs
A4? 0:45 5’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs)
1:25-2:40 75’ 70%/2/15% p0 st1 sip fw40’ air (ear plugs) LBU due to warm shower (acupuncture) 2:40 B1 20’ Yo.Ni. cream
3:05 6 15’ 70-80%/2/15% air p0 st0 sip fw0’
6:50 10’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) B2-4
-7:20
Sum: 1h55+7h20-(5+75+15+10=)1h45 = 9h15-1h45 = 7h30, up 4x (1h45)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 :cross_mark: work (& fw) ➔ 60%/4 :cross_mark:, breath-holding ➔ 70%/4 :cross_mark:, 2 shops short in slo-mo (walking back instead of cycling) ➔ 60%/4 :cross_mark:, rest, cycle-walk ➔ 60%/3 :cross_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck :face_with_monocle:/:white_check_mark:/:cross_mark:, GI :white_check_mark: except wind 30’ after 3 small potatoes :face_with_monocle:, jaw :white_check_mark:, cold feet :cross_mark: (from Ache or from cotton instead of woolen socks?) AND… ? Most things not easy, but not that much specifically/locally, 1xp1, not able to talk much :cross_mark: (occasional laughing etc.).
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :cross_mark: soy milk, bit of basmati rice, new herb seasoning combination, blueberry cow yoghurt - not always with DAO: bit of belly ache the evening before, but OK tonight, so if at all praps getting used to it or something else… Nostrils & sinuses starting up at 14:30 after 2 shops in slo-mo.
Fibro & Touch: :white_check_mark:. Bit of touch is OK, but I want to be left alone a lot, and prefer no talking, meeting etc.
Covid-danger: :white_check_mark: Not out much and almost everyone in the shops was masked.
Fog: :cross_mark:. Interesting how it’s best for me to be alone, just typing on my laptop, but outside interaction, like listening to anyone (son on phone, wife etc.) costs lots of energy or isn’t well possible. And for typing I need to see (and for music hear) but my eyes are “half”-shut all day today and since Tuesday.

Treatments

Docs:
Chinese Acupuncturist - #21 on 9th :white_check_mark: (Sleep & +25% GABA helping.) Still seems OK. Not cold showering was probably the cause of the long sleep break: Is it really necessary? Next appointment #22 on 21st. However it’s not mainly this that is masking the effect of the acupuncture, it’s most Tuesday’s allergist appt., coupled with work stress.

SELF-PHYSIO (click for details): 100'...

:white_check_mark: airing 4x2’, cold shower 0x(10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 3’, breath exercises 4’ = 20’, Timing, hunchback-pillow 15’, Y. Nidra 20’, massage gun 5’ = 60’, neck 1+ 2’, palpate 1’, belly 3’, back 12’, aloe vera 1’, breath-hold 12’ = 91’ + breath-hold 9’
Combine: next?
:x: neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

[details=“Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 4 GABA (taken it out of the the “details” now, and put the 5th passiflora in, cos I seem to be stuck with it). DAO seldom. PLANNED/TAKEN TODAY: click for details:”]
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:50 A1/2 “19:00” PF#1+2 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:35 A3 “21:00” PF#3 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
? A4 “23:00” PF#4 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/02:40 B1 “01:00” PF#5
/07:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/07:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:20 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/17:00 (whoops!) D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
[/details]

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #332 Shops just to at least be outside a few minutes with an aim.
Reasons to be cheerful #335 I’m alive! :sunglasses:
Things I love about myself #30 Content with little.