2022-06-20, Monday - Energy 15% / Sleep 70%
EARLIER EARLIER EARLIER EARLIER EARLIER EARLIER - REPEAT: E…
Remember one small focal seizure yesterday at 17:45, after 1st stint of cajon playing!: So is that cortisol too??
And cortisol now seems to work on me praps a bit like cocaine would… short energy flash and then long bad, sour & bitter… just not quite as bad, and better control. Hangover I’d said before. Depends of course on the drug, but energy flash and feeling good may be compared best to cocaine or amphetamine - no idea.
Positive summary of symptom-%s:
Σ(+): energy 15%, slp 70%, Acheless 80%, painless 90%, alert 85%, GI 80%, feeling 85%, PT <1h
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 20% Suppleness (vs. stiffness): 85%
Local Pain Areas (mainly spine, 3): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%?)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 85%
(Actually a long sleep break tonight started with around 60% and got better, not worse, to 80%)
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above)
Treatments overview
Self-treatments (‘PT’) <1h/d (but TT)
Chinese acupuncture 1h15 again this week.
Triggers & resulting Symptoms
SLEEP (click for details): 8h20, up 6x (2h) ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 75%/2-3 ❌ (forced up by a strange stomach problem). The long 1.5h break may have been lack of discipline, but also sparked by not feeling well, better due to the break. It felt OK and I could otherwise sleep well without help of Yoga Nidra etc.
cold shower p0 Sleep 22:15-
22:59 5’ 70%/2/15% p0 st1 sip fw1’ feverish (ear plugs)
00:09 8’ 70%/2/15% p0 st1 sip fw2’ air gel (ear plugs) A4
1:28 1h32 70%/2/15% p0 st1 sip fw2’ air, slightly sinuses (ear plugs) B1 → light sleep, but OK. Own fault. However feeling a lot better now than before the long break, so perhaps there was an underlying sense & reason…
3:57 5’ 80%/2/10% p0 st1 sip fw1’ cream (ear plugs)
5:42 5’ 80%/2/10% p0 st1 sip fw1’ (nostrils) (ear plugs)
7:08 5’ 80%/2/10% p0 st1 sip fw1’ mouth dry hurting: gel (ear plugs)
-8:35 strongly “nauseous” or somehow difficult to define bad tummy.
Sum: -1h45+8h35-(5+8+92+5+5+5=)2h = 10h20-2h = 8h20, up 6x (2h)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, TT 
➔ 60%/4, more histaminey burning than the usual fibro Ache. OK after, managed quite a bit of housework (3x20’) for a change (since less work pressure) but a bit feverish-knackered. Quite a lot of work, but now without pressure, getting bits’n’bobs done. incl. phoning with colleagues etc. 6x5’, plus 45’ family meetings/social 
➔ 80-85%/2-3 
/
ACTIONS ➔ PAINS: except: neck: No problems at night recently! So not actively doing much stretching, just a bit. GI:8:35 strongly “nauseous” or somehow difficult to define bad tummy 
. BTW I’m generally now almost always managing to avoid esophagus blocks. To make sure I immediately spit out food as soon as I feel any pressure there, so no clot can build up. However yesterday morning I didn’t wait long enough after the 15 supp capsules before starting to eat my muesli, and so it blocked and trying to relieve the pressure by pressing around, it came up again - but the supps stayed in . Jaw: very slight once . 2xp1-2, once at 14:00 again, that seems a bit of a regular/pattern.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? But what about fatigue? Interesting after TT to get burning reactions, sinuses and skin, instead of the usual fibro Ache. Soy lassi definitely no problems, now I have to tackle the hard cheese again, before it goes off, why not try double DAO?
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - #21 on 9th (Sleep & +25% GABA helping.) Next appointment #22 on 21st, tomorrow. Hope that goes better. Want to ask if I can cold shower that evening after all.
SELF-PHYSIO (click for details): 43'. I'd like to try a small workout sometime soon again. Praps everything for 10 seconds. Last time 30 push ups I got shoulder problems, but maybe 10 then.
airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 1x1’, teeth 4x2’, HWB 0’, breath exercises 3’, Timing, hunchback-pillow 5’, Y. Nidra 3’, twist-stretch 3’, aloe vera 2x1’, = 413…
Combine: next? palpate 1’, belly 3’, back 12’,
massage gun 5’, neck 1+ 2’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 16th (28 supps): Supp costs:~325€/m (Jun 16th) Found a special offer for my exact ginkgo, resveratrol, as well as a good rhodiola product, and ordered a stock for 1.5 years, costing 670€ (37€/m). CHANGED: 5 (sometimes 4) passiflora & 5 GABA, first at 19:00, all ones that were out are back, Fev as of 12th, P5P a bit later, EGCg 15th. GI harder from something, maybe EGCg. My old rhodiola is still not available, but found a good substitute product and ordered that. DOUBLED: both magnesiums, & pine bark to 2 for energy, & B2 to 4x0.05g as my product has less, & magnolia/honokiol to 2 in the *evenings for sleep (12th). DAO seldom, but need to be more careful. No more copper. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, Cu, EGCg, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 12th (28 supps): ALA .2g, B2 2x.1g, B12 5mg/3m, C 2x.5g, Cr 3x1g, usually 0 DAO before meals, D3 up to 2-3/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4-5x.6g=~2.8g, Gi 3x?, Glu:~0.8g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, Mg Mal 1x45mg, P5 27mg, Pf 5x.35g, pine bark 2x.5g, Pq 1, Q10 (ubn) !1x.1g/d, Qc 4x.5g/d, Rs (50%) 2x.4g, Ro 0x.3g(+9mgC), Sa .1g, Sily (80%)x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:40 A1/2 “19:00” PF#1+2 GABA#1 Cr#1 1mal#1, 1P5P (0Se) 1PQQ 3mlxΩ3 & Qc. Meal: 0 DAO
Meal 20:00-21:00 Gum 21:00?-
/21:40 A3 “21:00” PF#3 .6 GABA#2&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/0:10 Chamomile tea.
/0:10 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid + 0 Rupafin
/1:30 1h303 B1 “01:00” PF#5 fw1h05…
Heating on! Warm shower?
/07:10 B2 “07:00” +ALA+1x pine bark, (teeth) +0 !Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc Rs SAM-e
/07:10 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/08:40 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) .1gB2, gink#1, 0 Cu (or Zn) 1xHon, 0 DAO +1gly + 1x pine bark#2
/08:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
Meal - Gum -
/12:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “12:30” 0psyllium
/14:35 D2/3 “13:00” .5gC#2,Cr#3,!.6GABA#5,gink#3,0gly#3+4, 0NAC#5 DRINK!
Meal 14:35-15:45 Gum 16:16-
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jun 12th
Pf: 1A1+1A2+1A3+1A4+1B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. 4-5xGa: A3,A4,B1?,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 1Gly:C2 2Hon:A2 1Mal:A2 Qc: A2.A3.B3.D4 (0)Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
’Research’ today: No.
Lessons in self-care #342 Making sure to get things done early, esp. stressy stuff.
Reasons to be cheerful #345 At last getting on top of work.
Things I love about myself #40 Like times a-changing - from more to do to less and back.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…