2022-06-16, Thursday - Energy 10% / Sleep 65%
Rough night, esp. from an MCAS-histaminey flare (burney itchey torso & arm skin, hot flash) but the cortisol from sleeping much too little is making me feel quite OK - gotta keep it toned down and go to bed earlier tonight.
Positive summary of symptom-%s:
Σ(+): energy 10%, slp 65%, Acheless 75-80%, painless 90%, alert 85%, GI 95%, feeling 85%, PT >2h
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 25-20% Suppleness (vs. stiffness): 80%
Local Pain Areas (mainly spine, 3): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 10%)
Waking unrefreshed 3 out of 3 (Sleep quality 65%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 70-80%, sleep breaks 80-70%, day 85%
MCAS / allergic 20-10% (except energy, subsumed under FM-fatigue above)
Treatments overview
Self-treatments (‘PT’) >2h/d
Chinese acupuncture 0h this week, see how that goes
Triggers & resulting Symptoms
SLEEP (click for details): 6h13, up 5x (2h08) ❌, ➔ Feeling 80-70% well, Ache 2-3 of 7 🧐, getting up: 75%/2 🧐. Skin burning and prickling After my long sleep break, my body had cooled and calmed down and I felt very comfortable snuggling in, whether sleep or no. However my 'muscles' (al over?) vibrating, praps a little *too cold? Eye mask: The pressure causes slight pain in my left eyebrow, which to me confirms the old alternative health practitioner diagnosis of trigeminus rather than the neurologist suspicion of cluster headache. Feeling the exact spot it's not where I once got a gash from a fist, to the left (lateral), but in a small recess/dent more to the right (central)
cold shower p0 6 Sleep A4 at 00:55-
2:20 5’ 80%/2(15% p0 st3 sip fw12’ B1.
4:05 6’ 70%/2/?05% p0 st3 sip fw1’ air ear plugs
5:30 5’ 70%/3/15% p0 st3 sip fw1’ air cream (ear plugs) itchy burning skin on arms, esp. right. Work thoughts, good ideas. 5:55 Overheating too → bedclothes off & Yo.Ni. 10’
6:05 1h30 80%/2/10% p0 st1 sip fw1’ Mind tired, body awake, mind awake & tired, so sleep break: work. 7:35 Yo.Ni. 30’ B2-4
8:48 22’ 80%/2/10% p0 st1 sip fw15’ 9:10 Yo.Ni. 10’
-9:20
Sum: 9:20-55-(5+6+5+90+22=)2h08 = 8h25-2h08 = 6h13, up 5x (2h08)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/3-2, lots of rest, mainly working like mad, but keep the histaminey symptoms down fairly well all the same, one short 20’ casual meetings/social for work 
with mask 
, work ➔ 85%/2 
/
(work distracting from slight skin and sinuses burn)
ACTIONS ➔ PAINS: except: neck GI (or rather a bit of ISBC! ), jaw , 0xp1-2 . Did everything so carefully that I’ve no idea if anything’t’d’ve hurt…
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. 
. Praps try avocado, olives, vinegar, mustard and soy/tofu again? But what about fatigue? 6:00 itchy burning skin on arms, esp. right. 9:20 again, a bit different, after I’d just snuggled in to try a last sleep stint. Also itchy burning and a bit of sinuses, but I did wanna know: still a bit of baked beans again, is it really them? Can’t imagine what else.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - #21 on 9th (Sleep & +25% GABA helping.) Still seems good. Next appointment #22 on 21st.
SELF-PHYSIO (click for details): 2h06
airing 4x2’, cold shower 1x(10’), teeth 2x2’, breath exercises 3’, Timing, hunchback-pillow 15’, Y. Nidra 50’, 1h30 palpate 1’, belly 3’, back 12’, yoga/stretching 20’ (or yesterday),
Combine: next?
cream fc/ey/hd/ft x1’, HWB 3’, massage gun 5’, neck 1+ 2’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, aloe vera 1’, twist-stretch 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 12th (28 supps): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & back to 5 GABA, changing the time of the 5th from 1:00 to 19:00 on June 14th may have helped so much that I could leave out the 5th passiflora.... 3x2x0.6 Carnitin is back as of 7th June, P5P & Fev as of 11th, Rhodiola & EGCg still aren't, magnesium malate in the early evening and glycinate in the morning still in, try doubling that as of June 15th, adding a second pine bark for energy June 11th and magnolia/honokiol increased to 2 in the evenings for sleep as of June 12th. DAO seldom. Copper out as of June 10th. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, Cu, EGCg, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 12th (28 supps): ALA .2g, B2 2x.1g, B12 5mg/3m, C 2x.5g, Cr 3x1g, usually 0 DAO before meals, D3 up to 2-3/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4-5x.6g=~2.8g, Gi 3x?, Glu:~0.8g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, Mg Mal 1x45mg, P5 27mg, Pf 5x.35g, pine bark 2x.5g, Pq 1, Q10 (ubn) !1x.1g/d, Qc 4x.5g/d, Rs (50%) 2x.4g, Ro 0x.3g(+9mgC), Sa .1g, Sily (80%)x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:55 A1/2 “19:00” PF#1+2 GABA#1 Cr#1 1mal#1, 1P5P (0Se) 1PQQ 3mlxΩ3 & Qc. Meal: 0 DAO
/21:10 A3 “21:00” PF#3 .6 GABA#2&.4glu#1 & 1Lut (slp!) & Qc +0NAC
0:55 Chamomile tea.
0:55 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid + 0 Rupafin
2:20 B1 “01:00” PF#5
7:55 B2 “07:00” +ALA+1x pine bark, (teeth) +0 !Ro
7:55 B3 “07:00” (-30’) Q10#1 Qc Rs SAM-e
7:55 B4 “07:00” 0xEGCg + Fev/MSM + Sily
9:50 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) .1gB2, gink#1, 0 Cu (or Zn) 1xHon, 0 DAO +1gly + 1x pine bark#2
9:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
12:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
15:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GABA#5,gink#3,0gly#3+4, 0NAC#5 DRINK!
15:40-16:40 Meal
18:40 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jun 12th
Pf: 1A1+1A2+1A3+1A4+1B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. 4-5xGa: A3,A4,B1?,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 1Gly:C2 2Hon:A2 1Mal:A2 Qc: A2.A3.B3.D4 (0)Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: Yesterday: In an MCAS-video on HU a doc said a gluten-free plant-based diet lacks methionine. But I’ve found that’s no problem for me, because firstly I’m not completely gluten-free, secondly I do sometimes use cow, goat and sheep products, and thirdly I have quite a amount of foods high in methionine.
Lessons in self-care #338 Sloooow! Tranquilla Treadtrue - literal translation of the German name of a tortoise by Michael Ende, author of the Neverending Story and Momo. She manages to get to an anniversary exactly one year later… so just in time… 
Reasons to be cheerful #341 Managing to enjoy today, working without pressure, keeping to the sweet spots.
Things I love about myself #36 I like trying to get and keep happy, altho my life never looked as if that’d be particularly possible!
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…